need help!

[Guest guest]

Actually, I was ridiculed by a gastro doctor for wanting to test.

But, since it seems that tradition tests for celiacs disease are

full of false negatives in children, i just went to enterolabs. The

tests came back with very low IgA levels. The gene analysis did come

back showing that she had the main gene that predisposes one gluten

sensitivity. But then i read somewhere that about a third of the

population has this gene. So i'm wondering what that could mean.

I also had a partial placental abruption at 13 weeks with her. Had

another at her birth at 33 weeks. interesting.

She doens't have any facial paralysis. She does have abnormal

sensory issues. Her scalp is hyper-sensitive (during regressions i

cannot wash it). Whereas her mouth is hypo sensitive. She used to

each hot-spicy foods at one year. She once grabbed a bite ful of hot

food with no reactin. An hour later i noticed a burn blister on her

lip.

alicia

> >

> > Thanks Kathy. i've printed your post and have gone thru it very

> > carefully.

> >

> > My daugther was tested negative for celiacs. She did get a very

high

> > IgG from gluten, however.

> Celiac diagnosis, especially as it applies to neurological

consequences of gluten ingestion,

> is a very controversial issue. However, one thing is very clear:

if there is high IgG anti-

> gliadin, then you have to have total serum IgA normal in order to

rule out celiac through

> the other serological tests. And according to the research on

gluten ataxia, HLA typing is

> not that helpful. You can have neurological consequences of gluten

ingestion WITHOUT

> the classical celiac HLA types (22% had DQ-1) and WITHOUT total

villous atrophy or even

> less severe enteropathy. However, a positive anti-tissue

transglutaminase may be seen--

> but then again, you have to have adequate IgA to show this. Many

doctors are not aware

> of this and as soon as they see the only positive test for celiac

is the high anti-gluten IgG

> they think it has been ruled out. It hasn't. And if they do have

the right HLA types the

> villous atrophy may come later. Or the DH rash. As in the case

of neurological gluten

> issues, the DH rash may be present without classical HLA typing.

So I would want to know

> HOW your doctor concluded that celiac was negative.

>

>

> And although i don't think she has Ramsay-

> > Hunt syndrome, she may have slight brain damage from birth

(doctors

> > in disagreement over mri scans--some say PVL, other say normal).

So,

> > her cranial nerves might be affected somehow.

> Likewise, with Ben, he obviously does not have classical Ramsay-

Hunt. He had kind of a

> chronic attenuated type that you might find with a vaccine-type

virus, which affected his

> vestibular and oral and facial sensory motor nerves. AND he also

had

> torticollis and plagiocephaly that could easily have affected the

cranial nerves, by straining

> some of them, just like a birth injury. It's like the viral and

the physical weaknesses come

> up in the same places, and that's where the immune reactions

happen too. He also had a

> pre-birth injury in that his mom had a partial placental abruption

at 13 weeks and then an

> umbilical vessel moved into the membrane, so whenever he moved he

would cut off his

> blood supply to the brain. I think the kid is a miracle all

around.

> >

> > It's very interesting that you mention ZymePrime. I used to give

ZP

> > together with AFP Peptizyde, but eventually started leaving out

the

> > ZP. After a while i noticed that she wasn't as stable. I added

the

> > ZP and she seemed to improve with or without the AFP Pep. I've

also

> > been keeping her away from NF and she seems to be doing okay.

She

> > survived a guava yesterday, enzyme free. Good advice.

> I hope the Zyme Prime will help her. If there is any influence

from the varicella zoster

> virus it ought to.

> >

> > It would probably be wise to avoid gluten as well.

> Yup, see above.

>

> Peace,

> Kathy E.

> >

>

[Guest guest]

That is one of the main problems with the enterolabs tests. Unless you do a

BLOOD test

for quantitative serum IgA, total, the fact that the IgA anti-gliadin,

anti-casein, and anti-

tissue transglutaminase are very low means NOTHING. You can't have an IgA

reaction to

anything if you don't have enough IgA in the first place--but you can still have

serious

problems with gluten and even classical celiac. And (besides myself), a high

percentage

(8%), compared to the general population (1/500), of children on the autism

spectrum DO

have IgA deficiency. So you need a doctor or somebody who is willing to test for

total

serum IgA. Or else...you still may have celiac. Enterolabs does not do IgG

tests for celiac.

The only one available is anti-gliadin IgG.

If your pediatrician will not do a serum IgA, then ask for a referral to a

pediatric

immunologist. They are the ones who cover this issue. A doctor who ridicules you

for

requesting a test is probably a doctor who doesn't know how to interpret the

results.

(Being my age, I just call a spade a spade, sorry if this is blunt.)

Benny's mouth is also hyposensitive for texture but probably hypersensitive for

taste. Very

strange about the placental abruptions. That may have been an opportunity for

passage of

antigens mother/fetus or something, who knows..

