Re: Emerence - semi-answers psedoepiphyses of the metacarpals/Chat/vent

[Guest guest]

- oh you are going through so much - I'm so sorry. Please

know that I'm thinking of you. Wish I was there to give you a hug.

Don't let your husband get to you. Whenever my dh makes a boo boo -

he tends to get very angry and although it may seem directed to me -

it's really because he is mad at himself. I'm sure your husband

feels silly. He also probably senses your frustration with

everything going on with Emerence - and wishes that he could help

you. Give each other a big hug and kiss. <grin>.

Keep us posted on Emerence. Thinking of you lot's.

- H

>

> Hi,

>

> Spoke with the geneticist yesterday and she spent 1.5 hours with

the

> top bone doc at Childrens in Boston reviewing xrays and books and

> syndromes. They are fairly certain Emerence does not have any of

> hte very rare syndromes that P ..M appears in and Dr. Stanhope

says

> it could occur in SGA but more common in RSS. It means her growth

> plates are funny shaped on the bones of the fingers closest tot he

> palm. HOWEVER, they both wanted to follow up with xrays of her

long

> bones. I asked if they could be done today and yes xray was open

so

> I planned to take Emerence into Boston thsi afternoon.

>

> Long story but I had to work today but had put in extra hours

> earlier this week so I could leave at 12:30. Well yesterday she

> woke up with a rash on chest and neck - I had given her a

> strawberry drinkable go gurt (1st time) and I was sure it was a

> reaction tot hat. Well, the daycare wouldn't take her without a

> note. I had talked to the back up at 6 am of the dr office (their

> backup is Children's hosptial!) and I was told that with no fever

> and no pain it was definitely allergic but to have her seen that

> night. Well her dr. agrees to fax a note but the daycare calls me

> at 9:15 am and tells me I have to come get her that they won't

wait

> for the note and I have to have her seen and then get a note. I

> just started a new job and don't tget time off until Jan 11 (3

month

> anniv). So I rush over, pick her up, take her to the dr. and the

> dr. (different than her normal ped and 1 year out of school) won't

> write a note and thinks she has strep. We take the test,

negative,

> she puts her on amoxycillan (which doesn't work for her anyway!!

Q)

> just in case. Negative today so t hey call and tell us to stop -

> but now it gave her diarhea! WEll, I pick them up at 1 and floor

it

> to Boston. We go to do the xray and her anxiety kicks in and

> althought bless my friend who took them for the day - she got her

to

> eat 2 whole chicken nuggest plus pasta and cucumber slices - she

> screamed so much it all came up. Along with her snacks. All

those

> calories just gone...

>

> Well, the xrays went well and my 5 year old got to " help " (he let

> the techs know when they started to develop and show up on the

> screen! We finally get out of there and my son, who has now been

> complaining of a headache and now sore throat is now complaning so

> much (even with tylenol) I called the dr. office fro m the highway

> and we swung in so he could have a strep test (someone at his

class

> has it). Well, we dont' even make it home (only 10 min) and my

> husband calls....his truck is out of oil (hm, that explains teh

> splotch on the driveway). Well, he decided to buy oil and put it

in

> just enought to drive the 15 min home. Well, he did and theoil

just

> went through. So I get home call AAA for a tow and feel teh kids

> while waiting for him to be rescued. Finally I go meet him where

> they tow the truck and the tow driver tells me MY HUSBAND PUT OIL

IN

> WHERE THE ANTIFREEZE GOES, APPARENTLY THE ANTIFREEZE HAD LEAKED

OUT

> (well, spotch didn't look greenish though either...). I wanted to

> scream and have a fit. WHY? If you dont' know what you are

doing -

> WHY!? I cant' even imagine how much this willl cost for a repair.

> It is ours, all 135K of it. We can't add antoher payment. And

they

> can't look at it until Monday. And, I am supposed to have a rare

> night out with the girls tomorrow. And he has to work all day

> tomorrow (bye by my minivan). If wakes up with Strep I

> think I will actully be happy because it is something fixable -

give

> antibiotics, get better. Now if we could just give the truck some

> antifreeze ...but I think the damage my husband might have done

> warrants more work that that. AND to top it off, he was FURIOUS I

> wrote a note (withe the keys to leave in the drop box) that

spelled

> out exactly what he did. He said the mechanci should have been

able

> to figure it out and he will rob us - my family has used this guy

> for about 20 years - he NEVER overcharges, does stuff for free

(like

> if you buy windshield wipers and bring them to him he'll put them

> on), had loaned me his own truck for the day while we minivan was

> being repaired, and he has even saved me money when I have come

and

> said, I was told to do xyz by the dealerhip but I would reather

pay

> you - and he told me that $1600 of the $2000 quoted was

unnecessary -

> why my husband thinks he woudl rob us is beyond me...

>

> Back to Emerence, we find out Tuesday what today's xrays

bring...let

> you all know...sorry for the rambings...rantings....raviings....

