Re: Paediatrition

[Guest guest]

Dawna

I was wondering if the ped. was just being cautious regarding the possible

benefit of GH. I know my endo said " I can't guarantee you it will make one bit

of difference to his growth, but I do know in 6 months I can tell you for sure " .

I suspect he doesn't want you to put all your eggs in one basket.

Mind you, Adam's growth curve jumped considerably after 3 months and it was

deemed very helpful. In fact I was guaranteed Adam would only reach 4'7 " without

the GHT (interestingly enough he is 4'7 " right now, I can't imagine him that

height as an adult.......) but now with the GH, my endo is guaranteeing 5 feet

for sure and more than likely a bit more than that.

I'm glad it went well and I am not surprised you were told you knew too much. I

think these doctors feel threatened, I had a psychologist tell me one time that

I was neurotic for having a list of Adam milestones already typed out and I had

a big binder with all necessary medical documentation!! The woman was nuts!

Deb

PS we have snow now, and it continues to snow.......thanks a whole bunch for

sending it this way eh??!!!

LOL

Paediatrition

Well we had our first appointment with our new ped today. It went

fairly well, but I really don't have a relieved feeling yet. I still

feel like we are carrying the burden of the knowledge and I would

have been happy to have that lifted a little. Does anyone really

feel that way though?

There were some definite good points from the visit. The first being

that we will be starting Pariactin tomorrow I believe if the pharmacy

can get it by then. I have forwarded the message from Jodi to H to

my email and have the information written by Dr. H. When the Doctor

today was mentioning doses and to start off at 1/2 dose in the

morning and at night, I mentioned to him that it had been suggested

to start off with just the night dose and he agreed to that. I'll

have to see when I get the actual prescription what the measurement

is. He didn't seem to have much faith that this will be the solution

to Noah's weight and did mention the possibility of a g tube. Here's

hoping the periactin will be enough to get us to the 15% weight to

height and then that combined with the GHT will be enough to keep us

away from the tube. On the subject of GHT ... I got the impression

that this doctor felt the GHT might not be effective either, but time

will tell with that and that is one decision we have already made and

Noah will be getting that when the time is right. This doc wants me

to give him a call after Noah has been on the Periactin for a week to

see if I think it is making any difference at all and then wants him

to come in one month after to get weighed. We went to his clinic at

the hospital for this appointment and he said that that is where he

wants us to come back for the next weigh in so it is on the same

scale ... that was another relief that he will be watching the weight

closely and properly. Noah weighed 19 lbs 8.7 ounces ... this is the

first time he has been weighed on such a precise scale (that includes

the two from the endo's office). I took all the articles that we

have from Magic and the list of articles available and any other

information that I had gathered. The doctor told us that we knew too

much which we found quite funny! Hopefully he will be as well

educated when we are done with him.

All in all a fairly good meeting and at least I can feel comfortable

that this doctor will learn and keep up with Noah's progress and we

won't be left in the dust.

Dawna

13, 11, Kaitlyn 8 and Noah 3 RSS