Peace,

Kathy E.

>

> Actually, I was ridiculed by a gastro doctor for wanting to test.

> But, since it seems that tradition tests for celiacs disease are

> full of false negatives in children, i just went to enterolabs. The

> tests came back with very low IgA levels. The gene analysis did come

> back showing that she had the main gene that predisposes one gluten

> sensitivity. But then i read somewhere that about a third of the

> population has this gene. So i'm wondering what that could mean.

>

> I also had a partial placental abruption at 13 weeks with her. Had

> another at her birth at 33 weeks. interesting.

>

> She doens't have any facial paralysis. She does have abnormal

> sensory issues. Her scalp is hyper-sensitive (during regressions i

> cannot wash it). Whereas her mouth is hypo sensitive. She used to

> each hot-spicy foods at one year. She once grabbed a bite ful of hot

> food with no reactin. An hour later i noticed a burn blister on her

> lip.

>

> alicia

>

>

>

>

[Guest guest]

Quote from a medical journal abstract:

Immunoglobulin A (IgA) deficiency is 10 to 15 times more common in patients with

celiac

disease (CD) than in healthy subjects. Serological tests have become the

preferred

methods of diagnosing CD in both symptomatic and asymptomatic patients. However,

commercially available serological methods are limited in that they detect only

the IgA

isotype of antibodies (with the exception of IgG gliadin assays); hence,

IgA-deficient

patients with CD may yield false-negative serology.

Whole abstract is here, maybe you can print it out for him:

http://cdli.asm.org/cgi/content/abstract/9/6/1295

Peace,

Kathy E.

> >

> > Actually, I was ridiculed by a gastro doctor for wanting to test.

> > But, since it seems that tradition tests for celiacs disease are

> > full of false negatives in children, i just went to enterolabs. The

> > tests came back with very low IgA levels. The gene analysis did come

> > back showing that she had the main gene that predisposes one gluten

> > sensitivity. But then i read somewhere that about a third of the

> > population has this gene. So i'm wondering what that could mean.

> >

> > I also had a partial placental abruption at 13 weeks with her. Had

> > another at her birth at 33 weeks. interesting.

> >

> > She doens't have any facial paralysis. She does have abnormal

> > sensory issues. Her scalp is hyper-sensitive (during regressions i

> > cannot wash it). Whereas her mouth is hypo sensitive. She used to

> > each hot-spicy foods at one year. She once grabbed a bite ful of hot

> > food with no reactin. An hour later i noticed a burn blister on her

> > lip.

> >

> > alicia

> >

> >

> >

> >

>

[Guest guest]

I will look into getting her a serum IgA test. I should be able to

get the test myself in this country. I don't relish the idea of

getting her blood taken tho. Last year she got tested for chronic

and acute allergies from a blood test and it was quite a tramatic

experience. any recommendations for other blood test that can be

done that can make use of a blood draw?

> >

> > Actually, I was ridiculed by a gastro doctor for wanting to

test.

> > But, since it seems that tradition tests for celiacs disease are

> > full of false negatives in children, i just went to enterolabs.

The

> > tests came back with very low IgA levels. The gene analysis did

come

> > back showing that she had the main gene that predisposes one

gluten

> > sensitivity. But then i read somewhere that about a third of the

> > population has this gene. So i'm wondering what that could mean.

> >

> > I also had a partial placental abruption at 13 weeks with her.

Had

> > another at her birth at 33 weeks. interesting.

> >

> > She doens't have any facial paralysis. She does have abnormal

> > sensory issues. Her scalp is hyper-sensitive (during regressions

i

> > cannot wash it). Whereas her mouth is hypo sensitive. She used

to

> > each hot-spicy foods at one year. She once grabbed a bite ful of

hot

> > food with no reactin. An hour later i noticed a burn blister on

her

> > lip.

> >

> > alicia

> >

> >

> >

> >

>

[Guest guest]

No, if your doctor doesn't want the usual CBC and chem profile...and if you

don't need

vaccine titres.

Peace,

Kathy E.

> > >

> > > Actually, I was ridiculed by a gastro doctor for wanting to

> test.

> > > But, since it seems that tradition tests for celiacs disease are

> > > full of false negatives in children, i just went to enterolabs.

> The

> > > tests came back with very low IgA levels. The gene analysis did

> come

> > > back showing that she had the main gene that predisposes one

> gluten

> > > sensitivity. But then i read somewhere that about a third of the

> > > population has this gene. So i'm wondering what that could mean.

> > >

> > > I also had a partial placental abruption at 13 weeks with her.

> Had

> > > another at her birth at 33 weeks. interesting.

