Guest guest Posted September 24, 2010 Report Share Posted September 24, 2010 So, as usual there is a bit of background. I will try and be brief <grin> So last winter I was in Israel- that seems to be the jump start when I started to feel unwell. There was a lot of family stress (there actually has been loads of family stress in this past year in general) So that plays a huge part as I don't do well with pressure, overwhelm, stress yaddy yadda yadda and the list goes on and on. I took quite a beating for a couple of days while in Israel (I think I was glutened a few times in my in-laws kitchen) I don't do well with gluten at all. Rashes, extreme belly pain- the whole nine yards really. I get home from Israel and in general I am ok- loads better than I had been in years but still not as great as I was before the trip. So I started doing more mind/body work and IV's just to get some extra support. I also continued with acupuncture. But after a few weeks I started getting really bad joint issues. I have had some bad joint stuff associated with the CD in the past to the point I could not move or walk- This was different though also different that having Long term Lyme btw (I know my health saga is ridiculous) anyway.. even with needing to go do surgery for surgical hernia- that I keep putting off- I decided to start LDN. My reaction to LDN takes me a longer to properly respond to pain meds. Which was a challenge to say the least after colon surgery last year. That next day all of my joint and body issues were gone! I have stayed on LDN since but recently had to stop as I feel that it was accumulating and stressing my liver. I have since learned some tell tail signs for -my- body and have done some research about it and have spoken to various docs.. I can go into that more as well but I will leave the deets for a different time as it is hard holding a thread. LOL. One morning I wake up and have a BM and I see these weird off white-ish canellini bean looking things in my stool- and I am like " what is g-ds name is that? " I am familiar with Liver/GB congestion and this was nothing of the sort. So, I was like " I wonder if I have Parasites? " I go to my doc, I do a regular Quest stool test and that comes up as showing an extremely esoteric over-growth of " Aeronomas Hydrophila " My medical team perplexed as this is one of those bacteria that most physicians read in a text book- anyway I was given a round of Cipro, that very next day in the BM I have those bean looking things again! The toilet is full of them. Only recently I learned that these buggers are liver flukes and rumen flukes. I did about 6 rounds of Cipro over the next few months. As I would feel great after the Cipro and then plummet- which was all too familiar of a story for me because I had gone through this for years w CDiff. Truthfully, I slacked.. I should of gone to my other doc to have more extensive testing- but I have been busy with so many other things.. and it is wonderful to be doing art work again. So like one day I am fine and the next week I am bad.. Anyway, I went to get a rectal swab as my situation deteriorated fast and I started to feel extremely unwell. I started to have very bloody stool which is Atypical and super rare for me. My blood counts got abysmal.. My blood work was terrible!like pre-diet terrible! The only place I have severe active CD inflammation is in my rectum. This has gotten so much better on the diet- that it doesn't bother me too much- like stop my life so I don't really care what docs tell me. I was starting to get worried and pondered going to the GI which I am not thrilled with plus I am due for a scope.. anyway in the meantime I went super basic on the diet AND nothing absolutely nothing helped. NOTHING! The rectal swab came back showing I had rampant overgrowth of E Hystolitica and E Coli in cyst form. I was given a 10 day course of Tindamax (bursts parasitic cysts) During those 10 days I felt awful! Herx hell. After those 10 days I felt wonderful! During those 10 days I had " scale looking things " or like " sesame seed hull " looking things like " empty sesame seeds " in my BM's.. I do not eat sesame seeds or nuts. My acupuncturist told me during the whole Tindamax course that parasites are not the issue but worms. I guess in TCM they make a distinction between parasites and worms? So he had me eat a handful of pumpkin seeds (made into butter) daily for 15 days- pumpkin seeds are a natural de-worm and my acu wants me to eat a handful made into butter 5 days out of every month going fwd. After the 15 days he gave me a chinese herbal prep. Both the pumpkin seeds gave me terrible D and the herb totally knocked me out (like how I was in the begining days of the diet) just completely bed ridden and I could not eat at all. When I could start eating I put everything in the blender. 3 days after the herb (I only took one capsule- the herb is illegal btw) I have a BM and I see this bizzare thing in the toilet.. So I get up and I look in the toilet and I cannot believe my eyes.. I get weak in the knees and utterly nauseous.. From what I can actually see- it's at least 10 " -12 " - this rope looking thing or like a vein on top of loose stool. It had a reddish hue. It had a tail. I was so out of sorts about this that I did not take it out of the toilet and put it in a jar in alcohol which was a -complete- lapse in judgment- it's just I was in such a state of shock and bewilderment.. anyway.. I still think maybe I am crazy? Maybe I am just seeing all this stuff? Anyway, I read that even if the mature worm gets out of the body the eggs can still be present. Cloves help the body rid of the eggs so I have been drinking and using cloves and have been going through die off hell. Now all of these flukes are coming out. I am seeing a specialist on Monday. I need to go on de-worm prescription meds and then I am thinking of doing a Hulda like protocol perhaps with pre-medicating myself so I can withstand it. I am also going to buy the zapper. My docs think these worms have been in me long term and perhaps LDN brought it to the " surface " .. My right Upper Quadrant has been acting up so much and then feels amazingly better which can be typical for this type of thing.. I am thinking of maybe doing a modified liver flush (I don't want to end up in the hospital) and then restarting LDN. My acu is worried about liver stress right now. LDN brought the Lyme and Co to the Surface, did some other nifty stuff and now possibly this. This may be -the- thing to get me better! I am in a state of shock the past week to be honest and it will be interesting to hear what the specialist says on Monday. I find this all fascinating that it has happened right when my Savta passed.. It's as if she is watching over me and threatening all of these buggers. I am not the most spiritual person.. but I feel she is protecting me. Jodi Quote Link to comment Share on other sites More sharing options...
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