Questions

[Guest guest]

Hi,

I thought of removing it because I know that if necrotic tissue is on the

outside of the body it has to be removed.

Shireen

>From: " Holly Ramnes " <hollydollyramnes@...>

>Reply-

>

>Subject: RE: [ ] Re: Questions

>Date: Fri, 30 Aug 2002 08:40:50 -0500

>

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I have never heard of removing necrotic tissue. I think doing so may cause scarring. Necrotic tissue is sloughed off by the body and gets washed away in the bloodstream. I had asked my Doctor about this after I had a biopsy that showed necrosis. That was the information that he gave me and apparently he was right because my most recent biopsy showed no necrosis...YAY! Soooo.......I wouldn't worry bout it!

>From: "lisa m skowron"

>Reply- >

>Subject: RE: [ ] Re: Questions >Date: Fri, 30 Aug 2002 06:48:31 -0500 > >I don't know how it could be removed since it's on a microscopic scale. >It would just have to resorb on it's own. > > > > [ ] Questions > > >Date: Wed, 28 Aug 2002 21:08:54 -0000 > > > > > >Hi Everyone, I was diagnosed in Feb. of '01 with AIH and have had a > > >relatively uneventful case of it thus far; doc said I probably have > > >had it for at least 15 years but my symptoms were so mild that it > > >went undiagnosed. My LFT's have been within normal limits for over >a > > >year now though my biopsies continue to show inflammation, fibrosis > > >and necrosis. The last one showed less of each-the doctor said he >may > > >have "just hit a healthier part" of my liver. I am on Imuran 100mgs > > >daily and luckily, have not had to be on Prednisone. I am wondering > > >about the symptoms of esophageal varicies-are there any other > > >symptoms than bleeding? I had an endoscopy a year ago and that >showed > > >a hiatal hernia but no varicies. I sometimes have discomfort under >my > > >sternum on the left side (cardiac origin ruled out) and it hurts at > > >times when swallowing firm foods or large bites. Seems to come and > > >go. I was also wondering how everyone manages with the fatigue and > > >yet continues to work. No matter how I try to arrange my schedule, >I > > >always seem to tire out and I only work part-time! > > >Anyway, many blessings to all of you out there-I have learned much > > >from all your messages and feel very hopeful. Thanks for any help. > > >Kat > > > > > > > > > > > > > _________________________________________________________________ > > MSN Photos is the easiest way to share and print your photos: > > http://photos.msn.com/support/worldwide.aspx > > > > > >

[Guest guest]

Shireen,

Yeah, too bad we can't go in there and yank that stuff out. But then again I guess it's good that the liver can do that on it's own. I don't know about you, but I have had enough poking and prodding!!! LOL But I can see where you were thinking that it should be removed....the only reason I knew anything about it is because I have asked my doctor the same question and that was his response. One thing's for sure....I am noooo doctor!!! LOL

>From: "susan johnson"

>Reply- > >Subject: RE: [ ] Re: Questions >Date: Fri, 30 Aug 2002 19:04:01 +0000 > >Hi, > >I thought of removing it because I know that if necrotic tissue is on the >outside of the body it has to be removed. > >Shireen > > > >From: "Holly Ramnes"

> >Reply- > > > >Subject: RE: [ ] Re: Questions > >Date: Fri, 30 Aug 2002 08:40:50 -0500 > > > > > > >_________________________________________________________________ >Send and receive Hotmail on your mobile device: http://mobile.msn.com ><< message5.txt >> Join the world’s largest e-mail service with MSN Hotmail. Click Here

[Guest guest]

The necrotic tissue is throughout the

liver, kind of blended in!

RE: [ ] Re: Questions

>Date: Fri, 30 Aug 2002 08:40:50 -0500

>

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[Guest guest]

> My Dad and brother were in recently and took my 10 yr old son out

to

> eat and out of the blue he says " Dad is always mad "

>

> That makes you feel good.

I quit taking my ADs - Celexa and Wellbutrin - about 6 weeks ago.