> > >

> > > She doens't have any facial paralysis. She does have abnormal

> > > sensory issues. Her scalp is hyper-sensitive (during regressions

> i

> > > cannot wash it). Whereas her mouth is hypo sensitive. She used

> to

> > > each hot-spicy foods at one year. She once grabbed a bite ful of

> hot

> > > food with no reactin. An hour later i noticed a burn blister on

> her

> > > lip.

> > >

> > > alicia

> > >

> > >

> > >

> > >

> >

>

[Guest guest]

>

> Hi all

> My son started to detox

Not sure exactly what you mean by detox.

since April from his urine

> tests, we show some gains. however, his listening

> skill got MUCH worse, I have to ask him four times in

> order to get a response. and he poop dark GREEN color

> couple times a day, frequently pee. is this regression

> normal? what should I need to check?

>

Please tell us what supplements your child is taking and dose.

Also, what chelators, dose, dosing schedule and child's weight.

Manageable symptoms are normal with chelation. Regression indicates

that something is wrong.

J

> need advise!

>

> Many thanks,

>

>

> Betty

>

[Guest guest]

> My son started to detox since April from his urine

> tests, we show some gains. however, his listening

> skill got MUCH worse, I have to ask him four times in

> order to get a response. and he poop dark GREEN color

> couple times a day, frequently pee. is this regression

> normal? what should I need to check?

Try increasing your yeast protocol, see if that helps.

Dana

[Guest guest]

What do you suppose is causing him to " detox " ? Is he taking something that's

marketed as helping with detox? It's probably too high a dose, or too

infrequent dosing, or an inappropriate product.

S S

<p>Hi all<br>

My son started to detox since April from his urine<br>

tests, we show some gains. however, his listening<br>

skill got MUCH worse, I have to ask him four times in<br>

order to get a response. and he poop dark GREEN color<br>

couple times a day, frequently pee. is this regression<br>

normal? what should I need to check?<br>

<br>

need advise!<br>

<br>

Many thanks,<br>

<br>

Betty<br>

<br>

____________<wbr>_________<wbr>_________<wbr>_________<wbr>_________<wbr>__<br>

[Guest guest]

Also, what are you doing for yeast / bacteria? We have the green

poop here which I think is bacteria and which seems to respond to uva

ursi, but not without complications...

Anne

> <p>Hi all<br>

> My son started to detox since April from his urine<br>

> tests, we show some gains. however, his listening<br>

> skill got MUCH worse, I have to ask him four times in<br>

> order to get a response. and he poop dark GREEN color<br>

> couple times a day, frequently pee. is this regression<br>

> normal? what should I need to check?<br>

> <br>

> need advise!<br>

> <br>

> Many thanks,<br>

> <br>

> Betty<br>

> <br>

>

____________<wbr>_________<wbr>_________<wbr>_________<wbr>_________<w

br>__<br>

>

[Guest guest]

Marina,

Has your daughter had her gut scoped?

Pamela

" Courage is doing what you're afraid to do. There can be no courage unless

you're scared. "

Eddie Rickenbacker, top US fighter ace, WWI

_____

From: [mailto: ]

On Behalf Of don_and_mil

Sent: Sunday, November 26, 2006 2:31 PM

Subject: [ ] Need help!

Dear Listmates,

We continue to struggle with horrible self-injury and our

daughter's aggression towards others is escalating. I have removed

all supplements now, except VSL#3.

She has been on metronidazole/Flagyl since August for Gamma Strep in

the gut. She is almost 16 yrs. old, and this is only the sixth

course of antibiotics we've had her on, even though she has had

repeated ear infections. Every time she's been on antibiotics, no

matter which on, her ears still are running pus out of them. I hate

having her on antibiotics. I do not feel the Flagyl has helped her

OCD symptoms, which is partly why we started it. In the meantime,

she still has draining ears.

She is non verbal so I have no idea what is causing her head-

banging, body slamming behaviors.

I can guess that it's either/or her gut, her ears, a headache, a

nightmare in the night, barometric pressure changes, moon changes,

temperature changes, odors, a supplement, a food, a lack of

minerals, you name it. It's a real guessing game.

She has been on every known diet. The only diet that cleared up her

ears was SCD, but she still had terrible behaviors. I abandoned SCD

because of being accused of child abuse over it. Obviously her ears

are not the only possible issue with the self-injury and aggression.

We have done chelation, with poor results. We have been attempting

to do Dr. Yasko's protocol, but never get very far because the

supplements seem to make her worse. All supplements seem to be a

problem. I believe she is Vitamin B deficient, yet she reacts to

those, too. I started giving her just a half a dropperful of liquid

Bs a few weeks ago---am not sure if that's part of the escalation of

behavior or not, so have removed them, along with Vit K. She was

only getting one drop of Vit K per day.

We have begun the process of looking for an institution for her.

