Re: RSS and exersise!!

[Guest guest]

I think swimming is great. Raven is in swimming and Hula. Her endocrine told us

that the exercise is good for her, but to be sure that she does not overdo it.I

should do bolus feeds for her too. Good idea.

Mollison, (Raven age 5 RSS)

Jody & Damian wrote: Hi

I have just been discussing sports with another parent.

Liam is now doing karate and swimming lessons, he loves both and

they are sports he can challenge himself in, without having to keep

up with a team.

I find swimming lessons has been great for his strength and muscle

tone, he can swimm about 10mtre and is trying very hard to get his

head up for a breath, which considering the difference in his head

size to his body is going to be alot more difficult than other kids.

LIam gets very cold from swimming,I always give him a bolus feed

before he starts for energy and usually afterwards. When he gets out

he is shivering and doesnt have any energy,but he loves it.

Karate was something he really wanted to do, I had a difficult time

convincing the club he would be able to participate. Just one of

those extra issues a RSS parent has to face. As they take kids from

4 and he was 4yrs8mnths, I wasnt going to let them say No. Now of

course they love having him and have even adapted some equipment for

him to participate better. In group games its amazing how little

kids just learn how not to get hurt, Liam has it down to a fine art.

I want Liam to try different sports and activities not sit on the

side line because he is to small. Has anyone else got any ideas for

things like this for RSS kids.

Jody(mum to Liam 12.2kg ? height and Cameron)

[Guest guest]

Hi Judy,

loves bowling. maybe you can try that.

Ken M

>

> Hi

> I have just been discussing sports with another parent.

> Liam is now doing karate and swimming lessons, he loves

both and

> they are sports he can challenge himself in, without having to

keep

> up with a team.

> I find swimming lessons has been great for his strength and

muscle

> tone, he can swimm about 10mtre and is trying very hard to get

his

> head up for a breath, which considering the difference in his

head

> size to his body is going to be alot more difficult than other

kids.

> LIam gets very cold from swimming,I always give him a bolus

feed

> before he starts for energy and usually afterwards. When he

gets out

> he is shivering and doesnt have any energy,but he loves it.

> Karate was something he really wanted to do, I had a difficult

time

> convincing the club he would be able to participate. Just one of

> those extra issues a RSS parent has to face. As they take kids

from

> 4 and he was 4yrs8mnths, I wasnt going to let them say No.

Now of

> course they love having him and have even adapted some

equipment for

> him to participate better. In group games its amazing how little

> kids just learn how not to get hurt, Liam has it down to a fine

art.

> I want Liam to try different sports and activities not sit on the

> side line because he is to small. Has anyone else got any

ideas for

> things like this for RSS kids.

> Jody(mum to Liam 12.2kg ? height and Cameron)

>

[Guest guest]

Hi Jody

I have a suggestion. If Liam swims with a rashie, have two. Take his

wet one off the minute he gets out of the water and put the dry one

on him.

Learning to swim in a wet suit is not a great idea. It impedes the

normal motion of the arms and the child often expends more energy

pulling their arms clear of the water, when they are learning the

technique. If Liam is just mucking around in the water, or can

already swim, a wet suit is great though.

Karate is an excellent sport for an RSS child, so is cycling.

In a few years time when Liam is a bit older, he can participate in

soccer, cricket and nippers without any problems. SLSNSW and both

cricket and soccer NSW have made an exceptions for an RSS child,

.

He was allowed to play in his size appropriate group, not his age

appropriate group. was in the under 12 cricket team for so

long, that we use to joke he'd old enough to drive the team to their

matches!!!

Don't worry, if Liam is interested in a sport, he won't ever need to

sit on the sideline. The NSW dept of sport and rec bends over

backwards to accommodate a child with special needs and so do the

State associations if you ask them.

ne

>

> Hi

> I have just been discussing sports with another parent.

> Liam is now doing karate and swimming lessons, he loves both and

> they are sports he can challenge himself in, without having to

keep

> up with a team.

> I find swimming lessons has been great for his strength and muscle

> tone, he can swimm about 10mtre and is trying very hard to get his

> head up for a breath, which considering the difference in his head

> size to his body is going to be alot more difficult than other

kids.

> LIam gets very cold from swimming,I always give him a bolus feed

> before he starts for energy and usually afterwards. When he gets

out

> he is shivering and doesnt have any energy,but he loves it.

