Re: Need proof and info why peptimen jr. is best for RSS/SGA kids

[Guest guest]

,

I'm in Florida, so this will be brief. I just wanted to get back to

you about the Peptamen, Jr. It is the formula of choice because of

the easy digestibility and high calories. It is used for those kids

who have delayed emptying because it is considered to

be " predigested. " It is also great for those who are allergic to

milk.

I don't understand, either, if Autumn is tolerating it well, why you

would want to change that. It is so hard to find a formula that our

kids can thrive on. Why mess with something she can tolerate?

I'm glad the surgery is over and Autumn is doing well. It is normal

for her to not want to take food orally for awhile. Just bolus her as

often as you need to. Keep on offering the food and eventually, and

it could take months, she will come around. I promise.

Jodi Z

[Guest guest]

- You can call MAGIC and ask for a copy of library article

#H-127. They will make the copy and mail it to you that same day.

(you are still a member of MAGIC right?) That document is written by

an Easter Seals nutritionist, approved by Dr. Dumont (peds GI at

Loyola Children's Hospital) and Dr. Harbison). It should help you.

>

> Autumns' gi nurse is now questioning why she is even on peptamen jr

and

> she wants to find something else for her. I don't knwo why suddenly

> this is and issue, Autumn has been on it since 1 yr old and this

nurse

> knew the whole time and thought it was good, but now Autumn has a g-

> tube, I guess it's an issue? I dont' know why. I just want proof

of

> why it is good. Autumn tolerates it really well and I see no

reason

> to change! For some reason, this nurse seems to have issues with me

> and i don't know why, so all I can do is arm myself with facts!

> Thanks for any help!

>

>

>

[Guest guest]

Thanks Jodi. Everything has just changed so quickly with Autumn

and I am still trying to get used to it! It just went downhill so

fast I had nothing to grab on to and now we are slowly climbing up.

It is all so new to me and I am so thankful for all your help. I am

relieved she is getting calories and hydration through the g-tube

although I am still a little thrown off by almost total lack of

interest in food going on for 3 weeks or so now. The home care nurse

came over today and we got the gi to give a new plan. WE are adding

extra bolus feeds at night now for more calories until monday, then

a new plan will be set to try to get her back more to food and the

extra calories by bolus instead of the other way around. As for the

peptamen jr, thanks for the info. I certainly don't want to change

it, she tolerates it very well. I honestly don't know what the nurse

is thinking.

mom to Autumn 21.5 mos RSS, Summer 4 mos SGA, Ocean 3.5 yrs, Skye 7

yrs

>

> ,

>

> I'm in Florida, so this will be brief. I just wanted to get back

to

> you about the Peptamen, Jr. It is the formula of choice because of

> the easy digestibility and high calories. It is used for those

kids

> who have delayed emptying because it is considered to

> be " predigested. " It is also great for those who are allergic to

> milk.

>

> I don't understand, either, if Autumn is tolerating it well, why

you

> would want to change that. It is so hard to find a formula that

our

> kids can thrive on. Why mess with something she can tolerate?

>

> I'm glad the surgery is over and Autumn is doing well. It is

normal

> for her to not want to take food orally for awhile. Just bolus her

as

> often as you need to. Keep on offering the food and eventually,

and

> it could take months, she will come around. I promise.

>

> Jodi Z

>

[Guest guest]

Thanks !

mom to Autumn RSS, Summer SGA, Ocean, Skye

> >

> > Autumns' gi nurse is now questioning why she is even on peptamen

jr

> and

> > she wants to find something else for her. I don't knwo why

suddenly

> > this is and issue, Autumn has been on it since 1 yr old and this

> nurse

> > knew the whole time and thought it was good, but now Autumn has a

g-

> > tube, I guess it's an issue? I dont' know why. I just want

proof

> of

> > why it is good. Autumn tolerates it really well and I see no

> reason

> > to change! For some reason, this nurse seems to have issues with

me

> > and i don't know why, so all I can do is arm myself with facts!

> > Thanks for any help!

> >

> >

> >

>

[Guest guest]

If this is the Easter Seals nutritionist I think it is - she is

awesome too!

- H

> >

> > Autumns' gi nurse is now questioning why she is even on peptamen

jr

> and

> > she wants to find something else for her. I don't knwo why

suddenly

> > this is and issue, Autumn has been on it since 1 yr old and this

> nurse

> > knew the whole time and thought it was good, but now Autumn has

a g-

> > tube, I guess it's an issue? I dont' know why. I just want

proof

> of

> > why it is good. Autumn tolerates it really well and I see no

> reason

> > to change! For some reason, this nurse seems to have issues

with me

> > and i don't know why, so all I can do is arm myself with facts!

> > Thanks for any help!

> >

> >

> >

>