This is a painful decision to make, believe me. One option given me

this morning was to send her to the Behavioral Health Center where

she would be an inpatient for two to four months while they try to

figure out what medications would work to control her. This, too,

is not a happy option for me, but I am not sure our family and

school personnel can take much more of what she is dishing out. Her

classmates are terrified of her at this point. Her aide is

threatening to quit. Her little brothers have both asked me why she

can't go live somewhere else.

If anyone has a child like this and could shed some light on what

has worked for you, please contact me off list. I cannot take the

volume of emails that are generated by the lists. And sorry for the

cross post. I am hoping to find a gem of information that until now

I haven't had. And thanks for the help.

Marina marinafretel (DOT) <mailto:marina%40fretel.com> com

[Guest guest]

Marina,

my son (13YO)was like this untill the NCD zeolites

he's happy on the zeolites and making small gains

It is heartbreaking, I know

try one bottle and join the NCDAutism list of over 900 parents

to ask more questions

Waiora Independent distributor for NCD zeolites

www.mywaiora.com/877961

10% of this months sales will be donated to

OAR (Outreach for Autism Research)

We live in a world in which we need to share responsibility.

It's easy to say " It's not my child, not my community, not my world,

not my problem. "

Then there are those who see the need and respond.

I consider those people my heroes. -- Fred " Mr. " ,

Children's TV Show Star

>

> Dear Listmates,

> We continue to struggle with horrible self-injury and our

> daughter's aggression towards others is escalating. I have

removed

> all supplements now, except VSL#3.

> She has been on metronidazole/Flagyl since August for Gamma Strep

in

> the gut. She is almost 16 yrs. old, and this is only the sixth

> course of antibiotics we've had her on, even though she has had

> repeated ear infections. Every time she's been on antibiotics, no

> matter which on, her ears still are running pus out of them. I

hate

> having her on antibiotics. I do not feel the Flagyl has helped

her

> OCD symptoms, which is partly why we started it. In the meantime,

> she still has draining ears.

>

> She is non verbal so I have no idea what is causing her head-

> banging, body slamming behaviors.

> I can guess that it's either/or her gut, her ears, a headache, a

> nightmare in the night, barometric pressure changes, moon changes,

> temperature changes, odors, a supplement, a food, a lack of

> minerals, you name it. It's a real guessing game.

>

> She has been on every known diet. The only diet that cleared up

her

> ears was SCD, but she still had terrible behaviors. I abandoned

SCD

> because of being accused of child abuse over it. Obviously her

ears

> are not the only possible issue with the self-injury and

aggression.

>

> We have done chelation, with poor results. We have been

attempting

> to do Dr. Yasko's protocol, but never get very far because the

> supplements seem to make her worse. All supplements seem to be a

> problem. I believe she is Vitamin B deficient, yet she reacts to

> those, too. I started giving her just a half a dropperful of

liquid

> Bs a few weeks ago---am not sure if that's part of the escalation

of

> behavior or not, so have removed them, along with Vit K. She was

> only getting one drop of Vit K per day.

>

> We have begun the process of looking for an institution for her.

> This is a painful decision to make, believe me. One option given

me

> this morning was to send her to the Behavioral Health Center where

> she would be an inpatient for two to four months while they try to

> figure out what medications would work to control her. This, too,

> is not a happy option for me, but I am not sure our family and

> school personnel can take much more of what she is dishing out.

Her

> classmates are terrified of her at this point. Her aide is

> threatening to quit. Her little brothers have both asked me why

she

> can't go live somewhere else.

>

> If anyone has a child like this and could shed some light on what

> has worked for you, please contact me off list. I cannot take the

> volume of emails that are generated by the lists. And sorry for

the

> cross post. I am hoping to find a gem of information that until

now

> I haven't had. And thanks for the help.

>

> Marina marina@...

>

[Guest guest]

Hello Marina, I too have been where you are now-I am sorry your

daughter is suffering---- but guess what my son is better now. I

beleave your daughter has two problems to be addressed first. 1-

head aches due to the lack of Magnesium- I use Magnesium Ascorbate

alone and I give 1/4 teaspoon mixed with honey in an eyedropper when

ever I see verbal destress comming on(my son is non-verbal too) they

call these head aches suicide head aches- my son comes to me to get

relief from them - and pinches and hit anyone who is near -his way

of showing his distress and asking for help. If I where in your home

today I would start giving Magnesium every hour and a half-until I

saw loose bowel movements then back down to a schedule with no loose

stools.

http://www.enzymestuff.com/magnesium.htm

2- yeast- (the honey above could cause more of a problem- you may

have to find a substitute)I am afraid behaviors are going to get

worse for a short time as you make things better.( die off is hard on

the body) With my son he had the red pulling of the ears ect. ect.

THIS was YEAST OverGrowth in my son. I would rethink the treatment

plan for the ear problems.

http://www.enzymestuff.com/conditionbacteria.htm

Here is a great paper with info on treatment and supplements amount

http://puterakembara.org/rm/Dr_Jepson.pdf

My sons behavior that made me get to the point you are at and

thinking about an institution - stemmed from me stopping the

supplements he was on -it too got so confusing for me that I thought

the supplements where the problem- in the end they saved my son from

misery -really.

