Pickett update

[Guest guest]

H -

Well.. is a fighter.. she's got an awful diaper rash from having

the runs..at least she's not throwing up anymore. I " m afraid she was

exposed to strep today. Now I just have to wait a few days to see if she

caught it. We go to the Shriners Feb 1st to have her turned foot looked

at again. The month of casts didn't turn the foot at all.. so she might

have to have surgery to correct it. Then in March we see the genetic doc

again. We are blessed to have been accepted into the Shriners because of

's other birth defects.... the RSS is being treated for free at the

Shriners also.... We haven't started any meds dealing with RSS yet.. and

I was wondering if she needed any GH if that would be covered thru the

Shriners. Thru all of this is still a very happy baby. She's

always got a smile for a stranger.... she's such a joy. She's a

whopping 10.5 pounds at 7 months, still in 0-3 month clothes.... Hey..

at least I " m getting my money's worth!

My hubby and I are struggeling with his new job. Starting over is hard

and he's under huge amounts of pressure to provide for our family. I

have offered to get a night job.. but he insists to be the one to get an

extra job. I " m trying to do what I can.. by going thru the house,

hunting for things to auction on ebay. I know non of this has to do with

RSS... this is the first time I have 'talked' to anyone about this. It's

embarrassing.... it' s like we are failing in life, no one wants to

admit that. I'm usually optimistic... but that's wearing thin.

ANYWAY..................

Thanks for asking about ... I know you got more than you asked

about though... thanks for listening.

advocate22003 wrote:

> - PS - how is doing today?

>

>- H

>

>

>>

>>

>>

>>>Okay - for all those who have had days like mine - I thought I

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>would

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>

>>>share some laughter and allow you to all laugh at me:

>>>

>>>What happened to us today?

>>>

>>>Ian's tube leaked his stomach contents on his clothes twice

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>today.

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>

>>>He had to change his clothes twice.

>>>

>>>Ian's pump/feeding bag sprung a leak and before I noticed where

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>it

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>>>was leaking - it was literally spraying formula all over my

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>kitchen

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>>>floor and cabinets!

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>>>I knocked Ian's sterile water (with what little left I had) all

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>over

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>>>the kitchen floor.

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>>>I spilled the soap in the Laundry room all over everything - I

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>mean

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>>>EVERYTHING.

>>>

>>>I dropped 's Lego ambulance on the floor and it broke in

>>>pieces. He was NOT happy with me. Guess I know what we are

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>working

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>

>>>on next!

>>>

>>>I used all the pump/feeding bags and have none left for tomorrow.

>>>

>>>My watch stopped working and I need a new battery. Yes, it

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>stopped

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>>>working today - of all days.

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>>>LOL LOL LOL LOL I'm laughing so hard - my belly aches.

>>>

>>>The good news? I got my mom to the airport on time. Somebody

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>still

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>

>>>loves me.

>>>

>>>Love you all!

>>>

>>>- H

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