Re: just starting process....second opinion...lots of questions!

[Guest guest]

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I can't understand it, either. Why are so many peds against banding when it

offers such remarkable results and is virtually risk-free? It makes no sense.

Our ped wouldn't write a script for a band even after someone from Cranial Tech

visited her office.

I just think a lot of the peds are older, set in their ways and are not up on

the latest research. Our ped has been great up until this point, but I really

feel like she let us down on this one, especially since I started bringing up

the head shape issue when my daughter was only 2 months old. I can only hope

that she learned something and will do better the next time with another infant

who presents with similar symptoms. I'm just glad she diagnosed the tort when

she did and sent up to a PT who was knowledgeable about helmet therapy.

You are fortunate to have a ped who listened to you. I trusted my daughter's

even though my gut told me otherwise. It has been a lesson learned for me.

-Amy

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> > Hi, I'm new to this board and still figuring a lot of things out so sorry if

I'm not posting correctly! My son is 5 months old. He had right-side plagio when

he was born as I noticed his right eye looked bigger than the other. I mentioned

it to his ped who said this was normal. At his two month appt, I mentioned the

flattening on the back right side of his head, the slightly bulging right

forehead, and again the ped said it would straighten out on his own. At his 4

month appt, I again mentioned it but also mentioned his ears were out of

alignment (right ear is more forward than the other). He AGAIN said it would

straighten out on his own. I got frustrated after returning home and called back

and made another appt and DEMANDED a referral to a pediatric neurosurgeon. So we

got him an appt and drove to ville (almost 3 hours away). The

neurosurgeon only recommended repositioning and said he does not prescribe a

helmet unless the child is immobile.

> What the neurosurgeon fails to realize is that we have already been doing

everything we can to keep him off the right side of his head, but it's like

fighting a losing battle. Especially since he flips over himself onto his back

at night and he's in daycare while my husband and I work (I've advised them to

keep him off his back but of course, I don't know for sure they do this). No

matter what we do, he WANTS to lay on the right side of his head. I'm getting so

frustrated cuz I feel like that every day that goes by is another day we could

have been treating his head with a helmet. I don't know what to do at this

point. Do I try again and request a second opinion with another neurosurgeon -

only to end up with another who is anti-helmet? Or do I bite the bullet and

drive to Miami for a DocBand? Will I end up paying 100% out of pocket because

I've already had a neurosurgeon say that he recommended repositioning? I wonder

if that trip to the neurosurgeon

> will hurt me now as far as trying to get insurance to cover a DocBand? I just

don't understand why ped and the neurosurgeon look at my son's head and say,

" this will correct on his own. " He's had it since he was born and now he's 5

months and still nothing is getting better, only worse! It's really noticeable

when I look down at the top his head as his ears are so out of whack. I'm so

frustrated I could just cry. I guess if I have to charge $3800 on a credit card

it will be worth it. Anyone have any experience in getting a DocBand covered by

insurance after a neurosurgeon recommended repositioning?

> >

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