I want to come to your home and sit dowm with the family and say that

the plan will be for the next year to get your daughter back on track

and everyone will have to wait that long to see if and then vote on

where your daughter should live.

There are really so many things that I can think of right now that

could be adding to your daughter problems - pH problems, leaky gut,

hormones, I hope you have the strenght to find the answers.

http://www.nutrition4health.org/NOHAnews/NNW95Excitoxins.htm (really

bad stuff)

You must be a great mom... and you and your daughter will be in my

prayers. As always My 2 cents Ann

>

[Guest guest]

What does her hair test show? How many mercury amalgam dental fillings does she

have? Did she develop normally and then regress? Have you tried NAET?

www.naet.com Is anybody using alternative communication with her (PECS or sign,

or a communication device?)

S S

<p>Dear Listmates,<br>

We continue to struggle with horrible self-injury and our <br>

daughter's aggression towards others is escalating. I have removed <br>

all supplements now, except VSL#3.<br>

She has been on metronidazole/<wbr>Flagyl since August for Gamma Strep in <br>

the gut. She is almost 16 yrs. old, and this is only the sixth <br>

course of antibiotics we've had her on, even though she has had <br>

repeated ear infections. Every time she's been on antibiotics, no <br>

matter which on, her ears still are running pus out of them. I hate <br>

having her on antibiotics. I do not feel the Flagyl has helped her <br>

OCD symptoms, which is partly why we started it. In the meantime, <br>

she still has draining ears.<br>

<br>

She is non verbal so I have no idea what is causing her head-<br>

banging, body slamming behaviors.<br>

I can guess that it's either/or her gut, her ears, a headache, a <br>

nightmare in the night, barometric pressure changes, moon changes, <br>

temperature changes, odors, a supplement, a food, a lack of <br>

minerals, you name it. It's a real guessing game.<br>

<br>

She has been on every known diet. The only diet that cleared up her <br>

ears was SCD, but she still had terrible behaviors. I abandoned SCD <br>

because of being accused of child abuse over it. Obviously her ears <br>

are not the only possible issue with the self-injury and aggression.<br>

<br>

We have done chelation, with poor results. We have been attempting <br>

to do Dr. Yasko's protocol, but never get very far because the <br>

supplements seem to make her worse. All supplements seem to be a <br>

problem. I believe she is Vitamin B deficient, yet she reacts to <br>

those, too. I started giving her just a half a dropperful of liquid <br>

Bs a few weeks ago---am not sure if that's part of the escalation of <br>

behavior or not, so have removed them, along with Vit K. She was <br>

only getting one drop of Vit K per day.<br>

<br>

We have begun the process of looking for an institution for her. <br>

This is a painful decision to make, believe me. One option given me <br>

this morning was to send her to the Behavioral Health Center where <br>

she would be an inpatient for two to four months while they try to <br>

figure out what medications would work to control her. This, too, <br>

is not a happy option for me, but I am not sure our family and <br>

school personnel can take much more of what she is dishing out. Her <br>

classmates are terrified of her at this point. Her aide is <br>

threatening to quit. Her little brothers have both asked me why she <br>

can't go live somewhere else.<br>

<br>

If anyone has a child like this and could shed some light on what <br>

has worked for you, please contact me off list. I cannot take the <br>

volume of emails that are generated by the lists. And sorry for the <br>

cross post. I am hoping to find a gem of information that until now <br>

I haven't had. And thanks for the help.<br>

<br>

Marina <a href= " mailto:marina%40fretel.com " >marinafretel (DOT) <wbr>com</a><br>

<br>

</p>

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[Guest guest]

>

> my son is geeting to where he cant do anything for himself,he has to

> make noise to ask if he can do these or that.and he has a hard time

> going to sleep his ocd is driving him crazy.

For sleep issues, I would first consider phenol intolerance and yeast

overgrowth

http://www.danasview.net/phenol.htm

http://www.danasview.net/yeast.htm

OCD, at my house, was viral. I used OLE, Virastop, vitamin C, and lysine.

Dana

[Guest guest]

Hi There:

***Welcome. We like to go by first names here (rather than email addresses) so

let us know what to call you.

> I have been on prevacid for excessive stomach acid and lately I have been

taking amoxicillin for a sinus infection that won't go away. I haven't been

diagnosed with Candida, however reading through the symptoms associated with

Candida it would appear that I do.

