Re: Learned something new today- Jodi R

[Guest guest]

Jodi R

Maddy has the long tube for right now and your right it's terrible. We do

use the G for meds and the J for feeds. I'm so nervous with this thing hanging

and if i tuck it into clothes it always beeps. Can't wait to get the button.

Chrissy

[Guest guest]

Chrissy,

I feel for you and that long floppy thing. and are so

wild that thing wouldn't stay in two days around here. Which feeding

pump do you have? Can you coil the tube that come from the feeding

bag like in a lose circle and tape or pin it to her somewhere? Like

her underwear or undershirt? would never let me do anything

like this, so his just hangs. He hates it when I tuck the tube into

his pants or something. But, maybe you could do something like that

with Maddy? Let the tube that comes out of her belly lose, but coil

up the feeding bag tube??? If you loosely coil it, it shouldn't

beep. Those pumps are so darn sensitive though. We are having

better luck with the Infinity pump right now. Only thing we battle

is, can't seem to keep a button in him. I swear his stomach

juices are so acidic that a button will not stay in longer than 6

weeks. It is absolutely ridiculous! And, that pain of it is, these

j tubes have to be placed under radiology! Poor kid! I can't bear

to think about it. The amount of radiation his little body has had

this far.......UGH!! ;o(

I hope you can figure something out for Maddy. I know that it is

nerve racking with that tube flopping around. When is she supposed

to have the button put in?? I still have to go read her website.

Gosh, I have been so busy lately.

Jodi R.

>

> Jodi R

> Maddy has the long tube for right now and your right it's terrible.

We do

> use the G for meds and the J for feeds. I'm so nervous with this

thing hanging

> and if i tuck it into clothes it always beeps. Can't wait to get

the button.

> Chrissy

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