Re: Help in Grand Junction Colorado

[Guest guest]

Ken

Unfortunately, the greatest concentration is going to be where there is

a teaching hospital/medical school. However, were you to go to National

Jewish they could very likely recommend doctors they were familiar with

in your area, perhaps even doctors who had studied there.

Also, neither PFF or CPF has any support groups shown in your area. I

live in one of the largest metropolitan areas in the country and there

are none here, so not surprising.

>

> Hi. Love all the posts. I am recently diagnosed, 12/09 and would like

to know if anyone has any information on any support groups in Western

Colorado and if there are any true ipf specialists in Western Colorado.

I know about National Jewish in Denver, any other info would be of a

great help to me. Thanks!! Ken Grand Junction, Colorado

>

[Guest guest]

Thanks for your reply.National Jewish seems to be the best choice.

I have found very few docs with any helpful information. Once again Thank you!!!

Ken

> >

> > Hi. Love all the posts. I am recently diagnosed, 12/09 and would like

> to know if anyone has any information on any support groups in Western

> Colorado and if there are any true ipf specialists in Western Colorado.

> I know about National Jewish in Denver, any other info would be of a

> great help to me. Thanks!! Ken Grand Junction, Colorado

> >

>

[Guest guest]

Bruce

i wonder if we should post on meet up about wanting to start pf in person support groups

wonder if there would be a response for various regions or cities

but that would mean other people would have to be looking at meet up

btw

Adrienne, and I had a very nice luncheon last Saturday in Willow Grove PA.

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: Help in Grand Junction ColoradoTo: Breathe-Support Date: Saturday, January 30, 2010, 11:51 PM

Thanks for your reply.National Jewish seems to be the best choice.I have found very few docs with any helpful information. Once again Thank you!!! Ken> >> > Hi. Love all the posts. I am recently diagnosed, 12/09 and would like> to know if anyone has any information on any support groups in Western> Colorado and if there are any true ipf specialists in Western Colorado.> I know about National Jewish in Denver, any other info would be of a> great help to me. Thanks!! Ken Grand Junction, Colorado> >>

[Guest guest]

Pink

You would think PFF and CPF would be the best places but most PF

patients have never heard of either of them. In reality the best place

to get some energy started would probably be in Pulmonologist's offices

but some medical centers are very reluctant to allow flyers for anything

held off their campus and reluctant to allow anything on their campus

that their staff isn't directly overseeing. I think once one was started

maintaining it would be easier but when I thought of the effort of

starting one and its first year, as much as I wanted to do so, I didn't

have the energy to commit to it.

> > >

> > > Hi. Love all the posts. I am recently diagnosed, 12/09 and would

like

> > to know if anyone has any information on any support groups in

Western

> > Colorado and if there are any true ipf specialists in Western

Colorado.

> > I know about National Jewish in Denver, any other info would be of a

> > great help to me. Thanks!! Ken Grand Junction, Colorado

> > >

> >

>

[Guest guest]

Bruce

what are pff and cpf?

be careful on your trip

does it begin tomorrow

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: Help in Grand Junction ColoradoTo: Breathe-Support Date: Sunday, January 31, 2010, 9:22 AM

PinkYou would think PFF and CPF would be the best places but most PFpatients have never heard of either of them. In reality the best placeto get some energy started would probably be in Pulmonologist' s officesbut some medical centers are very reluctant to allow flyers for anythingheld off their campus and reluctant to allow anything on their campusthat their staff isn't directly overseeing. I think once one was startedmaintaining it would be easier but when I thought of the effort ofstarting one and its first year, as much as I wanted to do so, I didn'thave the energy to commit to it.> > >> > > Hi. Love all the posts. I am recently diagnosed, 12/09 and wouldlike> > to know if anyone has any information on any support groups inWestern> > Colorado and if there are any true ipf specialists in WesternColorado.> > I know about National Jewish in Denver, any other info would be of a> > great help to me. Thanks!! Ken Grand Junction, Colorado> > >> >>

[Guest guest]

Pink

Pulmonary Fibrosis Foundation and Coalition for Pulmonary Fibrosis, both

of which have listings of support groups.

Trip starts today....probably in about 3 hours. Breaking it down into

three shorter days. Where I'll go today is anyone's guess. Just as far

and as long as the mood takes me. I'm guessing I'll end the day

somewhere in Alabama.

> > > >

> > > > Hi. Love all the posts. I am recently diagnosed, 12/09 and would

> like

> > > to know if anyone has any information on any support groups in

> Western

> > > Colorado and if there are any true ipf specialists in Western

> Colorado.

> > > I know about National Jewish in Denver, any other info would be of

a

> > > great help to me. Thanks!! Ken Grand Junction, Colorado

> > > >

> > >

> >

>

[Guest guest]

So sorry that you had to find us, but you will find that there is a lot of information on this board. Ask a lot of questions because someone here will know. I am here in Denver right now my appointments are at National Jewish this week. You need to go to a Center of Excellence Hospital, and thats what jewish is. Make an appointment soon. Grand Junction isn't very far away. I drove 600 so miles to come here. Just keep reading posts everyone here is here to help each other Gascoigne SD, 50 yrs old, Renaud's 2008, IPF 7/2009

To: Breathe-Support Sent: Sat, January 30, 2010 10:33:47 PMSubject: Help in Grand Junction Colorado

Hi. Love all the posts. I am recently diagnosed, 12/09 and would like to know if anyone has any information on any support groups in Western Colorado and if there are any true ipf specialists in Western Colorado. I know about National Jewish in Denver, any other info would be of a great help to me. Thanks!! Ken Grand Junction, Colorado

[Guest guest]

Ken,

I, too was dx in 09. National Jewish is wonderful. You won't find a better place to begin to learn about all of this. Next, of course, is this informative board. The members are so generous with good advice.

Bettye Kline 70/MS dx 6/09

To: Breathe-Support Sent: Sun, January 31, 2010 2:44:17 PMSubject: Re: Help in Grand Junction Colorado

So sorry that you had to find us, but you will find that there is a lot of information on this board. Ask a lot of questions because someone here will know. I am here in Denver right now my appointments are at National Jewish this week. You need to go to a Center of Excellence Hospital, and thats what jewish is. Make an appointment soon. Grand Junction isn't very far away. I drove 600 so miles to come here. Just keep reading posts everyone here is here to help each other Gascoigne SD, 50 yrs old, Renaud's 2008, IPF 7/2009

From: KEN <kwagency (AT) msn (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Sat, January 30, 2010 10:33:47 PMSubject: Help in Grand Junction Colorado

Hi. Love all the posts. I am recently diagnosed, 12/09 and would like to know if anyone has any information on any support groups in Western Colorado and if there are any true ipf specialists in Western Colorado. I know about National Jewish in Denver, any other info would be of a great help to me. Thanks!! Ken Grand Junction, Colorado