Guest guest Posted December 28, 2009 Report Share Posted December 28, 2009 Hearing from you puts a smile on my face, Miranda. Prayers do work! B Barbara McD PF--Sept 08; Sjogren's--Apr 09; Reynaud's--seems like forever Beautiful Western NC Counting my blessings: #12 - Sharing. To: Breathe-Support Sent: Mon, December 28, 2009 1:39:34 PMSubject: I'm back online ! Hello everyone,I came home a week ago but was so happy to be with my kids again I didnt even unpack the computer till today. I had such a good X-mas with the kids. I am doing GREAT now. I only need the vicadin at night and Tylenol works during the day. It is just muscle soreness in my boob area. I went to clinic last Thursday and everything was good. I go again tomorrow. I was even able to go to the mall and to the park. ALL WITH NO O2 !!! The docs are saying my IPF was from LUPUS but I wnt to see the pathology report myself. I will be contacting records dept at hospital and get copy of all records. I honestly dont care where it came from as long as it doesnt happen again...and my kids are safe from it !! So..I will be having them tested for Lupus if possible.I hope everyone had a very merry chistmas !MirandaBi-latteral Lung transplant 12/06/09 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2009 Report Share Posted December 28, 2009 Hi Miranda,You sound so happy, I am thrilled for you. Â Glad you got to spend Christmas home with your kids and glad you got 2 brand new lungs for your Christmas....Couldn't get much better could it?Keep it up girl.Roxanne, 59, South Carolina 2006 Asthma/ PF 2008 PF/ Sarcoidosis/Gerd I pray you enough.....Subject: I'm back online !To: Breathe-Support Date: Monday, December 28, 2009, 1:39 PM Â Hello everyone, I came home a week ago but was so happy to be with my kids again I didnt even unpack the computer till today. I had such a good X-mas with the kids. I am doing GREAT now. I only need the vicadin at night and Tylenol works during the day. It is just muscle soreness in my boob area. I went to clinic last Thursday and everything was good. I go again tomorrow. I was even able to go to the mall and to the park. ALL WITH NO O2 !!! The docs are saying my IPF was from LUPUS but I wnt to see the pathology report myself. I will be contacting records dept at hospital and get copy of all records. I honestly dont care where it came from as long as it doesnt happen again...and my kids are safe from it !! So..I will be having them tested for Lupus if possible. I hope everyone had a very merry chistmas ! Miranda Bi-latteral Lung transplant 12/06/09 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2009 Report Share Posted December 28, 2009 Miranda,Welcome home! Glad you could spend Christmas with your kids. It sounds like your new lungs are working perfectly. Thank god for donors! Keep on keeping on.Kathy ILD 3/08Subject: I'm back online !To: Breathe-Support Date: Monday, December 28, 2009, 10:39 AM Hello everyone, I came home a week ago but was so happy to be with my kids again I didnt even unpack the computer till today. I had such a good X-mas with the kids. I am doing GREAT now. I only need the vicadin at night and Tylenol works during the day. It is just muscle soreness in my boob area. I went to clinic last Thursday and everything was good. I go again tomorrow. I was even able to go to the mall and to the park. ALL WITH NO O2 !!! The docs are saying my IPF was from LUPUS but I wnt to see the pathology report myself. I will be contacting records dept at hospital and get copy of all records. I honestly dont care where it came from as long as it doesnt happen again...and my kids are safe from it !! So..I will be having them tested for Lupus if possible. I hope everyone had a very merry chistmas ! Miranda Bi-latteral Lung transplant 12/06/09 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2009 Report Share Posted December 28, 2009 miranda so glad you are doing well and are at home Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- Subject: I'm back online !To: Breathe-Support Date: Monday, December 28, 2009, 1:39 PM Hello everyone,I came home a week ago but was so happy to be with my kids again I didnt even unpack the computer till today. I had such a good X-mas with the kids. I am doing GREAT now. I only need the vicadin at night and Tylenol works during the day. It is just muscle soreness in my boob area. I went to clinic last Thursday and everything was good. I go again tomorrow. I was even able to go to the mall and to the park. ALL WITH NO O2 !!! The docs are saying my IPF was from LUPUS but I wnt to see the pathology report myself. I will be contacting records dept at hospital and get copy of all records. I honestly dont care where it came from as long as it doesnt happen again...and my kids are safe from it !! So..I will be having them tested for Lupus if possible.I hope everyone had a very merry chistmas !MirandaBi-latteral Lung transplant 12/06/09 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2009 