Since then, I've begun developing a real problem with anger, so it

makes sense that if your son is saying this (and I can picture my son

saying it soon) you might want to try one of the SSRIs or their

cousins.

> I'm worried about mood meds. I struggle with weight gain. I'm 6'7 "

> 300 lbs and 23% body fat. I need to be around 250lbs. knees can't

> take the weight anylonger plus I'm 38 yr old.

>

> I've heard paxil and others make you gain weight ? Any truth to

this?

Some truth. YMMV, though - some people gain weight on the SSRIs, some

lose weight. I don't think it affected my weight much, if any. I'm

sure that a search would indicate which meds are more likely to cause

this problem. The Wellbutrin I was on is not supposed to cause weight

gain, but possibly weight loss since it affects not just serotonin,

but also dopamine, which is more of a " get up and go "

neurotransmitter.

Good luck with your sabbatical - my father had a prison ministry for

a number of years. Can't be easy.

Jim

[Guest guest]

Hi Unforgetfull_u

First of all, there's no such thing as dumb questions. You will need to ask

many questions as you go through this trip of hyperthyroidism. Knowledge is

very important.

I had blind spots for a while with my eyes. Also many floaters appeared.

Sometimes I would think I could see something moving in my peripheral vision

but when I turned there would be nothing. I have read others describing the

same thing being related to Graves Disease and eyes.

I went to my optometrist all the time - he kept an open door for me so

whenever I was concerned I could come in and he would check my eyes for me.

I went to a specialist once to satisfy my doctor but didn't feel he was half

as knowlegable or helpful/concerned. You do need to get good eye care. I

kept my old lenses for my glasses in case they might become useful for me in

the future - my prescription changed quite a bit for a while but it has

settled down. I took the supplement Lutein and it helped me a lot - after

about two months of taking it regularly my eyes felt much better. I still

get really puffy eyelids but my blind spots are gone pretty well now (three

years).

Unfortunately I took RAI before contacting this group and it is generally

believed that RAI worsens eye conditions. Even my optometrist suggested

that.

Keep on asking questions. You're not crazy - just ill with thyroid disease.

Kate

unforgetfull_u wrote:

> Hey! I'm new here and I have a couple of questions...

> (I hope these aren't dumb questions) I was wondering if any one

> before they were treated for hyperthyroidism felt " out of body "

> or felt that things didn't seem real (Just want to make sure I'm

> not going crazy, I certainly feel like I am). The other question

> is did any one have visual changes like blind spots or things

> moving across your visison? If any one had either one of these

> did it go away after treatment and if so how long did it take?

>

> Thanks so much...

>

>

>

>

[Guest guest]

Hi,

I think quite a few of us would say that we went through a period of feeling

as though we were going crazy before being diagnosed properly! I know I

did.

Re. your vision question... I don't remember blind spots or things moving

across my vision. What happened to me was that sometimes things on the edge

of my vision would appear wavy...sort of like when you see things through

the heat waves from hot pavement in the summer. And sometimes when I turned

my head, it seemed as though I stopped but the things in my sight kept

moving a second....a strange feeling... I called it my " slip, sliding away "

feeling. These things would last for a few hours then be gone. They were

a regular thing for me for about a year. They can still appear but rarely

now. I have my eyes checked regularly. There are people on this bb who know

the " whys " of things like this. I don't. But hopefully one of them will

answer your questions.

I just wanted to let you know that vision things are part of all this.

Good luck...

Fran

Questions

>

>

> Hey! I'm new here and I have a couple of questions...

> (I hope these aren't dumb questions) I was wondering if any one

> before they were treated for hyperthyroidism felt " out of body "

> or felt that things didn't seem real (Just want to make sure I'm

> not going crazy, I certainly feel like I am). The other question

> is did any one have visual changes like blind spots or things

> moving across your visison? If any one had either one of these

> did it go away after treatment and if so how long did it take?

>

> Thanks so much...

