Siblings --> Beth

[Guest guest]

Hi again Beth,

Well it might be a bit easier for me in that my girls are 5 years

apart. understands Olivia's problems and issues and we are

all involved in talking about them. On the other hand she can get

very emotional about it and resentful when Olivia needs extra care

and attention.

My husband, Trent, and I try and tag team them and spend some one

on one time with each daily, doesn't always happen but that's just

the way life goes!

The best thing we've found is to get interested in 's

passions... Sometimes painful for my husband to have indepth

discussions on Hillary Duff and that great pink sweater at Wal Mart,

lol, but just shines!! Letting her stay up a bit later

allows us to have a couple hands of cards, scrabble or just veg.

I guess it's not a whole lot of advice since 's so much

older but believe me, you will follow your mother's instincts and

adjust the time according to who needs it most at that time!!

Leah, Mom to , almost 11 (in 2 days!) and

Olivia 6.25yrs, 23lbs, 36 " , RSS, OI

> >

> > Welcome!! I also have twin girls (identical) that are 23

months

> old. Sydney and Leah were born 8 weeks early and Sydney was 2p

> 11oz and Leah was 4p 8oz. Sydney was just received a diagnosis

of

> RSS a few weeks ago so this is all new to me as well. We have

> struggled with feeding issues since day one with Sydney and

while we

> ended up not having to use a feeding tube we came very close on

> several occassions.

> >

> > She is eating much better now but still hasn't cracked 20

pounds

> yet. We are hoping to reach that milestone before her 2nd

> birthday. Her sister is about 28-29 pounds so there is quite a

> difference between them. I have posted their pictures on the

web

> site - there is a huge difference in size.

> >

> > We haven't started GHT yet, we have our first appointment with

our

> endo in April so I am not sure what she will recommend.

> >

> > It is hard sometimes watching one twin develop so " normally "

while

> the other faces so many challenges but Sydney is a total

spitfire

> and is a real fighter. I think all of these challenges have

given

> her a tenaciousness that will serve her very well in her life.

No

> matter what is put in front of her she just keep plugging

away.

> >

> > Welcome to the group. It is a great place to ask questions

and

> learn lots of information from other parents who have already

been

> down this road.

> >

> > Beth

> > New to the Group

> >

> >

> > Hi, I am new to the group, just wanted to introduce myself

and

> > daughter. I have twin girls born 1/28/03: Grace and

Alivia.

> They

> > were 5 weeks early, but very small especially Grace: 3 1/2

lbs

> and 14

> > 3/4 in. Immediatly the docs brought in genetics, but no one

> knew what

> > was wrong: big head, webbed toes, incurved fingers, small

> triangle

> > face. We went home, Grace wouldn't eat. We forced milk in

her,

> she

> > puked. PT and OT were started. She wasn't growing,

couldn't

> lift her

> > head. Finally switching peds, we got referred to Univ. of

MI

> Genetics

> > and Endo. They came up with RSS, got g-tube May'04, tested

> negative

> > for RSS as most do, started GHT March '05. She has grown 4

1/4

> in.

> > and 3 1/2 lbs in 9 mths which is so huge. Now what? We have

> stopped

> > using g-tube as of Jan. '06, but am not sure if that is

right

> > decision. Average cal. a day is about 846 w/out tube. My

> nutrionist

> > has made little effort to help,has no opinion on using/ not

> using

> > tube. I don't know what else to do for her or if we are

missing

> > something. Any advice on other areas to look into or docs?

> > Sincerely, Terri Tippman( mom of Grace RSS, 36

1/2

> mths,

> > 21 lbs, 31 1/4 in, GHT)

> >

> >

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> >

> >

> >

> >

> >