Re: Diagnosis codes for Uniparental Disomy 7 labs????

[Guest guest]

Sadly, I have no help for you there. I know that our doctor did the

tests WITHOUT asking us to check for insurance, and then we got the

bill, insurance denied. $300 for each of us, $900 total. This was

in about 1998.

We were able to negotiate a 50% discount, but still had to pay it.

We were so mad. It was a painful lesson for me.

>

> Hi again! I've been a member of this listserve for quite some

time,

> but rarely post. We've been told our daughter has RSS, then not,

and

> now " likely mild RSS " . I'm sorry to come to you for help when I

have

> not been active here in quite a while...

>

> However, I am in desperate need for help regarding trying to get

our

> insurance company to cover the Uniparental Disomy 7 lab test.

There

> has been some issue with diagnosis codes not being " appropriate "

and a

> severe lack of assistance from the office of my daughter's

Geneticist.

> Anyone have any secrets or a list of diagnosis codes that worked

for

> you (of course I would only use the ones that do apply to my

> daughter)? I am hoping that if I provide Meg's drs office with a

list

> of codes they will use them and maybe we can get this covered!

(BTW-

> we will very likely be switching geneticists).

>

> We can not afford the $900 to pay for these lab tests!

>

> Thank you so much,

> Ginger

> Mommy to 2 yrs 10 months old

> severe IUGR, SGA, still possible RSS

>