Re: Salem has scoliosis - JODIE

[Guest guest]

Jodie, I am interested in your story. If his C is curving to the

right, do you mean it is a forward facing alphabet C?? Or a

backwards C. 's is a backwards C, and her shorter leg is the

LEFT leg, and the doctor said that 's asymmetry is the

OPPOSITE for what it should be based on her asymmetry.

But I was just reading on line and it was talking about left and

right scoliosis and said that left scoliosis is more rare and can be

tied to increased risks for tethered cords, etc (which I know some

of us have found with our kids). So it piqued my interested.

Which leg is shorter for ? And is the C curve on the x-

ray, when you look at it, backwards or normal C.

Jenn

> >

> > Well, we just got home from our annual orthopedics checkup. I

am

> > sure glad that we go every year! When was 5 years old,

> the

> > spinal x-ray was pretty normal, and then 8 years old, the x-rays

> > showed about a 5 degree curve, but he wasn't worried.

> > Unfortunately, 2 years later today, the xray was obviously a

> > backwards C, a 12 degree curve.

> >

> > He is the second in command at Children's Hospital, and he

really

> > emphathized a couple things that he wanted me to tell of you.

ANY

> > child with RSS/SGA who shows up with scoliosis should be seen

and

> > treated by a " pediatric orthopedic surgeon who specialized in

> spinal

> > disorders. " He said that there are many peds endos who do

broken

> > legs/arm type of stuff, and that the technology for treatment of

> > scoliosis and kyphosis is changing/advancing literally every

month.

> >

> > He just got back last weekend from an International conference

on

> > scoliosis.

> >

> > He did explain again that GH does not cause scoliosis, but

rather

> > causes rapid growth in a child who is predisposed for

scoliosis.

> > That the child would undoubtedly had gotten scoliosis as a teen

in

> > rapid growth, and that the GH makes the rapid growth occur

earlier.

> >

> > He also said that he wants to see her in 6 months -- if the

> degrees

> > have advanced, then we will talk about treatment options. But

he

> > also warned us that for a child whose original xrays were 0

> degrees,

> > then 5 degrees, and now 12, the chance of it continuing to

advance

> > is greater than it stabilizing. Some kids are born with curved

> > spines, and they stay that same degree.

> >

> > We have SO many questions, and would love to hear from anyone

> whose

> > child has had spinal surgery for scoliosis. The doctor

explained

> > that the latest very large studies (one just published from the

> > Netherlands) are really indicating surgery over bracing.

> >

> > is very sad, and promptly went up to her room to do

> > these " ball exercises " the doctor told her to do to " loosen her

> back

> > muscles. "

> >

> > Anyone with experience, let me know!

> >

> >

> >

>

[Guest guest]

My son has a sacral dimple (non SGA/RSS) but was not

tethered...Emerence only has a slight sacral dimple but it should be

something to look at...

> > >

> > > Well, we just got home from our annual orthopedics checkup. I

> am

> > > sure glad that we go every year! When was 5 years

old,

> > the

> > > spinal x-ray was pretty normal, and then 8 years old, the x-

rays

> > > showed about a 5 degree curve, but he wasn't worried.

> > > Unfortunately, 2 years later today, the xray was obviously a

> > > backwards C, a 12 degree curve.

> > >

> > > He is the second in command at Children's Hospital, and he

> really

> > > emphathized a couple things that he wanted me to tell of you.

> ANY

> > > child with RSS/SGA who shows up with scoliosis should be seen

> and

> > > treated by a " pediatric orthopedic surgeon who specialized in

> > spinal

> > > disorders. " He said that there are many peds endos who do

> broken

> > > legs/arm type of stuff, and that the technology for treatment

of

> > > scoliosis and kyphosis is changing/advancing literally every

> month.

> > >

> > > He just got back last weekend from an International conference

> on

> > > scoliosis.

> > >

> > > He did explain again that GH does not cause scoliosis, but

> rather

> > > causes rapid growth in a child who is predisposed for

> scoliosis.

> > > That the child would undoubtedly had gotten scoliosis as a

teen

> in

> > > rapid growth, and that the GH makes the rapid growth occur

> earlier.

> > >

> > > He also said that he wants to see her in 6 months -- if the

> > degrees

> > > have advanced, then we will talk about treatment options. But

> he

> > > also warned us that for a child whose original xrays were 0

> > degrees,

> > > then 5 degrees, and now 12, the chance of it continuing to

> advance

> > > is greater than it stabilizing. Some kids are born with

curved

> > > spines, and they stay that same degree.

> > >

> > > We have SO many questions, and would love to hear from anyone

> > whose

> > > child has had spinal surgery for scoliosis. The doctor

> explained

> > > that the latest very large studies (one just published from

the

> > > Netherlands) are really indicating surgery over bracing.

> > >

> > > is very sad, and promptly went up to her room to do

> > > these " ball exercises " the doctor told her to do to " loosen

her

> > back

> > > muscles. "

> > >

> > > Anyone with experience, let me know!

