Guest guest Posted February 7, 2006 Report Share Posted February 7, 2006 Lorilee - When Hunter became sick (age 5 Systemic) - the fever, rash, and the swelling/pain was gone within one week of the Prednisone. Now she was at a higher dose 7.5 mg in the beginning for 10 days. Then we went to 5 mg for 10 days. Then to 3 mg and we waivered on 1 mg to 3 mgs until we started injectable MTX. I would call the doctor back ASAP. Let us know how it does? Sandi Ken (Hunter 7 Systemic) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2006 Report Share Posted February 8, 2006 Thanks hun. We started on 10mg for 4 days then went to the 5 mg. He did really good for the first few weeks but now things are getting back to before. I will let everyone know what she says. -- Lorilee ~~~~~~~~~~~~~~~~ Ken 47 {PolyRA} 6 {Systemic JRA, Eczema}, Kayla 15 {Healthy Thank God} 18 {Asthma} ~~~~~~~~~~~~~~~~ -------------- Original message -------------- From: deerhuntert6@... Lorilee - When Hunter became sick (age 5 Systemic) - the fever, rash, and the swelling/pain was gone within one week of the Prednisone. Now she was at a higher dose 7.5 mg in the beginning for 10 days. Then we went to 5 mg for 10 days. Then to 3 mg and we waivered on 1 mg to 3 mgs until we started injectable MTX. I would call the doctor back ASAP. Let us know how it does? Sandi Ken (Hunter 7 Systemic) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2006 Report Share Posted February 8, 2006 Ok thank you. When he had the chest pain and such she said to go ahead and give him another 5 mg. But she didn't say to continue it. I will call her tomorrow and see what she wants to do..Thanks so much for the help. -- Lorilee ~~~~~~~~~~~~~~~~ Ken 47 {PolyRA} 6 {Systemic JRA, Eczema}, Kayla 15 {Healthy Thank God} 18 {Asthma} ~~~~~~~~~~~~~~~~ -------------- Original message -------------- From: Arthurnator@... Lorilee, They need to raise ,s steroid dose up to get him out of this systemic flare.The rash isn't so problomatic but the fevers are and left unchecked then the organs become involved. Nobody wants there child on high doses of steroids or any amount for a long period of time but until the MTX has a chance to kick in and you find a beneficial dose there is no other choice. Each child is differant, for it would take 30mg Prednisilone to pull him out of a systemic flare while others only need to increase their dose by a few mg. Don't worry about what the rheumy may think, you need to call them,they would want you to.It's the only way they can help. Hugs Becki and 7 systemic Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2006 Report Share Posted February 8, 2006 > > He's on 5 mg daily. He's only been on the MTX for 3 weeks could that be part of the problem? I don't want her to think I'm one of THOSE mom's. But I worry about him and his pain. It just doesn't seem to be getting any better. > > -- I would call asap. The Dr. need to be aware of each step. leigh is on 20mg pred at the start of a flare. The Dr. said to lower it 1 mg every 5 days after 3 days of no pain. I call my Dr. often when there is a problem They are much happier to catch something quick than trying to fix a long standing problem. Good Luck and Call Debi leigh (poly12) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2006 Report Share Posted February 8, 2006 WOW! I was just reading leigh's JRA journal last night! I found it after Googling something, I didnt know you and leigh were here!! LOL April L. w/ Hunter 2 1/2 > > > > > > He's on 5 mg daily. He's only been on the MTX for 3 weeks > could that be part of the problem? I don't want her to think I'm one > of THOSE mom's. But I worry about him and his pain. It just doesn't > seem to be getting any better. > > > > -- > > > I would call asap. The Dr. need to be aware of each step. leigh > is on 20mg pred at the start of a flare. The Dr. said to lower it 1 > mg every 5 days after 3 days of no pain. > > I call my Dr. often when there is a problem They are much happier to > catch something quick than trying to fix a long standing problem. > > Good Luck and Call > Debi > leigh (poly12) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2006 Report Share Posted February 8, 2006 Thanks I will be calling her today about this. How do you lower it by 1mg. He takes a 5 mg pill. I can give him the liquid, he has an aversion to bad tastes and refuses to take anything with the liquid in it. -- Lorilee ~~~~~~~~~~~~~~~~ Ken 47 {PolyRA} 6 {Systemic JRA, Eczema}, Kayla 15 {Healthy Thank God} 18 {Asthma} ~~~~~~~~~~~~~~~~ -------------- Original message -------------- From: " Debi " <debiannp@...