Guest guest Posted January 9, 2006 Report Share Posted January 9, 2006 - thank you for posting this. A very good point indeed. - H > > Another group I am in (for parents of kids with chromosome > abnormalities) started this discussion on Phenobarb (because one > child had an extremely unusual reaction to it). One parent raised > some very interesting points, and excerpts of her post follow. I > know that RSS and/or SGA kids do not technically have a chromosome > abnormality (as far as we know at this time), but I believe that > this parent made a valid point - don't be paranoid, but always be > perceptive. > > in Alaska > (mom of Charissa, age 21 and *not* RSS, but had all the issues, plus > some) > > -posted from a chromosome group: " Maybe I ought to mention here that > I'm a licensed medication/treatment nurse, and HAVE dispensed my > fair share of it (and assorted other drugs) that I wouldn't want to > see my own child on. > > Here's the thing that keeps jumping out at me with my experiences > over the year with my own child, my personal local friends rare > chromosome children, and numerous other ones I've met through > assorted on-line support groups. They just DON'T tend to respond to > standard medications in the " normal' way. And why should we expect > them to? They AREN'T 'normal " ! > > Phenobarb just happens to be the drug that I've seen the most (and > most disasterous too) results from. But there are other standard > drugs that I can give you horror stories on, when given to a > chromosome compromised child..... What other standard drugs are out > there lurking, just waiting to bite us? I don't know, and I'm not > in a hurry to find out either! " > Quote Link to comment Share on other sites More sharing options...
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