Re: Re: Trying to feed our kids....REAH

[Guest guest]

H,

Thanks.:)I don't kow what I would do without you

guys. I do hope your children are well.If I can ever

do anything please let me know, I want to be there.

Always,

Reah and chloe:)

--- advocate22003 wrote:

> Reah - oh sweetie. YOU BELONG! I consider everyone

> here my friends -

> whether I have met them or not! That means you

> too. Okay? You

> are not in this alone. Jodi wrote you such a

> beautiful post - I

> guess I missed all that?? (probably dealing with my

> children

> <grin>) Anyway, I agree with Jodi - you feel free

> to vent, ask

> questions or whatever - WHENEVER!

>

> Hugs to you.

>

> - H

>

>

> >

> > > Reah,

> > > I just read your post in response to my original

> one

> > > about how we can

> > > get bogged down sometimes. In your post you

> said

> > > that many of us

> > > deal with so much more than you do. Well, that

> may

> > > be so, but the

> > > feeding issue in itself is one of our biggest

> > > challenges. You said

> > > you didn't feel like you had the right to " vent "

> > > since you aren't

> > > dealing with as much. That is simply NOT true.

> You

> > > have every right

> > > to come on here and vent all you need to. We

> all

> > > understand the

> > > feeding difficulties you are experiencing.

> Trying

> > > to feed your

> > > daughter when she just isn't interested is very

> > > frustrating and day

> > > in and day out it really starts to take its

> toll.

> > > is on a

> > > feeding tube and gets about 95% of his nutrition

> > > that way. We are

> > > currently working with him to try to get him to

> eat

> > > more, and that

> > > means reducing his tube feedings to get him

> " hungry "

> > > enough to eat.

> > > And, this is trial and error. Because if we

> don't

> > > reduce him enough,

> > > he still isn't hungry. But, if we reduce him

> too

> > > much he loses

> > > weight!! So, it is a constant battle here for

> us

> > > too.

> > > Unfortunately, isn't on Periactin to help

> > > stimulate his

> > > appetite, and I don't know if it will ever be an

> > > option for him since

> > > he has pretty severe reflux and this tends to

> make

> > > that worse.

> > >

> > > Anyway, I know you need to come on here and keep

> > > asking your

> > > questions and vent whenever you need to. It

> really

> > > is one of the

> > > best things you can do. Just after writing my

> > > original post, I felt

> > > a little better. Just getting it off your chest

> > > will make a big

> > > difference. And, once you get support from

> others

> > > who have read it,

> > > that helps so much. So, please don't ever feel

> like

> > > you don't have

> > > the " right " to do anything on here. We are all

> here

> > > to listen,

> > > support, and encourage. Whether you are new or

> have

> > > been on here for

> > > years!! ) I just wanted you to know that!

> > >

> > > Take care and keep posting,

> > > Jodi R.

> > > 's mommy

> > >

> > >

> > >

> > >

> >

> >

> >

> >

> >

> > __________________________________

> > Yahoo! Mail - PC Magazine Editors' Choice 2005

> > http://mail.yahoo.com

> >

>

>

>

>

>

>

__________________________________

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