head circumference below 3rd %

[Guest guest]

This is probably a shot in the dark, but I'm hoping there will be someone who

knows something about this. It seems to be more rare, that Dasia's head is also

below the 3rd% along with height and weight. She was diagnosed RSS without

hesitation, having low tone, assymetry, short turned in pinkys, blue sclera, and

cafe au lait spots. And I was reading a Magic article that says if HC is less

than 10% at birth and again at 9 months, risk is greatest for significant

impairments. Then, in another article, a point was made, HC significantly

improved while on GH, raising the question on effect for intelligence. It was

found that the greater the change in HC was tied to the younger the age at which

they started GH. So, if in fact, the Endo thinks this a good reason to start

earlier, what are the risks if Dasia started GH at a sooner time, rather than

waiting for a certain weight gain or height plateau? I'll be asking her Endo all

of the same questions in Jan, I just want to be prepared and

learn as much as I can before I go. And hoping between your experiences, and

this Endo, the right decision can be made. Any knowledge anyone has about this

would be greatly appreciated!

Mom to Dasia

22mo 17lbs 30in

Avery 6, Jaden 3

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