Guest guest Posted December 4, 2001 Report Share Posted December 4, 2001 I have had many of those myself. I recently had a weeks vacation and had all kinds of plans on accomplishing things around the house. I did get a little bit done, but not nearly what I had in mind. Recharged my battery pretty good though... -dz- --- the wicked one <debsimonen@...> wrote: > Darlene....your hubby is experiencing plain ol > hepper > stuff....and tell him its ok to crash > sometimes...ive > been known to do what i fondly refer to as lost > weekends...where i clock in a bunch of extra sleep > and > recharge a tad! tell him not to lose his sence of > humor...it does wonders hugs, deb > > > ok...now dennis is it you that said they were older > than me? im soooooooooooooooooooo excited that > there > is someone older than me anywhere > > ===== > deb, the wicked one > debsimonen@... > > > " Between two evils, i always pick the one i haven't > tried before. " Mae West > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2001 Report Share Posted December 4, 2001 I prefer just plain old fun in the sun with lots of excitement..Bad or good!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2001 Report Share Posted December 4, 2001 define crazy lol...i prefer creative thinkers deb ===== deb, the wicked one debsimonen@... " Between two evils, i always pick the one i haven't tried before. " Mae West __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2001 Report Share Posted December 4, 2001 Thank you, I'll use that one. I think I just look at things from slightly off center... -dz- --- the wicked one <debsimonen@...> wrote: > define crazy lol...i prefer creative thinkers > deb > > ===== > deb, the wicked one > debsimonen@... > > > " Between two evils, i always pick the one i haven't > tried before. " Mae West > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2001 Report Share Posted December 4, 2001 no no no dz...ya NEVER admit your out of norm....always just creative hey id be complaining to beincharge....we used to all compare who got what from them...everything from gum and popcorn to hand cream and breath mints lol.....deb ===== deb, the wicked one debsimonen@... " Between two evils, i always pick the one i haven't tried before. " Mae West __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2001 Report Share Posted December 4, 2001 Ok what did I miss?? What coupons?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2001 Report Share Posted December 5, 2001 Bethanne, My doc based my diagnosis on the extreme level of LFT (usually extremely high with AIH) and positive antibodies. Another indication was my immediate response to prednisone...counts went down. I did not have the biopsy for 2 more months, after my enzymes went back up after the prednisone was reduced. His explanation was that before starting me on any additional meds, to ensure the diagnosis. I also just read an article @ emedicine.com about AIH listing several indices for the disease which includes exactly what my doctor told me as well as association with other autoimmune diseases (I have thyroid, and family members with other such) Each doctor though, has their own process for dxing AIH; and of course each has their own opinion of the best way...LOL nne > Hi!! I have two questions. I know that it is very > common to have more than one autoimmune disease and I > know most of you do unfortunately. Were you diagnosed > with the AIH first or later? Luckily, I only have AIH > right now, but I am a little worried about developing > or being diagnosed with something on top of it. > > I'm also really confused about the diagnosis of AIH. > I was under the impression that the only way to > diagnose it was through a liver biopsy, yet I think > Several people have said they have it and are still > waiting for the biopsy. Thanks for your info in > advance!! > > Bethanne > AIH 9/01 > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2001 Report Share Posted December 5, 2001 Hey Deb...I love the new language..I should try it but us Cajuns talk odd enough..LOL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2001 Report Share Posted December 5, 2001 I've only got one package from them, and it had a couple of coupons that I'd never use. -dz- --- the wicked one <debsimonen@...> wrote: > no no no dz...ya NEVER admit your out of > norm....always just creative hey id be > complaining > to beincharge....we used to all compare who got what > from them...everything from gum and popcorn to hand > cream and breath mints lol.....deb > > ===== > deb, the wicked one > debsimonen@... > > > " Between two evils, i always pick the one i haven't > tried before. " Mae West > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2001 Report Share Posted December 5, 2001 wow...beincharge used to send a sample or treat each month with their monthly report mag thingy (that was all highly technical language >>) deb ===== deb, the wicked one debsimonen@... " Between two evils, i always pick the one i haven't tried before. " Mae West __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2001 Report Share Posted December 5, 2001 jan...just think my language and cajun...wow...bilingual ===== deb, the wicked one debsimonen@... " Between two evils, i always pick the one i haven't tried before. " Mae West __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2001 Report Share Posted December 5, 2001 They DID send me a booklet on the various methods of injecting yourself, a schedule to log your injections, a hazardous waste container, and a vhs film which were all very helpful to me. -dz- --- the wicked one <debsimonen@...