Hello to all from Mike Blazer in Alabama

[Guest guest]

Hello I was told I had PF two weeks ago and I thought it was COPD for over 6

Months. I want to help to make Public Awareness because so many people do not

know what it is. I have read the post for about a week and a half. I did not

sleep for nearly a week. Now I want to get a group for funding to make

awareness. I want all to know that My Prayer's are with you. My family Doctor's

Receptionist and My Pulmonary Doctor's Receptionist did not know what it is.

Most of My Family and Friends have not heard of it. My second Cuz is in her

first year of residency at UAB in Biringham and she is helping me with research

of it. I have some contacts in Birmingham and Huntsville Al. that are interested

in helping. Fox News 6 in Bham and CBS 19 in Huntsville.

All are in my Prayer's

MIKE BLAZER

mike.blazer@...

[Guest guest]

Mike -

Go for it!! You, of course, are familiar with the Pulmonary Foundation and the

Coalition for Pulmonary Fibrosis. And, you do know about HR 1079 currently in

committee. I have contacted my representative 5 times now and he keeps blowing

me off. I am very upset with him on several accounts. One of our former

governors (Orlene , discovered it when she was at the higher altitudes

showing dignitaries through the Olympic venues a few years back here in Salt

Lake City) has Pulmonary Fibrosis. It's not like Jim Matheson isn't aware of it.

Let us all know if there is anything we can do to help. Do use the existing

resources, they have experience with media as well.

Stefani 61 year old Utahn (originally from MN)

ILD 2/2006, NSIP (fibrotic) 10/2009, Diabetes II 2/2006, Sleep Apnea 4/2009

>

> Hello I was told I had PF two weeks ago and I thought it was COPD for over 6

Months. I want to help to make Public Awareness because so many people do not

know what it is. I have read the post for about a week and a half. I did not

sleep for nearly a week. Now I want to get a group for funding to make

awareness. I want all to know that My Prayer's are with you. My family Doctor's

Receptionist and My Pulmonary Doctor's Receptionist did not know what it is.

Most of My Family and Friends have not heard of it. My second Cuz is in her

first year of residency at UAB in Biringham and she is helping me with research

of it. I have some contacts in Birmingham and Huntsville Al. that are interested

in helping. Fox News 6 in Bham and CBS 19 in Huntsville.

> All are in my Prayer's

> MIKE BLAZER

> mike.blazer@...

>

>

[Guest guest]

This is great to know! I also was told I had COPD for many many years only to be told recently I indeed do have an Interstitial Lung Disease! Next is to find out what form it is. I have seen a Pulmonologist but he is sending me to a specialist. But that appointment is not until Feb.9th which I am disappointed that I have to wait so long.Donna(Iowa)To:

Breathe-Support Sent: Mon, December 7, 2009 9:11:53 PMSubject: Hello to all from Mike Blazer in Alabama

Hello I was told I had PF two weeks ago and I thought it was COPD for over 6 Months. I want to help to make Public Awareness because so many people do not know what it is. I have read the post for about a week and a half. I did not sleep for nearly a week. Now I want to get a group for funding to make awareness. I want all to know that My Prayer's are with you. My family Doctor's Receptionist and My Pulmonary Doctor's Receptionist did not know what it is. Most of My Family and Friends have not heard of it. My second Cuz is in her first year of residency at UAB in Biringham and she is helping me with research of it. I have some contacts in Birmingham and Huntsville Al. that are interested in helping. Fox News 6 in Bham and CBS 19 in Huntsville.

All are in my Prayer's

MIKE BLAZER

mike.blazer@ yahoo.com

[Guest guest]

Hi Mike,

Welcome to the group! I’m sorry you too suffer from this dreadful disease, but you will find a wealth of information, support, encouragement, love and humor from the members here.

Be sure and check out the Pulmonary Fibrosis Foundation at http://pulmonaryfibrosis.org/ an organization dedicated to funding and supporting new research, providing educational materials to the medical and lay communities, obtaining congressional support to increase funding of the NIH to find a cure for Pulmonary Fibrosis, raising funds, and much more!

They have bracelets you can order. I bought several and plan to pass them out as a Christmas token to my own doctors and nurses.

They also have a beautiful and informative brochure about PF that can be given to our family and friends, medical staff or anyone and it includes a contribution form! PFF staff are more than willing to send you as many of the brochures as you like for a donation. I'm going to include a brochure with each Christmas card I send out this year.

PFF is also participating in a national Pulmonary Fibrosis Stamp Campaign. The campaign aims to create an awareness stamp for Pulmonary Fibrosis. They have a sample letter we can all can send to the Citizens Stamp Advisory Committee to help support this campaign.

C_53_Familial IPF_5/09, Washington

HOPE doesn't disappoint!

To: Breathe-Support Sent: Mon, December 7, 2009 7:11:53 PMSubject: Hello to all from Mike Blazer in Alabama

Hello I was told I had PF two weeks ago and I thought it was COPD for over 6 Months. I want to help to make Public Awareness because so many people do not know what it is. I have read the post for about a week and a half. I did not sleep for nearly a week. Now I want to get a group for funding to make awareness. I want all to know that My Prayer's are with you. My family Doctor's Receptionist and My Pulmonary Doctor's Receptionist did not know what it is. Most of My Family and Friends have not heard of it. My second Cuz is in her first year of residency at UAB in Biringham and she is helping me with research of it. I have some contacts in Birmingham and Huntsville Al. that are interested in helping. Fox News 6 in Bham and CBS 19 in Huntsville.All are in my Prayer'sMIKE BLAZERmike.blazer@ yahoo.com

[Guest guest]

Thank you so much for the responce. Leanne from PFF is how I found this Group.

