Re: Re: Dr Harbison's info...chris

February 13, 2006

In a message dated 2/13/2006 11:40:52 AM Central Standard Time,

rush4ak@... writes:

Maybe something to do with the fact that the RMH has such a high demand

because of the large number of cancer kids coming to NYC for treatment, and

cancer patients are their first priority.

our local RMH only takes St Jude patients (cancer) so I understand that is

sometimes the case.

yes I know the hotel rates are going to be very high compared to everywhere

else, so I am just trying to count the costs.

I have a call into our GI (who is 3 hrs from us anyway) to see what he

thinks of the endo's dx/suggestions. I have a feeling (and hope) he sends us

to

their endo...its in-network for our insurance and we have to go back at the

end of March anyway.

you still can't convince me he is malnourished...uggh!

thanks

deb...mom to four fab adopted kiddos... (07.04.96-05.26.03) with

Mitochondrial Myopathy...G, 6, with High Functioning Autism, Hypoglycemia and

Precocious Puberty...B, 4, with VERY mild Cerebral Palsy...and True 1yo, with

Neuromotor Disorder, Hypoglycemia, Myoclonus, ulcers, undiagnosed GI problems

plus severe food allergies (Eggs, Peanut, Milk, Soy, Corn, Rice, Oats and

Crab/Neocate-only), Plagiocephaly and Dysphagia....Married for 12 years to

F--one

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