*** Bee has often said in the past that most people who think they have high

stomach acid actually have low stomach acid. Here's one of her articles about

it. http://www.healingnaturallybybee.com/articles/dig14.php

I'm sure she can discuss this further with you, if necessary. But, I know she

would not recommend the Prevacid in any case. Nor the amoxicillin. Most people

on this group have found that the drugs given to them by doctors don't actually

cure them... they just mask the symptoms. And they make us sicker in the long

run. This program is about harnessing the healing power of your own body and

using a truly healthy diet to encourage this.

>As soon as I stop taking prevacid the acid returns, but I seem to have gotten

it under >control with a combination of acidophilus, enzymes, acv and cayenne

pepper. All of the >other symptoms remain though, tiredness, itch, sinus

problems, foggyness. I can't >remember the last time I have had a good night

sleep.

*** You'll see that Bee doesn't recommend the acidophilus or enzymes either, for

good reasons. Your list of symptoms are classic Candida symptoms, by the way.

You can take Crook's test if you like, which is on Bee's website. But you also

need to learn about this diet which will help you.

>

> I'm just not sure where to start, thinking back I believe I've had this for

about 8 years now.

*** First things first: you need to read a few articles that will help you

understand this diet. The articles also help you get started. Please read them

through and then get back to us with your questions. You are in the right

place. Bee has helped many people with problems like yours. There are many

folks on this board who have come here for help with

digestion/fatigue/sinus/foggyness/sleep issues.... it's all Candida.

Here are the articles:

How to Successfully Overcome Candida

http://www.healingnaturallybybee.com/articles/intro2.php

Curing Candida, How to Get Started

http://www.healingnaturallybybee.com/articles/intro1.php

For encouragement and inspiration see these wonderful Success Stories by members

of this group: http://www.healingnaturallybybee.com/success/index.php

The only way to cure candida:

Candida cannot be cured by " killing it off. " It just doesn't work that way.

Candida is only cured by building up the immune system, which is done by:

Consuming " proper nutrients " (diet plus supplements),

Eliminating toxins and foods that feed candida (they also feed bacteria and

cancer),

Eliminating damaging foods, and

Eliminating toxins in general.

When the immune system is strong enough it will automatically " make " candida (or

any bug, cancer, etc.) change back into the microbe it was before.

After you read, get back to us with your questions.

All the best,

Marissa (a group moderator)

[Guest guest]

OMG the set of problems you describe is very much what i have had too..

But even before i came to know about Candida and then Bee i have had very

tight control on what I ate(for nearly 2 plus years).

Hope everyone of us in " bee Wilder " group get better soon!

best regards

senthil

On 7 February 2010 17:18, ijamieson@... <ijamieson@...> wrote:

>

>

> I have been on prevacid for excessive stomach acid and lately I have been

> taking amoxicillin for a sinus infection that won't go away. I haven't been

> diagnosed with Candida, however reading through the symptoms associated with

> Candida it would appear that I do.

>

> Should I see my doctor and ask to be tested for it? I don't always trust

> what the doctor has to say and I have stopped taking the prevacid recently

> because I'm worried what it is doing to my digestive system. As soon as I

> stop taking prevacid the acid returns, but I seem to have gotten it under

> control with a combination of acidophilus, enzymes, acv and cayenne pepper.

> All of the other symptoms remain though, tiredness, itch, sinus problems,

> foggyness. I can't remember the last time I have had a good night sleep.

>

> I'm just not sure where to start, thinking back I believe I've had this for

> about 8 years now.

>

> Thanks

>

>

>

[Guest guest]

Try switching to AC protocol. What supps are they on? 250 is way too high

unless they weigh 300-1000 lbs. What are the " getting sick " symptoms? I

presume they have NO mercury amalgam dental fillings and haven't had any recent

vaccines?!

S S

Need help!

Posted by: " rhondamasengale " rhondamasengale@... rhondamasengale

Tue Mar 30, 2010 10:54 am (PDT)

My boys have been chelating using the Dan protocol; 1- 250 mg dmsa support at

night for 3 nights, then off 11 nights. Since last year. So we chelate every

other week. They seem to tolerate It well. Metal burdens are coming down. I

tried to add in ala 2 months ago. After 6 rounds, they seem to be getting very

sick from chelating so I decreased ala from 25 mg to 12.5 mg and it didn't seem

to make a difference, still getting sick. I dropped the ala entirely and tried

just going back to dmsa only and they are still getting very sick. What could be

going on? I need to finish chelating, but I am afraid I am hurting them. Please

help!

------------------------------------------------------------

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[Guest guest]

Is it necessary to give ALA every 3 hours at night? I thought you could go 4hrs

at night. We have done 31 rounds and almost always have one 3hr and 45min

strectch, since my son often stays away after his 4:30am, if given every three

hours, so we stretch it until about 5:15 which he also stays awake, the extra

45minutes helps. Please someone tell me if this is incorrect.

