Re: cornstarch - for Lindsey

[Guest guest]

Lindsey - I hope Aidan and you all are doing well. Did Aidan ever

have hypospadius surgery? I have been thinking of you all so often.

Re the cornstarch, the other posting is correct. You can read a

document in the MAGIC library that describes the cornstarch and

polycose (for infants) pretty thoroughly and why it works in reducing

nighttime hypoglycemia. Just call MAGIC at 1-800-3MAGIC and ask for

documents #H-26 and #H-28 and they will mail it to you free since you

are a member of MAGIC. That should help you a lot!

Salem

>

> My son, Aidan is 12 months. He has been eating twice during the

night

> for a year now, and I'm really tired. Someone mentioned cornstarch

at

> the convention. Can someone tell me more about it? ..Lindsey

>

[Guest guest]

> >

> > My son, Aidan is 12 months. He has been eating twice during the

> night

> > for a year now, and I'm really tired. Someone mentioned

cornstarch

> at

> > the convention. Can someone tell me more about it? ..Lindsey

> >

>

[Guest guest]

Lindsey, I am so glad that you ended up going to Poppas. I will

NEVER forget the look on your husband's face when Dr. Harbison

explained that your son would probably need 2-3 surgeries, and then

made some comment about how we should remember that at his age, the

penis is quite small and an inexperienced doctor can easily make

errors (or some verbage like that). Your husband's face was

priceless, and then he said " we'll come to NY. " Never forget that!

Re the Pediasure. Many of us use Pediasure. was on it for

years. However, we have since learned that for RSS/SGA children who

have any kind of stomach emptying delay, Pediasure is actually the

worse in terms of digestion time. Peptamen Jr. is better. I have

the information that the Easter Seals people wrote, describing which

formula is better. We have also just added it to the MAGIC RSS/SGA

Library Log, for anyone interested. Can't recall the number, but

you can call MAGIC. 1-800-3MAGIC3. Hope that might help.

Thank you for writing back!

> > >

> > > My son, Aidan is 12 months. He has been eating twice during

the

> > night

> > > for a year now, and I'm really tired. Someone mentioned

> cornstarch

> > at

> > > the convention. Can someone tell me more about it? ..Lindsey

> > >

> >

>

[Guest guest]

Lindsey,

Dr. Poppas did my son Jonah's hypospadius surgery as well. I loved him!

It's funny because a few weeks ago I was sick and Jonah said to me, " mommy,

you can't go to Dr. Poppas (I didn't even know he remembered his name). I

said why and he said because mommy, he is a penis doctor! I almost fell

over laughing.

Best of luck.

Re: cornstarch - for Lindsey

>

> > >

> > > My son, Aidan is 12 months. He has been eating twice during the

> > night

> > > for a year now, and I'm really tired. Someone mentioned

> cornstarch

> > at

> > > the convention. Can someone tell me more about it? ..Lindsey

> > >

> >

>

>

>

>

>

>

>

>

>

[Guest guest]

:

,

I really like Dr. Poppas too. I'm glad to hear that you were happy

with him. He better be really good since we are coming all the way

from Alabama. However, since you were talking about IVs in another

message I will tell you that I was very unhappy with the IV team at

Cornell. They blew his IV 7 times before they finally got it. That

part was worse than the surgery for me. I'm dreading the next two

surgeries mainly because of the IV. If you have any tips please share

Thanks...Lindsey

[Guest guest]

Lindsey,

I am still in awe of what Dr. Poppas did for Jonah. In terms of the IV, we

didn't have a problem, so maybe this time will be better for you guys.

They took us into a small room on the floor and two female nurses put in the

IV. I am sorry, but I don't know their names. Jonah brought his Elmo into

the room and they pretended to give him an IV too, they even put a bandage

on Elmo.

One thing I would say is that we must always be advocates for our children.

When Jonah had his surgery, they put an infant who was sick in his room and

the baby's mom was also sick. I had to fight to have the baby or Jonah

moved since I did not want Jonah, who probably weighed less than the infant,

catching anything. They had an empty room so there was no reason to take

chances. All in all, we had a good experience, most of the nurses were good

to us, and Dr.Poppas was amazing, but there were a few times that we had to

take a stand.

Keep me posted.

, Jonah' mom

Re: cornstarch - for Lindsey

> :

> ,

> I really like Dr. Poppas too. I'm glad to hear that you were happy

> with him. He better be really good since we are coming all the way

> from Alabama. However, since you were talking about IVs in another

> message I will tell you that I was very unhappy with the IV team at

> Cornell. They blew his IV 7 times before they finally got it. That

> part was worse than the surgery for me. I'm dreading the next two

> surgeries mainly because of the IV. If you have any tips please share

> Thanks...Lindsey

>

>

>

>

>

>

>

>

>

>