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Madison and good news

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Today they have decided that they are almost 100% sure that Madison's bleed came

from sever reflux causing the esophagus and lower airway to bleed. Since the

reflux won't be corrected until she has surgery this has a very good shot at

happening again. So I will be taking Kim's advise and speaking to the doctor's

about direct donation. Her blood count came up great since the transfusion she

went from 8.8 to 11!!! So we can go home tomorrow. Monday morning Dr. Chen is

going to call the surgeon and see what the hold up is. But on an even better

note since they started her on reglin and prevacid by iV instead of PO her cough

is gone and so is her fever.

Then we had a monumental day in Madison history, She ate lunch and dinner. And

check this out........

She ate because she wanted to not because they made her. She even ate ice cream

later. So the docs have decided to send her home with these meds by IV since it

works so well. I will be sure to update tomorrow once we are home

Chrissy

Re: CHAT - name our moms group

- you are so awesome! Very cute. I'm not sure I could come up

with something as good as you! I'll have to think about this one for

awhile (being a perfectionist and all <grin>).

- H

>

> Okay, I see some of us are having those days when you feel excluded

by

> the rest of the " normal " people..

>

> who can get the best group name going...

>

> NNALI - not normal and loving it

> POSSY- Parents OF Super Special Youngsters

>

> HOlland's Best (reference to the poem)

>

> SCRAM - Stir CRAzy - REally - And Mellow

>

> I'm sure so many of you can top me in a heartbeat, make us laugh!

>

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