>

> , mom to , and Emerence 33 mo 22 lb and 32 "

>

[Guest guest]

,

I'm thinking of you guys. I hope next week is better.

B

and Kelli

advocate22003 wrote:

- oh you are going through so much - I'm so sorry. Please

know that I'm thinking of you. Wish I was there to give you a hug.

Don't let your husband get to you. Whenever my dh makes a boo boo -

he tends to get very angry and although it may seem directed to me -

it's really because he is mad at himself. I'm sure your husband

feels silly. He also probably senses your frustration with

everything going on with Emerence - and wishes that he could help

you. Give each other a big hug and kiss. <grin>.

Keep us posted on Emerence. Thinking of you lot's.

- H

>

> Hi,

>

> Spoke with the geneticist yesterday and she spent 1.5 hours with

the

> top bone doc at Childrens in Boston reviewing xrays and books and

> syndromes. They are fairly certain Emerence does not have any of

> hte very rare syndromes that P ..M appears in and Dr. Stanhope

says

> it could occur in SGA but more common in RSS. It means her growth

> plates are funny shaped on the bones of the fingers closest tot he

> palm. HOWEVER, they both wanted to follow up with xrays of her

long

> bones. I asked if they could be done today and yes xray was open

so

> I planned to take Emerence into Boston thsi afternoon.

>

> Long story but I had to work today but had put in extra hours

> earlier this week so I could leave at 12:30. Well yesterday she

> woke up with a rash on chest and neck - I had given her a

> strawberry drinkable go gurt (1st time) and I was sure it was a

> reaction tot hat. Well, the daycare wouldn't take her without a

> note. I had talked to the back up at 6 am of the dr office (their

> backup is Children's hosptial!) and I was told that with no fever

> and no pain it was definitely allergic but to have her seen that

> night. Well her dr. agrees to fax a note but the daycare calls me

> at 9:15 am and tells me I have to come get her that they won't

wait

> for the note and I have to have her seen and then get a note. I

> just started a new job and don't tget time off until Jan 11 (3

month

> anniv). So I rush over, pick her up, take her to the dr. and the

> dr. (different than her normal ped and 1 year out of school) won't

> write a note and thinks she has strep. We take the test,

negative,

> she puts her on amoxycillan (which doesn't work for her anyway!!

Q)

> just in case. Negative today so t hey call and tell us to stop -

> but now it gave her diarhea! WEll, I pick them up at 1 and floor

it

> to Boston. We go to do the xray and her anxiety kicks in and

> althought bless my friend who took them for the day - she got her

to

> eat 2 whole chicken nuggest plus pasta and cucumber slices - she

> screamed so much it all came up. Along with her snacks. All

those

> calories just gone...

>

> Well, the xrays went well and my 5 year old got to " help " (he let

> the techs know when they started to develop and show up on the

> screen! We finally get out of there and my son, who has now been

> complaining of a headache and now sore throat is now complaning so

> much (even with tylenol) I called the dr. office fro m the highway

> and we swung in so he could have a strep test (someone at his

class

> has it). Well, we dont' even make it home (only 10 min) and my

> husband calls....his truck is out of oil (hm, that explains teh

> splotch on the driveway). Well, he decided to buy oil and put it

in

> just enought to drive the 15 min home. Well, he did and theoil

just

> went through. So I get home call AAA for a tow and feel teh kids

> while waiting for him to be rescued. Finally I go meet him where

> they tow the truck and the tow driver tells me MY HUSBAND PUT OIL

IN

> WHERE THE ANTIFREEZE GOES, APPARENTLY THE ANTIFREEZE HAD LEAKED

OUT

> (well, spotch didn't look greenish though either...). I wanted to

> scream and have a fit. WHY? If you dont' know what you are

doing -

> WHY!? I cant' even imagine how much this willl cost for a repair.

> It is ours, all 135K of it. We can't add antoher payment. And

they

> can't look at it until Monday. And, I am supposed to have a rare

> night out with the girls tomorrow. And he has to work all day

> tomorrow (bye by my minivan). If wakes up with Strep I

> think I will actully be happy because it is something fixable -

give

> antibiotics, get better. Now if we could just give the truck some

> antifreeze ...but I think the damage my husband might have done

> warrants more work that that. AND to top it off, he was FURIOUS I

> wrote a note (withe the keys to leave in the drop box) that

spelled

> out exactly what he did. He said the mechanci should have been

able

> to figure it out and he will rob us - my family has used this guy

> for about 20 years - he NEVER overcharges, does stuff for free

(like

> if you buy windshield wipers and bring them to him he'll put them

> on), had loaned me his own truck for the day while we minivan was

> being repaired, and he has even saved me money when I have come

and

> said, I was told to do xyz by the dealerhip but I would reather

pay

> you - and he told me that $1600 of the $2000 quoted was

unnecessary -

> why my husband thinks he woudl rob us is beyond me...

>

> Back to Emerence, we find out Tuesday what today's xrays

bring...let

> you all know...sorry for the rambings...rantings....raviings....

