Guest guest Posted December 14, 2009 Report Share Posted December 14, 2009 are you being weaned slowly off of prednisone? i don't know how much you were on when i was on 40 mgs, my doc decreased by 10 mgs per month until 20 mgs then 15 mgs, then 10 mgs sometimes you need to do it even slower maybe 5 mgs per month from 10 mgs, she ordered reducing by 1 mg per month no problems with the reduction until i got to 7 mgs, then i needed to increase again Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- Subject: pedTo: Breathe-Support Date: Monday, December 14, 2009, 8:45 PM This is the worse day I've had since I found out I had pfI'm comming down from pred. I was dizzy short of breath, and had my 02 on. Although I've had some side effects with Pred. Nothing this bad. any one else experience this? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2009 Report Share Posted December 14, 2009 going cold turkey off of prednisone is not a good idea i don't know how you are doing it call your doc and see what he suggests Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- Subject: pedTo: Breathe-Support Date: Monday, December 14, 2009, 8:45 PM This is the worse day I've had since I found out I had pfI'm comming down from pred. I was dizzy short of breath, and had my 02 on. Although I've had some side effects with Pred. Nothing this bad. any one else experience this? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2009 Report Share Posted December 14, 2009 , How fast are you reducing your dosage? I have to lessen the dosage of Prednisone in really small increments...like.5 mg at a time stretched over at least a week with each decrease. Sometimes I've had to take even longer with each step down. Otherwise my joints ache really badly and I'm useless! Z fibriotic NSIP/05 Z 65, fibriotic NSIP/05/PA And “mild” PH/10/07 No, NSIP was not self-inflicted…I never smoked! Potter, reader,carousel lover and MomMom to Darah and Sara “I’m gonna be iron like a lion in Zion” Bob Marley Vinca Minor-periwinkle is my flower wrote: This is the worse day I've had since I found out I had pf I'm comming down from pred. I was dizzy short of breath, and had my 02 on. Although I've had some side effects with Pred. Nothing this bad. any one else experience this? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2009 Report Share Posted December 14, 2009 , It sounds like you may be coming off the prednisone too fast. How quickly are you weaning off? You may need to slow it down to minimize these kinds of side effects. Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breathe-Support Sent: Mon, December 14, 2009 8:45:20 PMSubject: ped This is the worse day I've had since I found out I had pfI'm comming down from pred. I was dizzy short of breath, and had my 02 on. Although I've had some side effects with Pred. Nothing this bad. any one else experience this? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2009 Report Share Posted December 15, 2009 You are right....back to my old rx It seems to be working.....I hate being old and sick <FONT face="comic sans ms" color=#40007f size=3> Soulliere & nbsp; <IMG src="http://us.i1.yimg.com/us.yimg.com/i/mesg/tsmileys2/50.gif"></FONT> To: Breathe-Support Sent: Mon, December 14, 2009 9:45:11 PMSubject: Re: ped , It sounds like you may be coming off the prednisone too fast. How quickly are you weaning off? You may need to slow it down to minimize these kinds of side effects. Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 From: <johnsbatik (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Mon, December 14, 2009 8:45:20 PMSubject: ped This is the worse day I've had since I found out I had pfI'm comming down from pred. I was dizzy short of breath, and had my 02 on. Although I've had some side effects with Pred. Nothing this bad. any one else experience this? Quote Link to comment Share on other sites More sharing options...
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