> > > He's on 5 mg daily. He's only been on the MTX for 3 weeks could that be part of the problem? I don't want her to think I'm one of THOSE mom's. But I worry about him and his pain. It just doesn't seem to be getting any better. > > -- I would call asap. The Dr. need to be aware of each step. leigh is on 20mg pred at the start of a flare. The Dr. said to lower it 1 mg every 5 days after 3 days of no pain. I call my Dr. often when there is a problem They are much happier to catch something quick than trying to fix a long standing problem. Good Luck and Call Debi leigh (poly12) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2006 Report Share Posted February 8, 2006 Ok Thanks hun. I'm so glad I have you guys here to help coach me. My dd's asthma was never this rough and she only had to take an inhaler. This major....UGH! -- Lorilee ~~~~~~~~~~~~~~~~ Ken 47 {PolyRA} 6 {Systemic JRA, Eczema}, Kayla 15 {Healthy Thank God} 18 {Asthma} ~~~~~~~~~~~~~~~~ -------------- Original message -------------- From: A Morse <dam755@...> Lorilee, don't worry if the doc thinks your " one of those moms " because in my book, your one of those moms who loves their child and is concerned. So ask those questions of concern! It's your child whos body is being treated for this disease, not the doctors.... hplta Rusty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2006 Report Share Posted February 8, 2006 Lorilee, I would at least notify the rheumy to let him know how is doing. They may end up increasin the pred while giving the mtx a little more time to work. You asked earlier about folic acid I believe. Is kyle on that? If not you need to speak with your rheumy and get a script for that as well! Sorry the littley guy is having such a tough time! Blessings, (aundrea 10 systemic jra) > > Ok my son (6 systemic) has been on Prednisone since 1st of January. He's on 5 mg daily. Well he is still having high spiking fevers (this mornings was 104) and the rash is everywhere and still has new joints and pain. Should I push his doctor for something else or let this stuff do it job alittle longer? He's only been on the MTX for 3 weeks could that be part of the problem? I don't want her to think I'm one of THOSE mom's. But I worry about him and his pain. It just doesn't seem to be getting any better. > > -- > Lorilee > ~~~~~~~~~~~~~~~~ > Ken 47 {PolyRA} > 6 {Systemic JRA, Eczema}, > Kayla 15 {Healthy Thank God} > 18 {Asthma} > ~~~~~~~~~~~~~~~~ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2006 Report Share Posted February 8, 2006 Thanks I will ask her when I call her back in a couple of days. She did tell me to increase his dose to 10mg for a couple of weeks. We are to touch base in a couple of days to see how he's doing. -- Lorilee ~~~~~~~~~~~~~~~~ Ken 47 {PolyRA} 6 {Systemic JRA, Eczema}, Kayla 15 {Healthy Thank God} 18 {Asthma} ~~~~~~~~~~~~~~~~ -------------- Original message -------------- From: " sonia1md " <sonia1md@...> Lorilee, I would at least notify the rheumy to let him know how is doing. They may end up increasin the pred while giving the mtx a little more time to work. You asked earlier about folic acid I believe. Is kyle on that? If not you need to speak with your rheumy and get a script for that as well! Sorry the littley guy is having such a tough time! Blessings, (aundrea 10 systemic jra) > > Ok my son (6 systemic) has been on Prednisone since 1st of January. He's on 5 mg daily. Well he is still having high spiking fevers (this mornings was 104) and the rash is everywhere and still has new joints and pain. Should I push his doctor for something else or let this stuff do it job alittle longer? He's only been on the MTX for 3 weeks could that be part of the problem? I don't want her to think I'm one of THOSE mom's. But I worry about him and his pain. It just doesn't seem to be getting any better. > > -- > Lorilee > ~~~~~~~~~~~~~~~~ > Ken 47 {PolyRA} > 6 {Systemic JRA, Eczema}, > Kayla 15 {Healthy Thank God} > 18 {Asthma} > ~~~~~~~~~~~~~~~~ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2006 Report Share Posted February 8, 2006 Thats good that you got in touch with her. Its best to get him on the folic acid right away (especially since this is just a natural vitamin and the mtx. is affecting its absorption therefore a supplement is needed) I believe there are some articles on