Re: Pickett Update... try #3

[Guest guest]

- you have been through soooo much and you are entitled to

have some " down " time - and it's completely natural to feel the way

you are feeling. Don't beat yourself up about it and DO NOT be

embarrassed about anything. We have all been where you are at some

point or another and sometimes it feels like life is just too much.

Trust me - I know. Once your husband gets a feel for his new job -

his stress level will go down dramatically and things will start to

be a little less stressful. The good news is that Shriner's is

helping with the medical aspects and that is definitely uplifting

information. You are doing such a GREAT job and I know

that this can all be overwhelming. Please know that we are all here

for you and completely understand your frustration levels. You

know, sometimes I find myself just looking not even time for myself -

but, time to do something " normal " and " fun " for a change. It is

so important to do just that for yourself - go to the library and

get a new book to read, paint your toenails a funny color (no one

will see it under your socks), try a new cheap recipe in a cook

book, take up quilting a blanket by hand or crochet (it's so good to

do something with our hands - it literally helps releive stress),

and the quilting can be done with old clothes so you don't have to

buy fabric, color in a coloring book!!! (I love to color - my boys

ages 4 and 2 1/2 do not - but, I make them!!) Have a picnic outside

on your lawn and forget about the household chores! I have so many

ideas.......I won't bore you with them all. My point is to try to

have a little fun - but, creatively use your fun without money and

you will feel refreshed and re-energized.

I'm thinking of you lot's . I hope I've helped in some

way. Hugs to . And, thanks for keeping us posted - I've been

wondering how she was.

- H

>

> H -

>

> Well.. is a fighter.. she's got an awful diaper rash from

having

> the runs..at least she's not throwing up anymore. I " m afraid she

was

> exposed to strep today. Now I just have to wait a few days to see

if she

> caught it. We go to the Shriners Feb 1st to have her turned foot

looked

> at again. The month of casts didn't turn the foot at all.. so she

might

> have to have surgery to correct it. Then in March we see the

genetic doc

> again. We are blessed to have been accepted into the Shriners

because of

> 's other birth defects.... the RSS is being treated for free

at the

> Shriners also.... We haven't started any meds dealing with RSS

yet.. and

> I was wondering if she needed any GH if that would be covered thru

the

> Shriners. Thru all of this is still a very happy baby.

She's

> always got a smile for a stranger.... she's such a joy. She's

a

> whopping 10.5 pounds at 7 months, still in 0-3 month clothes....

Hey..

> at least I " m getting my money's worth!

>

> My hubby and I are struggeling with his new job. Starting over is

hard

> and he's under huge amounts of pressure to provide for our family.

I

> have offered to get a night job.. but he insists to be the one to

get an

> extra job. I " m trying to do what I can.. by going thru the house,

> hunting for things to auction on ebay. I know non of this has to

do with

> RSS... this is the first time I have 'talked' to anyone about

this. It's

> embarrassing.... it' s like we are failing in life, no one wants

to

> admit that. I'm usually optimistic... but that's wearing thin.

> ANYWAY..................

>

> Thanks for asking about ... I know you got more than you

asked

> about though... thanks for listening.

>

>

>