Re: Salem has scoliosis - JODI

[Guest guest]

Oh, I don't know if I should say I hope it is chickenpox (get it out

of the way) or not!!! There have been a couple studies on asymmetry

and GHT, which found that leg length asymmetry did not increase as

the child grew and got older. Interesting, because one would think

that the asymmetry would need to increase to stay in proportion.

's leg length asymmetry has stayed pretty much the same (was

7mm and today was 8mm, which is small). But her leg circumference

has definitely increased, but keeping roughly a 94% proportion. So

as her body gets bigger, the difference stays the proportionate

difference but that difference is larger and larger in terms of

cms....

Hope that makes sense for anyone else reading this.

Been doing some research the last hour or so. 's scoliosis

is VERY mild right now, and in a " wait and monitor. " Many kids with

12 degrees get NO treatment. I think the doctor was probably

preparing us because he felt that if she went from 0 to 5, and then

from 5 to 12, that it isn't going to stop.

We'll just take it one day at a time. is in her room

sobbing her heart out right now, because her brother bothered her.

But she yelled " you are just making the worse day of my life even

worser.... "

Can you tell she is entering puberty??? HA!!!

> >

> > Well, we just got home from our annual orthopedics checkup. I

am

> > sure glad that we go every year! When was 5 years old,

> the

> > spinal x-ray was pretty normal, and then 8 years old, the x-rays

> > showed about a 5 degree curve, but he wasn't worried.

> > Unfortunately, 2 years later today, the xray was obviously a

> > backwards C, a 12 degree curve.

> >

> > He is the second in command at Children's Hospital, and he

really

> > emphathized a couple things that he wanted me to tell of you.

ANY

> > child with RSS/SGA who shows up with scoliosis should be seen

and

> > treated by a " pediatric orthopedic surgeon who specialized in

> spinal

> > disorders. " He said that there are many peds endos who do

broken

> > legs/arm type of stuff, and that the technology for treatment of

> > scoliosis and kyphosis is changing/advancing literally every

month.

> >

> > He just got back last weekend from an International conference

on

> > scoliosis.

> >

> > He did explain again that GH does not cause scoliosis, but

rather

> > causes rapid growth in a child who is predisposed for

scoliosis.

> > That the child would undoubtedly had gotten scoliosis as a teen

in

> > rapid growth, and that the GH makes the rapid growth occur

earlier.

> >

> > He also said that he wants to see her in 6 months -- if the

> degrees

> > have advanced, then we will talk about treatment options. But

he

> > also warned us that for a child whose original xrays were 0

> degrees,

> > then 5 degrees, and now 12, the chance of it continuing to

advance

> > is greater than it stabilizing. Some kids are born with curved

> > spines, and they stay that same degree.

> >

> > We have SO many questions, and would love to hear from anyone

> whose

> > child has had spinal surgery for scoliosis. The doctor

explained

> > that the latest very large studies (one just published from the

> > Netherlands) are really indicating surgery over bracing.

> >

> > is very sad, and promptly went up to her room to do

> > these " ball exercises " the doctor told her to do to " loosen her

> back

> > muscles. "

> >

> > Anyone with experience, let me know!

> >

> >

> >

>