medications still in the files section which is under chat and above the photos tab. Don't know how much you have read about pred. but be prepared for mood swings, insomnia and increased appetite amongst other things! Is he doing better today? (aundrea 10 systemic jra)-- - In , lorileedare@... wrote: > > Thanks I will ask her when I call her back in a couple of days. She did tell me to increase his dose to 10mg for a couple of weeks. We are to touch base in a couple of days to see how he's doing. > > -- > Lorilee > ~~~~~~~~~~~~~~~~ > Ken 47 {PolyRA} > 6 {Systemic JRA, Eczema}, > Kayla 15 {Healthy Thank God} > 18 {Asthma} > ~~~~~~~~~~~~~~~~ > > > > -------------- Original message -------------- > From: " sonia1md " <sonia1md@...> > Lorilee, > > I would at least notify the rheumy to let him know how is > doing. They may end up increasin the pred while giving the mtx a > little more time to work. You asked earlier about folic acid I > believe. Is kyle on that? If not you need to speak with your > rheumy and get a script for that as well! > Sorry the littley guy is having such a tough time! > > Blessings, > (aundrea 10 systemic jra) > > > > > > > > > Ok my son (6 systemic) has been on Prednisone since 1st of > January. He's on 5 mg daily. Well he is still having high spiking > fevers (this mornings was 104) and the rash is everywhere and still > has new joints and pain. Should I push his doctor for something > else or let this stuff do it job alittle longer? He's only been on > the MTX for 3 weeks could that be part of the problem? I don't want > her to think I'm one of THOSE mom's. But I worry about him and his > pain. It just doesn't seem to be getting any better. > > > > -- > > Lorilee > > ~~~~~~~~~~~~~~~~ > > Ken 47 {PolyRA} > > 6 {Systemic JRA, Eczema}, > > Kayla 15 {Healthy Thank God} > > 18 {Asthma} > > ~~~~~~~~~~~~~~~~ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2006 Report Share Posted February 9, 2006 Hi Lorilee, My son was age 7 when first treated for systemic. He was immediately put on 12.5mg mtx. and within a month was up to 25mg. As far as pred., he started on I think 10 - 15 mg and quickly went up and maxed. out at 35-40mg. The mtx. can take up to 12 weeks to work, but in the meantime, you might need to up the pred. In my opinion, the pred is doing next to nothing at a beginning dose of 5mg. You are one of his only advocates. It is your job to be one of THOSE moms and demand excellence in your doctors. Yes, push your doctor. Let us know what happens. Stacia and Hunter 9 systemic, uveitis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2006 Report Share Posted February 9, 2006 you can get pred pills in 1mg tabs. and then 5mg and 10mg, generally. The doc needs to write a separate prescrip for each kind. Stacia and Hunter 9 systemic, uveitis > > Thanks I will be calling her today about this. How do you lower it by 1mg. He takes a 5 mg pill. I can give him the liquid, he has an aversion to bad tastes and refuses to take anything with the liquid in it. > > -- > Lorilee > ~~~~~~~~~~~~~~~~ > Ken 47 {PolyRA} > 6 {Systemic JRA, Eczema}, > Kayla 15 {Healthy Thank God} > 18 {Asthma} > ~~~~~~~~~~~~~~~~ > > > > -------------- Original message -------------- > From: " Debi " <debiannp@...> > > > > > He's on 5 mg daily. He's only been on the MTX for 3 weeks > could that be part of the problem? I don't want her to think I'm one > of THOSE mom's. But I worry about him and his pain. It just doesn't > seem to be getting any better. > > > > -- > > > I would call asap. The Dr. need to be aware of each step. leigh > is on 20mg pred at the start of a flare. The Dr. said to lower it 1 > mg every 5 days after 3 days of no pain. > > I call my Dr. often when there is a problem They are much happier to > catch something quick than trying to fix a long standing problem. > > Good Luck and Call > Debi > leigh (poly12) > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2006 Report Share Posted February 9, 2006 Other then feeling tired and his feet being sore he did allot better today. And the mood swings have alredy started. He's been in the behavior room twice now for disrupting the class.....he's already a need to be doing somehting kid but when you put the fact that he can't sit still for stiffness and soreness he's twice as needy...his teacher has never had to deal with this type of thing before so she's learning still...He got his second dose of Pred. this evening at dinner (which has doubled in the last 3 or 4 weeks now....lol) so I'm hoping tomorrow he will have a great day. Maybe now when I check him before I go to bed he won't be all sweaty from having a fever. Thanks again for your ideas and help. -- Lorilee ~~~~~~~~~~~~~~~~ Ken 47 {PolyRA} 6 {Systemic JRA, Eczema}, Kayla 15 {Healthy Thank God} 18 {Asthma} ~~~~~~~~~~~~~~~~ -------------- Original message -------------- From: " sonia1md " <sonia1md@...