Re: Dot's update 1st evaluation lung transplant

[Guest guest]

Dot,

Congratulations! It sounds like the evaluation has gotten started off on the right foot!

You will be in my prayers and I know that the money will be there when you need it. I think the raffle is a fabulous idea. I'd buy a chance on that!! I know it must be hard to contemplate giving up the Mustang but I also know you'd trade it for a new lung in a heartbeat right!!?

Good luck, you are on your way!

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: breath support group <Breathe-Support >Sent: Tue, February 2, 2010 7:39:51 PMSubject: Dot's update 1st evaluation lung transplant

Well, i went to my 1st Lung Evaluation-the great news is that they said i was a great candidate to be transplanted. I 1st went to Admissions.. they took my info..then spoke to Social Worker that told me that Medicaid would pay for my Transplant $350-400,000- However.. .it would not cover the aftercare nor Rehab. They said i would need to come up with $25,000 before they would even start testing me... & it didn't matter how ill i was...Then i met with Lung Coordinator. .she was really nice. She took my blood pressure (184/119) kinda high...took my temp, then did the 6 minute walk-however after 2 minutes she made me stop she said that's enough..my stats dropped to 81 w/5 ltrs of o2..then Dr. Angel (Lung Transplant Dr) came & asked a billion questions, listened to my lungs & said that noone knows what our time is here but according to what he saw (all current ct's, xrays & so forth) he

gave me 2 years..he said i must of had PF for 4 years already. He is baffled because he said he's never seen Pf so advanced in someone as young as me..he says its normally found in people that are in their 60's or 70's. He did say he'd like to test me for lupus & a couple of other things-anyway, my sis asked him so where would she be put on list if listed he said 1st of 2nd...the top of the list. So i guess that's pretty good...so i ask my air family to pray for me & any suggestions on fundraisers. I have my only paid possession a 2002 mustang convertible. .i'm planning a raffle...i know God will provide..i've come too far. Anyway..that was my day...

Dot/uip10/08/ 42/sa,tx

[Guest guest]

Dot what is the 25 K to cover ? I don't remember anyone else saying they had to have front monies.

Love & PrayersPeggyIPF, 2004

[Guest guest]

Dot, isn't SA THE place to be for a transplant? I can't imagine what you are

going through right now trying to get all your financial ducks in a row as well

as dealing with the illness itself. Blessings, blessings, blessings to you.

God will provide.

BTW I am only 52. That is what my doc said as well, usually hits older people.

S, Lubbock, TX

NSIP w/PF 12/2006 et al

>

> Well, i went to my 1st Lung Evaluation-the great news is that they said i was

a great candidate to be transplanted. I 1st went to Admissions..they took my

info..then spoke to Social Worker that told me that Medicaid would pay for my

Transplant $350-400,000-However...it would not cover the aftercare nor Rehab.

They said i would need to come up with $25,000 before they would even start

testing me... & it didn't matter how ill i was...Then i met with Lung

Coordinator..she was really nice. She took my blood pressure (184/119) kinda

high...took my temp, then did the 6 minute walk-however after 2 minutes she made

me stop she said that's enough..my stats dropped to 81 w/5 ltrs of o2..then Dr.

Angel (Lung Transplant Dr) came & asked a billion questions, listened to my

lungs & said that noone knows what our time is here but according to what he saw

(all current ct's, xrays & so forth) he gave me 2 years..he said i must of had

PF for 4 years already. He is

> baffled because he said he's never seen Pf so advanced in someone as young as

me..he says its normally found in people that are in their 60's or 70's. He did

say he'd like to test me for lupus & a couple of other things-anyway, my sis

asked him so where would she be put on list if listed he said 1st of 2nd...the

top of the list. So i guess that's pretty good...so i ask my air family to pray

for me & any suggestions on fundraisers. I have my only paid possession a 2002

mustang convertible..i'm planning a raffle...i know God will provide..i've come

too far. Anyway..that was my day...

> Dot/uip10/08/42/sa,tx

>

[Guest guest]

Dot, you dont have to get rid of your car. Do a fundraising! contact the National transplant Fundation. NFT They will help you to raise the money!

That is what I will do if they aprove me for a transplant.

Good luck

The Lord is my Shepherd; there is nothing I lack. El Señor es mi Pastor; nada me faltara.

G.

36 (años) years old.

Baton Rouge LA.

Scleroderma 2007, PF, COPD 2008,

Chronic gastroesophageal reflux disease 2009

Subject: Dot's update 1st evaluation lung transplantTo: "breath support group" <Breathe-Support >Date: Tuesday, February 2, 2010, 6:39 PM

Well, i went to my 1st Lung Evaluation-the great news is that they said i was a great candidate to be transplanted. I 1st went to Admissions.. they took my info..then spoke to Social Worker that told me that Medicaid would pay for my Transplant $350-400,000- However.. .it would not cover the aftercare nor Rehab. They said i would need to come up with $25,000 before they would even start testing me... & it didn't matter how ill i was...Then i met with Lung Coordinator. .she was really nice. She took my blood pressure (184/119) kinda high...took my temp, then did the 6 minute walk-however after 2 minutes she made me stop she said that's enough..my stats dropped to 81 w/5 ltrs of o2..then Dr. Angel (Lung Transplant Dr) came & asked a billion questions, listened to my lungs & said that noone knows what our time is here but according to what he saw (all current ct's, xrays & so forth) he

gave me 2 years..he said i must of had PF for 4 years already. He is baffled because he said he's never seen Pf so advanced in someone as young as me..he says its normally found in people that are in their 60's or 70's. He did say he'd like to test me for lupus & a couple of other things-anyway, my sis asked him so where would she be put on list if listed he said 1st of 2nd...the top of the list. So i guess that's pretty good...so i ask my air family to pray for me & any suggestions on fundraisers. I have my only paid possession a 2002 mustang convertible. .i'm planning a raffle...i know God will provide..i've come too far. Anyway..that was my day...