>

>

>

>

>

[Guest guest]

In a message dated 3/15/2003 7:40:15 PM Eastern Standard Time,

anet2@... writes:

> I have an " extremely impressive " RA factor, as my doctor puts it

With an elevated RA factor, that would suggest Rheumatoid arthritis, not PA.

Janet

[Guest guest]

I have no lab test results,including X-Rays, that indicate or confirm

PA, but I have general stiffness, pitted nails, skin lesions and one

knuckle that is inflamed. So based on this information, My doctor and

I believe that I probably have PA. I think that this is typical of

the disease. I have had Psoriasis for 35 + years before the arthritis

symptoms. Hope this helps.

> I have an " extremely impressive " RA factor, as my doctor puts it,

> and she also says that I have psoriatic nails along with some other

> suspicious " rashes " . There has been no diagnosis of RA yet, no

> inflamation or joint damage, just a lot of pain, stiffness,

> swelling, etc. I'm on Celebrex and Parafon Forte now. Could this be

> PA?

>

> [Editor's Note:

> You may receive a goodly number of anecdotal responses to

your

> message. You may already be familiar with the axiom, " Everyone is

> different " , as to symptom and disease-course. That's especially the

> case with PA. So, my advice is consider your responses in that

light,

> perhaps using them to stimulate questions for your doctor, and maybe

> jot them down. (I'm forever remembering questions I wanted to ask,

say,

> on the way to the blood lab from my doc's office.)

> And, since I can't resist offering a personal thought or two

> myself:

> My understanding is that RA factors, while highly suggestive,

are not absolutely predictive of RA or not-RA.

> Psoriatic nails and rashes (without plaque formation) by

themselves

> are suggestive of psoriasis (as long as the nail symptoms are not

fungal),

> and 5% to 10% (the #s in the literature vary a bit) of those with

psoriasis

> have PA. Nothing you said--in my experience--rules out PA, and what

you did

> say is very familiar to me, and I've had PA for 38 years. With PA,

it can be

> the A first, then years later, the P shows up, or, the other way

round, or,

> just about any combination of component and timing. (Sometimes, I

think a

> diagnosis of PA was then one the docs had left, after they ruled

everything

> else out.)

> You state " no inflammation... " , and then say there

is " swelling " . Did

> the doc say the swelling was from something other than

inflammation? Is there any redness as well? Unless the doc said

otherwise, that could be inflammation.

> My first Rheumatologist encouraged me to learn about PA,

obtaining a " pass " for me to use the medical library at a university.

So, for what it's worth, I'm a believer in educating oneself as much

as practical, combined with asking others in this forum; you know

your symptoms better than anyone, and can really help your doctor

with your case by learning how to talk about it.

> Good luck!

>

> D.]

[Guest guest]

Thanks for the replies,

I have had swelling (inflamation) in my right hand, a Medrol dosepak helped

that. My right shoulder was next, hurray for cortisone shots. My blood work

has been good so far, so that is why I don't have a firm diagnosis .

I have already been through the NSAID's (I now have GERD and reflux

esophagitis) and I've tried Vioxx and Bextra. Right now I'm on Celebrex

samples because my insurance comp. requires pre-cert on II drugs. The

psoriatic nail thing was something new that my rheumatologist threw at me

last week, I've had rashes with flaking and itching for as long as I can

remember. No one ever said anything about psoriasis. I have learned what

kind of questions I need to be asking my rheumatologist and that there are a

lot of people in the same boat as I am or worse. I thank God that I have a

wonderful husband and 3 understanding sons to help me get through whatever

is ahead.

Thanks again for the encouragement,

Annette M.

[Guest guest]

Cat,

A few things to note (that I've learned in a few months myself)

Caffeine is a very scary " drug " that goes unnoticed. As many have

noted here - you can't simply treat the symptoms (ie - headache,

joint pain, allergies ) you have to treat the cause of the intestinal

leak (LGS Leaky Gut Syndrome)and in turn find the cause.

