Re:Re: Update: Shaky, Tongue Numbness, etc. DIE OFF? or what???

September 17, 2010

Is

your husband prone to blood glucose fluctuations? Hypoglycemia? Is

he also suffering from diarrhea, so his electrolytes might be low? Is he

taking any high-dose vitamin supplements, by any chance?

Sounds

like you may need to experiment a bit more with how often he’s eating,

and what foods he’s eating, and when he’s eating them. First

I’d make sure he is eating something every 2 hours; since we don’t

eat the complex carbs on SCD we need to refuel more often. Then make sure

he’s getting good fats and proteins along with the carbs when he does

eat. If he has blood sugar issues, then make sure he eats fruits with

carbs or fats, never fruit by itself. I would try an electrolyte-boosting

drink once or twice a week and see if that helps. Time of day also can

make a difference; there are some foods I can’t eat before 11 am or after

3 pm.

I

had to do a lot of experimentation and adjustment during my first few months on

SCD because of my hypoglycemia and low electrolyte issues along with the

digestive dysfunctions. Some of us have a more difficult time than others

settling into the diet. I had to learn how often to eat, what to eat,

what foods to eat in combination, how much fruit and what time of day I had it…..

I had to begin to boost my electrolytes regularly. All these things made

a difference to how I felt, how often the shakiness and dizziness would hit, memory

fog, etc.

I

can’t eat the usual snack-type of foods, so I just make a normal sized

meal but eat it in two or three parts. It is absolutely critical for me

to eat a mix of carbs and proteins every 2 to 3 hours, or I’m in trouble –

the collapsing on the floor and going unconscious kind of trouble [sigh].

Another

cause of my episodes of shakiness and cognitive function deterioration (speech,

decision making…) turned out to be a neurological condition called

orthostatic hypotension (drop in blood pressure upon standing). When

I continued to have problems that involved difficulties speaking and moving

even after I’d worked out my foods, I headed to my doctor who sent me to

a neurologist for a work-up. He discovered a number of problems, most of

which I can’t “fix” but at least can be managed, now that I

know what I’m dealing with.

Sometimes

things turn out to be more difficult to “fix” than just adjusting

foods. So if your husband still has problems even after you’ve been

experimenting with foods, I’d head to the doctor, just in case. Most

of our symptoms and issues turn out to be connected to our digestions and

metabolism and food choices. But the nervous system plays a huge role in

our health, and sometimes issues develop.

Kim M.

SCD 6+ years

Sphincter of Oddi dysfunction 7 years

neurological & spinal deterioration 4 years

>>>>>>>>>>>>>>>>>>>

Okay,

so got an " update " from my husband today... He's having

" inner " shakes (feeling like his whole body is shaking, but outwardly

it's not), numbness feeling or tingling in his tongue, feeling extremely weak

(to the point of thinking he's going to pass out), and severe inability to

focus or concentrate on mental tasks at work.

With all that said, he thought it was just after eating protein (hence the post

yesterday!), but did a " test " today and it started before he even had

anything to eat, and continued throughout the entire day, no matter what he

ate. He's feeling AWFUL, and while he had some of these symptoms pre-SCD (we

were gluten and dairy free though), he says that it has gotten progressively

worse since beginning the SCD about 3 weeks ago. Is this Die Off? Or something

else? We don't want to automatically go " die off " , when something

serious could be going on that shouldn't be discounted or " trudged

through " .

Any help is much (and greatly!) appreciated right now!!!

Carissa

September 17, 2010

Very Interesting Kim, thanks! His blood sugar numbers are always fine, despite

his " hypoglycemic like symptoms " . So I know it's not hypoglycemia (I had that

several years ago, and know what that's like), but the symptoms are sure

similar. I think his bowels are " normal " , and no, he's not on any vitamins.