> Thats good that you got in touch with her. Its best to get him on the folic acid right away (especially since this is just a natural vitamin and the mtx. is affecting its absorption therefore a supplement is needed) I believe there are some articles on medications still in the files section which is under chat and above the photos tab. Don't know how much you have read about pred. but be prepared for mood swings, insomnia and increased appetite amongst other things! Is he doing better today? (aundrea 10 systemic jra)-- - In , lorileedare@... wrote: > > Thanks I will ask her when I call her back in a couple of days. She did tell me to increase his dose to 10mg for a couple of weeks. We are to touch base in a couple of days to see how he's doing. > > -- > Lorilee > ~~~~~~~~~~~~~~~~ > Ken 47 {PolyRA} > 6 {Systemic JRA, Eczema}, > Kayla 15 {Healthy Thank God} > 18 {Asthma} > ~~~~~~~~~~~~~~~~ > > > > -------------- Original message -------------- > From: " sonia1md " <sonia1md@...> > Lorilee, > > I would at least notify the rheumy to let him know how is > doing. They may end up increasin the pred while giving the mtx a > little more time to work. You asked earlier about folic acid I > believe. Is kyle on that? If not you need to speak with your > rheumy and get a script for that as well! > Sorry the littley guy is having such a tough time! > > Blessings, > (aundrea 10 systemic jra) > > > > > > > > > Ok my son (6 systemic) has been on Prednisone since 1st of > January. He's on 5 mg daily. Well he is still having high spiking > fevers (this mornings was 104) and the rash is everywhere and still > has new joints and pain. Should I push his doctor for something > else or let this stuff do it job alittle longer? He's only been on > the MTX for 3 weeks could that be part of the problem? I don't want > her to think I'm one of THOSE mom's. But I worry about him and his > pain. It just doesn't seem to be getting any better. > > > > -- > > Lorilee > > ~~~~~~~~~~~~~~~~ > > Ken 47 {PolyRA} > > 6 {Systemic JRA, Eczema}, > > Kayla 15 {Healthy Thank God} > > 18 {Asthma} > > ~~~~~~~~~~~~~~~~ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2006 Report Share Posted February 9, 2006 Thanks hun. I have had to fight to get the husband to see a doc when he felt bad but never had to fight to have the doc do more for my kids. My mom was sick for 6 years with breast cancer and her doc were so excellant with her and her meds and keeping up with her. I just kinda assumed all docs would do the same. ha ha His doc is really good with him and explaining things to me but this is why I joined this group so I can learn from the experience of you parents and get the best for my son. -- Lorilee ~~~~~~~~~~~~~~~~ Ken 47 {PolyRA} 6 {Systemic JRA, Eczema}, Kayla 15 {Healthy Thank God} 18 {Asthma} ~~~~~~~~~~~~~~~~ -------------- Original message -------------- From: " staciar101 " <staciar@...> Hi Lorilee, My son was age 7 when first treated for systemic. He was immediately put on 12.5mg mtx. and within a month was up to 25mg. As far as pred., he started on I think 10 - 15 mg and quickly went up and maxed. out at 35-40mg. The mtx. can take up to 12 weeks to work, but in the meantime, you might need to up the pred. In my opinion, the pred is doing next to nothing at a beginning dose of 5mg. You are one of his only advocates. It is your job to be one of THOSE moms and demand excellence in your doctors. Yes, push your doctor. Let us know what happens. Stacia and Hunter 9 systemic, uveitis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2006 Report Share Posted February 9, 2006 See another thing I would of never known if I hadn't come here.....thanks so much for the info hun. She hasn't talked about tapering him yet. And I feel he isn't close enough for that yet anyway...since we have to up them now.... -- Lorilee ~~~~~~~~~~~~~~~~ Ken 47 {PolyRA} 6 {Systemic JRA, Eczema}, Kayla 15 {Healthy Thank God} 18 {Asthma} ~~~~~~~~~~~~~~~~ -------------- Original message -------------- From: " staciar101 " <staciar@...