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Hi All,

Well we finally talked to our new nutritionist yesterday. She told me

alot of what we already know, but nice to hear it confirmed. She

recommended continueing the night tube feeds,so we are back on after a

2 mth break. We have managed to increase the speed to 60 cc and back

down to 8 oz. of Pediasure(were at 10 oz before). She recommended

1400-1500 cal. per day for Grace. We are currently at about 1200 w/

the night feed. Grace is not big on snacking, but we are going to try

to get the extra calories as snacks. She said give her what she likes

and add extras where you can. The Periactin is going smoothly, no

huge change in appetite, but no major side affects either.(thanks for

the advice on ramping Ken and Dayna with the article) We are in week 2

of getting her up to the full dose. Thats all for now.

Terri, mom of twins 37 1/2 mths: Alivia(non RSS) and Grace(RSS, GHT, g-

tube, Periactin, 21 1/2 lbs, 32 in.)

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