Guest guest Posted January 12, 2006 Report Share Posted January 12, 2006 - I'm barging in on your conversation with Jodi - I just want to tell you that I think you are doing the right thing. I know it is very hard to wait - as it only draws out the circumstance even longer - but, you have to do what is right for both of you. You are doing such a great job. Now, I've already gotten flight tickets for my mom (non-refundable $850 later) - she will be here in 4 days. I'm in the appeals process for the surgery/admission issue. They BETTER have the option of putting in a MicKey - or - I'm not going to be happy. LOL They've already seen me unhappy. Gee - I wonder how this is all going to pan out tomorrow! LOL Keep your chin up - you are doing great. - H > > Hi Jodi, > Thanks for your concern, I have been pretty stressed. The problem is, the only procedure this hospital does is the peg w/bard button, not the peg tube which gets replaced after 6 weeks with a button of your choice. At surgery they put in the bard button, using the peg procedure, we'd never even see a tube, or peg tube. And, with that button, like Debbie said, the attachment for feeding doesn't lock into place, and I like that I can change the Mic-key button at home. I saw tons of pictures today, and I know I would be okay with it. So we'll probably be waiting a little longer, instead of going in next week. I'm going to call and cancel my appt first thing in the morning. Hopefully we can still get this done sooner than later. Thanks Jodi. > > Mom to Dasia > > > > --------------------------------- > Yahoo! Photos > Got holiday prints? See all the ways to get quality prints in your hands ASAP. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2006 Report Share Posted January 12, 2006 Do a Google search for the Oley Foundation. It is a support group and source of information for kids who are tube-fed. I have used them many times when we have been facing tube surgery for Max or run into complications. There is also a yahoogroups for kids with tubes. Don't remember that name, either, but I found it easily by going to the homepage and doing a search. Most of the kids on these sites are more involved than ours, but these parents have lots of helpful information and suggestions, tips, etc. Jodi Z Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2006 Report Share Posted January 13, 2006 Thank you Jodi, I'll definitely check into that. Jodi Zwain wrote: Do a Google search for the Oley Foundation. It is a support group and source of information for kids who are tube-fed. I have used them many times when we have been facing tube surgery for Max or run into complications. There is also a yahoogroups for kids with tubes. Don't remember that name, either, but I found it easily by going to the homepage and doing a search. Most of the kids on these sites are more involved than ours, but these parents have lots of helpful information and suggestions, tips, etc. Jodi Z Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2006 Report Share Posted January 13, 2006 Thank you Jodi, I'll definitely check into that. Jodi Zwain wrote: Do a Google search for the Oley Foundation. It is a support group and source of information for kids who are tube-fed. I have used them many times when we have been facing tube surgery for Max or run into complications. There is also a yahoogroups for kids with tubes. Don't remember that name, either, but I found it easily by going to the homepage and doing a search. Most of the kids on these sites are more involved than ours, but these parents have lots of helpful information and suggestions, tips, etc. Jodi Z Quote Link to comment Share on other sites More sharing options...
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