Guest guest Posted February 4, 2006 Report Share Posted February 4, 2006 Charlene, The problem with our RSS kids is that many of them have weak soft palates. When the adenoids are removed, or even trimmed a bit as Max's were (Yuck! What an awful thought!), it takes away some of the support that the palate needs. An ENT needs to be very careful and mindful of this. Max's tried to be, but Max still had speech difficulties despite his efforts not to take too much. He developed a condition where air leaked out of his nose while he was speaking. He needed very specific ST to correct this. It took a couple of years. Man, it's always something with this son of mine. The surgery itself, however, was not too bad. Jodi Z Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2006 Report Share Posted February 4, 2006 I had Adam down to Sick Kids a couple of years ago when I got on a kick that he might have issues with his tonsils/adenoids affecting his air passages and his speech (that pitch/nasal thing again). I wish I could remember exactly what was said but there were some additional stressors to that appt. (long story) so a lot of what was said didn't find a part of my brain to sink into that I would remember but the one thing I clearly remember being told was to never let anyone try to remove any of his adenoids because it would make everything way worse. I suppose it's something to be sure is examined in regards to speech/voice. Debby Re: Tonsils and adenoids, Charlene, The problem with our RSS kids is that many of them have weak soft palates. When the adenoids are removed, or even trimmed a bit as Max's were (Yuck! What an awful thought!), it takes away some of the support that the palate needs. An ENT needs to be very careful and mindful of this. Max's tried to be, but Max still had speech difficulties despite his efforts not to take too much. He developed a condition where air leaked out of his nose while he was speaking. He needed very specific ST to correct this. It took a couple of years. Man, it's always something with this son of mine. The surgery itself, however, was not too bad. Jodi Z Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2006 Report Share Posted February 4, 2006 I am so glad you shared this info! I am taking Isaac to an ENT for the first time on the 16th of this month. Do you know if MAGIC has anything on this subject so I could take it with me? It has been my experience that doctors often pay more attention when you have something in writing regarding our kids. I had one doc admit to me that he " kind of remembered hearing about RSS back in Med school " . I always take the MAGIC pamplet and the Dr. H articles for every new doc we go see. Thanks again- Mimi > > Charlene, > > The problem with our RSS kids is that many of them have weak soft > palates. When the adenoids are removed, or even trimmed a bit as > Max's were (Yuck! What an awful thought!), it takes away some of the > support that the palate needs. An ENT needs to be very careful and > mindful of this. Max's tried to be, but Max still had speech > difficulties despite his efforts not to take too much. He developed a > condition where air leaked out of his nose while he was speaking. He > needed very specific ST to correct this. It took a couple of years. > > Man, it's always something with this son of mine. > > The surgery itself, however, was not too bad. > > Jodi Z > Quote Link to comment Share on other sites More sharing options...
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