Re: Re: Parent of SGA baby: Needs To Talk with SOmeone; she wants hope.

[Guest guest]

hi katy,

i also sent her a massage hoping to help her have hope.

cara mom to jacob

kmerrith wrote:

Hi Katy,

I sent a message to along with an invitation to join our

group. All she has to do is hit the reply button and she is a

member.

I hope she gets to hear from others on our list as well.

I hope this helps.

Ken M

>

> Hi All,

> Just spoke with a parent of a 5.5 month old girl, weighs 10

pounds,

> small head size, so diagnosis is SGA. Severe reflux issues.

> Here's the deal:

> -Her name is . Her daughter is Jordan.

> -A feeding clinic is strongly recommending that her daughter

> immediately get an NG Tube because baby appears to have

stopped food

> intake. However, ketones are ok.

> -She has been in contact with Dr.H,but does not meet her until

next

> week. She does not know if she should hold off until next week

to

> see if tube (g or ng) is recommended.

> -Her immediate need: She wants HOPE. She wants to talk

with parents

> of other SGA children who had NG or G tubes as infants, and

who are

> now doing okay. She is very worried about her child's future.

> -I told her that I would post on the listserve..hopefully, when

> things get less hectic in their home, she'll join the group too.

> - She said it was okay for other parents in a similar situation to

> reach out to her by phone or email.

> 's number is:

> Email is: denisellli@a...

>

> Thanks everyone, hope you are well and " enjoying " the

pre-holiday

> frenzy!

>

> Katy Frissora

> (RSS Division Co-Consultant, MAGIC)

>