> wrote: > wow...beincharge used to send a sample or treat each > month with their monthly report mag thingy (that was > all highly technical language >>) deb > > ===== > deb, the wicked one > debsimonen@... > > > " Between two evils, i always pick the one i haven't > tried before. " Mae West > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2001 Report Share Posted December 5, 2001 Thanks nne. I was just getting such conflicting info that I really wasn't sure!! Bethanne __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2002 Report Share Posted February 11, 2002 a, You are not whinning. I do the same thing. My son says Mom you need to get out and do something. They just do not understand the extreme fatigue. Vent all you like. My comment to my son is " Sorry the maid's chronically ill. There's the washer and here's the soap. If you need clothes do them. " He now laughs and does his wash if I'm wiped out. He's almost 17 though and it's a little easier than having small children. Vent all you like. And sleep all you need. You're body is telling you something. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2002 Report Share Posted February 11, 2002 I think we all can understand being tired. Hope the B-12 shots work. I had those when I was in my 20's. Never understood the reason why, except iron was low and so was my Mom's at the time, so we went together. I'm finding that by coming home from work just a little earlier and resting an hour before I have to start dinner and do all those other house work jobs, it does give me a little more energy. Take care Ann CT [ ] questions Hello everyone, This is a. I have posted a couple of times and enjoy each and everyone of you as I read the group postings daily. I learn so much from all of you and know I can come here as a safe place where others understand what I mean when I say I am SO tired! For the past week I have felt SO EXHAUSTED and just can't seem to find the words to express to my family to make them truly understand!!!!! They play it off by saying there is a new flu going around and that is probably what I am coming down with. I am not sure if it is their way of living in denial of my AIH, diabetes or other medical problems I am currently experiencing. Believe me, it is not normal for a person to come home Friday afternoon from work and basically sleep until about 5 pm Sunday evening. My body feels heavy and all I want to do is sleep. Also, lately I have been getting sores on my tongue. Have any of you experienced this at all? I am an extreme anemic and have been receiving Vitamin B-12 shots. They want to try this for 30 days. If my levels do not increase then they want to attempt a transfusion. I am just very frustrated right now and wish I didn't feel 80 years old when I just turned 36 last month. I know some of you are so much sicker than I and I am not trying to whine.....I just want to talk with you as I know you all understand some of my thoughts. Have any advice????? Thank you for listening. Take care and I truly mean it when I say thank you for being here and understanding. a in Arizona.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2002 Report Share Posted February 11, 2002 Hi a It is nice to hear from you. I know what it is like to feel so tired that the only thing you think about is how soon can you go to bed. If you feel like you want to sleep then sleep be kind to yourself. It took a long time for my family to recognise that I was really ill and after dragging myself around for so long I was taken into the hospital and the Dr told my family that I was very ill. It gave them a shock but it did them good now when I feel tired they believe me and are the first to tell me to rest. Look after yourself. Hugs Jeanette UK AIH dx 1998 Cirrhosis 2001 Tom & a <mcnutt@...> wrote: Hello everyone, This is a. I have posted a couple of times and enjoy each and everyone of you as I read the group postings daily. I learn so much from all of you and know I can come here as a safe place where others understand what I mean when I say I am SO tired! For the past week I have felt SO EXHAUSTED and just can't seem to find the words to express to my family to make them truly understand!!!!! They play it off by saying there is a new flu going around and that is probably what I am coming down with. I am not sure if it is their way of living in denial of my AIH, diabetes or other medical problems I am currently experiencing. Believe me, it is not normal for a person to come home Friday afternoon from work and basically sleep until about 5 pm Sunday evening. My body feels heavy and all I want to do is sleep. Also, lately I have been getting sores on my tongue. Have any of you experienced this at all? I am an extreme anemic and have been receiving Vitamin B-12 shots. They want to try this for 30 days. If my levels do not increase then they want to attempt a transfusion. I am just very frustrated right now and wish I didn't feel 80 years old when I just turned 36 last month. I know some of you are so much sicker than I and I am not trying to whine.....I just want to talk with you as I know you all understand some of my thoughts. Have any advice????? Thank you for listening. Take care and I truly mean it when I say thank you for being here and understanding. a in Arizona.