Beth or anyone who may know - Dermatomyositis

[Guest guest]

Hi Beth,

I read your post on your Dermatomyositis. I also get some rashes on my arms,

chest, and over my eyes - bridge of nose and eyebrow area. I think I have had

evey blood test, but my pulmo Dr. never even checked for rashes or asked about

any. My VATS came back UIP, so does that mean i cant have a connective tissue

disease as well? As I said in a previous post that now that my biopsy came back

my Pulmo Dr. has no interest in seeing me unless I go on 1 of her trials, (Dr.

Glassberg - University of Miami). I am going to a new Pulmo dude tomorrow that

was recommended by my PCP. Should I automatically ask him for a referral to see

a Ruemotologist or some other specialist who may check other causes or because I

have UIP than it does not matter??

I also read that you went to Columbia when you were first sick. Was this NY

Pres./ Columbia Hospital in NY? I have an appointment with Dr. Lederer on 3/4

for a second opinion and for Lung Transplant Evaluation. I will also see Dr.

Sonnet the head Surgeon of the TX unit. He is the Dr. that is doing the Web

Seminar on Thursday night.

Thanks,

Dave, 43, Miami, UIP/IPF 11/09