> you can get pred pills in 1mg tabs. and then 5mg and 10mg, generally. The doc needs to write a separate prescrip for each kind. Stacia and Hunter 9 systemic, uveitis > > Thanks I will be calling her today about this. How do you lower it by 1mg. He takes a 5 mg pill. I can give him the liquid, he has an aversion to bad tastes and refuses to take anything with the liquid in it. > > -- > Lorilee > ~~~~~~~~~~~~~~~~ > Ken 47 {PolyRA} > 6 {Systemic JRA, Eczema}, > Kayla 15 {Healthy Thank God} > 18 {Asthma} > ~~~~~~~~~~~~~~~~ > > > > -------------- Original message -------------- > From: " Debi " <debiannp@...> > > > > > He's on 5 mg daily. He's only been on the MTX for 3 weeks > could that be part of the problem? I don't want her to think I'm one > of THOSE mom's. But I worry about him and his pain. It just doesn't > seem to be getting any better. > > > > -- > > > I would call asap. The Dr. need to be aware of each step. leigh > is on 20mg pred at the start of a flare. The Dr. said to lower it 1 > mg every 5 days after 3 days of no pain. > > I call my Dr. often when there is a problem They are much happier to > catch something quick than trying to fix a long standing problem. > > Good Luck and Call > Debi > leigh (poly12) > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2006 Report Share Posted April 19, 2006 If your child is toxic with multiple metals. You need to look into chelation. Supplementation alone is not enough to detox the body when metal levels are high because the toxicity impairs the mineral/nutrients transport and you can give high doses of supplement and the child still will be marginally nourished. So, you gain, then you loose the gains. Also a toxic body is a great host for pathogenic infections especially the viruses and yeast. Best, Haleh P.S. The synergestic relationship of metals will increase the problems/autoimmune issues exponanciallywhen there are multiple toxicities. --- newfisholdfish <onefishtwofish@...> wrote: > i looked at the pictures that dana posted of her son's virus die-off > rashes and they look like my daughters last week. my daughter's bump > was also near her chin and in the *exact* same spot as her first > chicken pox bump. (it was a big one). > > The crisis problem is that if she sweats, it hurts her. She claws at > her head and jerks around. She screams for me to take the spices off > her head. i give her a bath and she's immediately better. Summertime > is approaching and it don't know what to do. she can't be outdoors > over 15 minutes. And now, even indoors, if she jumps or runs it > starts again. I feel like the only safe thing for her is to sit in > front of the tv with the a/c on. > > her excema is also returning, (knees, elbows, and some on arms and > torso) and she has had 5 outbreaks of hives these last few weeks. > > BACKGROUND: my daughter spiraled downwards at 2.5 when she got the > japanese enc. booster and chicken pox at the same time (guess she > caught it at the clinic). That was exactly two years ago. Hair tests > showed toxic levels of Hg, Pb, As, plus more. Last year we started > diet, then enzymes, then homeopathy + enzymes. She got better over > 6-9 months. Six weeks ago she started regressing. > > two weeks ago we started No-fenol chewables. I've also started > giving her brain child's SS minerals (1/3 dose) daily. > > Does anyone have any clues as to what is going on? > > ~alicia > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2006 Report Share Posted April 19, 2006 , I agree with Haleh. I think you should consider chelation. I would recommend looking for information at autism treatment. It is the best place, IMO, to learn about safe and effective chelation. / A good place to get started is here: http://home.earthlink.net/~moriam/ This is information gathered by a woman at AM who has chelated herself. I would also think you would want to consider a viral protocol for your daughter. Many of our children have metal and virus problems. We often must deal with both. There is a file here at enzymes on viruses that you might find helpful. Simply look in the files section. Best wishes, Anita > > i looked at the pictures that dana posted of her son's virus die- off > rashes and they look like my daughters last week. my daughter's bump > was also near her chin and in the *exact* same spot as her first > chicken pox bump. (it was a big one). > > The crisis problem is that if she sweats, it hurts her. She claws at > her head and jerks around. She screams for me to take the