Guest guest Posted January 23, 2010 Report Share Posted January 23, 2010 Bruce,as you are talking about sats here is an example of my last few. Aug25/09 Sept3/09 Oct01/09 oct29/09 Nov26/09 Dec21/09 O2 Sats 96 96 96 96 95 95 FVC(L) 3.13 3.09 3.16 3.02 2.87 2.83 FVC(%) 70.7 69.9 71.3 68.3 64.9 63.9 DLCO 12.3 10.7 DLCO(%) 38 33 It appears to me I am slipping. Talked to my pulmodude about it and asked if it was result of natural progression or trial drug.He told me it is natural progression as no adverse results of trial have been reported. I was steady for so long he said that I came to expect that as normal. This is now the new normal. I feel the decline in my chest but it is hard to explain. I am just scared sh..less. All my tests say no O2 yet. Everything I used to do easy now requires more effort. I am going to a teaching hospital for treatment and he does mostly PF research and treatment. Sorry for the rant guys but I am almost at my wits end. Hope you can make sense out this. Love you all. Merf 62 IPF 05 Quote Link to comment Share on other sites More sharing options...
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