Dot/uip10/08/ 42/sa,tx

[Guest guest]

Congrats on your lung eval. You will be in my thoughts and prayers. I would buy a raffle ticket in a heartbeat. You're on your way. Keep on keeping on girlfriend!Kathy ILD/Hypersensitivity pneumonitis 3/08Subject: Dot's update 1st evaluation lung transplantTo: "breath support group" <Breathe-Support >Date: Tuesday, February 2, 2010, 4:39 PM

Well, i went to my 1st Lung Evaluation-the great news is that they said i was a great candidate to be transplanted. I 1st went to Admissions.. they took my info..then spoke to Social Worker that told me that Medicaid would pay for my Transplant $350-400,000- However.. .it would not cover the aftercare nor Rehab. They said i would need to come up with $25,000 before they would even start testing me... & it didn't matter how ill i was...Then i met with Lung Coordinator. .she was really nice. She took my blood pressure (184/119) kinda high...took my temp, then did the 6 minute walk-however after 2 minutes

she made me stop she said that's enough..my stats dropped to 81 w/5 ltrs of o2..then Dr. Angel (Lung Transplant Dr) came & asked a billion questions, listened to my lungs & said that noone knows

what our time is here but according to what he saw (all current ct's, xrays & so forth) he gave me 2 years..he said i must of had PF for 4 years already. He is baffled because he said he's never seen Pf so advanced in someone as young as me..he says its normally found in people that are in their 60's or 70's. He did say he'd like to test me for lupus & a couple of other things-anyway, my sis asked him so where would she be put on list if listed he said 1st of 2nd...the top of the list. So i guess that's pretty good...so i ask my air family to pray for me & any suggestions on fundraisers. I have my only paid possession a 2002 mustang convertible. .i'm planning a raffle...i know God will provide..i've come too far. Anyway..that was my day...

Dot/uip10/08/ 42/sa,tx

[Guest guest]

Dot I'm so happy for you and that you evaluation went great. I hope you will be able to raise the money. There's a place out there to help, not sure what it is called but someone here will let you know Gascoigne SD, 50 yrs old, Renaud's 2008, IPF 7/2009

To: breath support group <Breathe-Support >Sent: Tue, February 2, 2010 6:39:51 PMSubject: Dot's update 1st evaluation lung transplant

Well, i went to my 1st Lung Evaluation-the great news is that they said i was a great candidate to be transplanted. I 1st went to Admissions.. they took my info..then spoke to Social Worker that told me that Medicaid would pay for my Transplant $350-400,000- However.. .it would not cover the aftercare nor Rehab. They said i would need to come up with $25,000 before they would even start testing me... & it didn't matter how ill i was...Then i met with Lung Coordinator. .she was really nice. She took my blood pressure (184/119) kinda high...took my temp, then did the 6 minute walk-however after 2 minutes she made me stop she said that's enough..my stats dropped to 81 w/5 ltrs of o2..then Dr. Angel (Lung Transplant Dr) came & asked a billion questions, listened to my lungs & said that noone knows what our time is here but according to what he saw (all current ct's, xrays & so forth) he

gave me 2 years..he said i must of had PF for 4 years already. He is baffled because he said he's never seen Pf so advanced in someone as young as me..he says its normally found in people that are in their 60's or 70's. He did say he'd like to test me for lupus & a couple of other things-anyway, my sis asked him so where would she be put on list if listed he said 1st of 2nd...the top of the list. So i guess that's pretty good...so i ask my air family to pray for me & any suggestions on fundraisers. I have my only paid possession a 2002 mustang convertible. .i'm planning a raffle...i know God will provide..i've come too far. Anyway..that was my day...

Dot/uip10/08/ 42/sa,tx

[Guest guest]

What wonderful news. So much to think about. You are in my prayers and most positive thoughts. Keep on trying to figure how this can work. It will.

Bettye KLine

To: breath support group <Breathe-Support >Sent: Tue, February 2, 2010 6:39:51 PMSubject: Dot's update 1st evaluation lung transplant

Well, i went to my 1st Lung Evaluation-the great news is that they said i was a great candidate to be transplanted. I 1st went to Admissions.. they took my info..then spoke to Social Worker that told me that Medicaid would pay for my Transplant $350-400,000- However.. .it would not cover the aftercare nor Rehab. They said i would need to come up with $25,000 before they would even start testing me... & it didn't matter how ill i was...Then i met with Lung Coordinator. .she was really nice. She took my blood pressure (184/119) kinda high...took my temp, then did the 6 minute walk-however after 2 minutes she made me stop she said that's enough..my stats dropped to 81 w/5 ltrs of o2..then Dr. Angel (Lung Transplant Dr) came & asked a billion questions, listened to my lungs & said that noone knows what our time is here but according to what he saw (all current ct's, xrays & so forth) he

gave me 2 years..he said i must of had PF for 4 years already. He is baffled because he said he's never seen Pf so advanced in someone as young as me..he says its normally found in people that are in their 60's or 70's. He did say he'd like to test me for lupus & a couple of other things-anyway, my sis asked him so where would she be put on list if listed he said 1st of 2nd...the top of the list. So i guess that's pretty good...so i ask my air family to pray for me & any suggestions on fundraisers. I have my only paid possession a 2002 mustang convertible. .i'm planning a raffle...i know God will provide..i've come too far. Anyway..that was my day...

Dot/uip10/08/ 42/sa,tx