spices off > her head. i give her a bath and she's immediately better. Summertime > is approaching and it don't know what to do. she can't be outdoors > over 15 minutes. And now, even indoors, if she jumps or runs it > starts again. I feel like the only safe thing for her is to sit in > front of the tv with the a/c on. > > her excema is also returning, (knees, elbows, and some on arms and > torso) and she has had 5 outbreaks of hives these last few weeks. > > BACKGROUND: my daughter spiraled downwards at 2.5 when she got the > japanese enc. booster and chicken pox at the same time (guess she > caught it at the clinic). That was exactly two years ago. Hair tests > showed toxic levels of Hg, Pb, As, plus more. Last year we started > diet, then enzymes, then homeopathy + enzymes. She got better over > 6-9 months. Six weeks ago she started regressing. > > two weeks ago we started No-fenol chewables. I've also started > giving her brain child's SS minerals (1/3 dose) daily. > > Does anyone have any clues as to what is going on? > > ~alicia > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2006 Report Share Posted April 20, 2006 I can't pretend that I know what's going on but I have a couple of clues for you. Ben had a bad reaction to the varicella vaccine and had shingles three years later as a result and we think also the virus affected his cranial nerves (a condition known as Ramsay-Hunt syndrome when it is in adults from the wild-type virus). He also has been diagnosed with celiac disease, which when you take the Protease enzymes, gives you a DH vesicular rash...that looks quite a bit like chickenpox except it may be symmetrical. I have found one medical journal article that actually connects Ramsay-Hunt with celiac disease. Here's what I would suggest: ask your doctor if she/he thinks a short course of acyclovir would help, in case this is a varicella rash popping up again. If so, use it...we only used it for five days. If not, use Zyme Prime but stop the other enzymes at least temporarily. Get gluten completely out of the diet. Then if it is some wierd and barely-understood connection between Ramsay-Hunt zoster recurrence and celiac, you will have covered your bases. AFP Protease is known to cause a DH rash sometimes. A Zyme Prime-type enzyme is known in some studies to work almost as well as acyclovir in controlling shingles/type zoster/varicella recurrences. Personally, I would stop all Virastop type enzymes if you are using them. I have no proof that this will work, but it might very well be a harmless way of addressing the situation. And you know I'm not a medical doctor, I'm a mother with a PhD in biology. So this isn't medical advice...it's just what we saw. PS I had the DH rash from AFP Protease too and it didn't go away when I stopped the enzymes but it went away almost immediately when I stopped eating all gluten. I was diagnosed with celiac, but with an atypical HLA. Peace, Kathy E. > > i looked at the pictures that dana posted of her son's virus die-off > rashes and they look like my daughters last week. my daughter's bump > was also near her chin and in the *exact* same spot as her first > chicken pox bump. (it was a big one). > > The crisis problem is that if she sweats, it hurts her. She claws at > her head and jerks around. She screams for me to take the spices off > her head. i give her a bath and she's immediately better. Summertime > is approaching and it don't know what to do. she can't be outdoors > over 15 minutes. And now, even indoors, if she jumps or runs it > starts again. I feel like the only safe thing for her is to sit in > front of the tv with the a/c on. > > her excema is also returning, (knees, elbows, and some on arms and > torso) and she has had 5 outbreaks of hives these last few weeks. > > BACKGROUND: my daughter spiraled downwards at 2.5 when she got the > japanese enc. booster and chicken pox at the same time (guess she > caught it at the clinic). That was exactly two years ago. Hair tests > showed toxic levels of Hg, Pb, As, plus more. Last year we started > diet, then enzymes, then homeopathy + enzymes. She got better over > 6-9 months. Six weeks ago she started regressing. > > two weeks ago we started No-fenol chewables. I've also started > giving her brain child's SS minerals (1/3 dose) daily. > > Does anyone have any clues as to what is going on? > > ~alicia > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2006 Report Share Posted April 21, 2006 > The crisis problem is that if she sweats, it hurts her. This sounds like she is sweating out toxins, which is aggravating the raw spots where the virus/es are coming out. Does it only hurt her where the rash spots are? If so, maybe you can put something like Neosporin and a bandaid over the spots? > her excema is also returning, (knees, elbows, and some on arms and > torso) and she has had 5 outbreaks of hives these last few weeks. This sounds like something she is eating [food or supplement] she does not tolerate. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2006 Report Share Posted April 21, 2006 Makes sense. I've been holding back on chelation for 3 reasons. 1) we are first going the homeopathic route. Finding the right homeopathic remedy pushes the body into getting the right mechanisms working so that it can heal itself without having rely on manually dragging out metals which poses risks. Her first hair test showed acceptable levels of Hg--even with the counting rules. high levels only for only Pb, As, Al. She did show enough signs of Hg toxicity, tho, that i wasn't convinced. So after 4 months on homeopathic treatment in which she showed vast improvement, i did the hair test again. That's when all these metals--including Hg-- showed up. 2) the higher level of heavy metals could also indicate that exposure is coming from her environment. Until we elimate those -- and there are so many we are going to have to move -- i don't think it's wise to start chelation. 3) no DAN! doctors where i am. thanks! alicia > > If your child is toxic with multiple metals. You need to look into chelation. > Supplementation alone is not enough to detox the body when metal levels are > high because the toxicity impairs the mineral/nutrients transport and you can > give high doses of supplement and the child still will be marginally > nourished. So, you gain, then you loose the gains. Also a toxic body is a > great host for pathogenic infections especially the viruses and yeast. > Best, > Haleh > > P.S. The synergestic relationship of metals will increase the > problems/autoimmune issues exponanciallywhen there are multiple toxicities. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2006 Report Share Posted April 21, 2006 thanks anita, i just spent a day looking thru all the files again -- but could spend a lot longer! so much to learn. alicia > > > > i looked at the pictures that dana posted of her son's virus die- > off > > rashes and they look like my daughters last week. my daughter's > bump > > was also near her chin and in the *exact* same spot as her first > > chicken pox bump. (it was a big one). > > > > The crisis problem is that if she sweats, it hurts her. She claws > at > > her head and jerks around. She screams for me to take the spices > off > > her head. i give her a bath and she's immediately better. > Summertime > > is approaching and it don't know what to do. she can't be outdoors > > over 15 minutes. And now, even indoors, if she jumps or runs it > > starts again. I feel like the only safe thing for her is to sit in > > front of the tv with the a/c on. > > > > her excema is also returning, (knees, elbows, and some on arms and > > torso) and she has had 5 outbreaks of hives these last few weeks. > > > > BACKGROUND: my daughter spiraled downwards at 2.5 when she got the > > japanese enc. booster and chicken pox at the same time (guess she > > caught it at the clinic). That was exactly two years ago. Hair > tests > > showed toxic levels of Hg, Pb, As, plus more. Last year we started > > diet, then enzymes, then homeopathy + enzymes. She got better > over > > 6-9 months. Six weeks ago she started regressing. > > > > two weeks ago we started No-fenol chewables. I've also started > > giving her brain child's SS minerals (1/3 dose) daily. > > > > Does anyone have any clues as to what is going on? > > > > ~alicia > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2006 Report Share Posted April 21, 2006 Thanks Kathy. i've printed your post and have gone thru it very carefully. My daugther was tested negative for celiacs. She did get a very high IgG from gluten, however. And although i don't think she has Ramsay- Hunt syndrome, she may have slight brain damage from birth (doctors in disagreement over mri scans--some say PVL, other say normal). So, her cranial nerves might be affected somehow. It's very interesting that you mention ZymePrime. I used to give ZP together with AFP Peptizyde, but eventually