Re: We are scheduled for g tube Nov 22

[Guest guest]

Hi ,

If Maddison isn't eating much on her own as it is and needs help from you

then I think she should have a para at school to assist her. Jordan has a para

with him at lunch time. He can eat on his own but he does need prompting.

Even at home if you leave him alone to eat it will take hours because he gets

too

distracted. And in school there are alot of kids in the cafeteria and Jordan

definitely gets distracted so the para just encourages him to eat and tries

to get him to finish his food. I always have them send back the remaining food

so I can see for myself how much he ate. I will have you and Maddison in my

thoughts and prayers on Nov 22. She'll be fine. I know it's nerve wracking to

have surgery - but the outcome is well worth it. You'll see.

[Guest guest]

, I think everyone will vote different ways. I think that

you should try the least restrictive way first, since she will not

be receiving any bolus or tube feeds during the day. Our experience

with is that we have tried to let her " own " her life first.

There have been times in the last 5 years where she hasn't wanted to

eat as much, and then she knows that someone will monitor her at

lunchtime, etc. But that also makes her eat more so that she

doesnt' have anyone around. She doesn't want to feel different.

Clearly, you still have to have a 504 or IEP, in that she will need

access to frequent snacks, etc. throughout the day -- she may not

want to eat much at lunch but may make up the calories with other

snacks during the day. That is what happens with . As long

as 's weight continues to grow, we don't care what she eats

at lunch -- that is her " freedom " time.... no adult hovering asking

her to take one more bite. HA!!!

You obviously still need a meeting with the school so that they know

what to do in emergencies with the tube, etc. But could you start

out with just accomodation changes? See how she does?

Jen

>

> Hey,

> Its , Maddison's mom. Last time I posted I was in the

delima

> about whether Maddison needed a feeding tube and if she was too

> old. Well since then we have seen our GI and her surgery is

> scheduled for Nov. 22. I am ok with it now and almost releaved

> knowing that it will help her so much. My question is when she

goes

> back to school will she need anyone just for her self during the

> day. We are only planning to do feeds at night and not during the

> day. But the teacher mentioned that she might be able to have a

> para pro (teacher aide) just for her. So I looked in to that and

> this morning at school the assistant principal told me that (in

nice

> words) they would continue to encourage her to eat during the day

> but that she would not have one just for her? What do yall think

> about this? Since I have not already been there I don't know what

> might or might not happen? What has some of your experiences

been?

> HELP For almost a week now she has started eating real good at

> school and at home. The GI doctor said the wound area won't need

to

> be cleaned at school or anything. And since we are planning on

only

> doing feeds at night, I don't know if she would need anyone

> especially just for her at school or not. I know that she is

going

> to be full in the mornings and not going to want breakfast and

that

> it will probably throw her off for a while until her stomach get

> stretched out. Help

>

> Tolbert

> Maddison 4 1/2 yrs 24 1/2 lbs 38 inches

>

[Guest guest]

- I'm glad to know you feel relieved about the decision for

a G-tube. Our best to Maddison with her upcoming surgery. This is

a dilema that I face lot's and it's a hard decision. Kudos to you

for forging ahead.

- H

>

> Hey,

> Its , Maddison's mom. Last time I posted I was in the

delima

> about whether Maddison needed a feeding tube and if she was too

> old. Well since then we have seen our GI and her surgery is

> scheduled for Nov. 22. I am ok with it now and almost releaved

> knowing that it will help her so much. My question is when she

goes

> back to school will she need anyone just for her self during the

> day. We are only planning to do feeds at night and not during the

> day. But the teacher mentioned that she might be able to have a

> para pro (teacher aide) just for her. So I looked in to that and

> this morning at school the assistant principal told me that (in

nice

> words) they would continue to encourage her to eat during the day

> but that she would not have one just for her? What do yall think

> about this? Since I have not already been there I don't know what

> might or might not happen? What has some of your experiences

been?

> HELP For almost a week now she has started eating real good at

> school and at home. The GI doctor said the wound area won't need

to

> be cleaned at school or anything. And since we are planning on

only

> doing feeds at night, I don't know if she would need anyone

> especially just for her at school or not. I know that she is

going

> to be full in the mornings and not going to want breakfast and

that

> it will probably throw her off for a while until her stomach get

> stretched out. Help

>

> Tolbert

> Maddison 4 1/2 yrs 24 1/2 lbs 38 inches

>