Thanks,

> >

> > My boys have been chelating using the Dan protocol; 1- 250 mg dmsa

> > support at night for 3 nights, then off 11 nights. Since last year. So

> > we chelate every other week. They seem to tolerate It well. Metal

> > burdens are coming down. I tried to add in ala 2 months ago. After 6

> > rounds, they seem to be getting very sick from chelating so I

> > decreased ala from 25 mg to 12.5 mg and it didn't seem to make a

> > difference, still getting sick. I dropped the ala entirely and tried

> > just going back to dmsa only and they are still getting very sick.

> > What could be going on? I need to finish chelating, but I am afraid I

> > am hurting them. Please help!

> >

> >

>

[Guest guest]

lasbirdie wrote:

>

> Is it necessary to give ALA every 3 hours at night? I thought you

> could go 4hrs at night. We have done 31 rounds and almost always have

> one 3hr and 45min strectch, since my son often stays away after his

> 4:30am, if given every three hours, so we stretch it until about 5:15

> which he also stays awake, the extra 45minutes helps. Please someone

> tell me if this is incorrect.

>

Certainly not ideal.

It falls under the " one hour grace period " which is the justification

for the 4 hours at night.

The clock resets at each dose. If you do 10:30 1:30 then 5:15, the next

dose is at 8:15.

If you let it go past 5:30, you should stop the round, since it's more

than one hour late.

>

> Thanks,

>

>

>

> > >

> > > My boys have been chelating using the Dan protocol; 1- 250 mg dmsa

> > > support at night for 3 nights, then off 11 nights. Since last

> year. So

> > > we chelate every other week. They seem to tolerate It well. Metal

> > > burdens are coming down. I tried to add in ala 2 months ago. After 6

> > > rounds, they seem to be getting very sick from chelating so I

> > > decreased ala from 25 mg to 12.5 mg and it didn't seem to make a

> > > difference, still getting sick. I dropped the ala entirely and tried

> > > just going back to dmsa only and they are still getting very sick.

> > > What could be going on? I need to finish chelating, but I am afraid I

> > > am hurting them. Please help!

> > >

> > >

> >

>

>

[Guest guest]

Every 4 hours is ok at night because the metabolism slows down.

S S

Re: Need help!

Posted by: " lasbirdie " birdies@... lasbirdie

Tue Mar 30, 2010 7:18 pm (PDT)

Is it necessary to give ALA every 3 hours at night? I thought you could go 4hrs

at night. We have done 31 rounds and almost always have one 3hr and 45min

strectch, since my son often stays away after his 4:30am, if given every three

hours, so we stretch it until about 5:15 which he also stays awake, the extra

45minutes helps. Please someone tell me if this is incorrect.

Thanks,

------------------------------------------------------------

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[Guest guest]

That is usually long enough, I suggest Houston TriEnza and follow the low

and slow dosing instructions that Houston can give you. That means he is

trying all the enzymes that might be useful

_www.Houston-Enzymes.com_ (http://www.Houston-Enzymes.com)

HTH

Mandi in UK

PS I will also mail you the 7 month summary report from this group of folks

using Houston Peptizyde and HN Zyme which formed the basis for the De

Felice books

In a message dated 13/10/2010 22:10:16 GMT Daylight Time,

Barbin@... writes:

My husband does not want me to spend alot of money doing this, and he has

asked that I try one enzyme for say 6 weeks, and see what that does.

[Guest guest]

You need to cut down his sugar and cut out Aspartame, his behaviour might g

et worse for a week or too while his system adjusts

Mandi in UK

In a message dated 13/10/2010 22:10:16 GMT Daylight Time,

Barbin@... writes:

Red dye makes him very hyper-laughs,giggles, runs around, and cannot

control himself. What he eats, is mostly dairy(cheese,ice

cream,half-n-half,ect..)carbs(garlic bread, french frie s, hashbrowns, and

pizza), and some

fruit(apples, grapes, and certain melons). He will drink coffee(he loves

starbucks),certain flavors of gatorade,cran-brape juice, any type of soda, and

water when he cannot get anything else; and he loves all types of gummy

candy. I have to help my son;he has 3 other siblings that I cannot give full

attention to, when he is meltdown, or running off.Any and all

[Guest guest]

A book for your husband might be Dr. Bock's " Healing the Four A's:

Autism, ADHD, Asthma & Allergies " . Great resource, explains the biomedical

approach and such a great book.

Best,

Joanne

www.healingautismandadhd.wordpress.com

>

> I am married to a nurse, who does not believe that going natural and using

enzymes will help our 13 yr old son. He has decided to let me try this, mainly

because the 13 yr old is getting much harder to handle, and because I cried

quite a bit over awful advice I was given and refuse to use for helping my son.