For me it was over-use of ibuprofen and anti-inflammatories AND

caffeine. So - in order to heal the effect - you have to cut out the

cause. So look at the list of possible culprits... (causes)

and then treat them first... Secondly - as also noted here - you then

have to treat the yeast... (hence your diet and/or supplements)

I have been anti-inflammatory free and caffeine free for about 3

weeks and my arthritis has eased up almost completed from my hands.

I'm too young for arthritis anyway.

FYI - on the diet. - having caffeine is cheating far less than sugar

which feeds it.

I do drink 1 decaf a day.. but trust me... Once you taken caffeine

out of the coffee... WHAT's THE POINT?!!!!

>

> Hi everyone,

> I'm new to the group and also just beginning to try to fight

candida overgrowth (and determine if it is in fact the source of my

health problems). So, i have a couple questions:

> I have an appointment with my doctor today, at which i'm going to

try to get him to prescribe Nizorol or some other antifungal. Any

advice on how i might best go about this, and which of the

antifungals is most effective? What should i do if he won't prescribe

it?

> Does anyone recommend that i take Caprol or something else instead

of getting a prescription?

> Also, I'm a vegetarian, so i'm having trouble finding a source of

protein and, well, anything more substantial than a carrot to eat

(i've cut out all starches, including potatoes, and all

carbohydrates, including non-gluten grains and rices). In the past

i've eaten Tempeh, a fermented soy product, but i just found out that

it includes yeast extract. Also, i read that legumes (including soy

beans?) should be avoided for 4 weeks after starting the diet. Is

the yeast extract in the tempeh something that will encourage candida

growth, and if not, when can i start eating soy again? Anyone have

suggestions for some alternative in the meantime? (I can't afford to

buy the amount of organic vegetables that would keep me sufficiently

nourished.)

> Are mushrooms also bad?

> And, what exactly does coffee do? I'm a heavy smoker and coffee

drinker, and quite impatient to get back to both (though i'm

abstaining during a 3-day fast i've just begun). I'm afraid that

i'll jeapordize my sticking to the diet if i forgo cigarettes and

coffee at the same time. What are the risks of taking them? (If it's

caffeine, can i at least have decaf?)

> Thanks,

> Cat

>

>

>

> ---------------------------------

> Gesendet von http://mail..de.

> 250 Visitenkarten GRATIS! Erstellen Sie Ihre eigenen vollfarbigen

> Profi-Visitenkarten einfach Online. Nur bei www.vistaprint.de.

>

>

[Guest guest]

Hi m,

My question to you would be what is " pretty severly " ? I had what I considered a

severe case (not being able to bend my fingers, but no damage) for a few YEARS,

but now the swelling is gone and I have NO damage. In knowing that other have

badly damaged hands I realize the me it was not that severe. I have no lasting

effects of the unbendable fingers I use to have. My trip with PA -

I remember certain pains from years ago that I now think were PA. I will start

from when I was diagnosed though - Hands ONLY. A few fingers would not bend

because the joint was so swollen. Now, they are fine. I also had an all over

muscle fatigue. It was not defined to any joints, just an overall draining

fatigue. My bloodwork was normal. (SED rate, cell counts etc.)

In the past 2 years the pain has become more specific to the joints. I have one

ankle that is swollen (still is) an elbow that hurts (still does), and a

shoulder that hurts occasionally. I have one knee that sometimes gives me

problems, but that isn't often. Bloodwork went a little wacky over the last 2

years.

I take 2 Sulfasalzine tablets a day and 2 Celebrex. This regimine has at least

brought my bloodwork completely to NORMAL, but has not relieved the pain

completely. I can live my life. If this is only in your hands right now, and

there is no damage being done (just stiffness and inflammation) I would suggest

trying Celebrex. It almost immediately took my hand pain and stiffness away.

Hope this helps some!

[Guest guest]

I want to caution you not to scare yourself. There are freighting

stories out there. But the really bad things don't happen to

everyone. I understand they don't even happen to most people. I've

had PA for 15 years. About every 4 –6 months, the area giving me

trouble changes. I don't think that's spreading, because the old

site improves. With my meds and exercise, I am barley limited in

what I can do.