The weird thing is that he's the " best " out of our whole family as far as

digestion and stuff goes. Where as my son and I (the worst one's) have had

nothing but improvement!! There was one day when I felt " flu like " for a few

hours, but after that, nothing. So it's just surprising for him to be going

through awful die off compared to everyone else not going through hardly

anything at all. We'll see though! It's encouraging to hear everyone say " yes,

this happened to me, and it went away " . If it doesn't though after a while then

we will definitely head to the doctor! =) Thanks a lot!

>

> Is your husband prone to blood glucose fluctuations? Hypoglycemia? Is he

> also suffering from diarrhea, so his electrolytes might be low? Is he

> taking any high-dose vitamin supplements, by any chance?

>

> Sounds like you may need to experiment a bit more with how often he's

> eating, and what foods he's eating, and when he's eating them. First I'd

> make sure he is eating something every 2 hours; since we don't eat the

> complex carbs on SCD we need to refuel more often. Then make sure he's

> getting good fats and proteins along with the carbs when he does eat. If he

> has blood sugar issues, then make sure he eats fruits with carbs or fats,

> never fruit by itself. I would try an electrolyte-boosting drink once or

> twice a week and see if that helps. Time of day also can make a difference;

> there are some foods I can't eat before 11 am or after 3 pm.

>

> I had to do a lot of experimentation and adjustment during my first few

> months on SCD because of my hypoglycemia and low electrolyte issues along

> with the digestive dysfunctions. Some of us have a more difficult time than

> others settling into the diet. I had to learn how often to eat, what to

> eat, what foods to eat in combination, how much fruit and what time of day I

> had it... I had to begin to boost my electrolytes regularly. All these

> things made a difference to how I felt, how often the shakiness and

> dizziness would hit, memory fog, etc.

>

> I can't eat the usual snack-type of foods, so I just make a normal sized

> meal but eat it in two or three parts. It is absolutely critical for me to

> eat a mix of carbs and proteins every 2 to 3 hours, or I'm in trouble - the

> collapsing on the floor and going unconscious kind of trouble [sigh].

>

> Another cause of my episodes of shakiness and cognitive function

> deterioration (speech, decision making.) turned out to be a neurological

> condition called orthostatic hypotension (drop in blood pressure upon

> standing). When I continued to have problems that involved difficulties

> speaking and moving even after I'd worked out my foods, I headed to my

> doctor who sent me to a neurologist for a work-up. He discovered a number

> of problems, most of which I can't " fix " but at least can be managed, now

> that I know what I'm dealing with.

>

> Sometimes things turn out to be more difficult to " fix " than just adjusting

> foods. So if your husband still has problems even after you've been

> experimenting with foods, I'd head to the doctor, just in case. Most of our

> symptoms and issues turn out to be connected to our digestions and

> metabolism and food choices. But the nervous system plays a huge role in

> our health, and sometimes issues develop.

>

> Kim M.

>

> SCD 6+ years

>

> Sphincter of Oddi dysfunction 7 years

>

> neurological & spinal deterioration 4 years

>

> >>>>>>>>>>>>>>>>>>>

>

> Okay, so got an " update " from my husband today... He's having " inner " shakes

> (feeling like his whole body is shaking, but outwardly it's not), numbness

> feeling or tingling in his tongue, feeling extremely weak (to the point of

> thinking he's going to pass out), and severe inability to focus or

> concentrate on mental tasks at work.

>

> With all that said, he thought it was just after eating protein (hence the

> post yesterday!), but did a " test " today and it started before he even had

> anything to eat, and continued throughout the entire day, no matter what he

> ate. He's feeling AWFUL, and while he had some of these symptoms pre-SCD (we

> were gluten and dairy free though), he says that it has gotten progressively

> worse since beginning the SCD about 3 weeks ago. Is this Die Off? Or

> something else? We don't want to automatically go " die off " , when something

> serious could be going on that shouldn't be discounted or " trudged through " .

>

> Any help is much (and greatly!) appreciated right now!!!

>

> Carissa

>

September 17, 2010

Oh, and by the way Kim, I will definitely pass on the suggestion of

experimenting with " what & when " concerning his food intake throughout the day,

thanks! =)