Report Share Posted December 28, 2009 Oh Miranda, To be able to go with no O2! What a gift. Have a Wonderful Wonderful New Year! Dyane Phoenix > > Hello everyone, > > I came home a week ago but was so happy to be with my kids again I didnt even unpack the computer till today. I had such a good X-mas with the kids. I am doing GREAT now. I only need the vicadin at night and Tylenol works during the day. It is just muscle soreness in my boob area. I went to clinic last Thursday and everything was good. I go again tomorrow. I was even able to go to the mall and to the park. ALL WITH NO O2 !!! The docs are saying my IPF was from LUPUS but I wnt to see the pathology report myself. I will be contacting records dept at hospital and get copy of all records. I honestly dont care where it came from as long as it doesnt happen again...and my kids are safe from it !! So..I will be having them tested for Lupus if possible. > > I hope everyone had a very merry chistmas ! > > Miranda > Bi-latteral Lung transplant 12/06/09 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2009 Report Share Posted December 28, 2009 Miranda So happy you're home and well. However, I was shocked you were allowed to go to the mall and risk exposure to others. I'm use to post-transplant patients being fairly much kept away from public situations for a while. Perhaps they are changing the instructions issued. > > Hello everyone, > > I came home a week ago but was so happy to be with my kids again I didnt even unpack the computer till today. I had such a good X-mas with the kids. I am doing GREAT now. I only need the vicadin at night and Tylenol works during the day. It is just muscle soreness in my boob area. I went to clinic last Thursday and everything was good. I go again tomorrow. I was even able to go to the mall and to the park. ALL WITH NO O2 !!! The docs are saying my IPF was from LUPUS but I wnt to see the pathology report myself. I will be contacting records dept at hospital and get copy of all records. I honestly dont care where it came from as long as it doesnt happen again...and my kids are safe from it !! So..I will be having them tested for Lupus if possible. > > I hope everyone had a very merry chistmas ! > > Miranda > Bi-latteral Lung transplant 12/06/09 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2009 Report Share Posted December 28, 2009 Hi Miranda, I'm so glad to hear that you are doing well. You give me some confidence about getting a transplant. I was leaning toward not going that route, but maybe I'll think about it some more. Bless you and continue to do well. Adrienne To: Breathe-Support Sent: Mon, December 28, 2009 1:39:34 PMSubject: I'm back online ! Hello everyone,I came home a week ago but was so happy to be with my kids again I didnt even unpack the computer till today. I had such a good X-mas with the kids. I am doing GREAT now. I only need the vicadin at night and Tylenol works during the day. It is just muscle soreness in my boob area. I went to clinic last Thursday and everything was good. I go again tomorrow. I was even able to go to the mall and to the park. ALL WITH NO O2 !!! The docs are saying my IPF was from LUPUS but I wnt to see the pathology report myself. I will be contacting records dept at hospital and get copy of all records. I honestly dont care where it came from as long as it doesnt happen again...and my kids are safe from it !! So..I will be having them tested for Lupus if possible.I hope everyone had a very merry chistmas !MirandaBi-latteral Lung transplant 12/06/09 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2009 Report Share Posted December 28, 2009 HURRAY! I'll bet this was your best Christmas EVER. I'm SO happy for you, Miranda. I wanted so much to visit you in the hospital but had an accident & ended up in Ariz instead. Such is life. I'm just really, really happy for you. Just keep hugging those kids & have a terrific New Year's. Cees, S Calif IPF/UIP 10/08 > > Hello everyone, > > I came home a week ago but was so happy to be with my kids again I didnt even unpack the computer till today. I had such a good X-mas with the kids. I am doing GREAT now. I only need the vicadin at night and Tylenol works during the day. It is just muscle soreness in my boob area. I went to clinic last Thursday and everything was good. I go again tomorrow. I was even able to go to the mall and to the park. ALL WITH NO O2 !!! The docs are saying my IPF was from LUPUS but I wnt to see the pathology report myself. I will be contacting records dept at hospital and get copy of all records. I honestly dont care where it came from as long as it doesnt happen again...and my kids are safe from it !! So..I will be having them tested for Lupus if possible. > > I hope everyone had a very merry chistmas ! > > Miranda > Bi-latteral Lung transplant 12/06/09 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2009 Report Share Posted December 28, 2009 Miranda I'm so happy you are doing well, and