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YAY LDN!!

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I just got back from my Duke appointment, and I LOVE my GI doctor!! My

parents and I sent her many emails saying that we REALLY wanted to try

LDN, and she said that she thinks it's reasonable to let us try it for

about 3 months before we try anything else (remicade). So, we have her

blessing for the LDN, though she doesn't feel comfortable prescribing

it. So, now all we need to do is find a doctor to prescribe it!

What's the deal with prednisone and LDN? Do I have to be at/below a

certain dose of pred, or completely off of it before I start LDN?

Also, do you guys think I should get the capsules or cream? Dose?

Start at maybe 3 mg and at some point increase to 4.5? And what

exactly should I tell the compounding place? Any advice is

appreciated!! I'M SO EXCITED!!

Cheers!

Alyssa 16 yo

UC April 2008, dx Sept 2008

SCD June 2009 (restarted)

Prednisone 10 mg 1x per day (trying to wean!!!!)

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