Growth Chart...what do you think?

February 12, 2006

Hey there

I would love to get you guys expert opinions!

I charted all of the measurements I have for True and wondered how they seem

to you guys.

I just included the percentages. His birth weight was 6.9 and height was

19 " and HC is 13.5 " . I looked over his birth records and found a few things I

hadn't seen before, like he was blue at his 1 minute apgar, his mother had a

wierd anti-M antibody which I can't seem to figure out what it means and so

on. Her girls were both bigger than True according to the history they took.

Anyway, here's his growth chart...

Birth:

W:15%

H- 25%

HC- 22%

2weeks

W- 16%

H-40%

2 months

W-19%

H- 51%

3 months

W-7%

H-16%

HC 11%

***This was the worst his vomitting issues were. He also had surgery at 4

months. They were resolved shortly after he went on Neocate at 4.5 months

old.

4 months

W-3%

H-8%

HC- 29%

5 months

W-10%

H-14%

HC-34%

6.5 months

W- 7%

H- 22%

7months

W-17%

H-28%

8 months

W- 10%

H- 18%

9.5 months

W- 17%

H- 58% (this must have been a bad measurement because he had the same inches

at 12m)

12 months

W- 17%

H- 19%

HC- 64%

deb...mom to four fab adopted kiddos... (07.04.96-05.26.03) with

Mitochondrial Myopathy...G, 6, with High Functioning Autism, Hypoglycemia and

Precocious Puberty...B, 4, with VERY mild Cerebral Palsy...and True 1yo, with

Neuromotor Disorder, Hypoglycemia, Myoclonus, ulcers, undiagnosed GI problems

plus severe food allergies (Eggs, Peanut, Milk, Soy, Corn, Rice, Oats and

Crab/Neocate-only), Plagiocephaly and Dysphagia....Married for 12 years to

F--one

swell guy!_ www.caringbridge.org/tn/wells/_

(http://www.caringbridge.org/tn/wells/) (http://www.lifeofloveproject.org/)

February 14, 2006

Deb,

From all you have told us True certainly seems to have several RSS traits.

As for his growth chart, when you take out the dip for his vomiting/surgery

spell, he does what most of our kids do which is following their own curve.

Albeit, his does seem to hover a little higher than many of our children I'm

not sure that would exclude an RSS diagnosis.

I hope you come to the MAGIC convention this year. Dr. Harbison will be

there as well as at least one other Dr. who is considered an expert on RSS.

Of course, IF it's feasible, you can always fly to NY to see Dr. H before

the convention. From his charts True seems to be a good weight/height

ratio. I know you've been most concerned about the hypo-g which is one of

the most important things to manage at True's age.

Since, you asked, those are my thoughts!

Dayna

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