Guest guest Posted February 4, 2006 Report Share Posted February 4, 2006 Charlene, I have read your recent posts and wanted to tell you how inspiring they were. I really enjoyed reading about your challenges and how you went about getting what you wanted.....what Will really needed. Sorry you had to deal with such a mess, but thank you for sharing it with us. I know it warmed my heart to see such a wonderful advocate willing to stand up for her son. I am not that vocal of a person, but I have been known to get nasty so that gets what he needs. It is just such a shame it has to get to that point, though. you are not the first person that has been turned away from the ER only to have to return hours later with a very sick child. How unfortunate. What a great job you are doing though, and I just wanted to let you know that I enjoyed reading your messages. Thanx for sharing, Jodi R. > > > > > > > > Oh, how I wish I had known to tape this!!! > > > > Discovery Health and The Learning Channel showed an amazing > > > program > > > > following a family of 5, with both parents being > > achondroplasic > > > > dwarfs. > > > > > > > > Here's a link from the production company: > > > > http://www.advancedmedical.tv/shows/mtf.htm#synapsis > > > > > > > > The program was absolutely, postively inspiring, funny, and > > > practical > > > > too! Here's a quote from the promo: > > > > " It will introduce viewers to a family that faces challenges > > head- > > > on, > > > > challenges that any average-sized family would find > difficult > > to > > > > manage. We'll witness their daily struggle to fit into a > world > > > that > > > > isn't built to fit them, and their amazing resolve to make > > their > > > > lives as normal as possible. Whatever preconceived notions > > that > > > exist > > > > about dwarfs will be quickly forgotten upon meeting the > Foos. > > > Because > > > > in the case of the Foos, it's not their first impression > > they're > > > > concerned with, it's their lasting impression. " > > > > > > > > IT also included a nice little segment about how meaningful > > the > > > > annual LPA Convention (Little People of America) is to the > > > family. > > > > Reminded me a lot of what the MAGIC Convention means to our > > > RSS/SGA > > > > families. > > > > > > > > I have NO idea when or if it will air again, but perhaps you > > > Googlers > > > > out there can find more info. > > > > > > > > Enjoy! > > > > kATY > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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