She has been a great support. I have contacted my U.S. Rep Griffith he is

a first time Rep but is a 30 + year Doctor. I urge all to contact your Reps and

senators to help make Awareness of PF. Again thank you so much for you responce

LISA.

Mike Blazer

>

> Hi Mike,

> Welcome to the group! I’m sorry you too suffer from this dreadful disease,

but you will find a wealth of information, support, encouragement, love and

humor from the members here.

> Be sure and check out the Pulmonary Fibrosis Foundation at

http://pulmonaryfibrosis.org/ an organization dedicated to funding

andsupporting new research, providing educational materials to the medical and

lay communities, obtaining congressional support to increase funding of the NIH

to find a cure for Pulmonary Fibrosis, raising funds, and much more! 

> They have bracelets you can order. I bought several and plan to pass them out

as a Christmas token to my own doctors and nurses.

> They also have a beautiful and informative brochure about PF that can

be given to our family and friends, medical staff or anyone and it includes a

contribution form!  PFF staff are more than willing to send you as many of the

brochures as you like for a donation. I'm going to include a brochure with

each Christmas card I send out this year.  

> PFF is also participating in a national Pulmonary Fibrosis Stamp Campaign. The

campaign aims to create an awareness stamp for Pulmonary Fibrosis. They have a

sample letter we can all can send to the Citizens Stamp Advisory Committee to

help support this campaign.

>   

> C_53_Familial IPF_5/09, Washington

> HOPE doesn't disappoint!

>

>

>

>

>

> ________________________________

>

> To: Breathe-Support

> Sent: Mon, December 7, 2009 7:11:53 PM

> Subject: Hello to all from Mike Blazer in Alabama

>

>  

> Hello I was told I had PF two weeks ago and I thought it was COPD for over 6

Months. I want to help to make Public Awareness because so many people do not

know what it is. I have read the post for about a week and a half. I did not

sleep for nearly a week. Now I want to get a group for funding to make

awareness. I want all to know that My Prayer's are with you. My family Doctor's

Receptionist and My Pulmonary Doctor's Receptionist did not know what it is.

Most of My Family and Friends have not heard of it. My second Cuz is in her

first year of residency at UAB in Biringham and she is helping me with research

of it. I have some contacts in Birmingham and Huntsville Al. that are interested

in helping. Fox News 6 in Bham and CBS 19 in Huntsville.

> All are in my Prayer's

> MIKE BLAZER

> mike.blazer@ yahoo.com

>

>

[Guest guest]

Hi Mile, I know you have enjoyed talking with Leanne, she is just the best. She is ALWAYS there when any of us need her.I am not sure I have welcomed you to our Air Family yet so WELCOME. You will find every kind of support you need here.The main thing is that we all GET IT and are right with you.

Love & PrayersPeggy, IPF 2004

Thank you so much for the responce. Leanne from PFF is how I found this Group. She has been a great support. I have contacted my U.S. Rep Griffith he is a first time Rep but is a 30 + year Doctor. I urge all to contact your Reps and senators to help make Awareness of PF. Again thank you so much for you responce LISA.

Mike Blazer

>

> Hi Mike,

> Welcome to the group! I’m sorry you too suffer from this dreadful disease, but you will find a wealth of information, support, encouragement, love and humor from the members here.

> Be sure and check out the Pulmonary Fibrosis Foundation at http://pulmonaryfibrosis.org/ an organization dedicated to funding andsupporting new research, providing educational materials to the medical and lay communities, obtaining congressional support to increase funding of the NIH to find a cure for Pulmonary Fibrosis, raising funds, and much more!Â

> They have bracelets you can order. I bought several and plan to pass them out as a Christmas token to my own doctors and nurses.

> They also have a beautiful and informative brochure about PF that can be given to our family and friends, medical staff or anyone and it includes a contribution form!  PFF staff are more than willing to send you as many of the brochures as you like for a donation. I'm going to include a brochure with each Christmas card I send out this year. Â

> PFF is also participating in a national Pulmonary Fibrosis Stamp Campaign. The campaign aims to create an awareness stamp for Pulmonary Fibrosis. They have a sample letter we can all can send to the Citizens Stamp Advisory Committee to help support this campaign.

> Â Â

> C_53_Familial IPF_5/09, Washington

> HOPEÂ doesn't disappoint!

>

>

>

>

>

> ________________________________

>

> To: Breathe-Support

> Sent: Mon, December 7, 2009 7:11:53 PM

> Subject: Hello to all from Mike Blazer in Alabama

>

> Â

> Hello I was told I had PF two weeks ago and I thought it was COPD for over 6 Months. I want to help to make Public Awareness because so many people do not know what it is. I have read the post for about a week and a half. I did not sleep for nearly a week. Now I want to get a group for funding to make awareness. I want all to know that My Prayer's are with you. My family Doctor's Receptionist and My Pulmonary Doctor's Receptionist did not know what it is. Most of My Family and Friends have not heard of it. My second Cuz is in her first year of residency at UAB in Biringham and she is helping me with research of it. I have some contacts in Birmingham and Huntsville Al. that are interested in helping. Fox News 6 in Bham and CBS 19 in Huntsville.

> All are in my Prayer's

> MIKE BLAZER

> mike.blazer@ yahoo.com

>

>