enjoying your time with your family. Keep going!!!!!!!!!!!!!!!!!!!! Gascoigne SD, 50 yrs old, Renaud's 2008, IPF 7/2009To: Breathe-Support Sent: Mon, December 28, 2009 12:39:34 PMSubject: I'm back online ! Hello everyone, I came home a week ago but was so happy to be with my kids again I didnt even unpack the computer till today. I had such a good X-mas with the kids. I am doing GREAT now. I only need the vicadin at night and Tylenol works during the day. It is just muscle soreness in my boob area. I went to clinic last Thursday and everything was good. I go again tomorrow. I was even able to go to the mall and to the park. ALL WITH NO O2 !!! The docs are saying my IPF was from LUPUS but I wnt to see the pathology report myself. I will be contacting records dept at hospital and get copy of all records. I honestly dont care where it came from as long as it doesnt happen again...and my kids are safe from it !! So..I will be having them tested for Lupus if possible. I hope everyone had a very merry chistmas ! Miranda Bi-latteral Lung transplant 12/06/09 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2009 Report Share Posted December 28, 2009 Miranda, What a wonderful way to welcome in a new year...New Lungs!!! Happy New Lungs!!!! Z fibriotic NSIP/05 Z 65, fibriotic NSIP/05/PA And “mild” PH/10/07 No, NSIP was not self-inflicted…I never smoked! Potter, reader,carousel lover and MomMom to Darah and Sara “I’m gonna be iron like a lion in Zion” Bob Marley Vinca Minor-periwinkle is my flower Miranda wrote: Hello everyone, I came home a week ago but was so happy to be with my kids again I didnt even unpack the computer till today. I had such a good X-mas with the kids. I am doing GREAT now. I only need the vicadin at night and Tylenol works during the day. It is just muscle soreness in my boob area. I went to clinic last Thursday and everything was good. I go again tomorrow. I was even able to go to the mall and to the park. ALL WITH NO O2 !!! The docs are saying my IPF was from LUPUS but I wnt to see the pathology report myself. I will be contacting records dept at hospital and get copy of all records. I honestly dont care where it came from as long as it doesnt happen again...and my kids are safe from it !! So..I will be having them tested for Lupus if possible. I hope everyone had a very merry chistmas ! Miranda Bi-latteral Lung transplant 12/06/09 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2009 Report Share Posted December 28, 2009 Miranda! Welcome back! Glad to hear you are doing so well! I hope you continue to feel better and get stronger everyday. Life with O2 how awesome! C_53_Familial IPF_5/09, Washington HOPE doesn't disappoint! To: Breathe-Support Sent: Mon, December 28, 2009 10:39:34 AMSubject: I'm back online ! Hello everyone,I came home a week ago but was so happy to be with my kids again I didnt even unpack the computer till today. I had such a good X-mas with the kids. I am doing GREAT now. I only need the vicadin at night and Tylenol works during the day. It is just muscle soreness in my boob area. I went to clinic last Thursday and everything was good. I go again tomorrow. I was even able to go to the mall and to the park. ALL WITH NO O2 !!! The docs are saying my IPF was from LUPUS but I wnt to see the pathology report myself. I will be contacting records dept at hospital and get copy of all records. I honestly dont care where it came from as long as it doesnt happen again...and my kids are safe from it !! So..I will be having them tested for Lupus if possible.I hope everyone had a very merry chistmas !MirandaBi-latteral Lung transplant 12/06/09 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2010 Report Share Posted January 2, 2010 Hello Miranda, It's wonderful that you are doing so well and able to get out and do things and breathe at the same time.Beverley Joy,71, Birds and mold 1-09,Diabetes,Sjogren's,Fibromyalgia IdahoSubject: I'm back online !To: Breathe-Support Date: Monday, December 28, 2009, 10:39 AM Hello everyone, I came home a week ago but was so happy to be with my kids again I didnt even unpack the computer till today. I had such a good X-mas with the kids. I am doing GREAT now. I only need the vicadin at night and Tylenol works during the day. It is just muscle soreness in my boob area. I went to clinic last Thursday and everything was good. I go again tomorrow. I was even able to go to the mall and to the park. ALL WITH NO O2 !!! The docs are saying my IPF was from LUPUS but I wnt to see the pathology report myself. I will be contacting records dept at hospital and get copy of all records. I honestly dont care where it came from as long as it doesnt happen again...and my kids are safe from it !! So..I will be having them tested for Lupus if possible. I hope everyone had a very merry chistmas ! Miranda Bi-latteral Lung transplant 12/06/09 Quote Link to comment Share on other sites More sharing options...
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