I have Enzymes: Go With Your Gut; can anyone suggest a book to read, that might

reach my husband? If anyone has older children that have improved, would you be

willing to share that with me? My husband does not want me to spend alot of

money doing this, and he has asked that I try one enzyme for say 6 weeks, and

see what that does. This is also where I need help, trying to figure out what to

start with. Seth hits himself when he gets frustrated, or does not like what you

said to him. Red dye makes him very hyper-laughs,giggles, runs around, and

cannot control himself. What he eats, is mostly dairy(cheese,ice

cream,half-n-half,ect..)carbs(garlic bread, french fries, hashbrowns, and

pizza), and some fruit(apples, grapes, and certain melons). He will drink

coffee(he loves starbucks),certain flavors of gatorade,cran-brape juice, any

type of soda, and water when he cannot get anything else; and he loves all types

of gummy candy. I have to help my son;he has 3 other siblings that I cannot give

full attention to, when he is meltdown, or running off.Any and all

help/suggestions greatly appreciated!

>

>

[Guest guest]

I like the Enzymes and Autism book, or McCarthy's Healing and Preventing

Autism (newest book).

As for an Enzyme, we started with Digest Basic, but quickly moved to Trienza.

If your hubby is only allowing you 1, I would try Trienza, but start with maybe

a 1/2 capsule at a time, since it is so new. That way you get 3 enzymes in 1

(as it is a mix of 3 of there most popular enzymes).

Our daughter stopped her worst tamtruming within a week of starting enzyme

therapy. She used to slam her body to the ground everyday when we returned

home, and she would cry and scream. She would also throw her sippy cup

everytime we handed it to her, and bang her head on the ground. We were

fortunate to see an a;most immediate end to this behavior with Enzymes (but of

course not all children will have such a positive response).

Hope that helps a little bit.

Good luck,

Spring

> >

> > I am married to a nurse, who does not believe that going natural and using

enzymes will help our 13 yr old son. He has decided to let me try this, mainly

because the 13 yr old is getting much harder to handle, and because I cried

quite a bit over awful advice I was given and refuse to use for helping my son.

I have Enzymes: Go With Your Gut; can anyone suggest a book to read, that might

reach my husband? If anyone has older children that have improved, would you be

willing to share that with me? My husband does not want me to spend alot of

money doing this, and he has asked that I try one enzyme for say 6 weeks, and

see what that does. This is also where I need help, trying to figure out what to

start with. Seth hits himself when he gets frustrated, or does not like what you

said to him. Red dye makes him very hyper-laughs,giggles, runs around, and

cannot control himself. What he eats, is mostly dairy(cheese,ice

cream,half-n-half,ect..)carbs(garlic bread, french fries, hashbrowns, and

pizza), and some fruit(apples, grapes, and certain melons). He will drink

coffee(he loves starbucks),certain flavors of gatorade,cran-brape juice, any

type of soda, and water when he cannot get anything else; and he loves all types

of gummy candy. I have to help my son;he has 3 other siblings that I cannot give

full attention to, when he is meltdown, or running off.Any and all

help/suggestions greatly appreciated!

> >

> >

>

[Guest guest]

Would your spouse consider gluten and or caesin free diet also due to the types

of foods you list. I know it may be hard to do with a13 year old but one example

is that caffeine is a stimulant. Sounds like some the foods he is craving may be

causing some harm as well. Dr jepson from thoughtful house is a Dan doctors has

a son with autism and has a book out your spouse may be able to relate to.

Tisha Brown

Sent from my Verizon Wireless BlackBerry

Re: Need help!

A book for your husband might be Dr. Bock's " Healing the Four A's:

Autism, ADHD, Asthma & Allergies " . Great resource, explains the biomedical

approach and such a great book.

Best,

Joanne

www.healingautismandadhd.wordpress.com

>

> I am married to a nurse, who does not believe that going natural and using

enzymes will help our 13 yr old son. He has decided to let me try this, mainly

because the 13 yr old is getting much harder to handle, and because I cried

quite a bit over awful advice I was given and refuse to use for helping my son.

I have Enzymes: Go With Your Gut; can anyone suggest a book to read, that might

reach my husband? If anyone has older children that have improved, would you be

willing to share that with me? My husband does not want me to spend alot of

money doing this, and he has asked that I try one enzyme for say 6 weeks, and

see what that does. This is also where I need help, trying to figure out what to

start with. Seth hits himself when he gets frustrated, or does not like what you

said to him. Red dye makes him very hyper-laughs,giggles, runs around, and

cannot control himself. What he eats, is mostly dairy(cheese,ice

cream,half-n-half,ect..)carbs(garlic bread, french fries, hashbrowns, and

pizza), and some fruit(apples, grapes, and certain melons). He will drink

coffee(he loves starbucks),certain flavors of gatorade,cran-brape juice, any

type of soda, and water when he cannot get anything else; and he loves all types

of gummy candy. I have to help my son;he has 3 other siblings that I cannot give

full attention to, when he is meltdown, or running off.Any and all

help/suggestions greatly appreciated!

>

>