Re: Increased risk of seizures in kids with RSS?

[Guest guest]

Well, Liam is SGA possible RSS and he has seizures...... He is on Lamictal...

(35) Wife to: (44)

Mom to: Jed (12) and

Liam (5)

[Guest guest]

le,

My non-rss child has a seizure disorder and all three of my kids

have had febrile seizures. What exactly is a focal seizure, I have

not heard of that?

Pattie

>

> I had Coby and Carlee at the neuro today. Carlee has sleeping issues

> and night terrors. Coby they believe is having focal seizures. They

> can not catch them on an EEG, but several professionals have witnessed

> them. The neuro said that he did not know if RSS put him in increased

> risk for seizures. He did say that autism did and Coby has many

> autistic traits. So he started him on Trileptal.

>

> If anyone has any experience with this, I could really use your help.

>

> Thanks,

> le, mom to:

> Shye 11, Brock 9, Coby (rss) & Carlee 3 yr old twins

>

[Guest guest]

It's a partial (focal) seizure. It only effects one part of the

brain. I haven't had a chance to do much research yet, you guys were

the first place I turned.

le, mom to:

Shye, Brock, Coby & Carlee

[Guest guest]

le, began having what they thought were some type of

seizures. Very tiny upper body and head movements. She had an EEG

which showed an abnormality on the right side of her brain. Where

this spot is supposed to cycle 9-12 times per second, hers only does

2. But she also had a skull fracture years ago, so who knows.

However, they are going to put her in the hospital and do a 3-day

EEG to try and pinpoint any of the seizure movements (since they

often only happen 1-3 times per day and are only 2-3 seconds long).

We could have started a medication for it, but we finally decided

that because she is already on so many different meds, I really want

to find out before we try another one. , at 10 yrs old, is

really " maxed out " emotionally on the meds.

I will keep you posted on what I learn.

Jenn

>

> I had Coby and Carlee at the neuro today. Carlee has sleeping

issues

> and night terrors. Coby they believe is having focal seizures.

They

> can not catch them on an EEG, but several professionals have

witnessed

> them. The neuro said that he did not know if RSS put him in

increased

> risk for seizures. He did say that autism did and Coby has many

> autistic traits. So he started him on Trileptal.

>

> If anyone has any experience with this, I could really use your

help.

>

> Thanks,

> le, mom to:

> Shye 11, Brock 9, Coby (rss) & Carlee 3 yr old twins

>

[Guest guest]

hey danielle,

sorry i cant offer any advice or info on this but wanted to let you

know i am thinking about you and the twins and hope they find out

something soon to help him. ((HUGS))

jodie c