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2002 Report Share Posted February 11, 2002 a: Hello. I think family and close friends don't really want to think that you are sick. I know at times there are no outward symptoms of this disease so when you say you are tired or do not really feel right they don't understand. Be good to yourself and learn to listen to your body if it wants rest, then rest. I know that the saying is a mother can never be sick, but listen to what Jeanette said so you do not land in the hospital. Hugs Glo from CA Re: [ ] questions Hi a It is nice to hear from you. I know what it is like to feel so tired that the only thing you think about is how soon can you go to bed. If you feel like you want to sleep then sleep be kind to yourself. It took a long time for my family to recognise that I was really ill and after dragging myself around for so long I was taken into the hospital and the Dr told my family that I was very ill. It gave them a shock but it did them good now when I feel tired they believe me and are the first to tell me to rest. Look after yourself. Hugs Jeanette UK AIH dx 1998 Cirrhosis 2001 Tom & a <mcnutt@...> wrote: Hello everyone, This is a. I have posted a couple of times and enjoy each and everyone of you as I read the group postings daily. I learn so much from all of you and know I can come here as a safe place where others understand what I mean when I say I am SO tired! For the past week I have felt SO EXHAUSTED and just can't seem to find the words to express to my family to make them truly understand!!!!! They play it off by saying there is a new flu going around and that is probably what I am coming down with. I am not sure if it is their way of living in denial of my AIH, diabetes or other medical problems I am currently experiencing. Believe me, it is not normal for a person to come home Friday afternoon from work and basically sleep until about 5 pm Sunday evening. My body feels heavy and all I want to do is sleep. Also, lately I have been getting sores on my tongue. Have any of you experienced this at all? I am an extreme anemic and have been receiving Vitamin B-12 shots. They want to try this for 30 days. If my levels do not increase then they want to attempt a transfusion. I am just very frustrated right now and wish I didn't feel 80 years old when I just turned 36 last month. I know some of you are so much sicker than I and I am not trying to whine.....I just want to talk with you as I know you all understand some of my thoughts. Have any advice????? Thank you for listening. Take care and I truly mean it when I say thank you for being here and understanding. a in Arizona.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2002 Report Share Posted April 5, 2002 Dear , Please keep us posted on how you are doing. How did they know you have cirrhosis without the biopsy? I hope you are feeling well. They ran the IgM test on me to test for cancer. So far it was low in the reading, so no cancer. I think this is the book you want, it was recommended by Harper. I just ordered mine through Amazon because I am too lazy to go to the store. It is called “Dr. Palmer’s Guide to Hepatitis & Liver Disease: What You Need to Know”. AIH, like Autoimmune Thyroid are caused by a haywire immune system that fails to recognize; the liver and the thyroid as ‘self’ so it tries to eliminate this ‘foreign tissue’. The faulty immune system manifests itself in other ways, causing diseases like lupus, multiple sclerosis, rheumatoid arthritis, diabetes etc. [ ] Questions I have read only a few digests from the LiverSupport Group but have gained a wealth of knowledge. For that I thank you all. Thus far (in the past 2 weeks) I have been confirmed having Autoimmune Liver Disease. The drs. say I also have cirrhosis. They will not tell me if there is cancer also. I am having a liver biopsy in several days. I have a few questions: *What is the name and author of the book that is considered helpful to read on this subject? *What does the presence of cirrhosis mean? Does this indicate I have had this for a long time? *Is back pain caused by this disease? *Do they " stage " this disease like they do cancer? *Is there a connection between this disease and Autoimmune Thyroid Disease? Thanks for your help!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2002 Report Share Posted May 14, 2002 Hi all, i was just wondering what your opinions were on mercury amalgam fillings causing PA. I went to a dentist in 1996, (who subsequently shut down a month later) and he gave me 6 fillings and i was told that some of them were not necessary and my joints definately felt worse immediately after i had them.I then recently read that a Dr with PA had all his fillings removed to the root and is now in remission from PA. I'm thinking about giving it a try, what have i got to lose. Another thing, can taking NSAIDs affect how the sun affects your skin, ie sunburn. I'm taking 1000mg of cod-liver oil and evening primrose oil a day.Should i be taking more than this? Has anybody has any problems with their teeth. Mine seem to have become crumbly and i've lost 2 teeth in the last 6 months. Cheers Dave Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2002 Report Share Posted May 15, 2002 Dave, You might want to take a look at an article at: http://www.home.earthlink.net/~berniew1/amalg6.html Basically, yes, mercury in amalgam fillings can cause all sorts of problems, especially amongst dentists and dental office workers who deal with them on a daily basis. The two major exposures