>

> , mom to , and Emerence 33 mo 22 lb and 32 "

>

[Guest guest]

Wow, . That's one nightmare of a day. I hope everything is

looking better. How is everyone feeling? Hang in there!

> >

> > Hi,

> >

> > Spoke with the geneticist yesterday and she spent 1.5 hours with

> the

> > top bone doc at Childrens in Boston reviewing xrays and books and

> > syndromes. They are fairly certain Emerence does not have any of

> > hte very rare syndromes that P ..M appears in and Dr. Stanhope

> says

> > it could occur in SGA but more common in RSS. It means her

growth

> > plates are funny shaped on the bones of the fingers closest tot

he

> > palm. HOWEVER, they both wanted to follow up with xrays of her

> long

> > bones. I asked if they could be done today and yes xray was open

> so

> > I planned to take Emerence into Boston thsi afternoon.

> >

> > Long story but I had to work today but had put in extra hours

> > earlier this week so I could leave at 12:30. Well yesterday she

> > woke up with a rash on chest and neck - I had given her a

> > strawberry drinkable go gurt (1st time) and I was sure it was a

> > reaction tot hat. Well, the daycare wouldn't take her without a

> > note. I had talked to the back up at 6 am of the dr office

(their

> > backup is Children's hosptial!) and I was told that with no fever

> > and no pain it was definitely allergic but to have her seen that

> > night. Well her dr. agrees to fax a note but the daycare calls

me

> > at 9:15 am and tells me I have to come get her that they won't

> wait

> > for the note and I have to have her seen and then get a note. I

> > just started a new job and don't tget time off until Jan 11 (3

> month

> > anniv). So I rush over, pick her up, take her to the dr. and the

> > dr. (different than her normal ped and 1 year out of school)

won't

> > write a note and thinks she has strep. We take the test,

> negative,

> > she puts her on amoxycillan (which doesn't work for her anyway!!

> Q)

> > just in case. Negative today so t hey call and tell us to stop -

> > but now it gave her diarhea! WEll, I pick them up at 1 and floor

> it

> > to Boston. We go to do the xray and her anxiety kicks in and

> > althought bless my friend who took them for the day - she got her

> to

> > eat 2 whole chicken nuggest plus pasta and cucumber slices - she

> > screamed so much it all came up. Along with her snacks. All

> those

> > calories just gone...

> >

> > Well, the xrays went well and my 5 year old got to " help " (he let

> > the techs know when they started to develop and show up on the

> > screen! We finally get out of there and my son, who has now been

> > complaining of a headache and now sore throat is now complaning

so

> > much (even with tylenol) I called the dr. office fro m the

highway

> > and we swung in so he could have a strep test (someone at his

> class

> > has it). Well, we dont' even make it home (only 10 min) and my

> > husband calls....his truck is out of oil (hm, that explains teh

> > splotch on the driveway). Well, he decided to buy oil and put it

> in

> > just enought to drive the 15 min home. Well, he did and theoil

> just

> > went through. So I get home call AAA for a tow and feel teh kids

> > while waiting for him to be rescued. Finally I go meet him where

> > they tow the truck and the tow driver tells me MY HUSBAND PUT OIL

> IN

> > WHERE THE ANTIFREEZE GOES, APPARENTLY THE ANTIFREEZE HAD LEAKED

> OUT

> > (well, spotch didn't look greenish though either...). I wanted

to

> > scream and have a fit. WHY? If you dont' know what you are

> doing -

> > WHY!? I cant' even imagine how much this willl cost for a

repair.

> > It is ours, all 135K of it. We can't add antoher payment. And

> they

> > can't look at it until Monday. And, I am supposed to have a rare

> > night out with the girls tomorrow. And he has to work all day

> > tomorrow (bye by my minivan). If wakes up with Strep I

> > think I will actully be happy because it is something fixable -

> give

> > antibiotics, get better. Now if we could just give the truck

some

> > antifreeze ...but I think the damage my husband might have done

> > warrants more work that that. AND to top it off, he was FURIOUS

I

> > wrote a note (withe the keys to leave in the drop box) that

> spelled

> > out exactly what he did. He said the mechanci should have been

> able

> > to figure it out and he will rob us - my family has used this guy

> > for about 20 years - he NEVER overcharges, does stuff for free

> (like

> > if you buy windshield wipers and bring them to him he'll put them

> > on), had loaned me his own truck for the day while we minivan was

> > being repaired, and he has even saved me money when I have come

> and

> > said, I was told to do xyz by the dealerhip but I would reather

> pay

> > you - and he told me that $1600 of the $2000 quoted was

> unnecessary -

> > why my husband thinks he woudl rob us is beyond me...

> >

> > Back to Emerence, we find out Tuesday what today's xrays

> bring...let

> > you all know...sorry for the rambings...rantings....raviings....

> >

> > , mom to , and Emerence 33 mo 22 lb and 32 "

> >

>

>

>

>

>

>

>

>