> Karate was something he really wanted to do, I had a difficult

time

> convincing the club he would be able to participate. Just one of

> those extra issues a RSS parent has to face. As they take kids

from

> 4 and he was 4yrs8mnths, I wasnt going to let them say No. Now of

> course they love having him and have even adapted some equipment

for

> him to participate better. In group games its amazing how little

> kids just learn how not to get hurt, Liam has it down to a fine

art.

> I want Liam to try different sports and activities not sit on the

> side line because he is to small. Has anyone else got any ideas

for

> things like this for RSS kids.

> Jody(mum to Liam 12.2kg ? height and Cameron)

>

[Guest guest]

Hey jody, just another thought, rss kids are really well built for gymnastics as

they are small in frame yet still light on their feet, agile and quick, as you

know being small doesnt mean slow or undetermined. I would love to have done

more athletics and loved watching the gymnastics ie floor routines etc on tv but

unfortuneatley my health declined as i wasnt well enough to pursue it more, as

regards swimming when i got out of the pool my mum or dad always made sure my

towel was put on or mear a heater to help prevent to much heat lose or me

getting ill

Hope this helps

Jody & Damian wrote:

Hi

I have just been discussing sports with another parent.

Liam is now doing karate and swimming lessons, he loves both and

they are sports he can challenge himself in, without having to keep

up with a team.

I find swimming lessons has been great for his strength and muscle

tone, he can swimm about 10mtre and is trying very hard to get his

head up for a breath, which considering the difference in his head

size to his body is going to be alot more difficult than other kids.

LIam gets very cold from swimming,I always give him a bolus feed

before he starts for energy and usually afterwards. When he gets out

he is shivering and doesnt have any energy,but he loves it.

Karate was something he really wanted to do, I had a difficult time

convincing the club he would be able to participate. Just one of

those extra issues a RSS parent has to face. As they take kids from

4 and he was 4yrs8mnths, I wasnt going to let them say No. Now of

course they love having him and have even adapted some equipment for

him to participate better. In group games its amazing how little

kids just learn how not to get hurt, Liam has it down to a fine art.

I want Liam to try different sports and activities not sit on the

side line because he is to small. Has anyone else got any ideas for

things like this for RSS kids.

Jody(mum to Liam 12.2kg ? height and Cameron)

[Guest guest]

my son connor, age 7, LOVES animals and started horse back riding last year.

for someone who was afraid of a baseball or soccer ball, it is amazing to see

him lead a 1000 pund pony, hop on, AND he won three blue ribbons last year! Our

docs, say that his muscle tone and back position (straigtens you up a little)

are amazing from this. alos helped his thigh strength and balance!

Kim

Jody & Damian wrote:

Hi

I have just been discussing sports with another parent.

Liam is now doing karate and swimming lessons, he loves both and

they are sports he can challenge himself in, without having to keep

up with a team.

I find swimming lessons has been great for his strength and muscle

tone, he can swimm about 10mtre and is trying very hard to get his

head up for a breath, which considering the difference in his head

size to his body is going to be alot more difficult than other kids.

LIam gets very cold from swimming,I always give him a bolus feed

before he starts for energy and usually afterwards. When he gets out

he is shivering and doesnt have any energy,but he loves it.

Karate was something he really wanted to do, I had a difficult time

convincing the club he would be able to participate. Just one of

those extra issues a RSS parent has to face. As they take kids from

4 and he was 4yrs8mnths, I wasnt going to let them say No. Now of

course they love having him and have even adapted some equipment for

him to participate better. In group games its amazing how little

kids just learn how not to get hurt, Liam has it down to a fine art.

I want Liam to try different sports and activities not sit on the

side line because he is to small. Has anyone else got any ideas for

things like this for RSS kids.

Jody(mum to Liam 12.2kg ? height and Cameron)

[Guest guest]

hey jody!!

christopher has been bowling since he was 3yrs. and he loves to roller

skate as well. i am going to put him in gymnastics come the spring

too!! maybe give one of these a try. ((HUGS))

jodie c

[Guest guest]

My 6 year son is playing soccer since he was 4, he is the smaller and tiny

boy in his team, but he is good, he is never afraid to play with big boys

and all the parents encourage him to continue playing like this.

Also he is in taek wondo school team, he is the lider, even he is the

smaller and doesn't have enough force like the other boys, but he has so

much courage, his teacher has told us please continue with the classes when

change school and we agree. Our doctors have told us that the exercise

is good for him, maybe in the future he has to change soccer team and play

with young team but this time he is playing with boy same age.