started leaving out the ZP. After a while i noticed that she wasn't as stable. I added the ZP and she seemed to improve with or without the AFP Pep. I've also been keeping her away from NF and she seems to be doing okay. She survived a guava yesterday, enzyme free. Good advice. I would probably be wise to avoid gluten as well. thanks again! alicia > > > > i looked at the pictures that dana posted of her son's virus die- off > > rashes and they look like my daughters last week. my daughter's bump > > was also near her chin and in the *exact* same spot as her first > > chicken pox bump. (it was a big one). > > > > The crisis problem is that if she sweats, it hurts her. She claws at > > her head and jerks around. She screams for me to take the spices off > > her head. i give her a bath and she's immediately better. Summertime > > is approaching and it don't know what to do. she can't be outdoors > > over 15 minutes. And now, even indoors, if she jumps or runs it > > starts again. I feel like the only safe thing for her is to sit in > > front of the tv with the a/c on. > > > > her excema is also returning, (knees, elbows, and some on arms and > > torso) and she has had 5 outbreaks of hives these last few weeks. > > > > BACKGROUND: my daughter spiraled downwards at 2.5 when she got the > > japanese enc. booster and chicken pox at the same time (guess she > > caught it at the clinic). That was exactly two years ago. Hair tests > > showed toxic levels of Hg, Pb, As, plus more. Last year we started > > diet, then enzymes, then homeopathy + enzymes. She got better over > > 6-9 months. Six weeks ago she started regressing. > > > > two weeks ago we started No-fenol chewables. I've also started > > giving her brain child's SS minerals (1/3 dose) daily. > > > > Does anyone have any clues as to what is going on? > > > > ~alicia > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2006 Report Share Posted April 21, 2006 > > The crisis problem is that if she sweats, it hurts her. > This sounds like she is sweating out toxins, which is aggravating > the raw spots where the virus/es are coming out. Does it only > hurt her where the rash spots are? If so, maybe you can put > something like Neosporin and a bandaid over the spots? > Dana It hurts on her scalp. I don't see that she has a rash there, altho she does have scales which look like seborrheic dermatitis. alicia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2006 Report Share Posted April 21, 2006 > > > > > > i looked at the pictures that dana posted of her son's virus die- > off > > > rashes and they look like my daughters last week. my daughter's > bump > > > was also near her chin and in the *exact* same spot as her first > > > chicken pox bump. (it was a big one). > > > > > > The crisis problem is that if she sweats, it hurts her. She > claws at > > > her head and jerks around. She screams for me to take the spices > off > > > her head. i give her a bath and she's immediately better. > Summertime > > > is approaching and it don't know what to do. she can't be > outdoors > > > over 15 minutes. And now, even indoors, if she jumps or runs it > > > starts again. I feel like the only safe thing for her is to sit > in > > > front of the tv with the a/c on. > > > > > > her excema is also returning, (knees, elbows, and some on arms > and > > > torso) and she has had 5 outbreaks of hives these last few weeks. > > > > > > BACKGROUND: my daughter spiraled downwards at 2.5 when she got > the > > > japanese enc. booster and chicken pox at the same time (guess > she > > > caught it at the clinic). That was exactly two years ago. Hair > tests > > > showed toxic levels of Hg, Pb, As, plus more. Last year we > started > > > diet, then enzymes, then homeopathy + enzymes. She got better > over > > > 6-9 months. Six weeks ago she started regressing. > > > > > > two weeks ago we started No-fenol chewables. I've also started > > > giving her brain child's SS minerals (1/3 dose) daily. > > > > > > Does anyone have any clues as to what is going on? > > > > > > ~alicia > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2006 Report Share Posted April 22, 2006 > It hurts on her scalp. I don't see that she has a rash there, altho she > does have scales which look like seborrheic dermatitis. I had that. Biotin and selenium and anti-fungals eliminated it for me. Dana Quote Link to comment Share on other sites More sharing options...
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