you get to mercury vapor (the most harmful form of mercury) is when the fillings are installed and when they are removed (unless the dentist uses special precautions, which most don't). According to the article, after 10 or 15 years, most of the mercury has already leeched out into your system, so there's not much reason to have them removed at that point, but I will never again have a mercury amalgam filling installed into my mouth. -- Ron > Hi all, i was just wondering what your opinions were on mercury amalgam fillings causing PA. I went to a dentist in 1996, (who subsequently shut down a month later) and he gave me 6 fillings and i was told that some of them were not necessary and my joints definately felt worse immediately after i had them.I then recently read that a Dr with PA had all his fillings removed to the root and is now in remission from PA. I'm thinking about giving it a try, what have i got to lose. > > Another thing, can taking NSAIDs affect how the sun affects your skin, ie sunburn. > > I'm taking 1000mg of cod-liver oil and evening primrose oil a day.Should i be taking more than this? > > Has anybody has any problems with their teeth. Mine seem to have become crumbly and i've lost 2 teeth in the last 6 months. > > Cheers > > Dave > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2002 Report Share Posted May 22, 2002 Hi! My name is Gloria, and my doctor said that I cannot do a toast in October to my own daughters wedding, I never was a drinker and I thought on this one occassion that they would at least let me have a drink, to toast, I can only have non-alcoholic, wht do something that could hurt, with all of the medication that I take he is right, I recently went off of prednisone in Feburary, and I see my G.I. tomorrow. Good luck. Gloria. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2002 Report Share Posted May 22, 2002 Shoot...go ahead and have a sip of your toast...or just toast. You don't have to drink it...I am planning on having some sparkling cider at my daughter's wedding in August.....it is going to be available for those who don't drink....debby [ ] questions Hi everyoneI hope you are all okay today. I have a few littlequestions to throw your way and would be grateful forany answers. My bloodwork has been fine for a littlewhile but I still get tired a lot - is this normal tofeel the tiredness even when liver levels are notelevated. Also could anybody tell me what the livercleansing diet is. Last question is I have a friendswedding to attend soon and to be honest I havent drankno alcohol at all since being diagnosed with AIHsimply because I wouldnt like to add insult to injury,but as you know at weddings there is always a toastand wonder if we are allowed to have a drink or not --I just dont want to be awkward and ask for a nonalcoholic beverage but dont know if this will beharmful. Have a happy day all of you.Gill AIH 99UK__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2002 Report Share Posted May 22, 2002 Hi Gill, I'm so glad to hear your blood work has been good. My has been good too for quite a few months now and I'm still tired. This is normal although not everyone has the fatigue. This disease is so wierd it us all in different ways. When I last saw my gastro doc I asked him why I was still so tired with such good blood work and great biopsy report. He said, " you still have a liver disease. " That helped me feel a little more sane. As far as drinking. I have heard some say that there docs tell them it's OK every once in a while but very limited. I don't think YOU should do anything until you ask YOUR doc. S/He know your liver best. Hope you have fun at the wedding, Debbie/FL > Hi everyone > > I hope you are all okay today. I have a few little > questions to throw your way and would be grateful for > any answers. My bloodwork has been fine for a little > while but I still get tired a lot - is this normal to > feel the tiredness even when liver levels are not > elevated. Also could anybody tell me what the liver > cleansing diet is. Last question is I have a friends > wedding to attend soon and to be honest I havent drank > no alcohol at all since being diagnosed with AIH > simply because I wouldnt like to add insult to injury, > but as you know at weddings there is always a toast > and wonder if we are allowed to have a drink or not -- > I just dont want to be awkward and ask for a non > alcoholic beverage but dont know if this will be > harmful. > > Have a happy day all of you. > > Gill > AIH 99 > UK > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2002 Report Share Posted May 23, 2002 Thanks Ron for the info on the website, do you know what precautions the dentist must take while removing amalgam fillings. Cheers Dave > from: ron_s_dotson <Ron@...> > date: Wed, 15 May 2002 08:35:18 > to: > subject: Re: [ ] Re: Questions > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2002 Report Share Posted May 24, 2002 > Thanks Ron for the info on the website, do you know what precautions the dentist must take while removing amalgam fillings. > > Cheers > > Dave Dave, There are some guidelines for removing amalgam fillings at: http://www.talkinternational.com/mercuryprotocol.htm I cannot vouch for these guidelines however, since I do not know anything about the web site where they are posted, and only found it by doing an Internet search. -- Ron Quote Link to comment Share on other sites More sharing options...
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