GH

[Guest guest]

Hello to all,

I have not been on a while and today had over 300 e-mails, sorry if I have not

been in touch. Our insurance company approved the GH for Jonah and a nurse came

on Sunday to show us how to do it. We gave him his first one that day and he

was not happy... My husband and I both tried it and felt virtually nothing, of

course we did not have the GH in the syringe. Well, Sunday night Jonah and I

both got sick, a cold and thank God so far, Jonah has been feeling ok, just

trying to keep the ketones away...

Well anyway, not a great time to get started. At first I was paranoid about the

GH since Jonah had a headache on Sunday night. Dr. H. says the dose is so

little, he should not get side affects. We were not going to do it when he was

sleeping, but last night Jonah fell asleep before my husband came home to help

me...So we did it after he was asleep and he moved, but did not wake up.

Tonight he was so against doing it that we asked if he wanted to do it when he

was sleeping and he said yes. This made me nervous about his anxiety about

going to sleep, but we put the Emla cream on, read and he went to sleep so we

gave it to him and once again touched his leg, but did not wake.

I was wondering if he might feel the cold since the GH is in the fridge. Does

anyone know about that?? I don't know what is right or wrong, but I hate to

give him more anxiety about something he has to do every night. Just being on

top of him all the time about ketones is tremendous in addition to his other

medications.

, I am glad to hear that it has gotten easier for you guys. I guess we

will see how this works out.

Sorry this is so long...Some days it just feels so hard...

My best to everyone

, Jonah's mom