> > >

> > >

> > >

> >

>

[Guest guest]

,

Hi darlin'.I'm so sorry to hear about give her a big hug from

me. It's so amazing how strong our children have to be. If I can ever do

anything for you just let me know my thoughts and prayers are with you.

In faith,

Reah and Chloe:)

wrote:

My son has a sacral dimple (non SGA/RSS) but was not

tethered...Emerence only has a slight sacral dimple but it should be

something to look at...

> > >

> > > Well, we just got home from our annual orthopedics checkup. I

> am

> > > sure glad that we go every year! When was 5 years

old,

> > the

> > > spinal x-ray was pretty normal, and then 8 years old, the x-

rays

> > > showed about a 5 degree curve, but he wasn't worried.

> > > Unfortunately, 2 years later today, the xray was obviously a

> > > backwards C, a 12 degree curve.

> > >

> > > He is the second in command at Children's Hospital, and he

> really

> > > emphathized a couple things that he wanted me to tell of you.

> ANY

> > > child with RSS/SGA who shows up with scoliosis should be seen

> and

> > > treated by a " pediatric orthopedic surgeon who specialized in

> > spinal

> > > disorders. " He said that there are many peds endos who do

> broken

> > > legs/arm type of stuff, and that the technology for treatment

of

> > > scoliosis and kyphosis is changing/advancing literally every

> month.

> > >

> > > He just got back last weekend from an International conference

> on

> > > scoliosis.

> > >

> > > He did explain again that GH does not cause scoliosis, but

> rather

> > > causes rapid growth in a child who is predisposed for

> scoliosis.

> > > That the child would undoubtedly had gotten scoliosis as a

teen

> in

> > > rapid growth, and that the GH makes the rapid growth occur

> earlier.

> > >

> > > He also said that he wants to see her in 6 months -- if the

> > degrees

> > > have advanced, then we will talk about treatment options. But

> he

> > > also warned us that for a child whose original xrays were 0

> > degrees,

> > > then 5 degrees, and now 12, the chance of it continuing to

> advance

> > > is greater than it stabilizing. Some kids are born with

curved

> > > spines, and they stay that same degree.

> > >

> > > We have SO many questions, and would love to hear from anyone

> > whose

> > > child has had spinal surgery for scoliosis. The doctor

> explained

> > > that the latest very large studies (one just published from

the

> > > Netherlands) are really indicating surgery over bracing.

> > >

> > > is very sad, and promptly went up to her room to do

> > > these " ball exercises " the doctor told her to do to " loosen

her

> > back

> > > muscles. "

> > >

> > > Anyone with experience, let me know!

> > >

> > >

> > >

> >

>

[Guest guest]

hi jenn,

it would be a backward C, it curves to the right. his left leg is

the shorter leg. they said if it was caused by his assmentry it

would be curving to the left. i told dr h this on wed. and she

agreed that it is most likely not caused by his assmentry.

jodie c

> > >

> > > Well, we just got home from our annual orthopedics checkup. I

> am

> > > sure glad that we go every year! When was 5 years

old,

> > the

> > > spinal x-ray was pretty normal, and then 8 years old, the x-

rays

> > > showed about a 5 degree curve, but he wasn't worried.

> > > Unfortunately, 2 years later today, the xray was obviously a

> > > backwards C, a 12 degree curve.

> > >

> > > He is the second in command at Children's Hospital, and he

> really

> > > emphathized a couple things that he wanted me to tell of you.

> ANY

> > > child with RSS/SGA who shows up with scoliosis should be seen

> and

> > > treated by a " pediatric orthopedic surgeon who specialized in

> > spinal

> > > disorders. " He said that there are many peds endos who do

> broken

> > > legs/arm type of stuff, and that the technology for treatment

of

> > > scoliosis and kyphosis is changing/advancing literally every

> month.

> > >

> > > He just got back last weekend from an International conference

> on

> > > scoliosis.

> > >

> > > He did explain again that GH does not cause scoliosis, but

> rather

> > > causes rapid growth in a child who is predisposed for

> scoliosis.

> > > That the child would undoubtedly had gotten scoliosis as a

teen

> in

> > > rapid growth, and that the GH makes the rapid growth occur

> earlier.

> > >

> > > He also said that he wants to see her in 6 months -- if the

> > degrees

> > > have advanced, then we will talk about treatment options. But

> he

> > > also warned us that for a child whose original xrays were 0

> > degrees,

> > > then 5 degrees, and now 12, the chance of it continuing to

> advance

> > > is greater than it stabilizing. Some kids are born with

curved

> > > spines, and they stay that same degree.

> > >

> > > We have SO many questions, and would love to hear from anyone

> > whose

> > > child has had spinal surgery for scoliosis. The doctor

> explained

> > > that the latest very large studies (one just published from

the

> > > Netherlands) are really indicating surgery over bracing.

> > >

> > > is very sad, and promptly went up to her room to do

> > > these " ball exercises " the doctor told her to do to " loosen

her

> > back

> > > muscles. "

> > >

> > > Anyone with experience, let me know!

> > >

> > >

> > >

> >

>