My son is happy doing exercise an he has made a lot of friends.

Betty

-----Mensaje original-----

De: RSS-Support [mailto:RSS-Support ] En

nombre de Jody & Damian

Enviado el: Lunes, 13 de Marzo de 2006 09:07 p.m.

Para: RSS-Support

Asunto: RSS and exersise!!

Hi

I have just been discussing sports with another parent.

Liam is now doing karate and swimming lessons, he loves both and

they are sports he can challenge himself in, without having to keep

up with a team.

I find swimming lessons has been great for his strength and muscle

tone, he can swimm about 10mtre and is trying very hard to get his

head up for a breath, which considering the difference in his head

size to his body is going to be alot more difficult than other kids.

LIam gets very cold from swimming,I always give him a bolus feed

before he starts for energy and usually afterwards. When he gets out

he is shivering and doesnt have any energy,but he loves it.

Karate was something he really wanted to do, I had a difficult time

convincing the club he would be able to participate. Just one of

those extra issues a RSS parent has to face. As they take kids from

4 and he was 4yrs8mnths, I wasnt going to let them say No. Now of

course they love having him and have even adapted some equipment for

him to participate better. In group games its amazing how little

kids just learn how not to get hurt, Liam has it down to a fine art.

I want Liam to try different sports and activities not sit on the

side line because he is to small. Has anyone else got any ideas for

things like this for RSS kids.

Jody(mum to Liam 12.2kg ? height and Cameron)

[Guest guest]

Hi Jody,

We thought that gymnastics when he was young (under age 5 or age 6)

was great. Taught him a lot about coordination and balance which

helps for all sport. Also, using lots of different equipment worked

out different muscles. He lost interest after he started school.

(As Jen noted - no worry about emphasis on being thin at an early

age)

We think team sports are really important for all our kids and

always have Tyler doing something like soccer, cricket, baseball,

basketball, etc. Unfortunately, I think he's programmed to be a bit

worried when there are lots of kids in a close space all vying for

the ball - he doesn't jump in to take it away and stands back for

someone to pass it to him. Team sports are NOT his favorite

activity but we're persevering while he's young. Cricket, baseball

and tennis have worked better b/c no close contact. He also loves

shooting baskets - on his own, not during a basketball game. We'll

be getting a big basketball hoop at home soon so he can play on his

own or with one or two friends. Shooting baskets at home or hitting

a tennis ball against a wall with the family builds strength and

coordination without the pressure of keeping up with others.

Have you thought about hiking or rock climbing? Tyler loves

anything like camping and hiking. We're very keen to try rock

climbing (and something like tae kwan do) for confidence and sense

of achievement.

>

> Hi

> I have just been discussing sports with another parent.

> Liam is now doing karate and swimming lessons, he loves both and

> they are sports he can challenge himself in, without having to

keep

> up with a team.

> I find swimming lessons has been great for his strength and muscle

> tone, he can swimm about 10mtre and is trying very hard to get his

> head up for a breath, which considering the difference in his head

> size to his body is going to be alot more difficult than other

kids.

> LIam gets very cold from swimming,I always give him a bolus feed

> before he starts for energy and usually afterwards. When he gets

out

> he is shivering and doesnt have any energy,but he loves it.

> Karate was something he really wanted to do, I had a difficult

time

> convincing the club he would be able to participate. Just one of

> those extra issues a RSS parent has to face. As they take kids

from

> 4 and he was 4yrs8mnths, I wasnt going to let them say No. Now of

> course they love having him and have even adapted some equipment

for

> him to participate better. In group games its amazing how little

> kids just learn how not to get hurt, Liam has it down to a fine

art.

> I want Liam to try different sports and activities not sit on the

> side line because he is to small. Has anyone else got any ideas

for

> things like this for RSS kids.

> Jody(mum to Liam 12.2kg ? height and Cameron)

>

[Guest guest]

is starting swim lessons soon. He also played tball last year

(he is not interested this year) and played soccer this past fall. He

is going to be playing soccer again in the spring.

As for karate, my husband and I have been involved in the martial arts

for 10 years. The school that we belong to doesn't have classes for

little kids, we start at age 6 and just isn't mature enough

yet. The kids class has kids from age 6 rhough 14 and goes for 1 1 /2

hours which is way too much for . He will start when he is older.

