Philadelphia lunch

[Guest guest]

Pink...Sounds good to me...what

about the 16th or 23rd?

Adrienne...OK with you?

Z fibriotic NSIP/05

Z 65, fibriotic NSIP/05/PA

And

“mild†PH/10/07

No,

NSIP was not self-inflicted…I never smoked!

Potter,

reader,carousel lover and MomMom to Darah and Sara 

    

“I’m

gonna be iron like a lion in Zionâ€Â  Bob Marley

Vinca

Minor-periwinkle is my flower

 

 

Joyce T Rosenberg wrote:

 

Walt  -- if you come to the Philly area -- we can have a

group meeting with a few other people

 

by the way, Z and Adrienne B, it is time to plan

another meeting, i think we should pick a date and if the weather is

bad that day, we can reschedule

 

how about the Cheesecake Factory in Willow Grove Mall

that's a central location

 

Pink Joyce R (IPF 3/06)  IFA 5/09

Pennsylvania

Donate Life

Listed 1/09 Inactive

4/09

www.transplantfund.org

From: Beth <mbmurtha (AT) yahoo (DOT) com>

Subject: Re: Just me yammering

To: Breathe-Support

Date: Tuesday, January 5, 2010, 8:03 AM

 

Walt,

You got that just fine. In my limited experience it's

just easy to get into a groove of doing things the way I've always done

them, prioritizing the way I always have and not valuing the things

that in reality are the most precious.

My diagnosis was the ultimate wake up call. It changed

my life forever and not all of that was negative. I will never ever

look at my life in the same way and honestly that's something to be

grateful for.

Enjoy every moment of what you have planned. It sounds

fabulous! And if you get anywhere in NC please let me know I'll come

meet you and your lovely bride anytime!

 

Beth

Moderator

Fibrotic

NSIP 06/06 Dermatomyositis 11/08

 

 

From:

Walt <island_walt@ yahoo.com>

To: Lung

<Breathe-Support@ yahoogroups. com>

Sent: Mon,

January 4, 2010 11:49:21 PM

Subject:

Just me yammering

 

Hello

Again all.

Thank

you ,thank you, for your prayers, words of encouragement and support .

The latest chat with the doc put me back a little but I had to remember

just how things are and I think I am doing pretty good I am very happy,

was blessed with an awesome family and although while I  I am taking

more precautions then before. This morning it was raining and a little

cold and I got up strapped my o2 on my quad and went for about a 2 hour

ride.

Because

I have been told by my friends and family for years that I don’t waddle

with the rest of the ducks ,I hesitate giving advice here.  But

I am going to break my rule this time, at the risk of sounding dramatic

here goes, I felt like the Doc told me I was circling the drain and he

just did not have all that good things to say. What I remembered that

night as I lay there thinking, were not the Doctors words but something

Beth told me awhile back. That God grabbed her by the collar and

shook her a bit to start her living again ( Beth, sorry that I

hacked that up) I have not looked back ever since that time. And how am

I dealing with this? I went for a ride today, My son and I are going

quad riding this weekend, My wife and I are planning a Margarita trip

to AZ. I am even thinking about a road trip this summer to the east

coast stopping along the way and visiting some of the Air Family as we

go.

I

know this is not for everyone, might not be for anybody but me, but as

they say THAT’S how I ROLL.

Again

I get comfort and strength for all your support and friendship..Walt 52 on Whidbey Island, Dx 06 with ipf,

nsip,uip

 

Walt

Courage

doesn't always roar. Sometimes courage is the quiet voice at the end of

the day saying, "I will try again tomorrow.â€