I know you're new and you must be trying to scope the possible

problems. It's just that it's too easy to be frightened by the worst

of what could happen. They same would be true for almost any disease.

[Guest guest]

At 07:08 PM 4/26/03 -0400, wrote:

>A few fingers would not bend because the joint was so swollen. Now, they

>are fine.

Hi ,

I was wondering, did your fingers begin to bend normally as soon as the

swelling went down? Or did it take a while to restore full flexion again?

My swelling has gone down in my affected fingers quite a bit on MTX, but I

have a couple of joints that simply will not bend, no matter how little

swelling is now present.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Visit my personal web site at

http://members.shaw.ca/tljohnson/

[Guest guest]

<< tljohnson@... writes:

I was wondering, did your fingers begin to bend normally as soon as the

swelling went down? Or did it take a while to restore full flexion again?

My swelling has gone down in my affected fingers quite a bit on MTX, but I

have a couple of joints that simply will not bend, no

matter how little swelling is now present. >>

How long has it been that way? I don't really remember how it happened, but I do

think I had times with no or little swelling where they would not bend. For the

most part though, no swelling means my fingers are OK and bend fine.

I know that didn't help much!

[Guest guest]

-

> My swelling has gone down in my affected fingers quite a bit on

MTX, but I

> have a couple of joints that simply will not bend, no matter how

little

> swelling is now present.

>

>

>Hi ,

Have you had those fingers x-rayed? I have quite a few joints that

have autofused. The bone grew over the joint where it wasn't

supposed to. No way will they bend. Hope you don't have this

problem but thought I would mention it since I still get Docs who

have never heard of it and some don't even believe me. I carried my

x-rays around for awhile and that helped. I believe they categorize

this under the mutilans subset which is rare so I really hope you

don't have it.

Best Wishes,

Marti

> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> Visit my personal web site at

> http://members.shaw.ca/tljohnson/

[Guest guest]

[ ] Re: Questions

> Have you had those fingers x-rayed? I have quite a

> few joints that have autofused. The bone grew over

> the joint where it wasn't supposed to.

I was just reading about this earlier today and

wondering if that might be the problem. I'm sorry

that's been a problem for you, though. :-(

I did have x-rays done seven months ago, and they

were okay then, but now the swelling is far less and

one joint in particular is just like a board -- it

simply will not move more than 5 degrees, and that's

if my OT works *really* hard at bending it. So I'm

wondering if the joint has fused since the original

x-rays, though I don't know if seven months is too

soon for that to have happened. (I mean, I don't

know how gradual a process the fusion would be.)

[Guest guest]

- wondering if the joint has fused since the original

> x-rays, though I don't know if seven months is too

> soon for that to have happened. (I mean, I don't

> know how gradual a process the fusion would be.)

>

Hi ,

Sometimes fusions are hard to detect on x-rays and it seems like they

happen quickly when they may happen slowly. On the other hand(no pun

intended)I could swear some of my fusions did happen quite quickly

after a nasty bout of swelling. Even now the radiologist reports

will read " probable fusion " when there is no longer any doubt. It

took good doctors at Mayo to diagnose mine properly. Local Rheumies

seemed to be blind. My fingers do feel like boards. Glad the OT is

working with it . Maybe you will be able to get some movement back.

Another problem that causes lack of movement is a ruptured tendon.

This calls for quick action and surgery to repair it. When I

ruptured a tendon the fingers fell down and I was unable to move them

or especially to hold them upright. They were very floppy could be

moved by someone else. This doesn't sound like your problem and the

OT would probably catch it. Anyway, I have had PA for 35 years so

the damage took place over a long period of time. I am hoping the

biologics will help other people so they don't wind up as disabled as

me.

Good Luck!

Marti

[Guest guest]

Thank you all so much for awnsering all of my questions !!!

All of you have helped more than you can even imagine!!