BTW, does Liam wear a wetsuit? wears a full-body wetsuit which

really helps him not get cold.

Judith, Steve, (RSS) and (non RSS) 6 year old twins

[Guest guest]

Hi

Its great to hear so many of our kids are out there participating,

especially in the team sports.

I dont know if Liam would be able to run the length of the soccer

oval this year, but maybe next year.

Liam doesnt have a wet suit, for swimming lessons it would make him

to bouyant, he does wear a swim shirt(rashie).

Bowlings something he hasnt tried, do they use one of the rack to

push the ball???.

Thanks all

Jody

>

> is starting swim lessons soon. He also played tball last

year

> (he is not interested this year) and played soccer this past

fall. He

> is going to be playing soccer again in the spring.

>

> As for karate, my husband and I have been involved in the martial

arts

> for 10 years. The school that we belong to doesn't have classes

for

> little kids, we start at age 6 and just isn't mature enough

> yet. The kids class has kids from age 6 rhough 14 and goes for 1

1 /2

> hours which is way too much for . He will start when he is

older.

>

> BTW, does Liam wear a wetsuit? wears a full-body wetsuit

which

> really helps him not get cold.

>

> Judith, Steve, (RSS) and (non RSS) 6 year old twins

>

[Guest guest]

My girls have been involved in swim team swimming for the past 7 years and I

have seen some children - both on the team and in lessons - in special suits to

keep them warm. They aren't true " wet suits " as they are very easy to move

around in, not restrictive at all. I have even seen some that are like bib

overalls, so no arm restriction there either. I did a Google search on " Kids

Thermal Swim Suits " and found quite a few to look at. Additionally, here are 2

links from a place I have ordered from for my girls on both a suit and a swim

shirt:

http://worldwideaquatics.com/catalog/Tempdefault.asp?PID=2841

http://worldwideaquatics.com/catalog/Tempdefault.asp?PID=3197

in Alaska

RSS-Support wrote:

Date: Tue, 14 Mar 2006 10:57:20 -0000

From: " abarrie2002 "

Subject: Re: RSS and exersise!!

Hi Jody

I have a suggestion. If Liam swims with a rashie, have two. Take his

wet one off the minute he gets out of the water and put the dry one

on him.

Learning to swim in a wet suit is not a great idea. It impedes the

normal motion of the arms and the child often expends more energy

pulling their arms clear of the water, when they are learning the

technique. If Liam is just mucking around in the water, or can

already swim, a wet suit is great though.

Karate is an excellent sport for an RSS child, so is cycling.

In a few years time when Liam is a bit older, he can participate in

soccer, cricket and nippers without any problems. SLSNSW and both

cricket and soccer NSW have made an exceptions for an RSS child,

.

He was allowed to play in his size appropriate group, not his age

appropriate group. was in the under 12 cricket team for so

long, that we use to joke he'd old enough to drive the team to their

matches!!!

Don't worry, if Liam is interested in a sport, he won't ever need to

sit on the sideline. The NSW dept of sport and rec bends over

backwards to accommodate a child with special needs and so do the

State associations if you ask them.

ne

>

> Hi

> I have just been discussing sports with another parent.

> Liam is now doing karate and swimming lessons, he loves both and

> they are sports he can challenge himself in, without having to

keep

> up with a team.

> I find swimming lessons has been great for his strength and muscle

> tone, he can swimm about 10mtre and is trying very hard to get his

> head up for a breath, which considering the difference in his head

> size to his body is going to be alot more difficult than other

kids.

> LIam gets very cold from swimming,I always give him a bolus feed

> before he starts for energy and usually afterwards. When he gets

out

> he is shivering and doesnt have any energy,but he loves it.

> Karate was something he really wanted to do, I had a difficult

time

> convincing the club he would be able to participate. Just one of

> those extra issues a RSS parent has to face. As they take kids

from

> 4 and he was 4yrs8mnths, I wasnt going to let them say No. Now of

> course they love having him and have even adapted some equipment

for

> him to participate better. In group games its amazing how little

> kids just learn how not to get hurt, Liam has it down to a fine

art.

> I want Liam to try different sports and activities not sit on the

> side line because he is to small. Has anyone else got any ideas

for

> things like this for RSS kids.

> Jody(mum to Liam 12.2kg ? height and Cameron)

>

---------------------------------

Yahoo! Mail

Use Photomail to share photos without annoying attachments.