Allida thank you for the kind words, and I will definately

keep track of my labs and meds. Although I seem to be the only

one here that does not take imuran.. what exactly is it ?

I have received alot of advice here and really enjoy reading all

of the posts.

Stay well

Elisbeth

[Guest guest]

Dear ,

I don't remember how long ago you said you were first diagnosed with AIH, but the length of time since your initial diagnosis, may be why you aren't on imuran yet. I was on prednisone alone for at least 5 weeks before my GI put me on the imuran. He put me on it at that time because my alt's and ast's had begun to decrease, which indicated that the inflammation in my liver was lessening. When those numbers reached a certain point, he began to very gradually decrease the mgs. of prednisone, and introduced the imuran. As I said before, the prednisone is to reduce the inflammation in the liver. The imuran is to keep the immune system suppressed, so that it stops attacking the liver, and causing damage. That is the simplest way I can think of to explain the process to you. I know there are others here that can do a much better job that I. Just how much do you know, or have you read about AIH? The more you read about the disease, the better prepared you are to handle the curves this disease can throw at you. Each one of us reacts differently to all the aspects of this disease, and to the drugs we are given to help us cope and heal. For example, no two people generally react the same with the prednisone. We have all suffered in one way or another from the effects of the "dreaded" prednisone. For instance, you are having headaches, I never had those. You may suffer with abdominal distress from the prednisone, I haven't. Some people have extreme itching with AIH, I don't. Some people experience skin problems with AIH, and simply aren't able to go in the sun at all, I don't have that problem. That is what I am trying to point out to you. You will probably have experiences, not only with the AIH, but the drugs you will be taking, that will totally differ from me or any number of other members here. We may not always be able to answer all your questions, but we will be here for you when you need to ask them. We will be here when the days are dark, and no one around you understands why you are so tired, when you have been in bed all day. We'll be here to listen and comfort when the doctor is curt, or fails to address your concerns. We'll be here to assure you that you are not an alien when someone won't take your blood, or fears to touch you when they hear the word "hepatitis." This is the group of very special people that has done that for me, and we will all endeavor to do the same for you. Please, let us know if you would like some links for material for you to read, or to look up some drugs that might be given to you. We all have files of information that at one time or another might apply to you, or that you may want to read. Don't hesitate to ask for what you need, even if it's just a willing ear. You will find this group full of loving, caring, and praying people. We are all here for you. Take good care of yourself, and keep asking those questions, even if they sound dumb to you. I promise they won't be dumb to us!! I hope this helped you understand about imuran. If I failed to make that clear for you, I'm sure someone else will gladly speak up. Looking forward to hearing from you soon. Allida

[Guest guest]

Allida, That was a really nice post to . You said it all really well.

Patty

-----Original Message-----From: Allida Lane [mailto:twoshea4@...] Sent: Wednesday, June 04, 2003 5:08 PM Subject: Re: [ ] Re: Questions

Dear ,

I don't remember how long ago you said you were first diagnosed with AIH, but the length of time since your initial diagnosis, may be why you aren't on imuran yet. I was on prednisone alone for at least 5 weeks before my GI put me on the imuran. He put me on it at that time because my alt's and ast's had begun to decrease, which indicated that the inflammation in my liver was lessening. When those numbers reached a certain point, he began to very gradually decrease the mgs. of prednisone, and introduced the imuran. As I said before, the prednisone is to reduce the inflammation in the liver. The imuran is to keep the immune system suppressed, so that it stops attacking the liver, and causing damage. That is the simplest way I can think of to explain the process to you. I know there are others here that can do a much better job that I. Just how much do you know, or have you read about AIH? The more you read about the disease, the better prepared you are to handle the curves this disease can throw at you. Each one of us reacts differently to all the aspects of this disease, and to the drugs we are given to help us cope and heal. For example, no two people generally react the same with the prednisone. We have all suffered in one way or another from the effects of the "dreaded" prednisone. For instance, you are having headaches, I never had those. You may suffer with abdominal distress from the prednisone, I haven't. Some people have extreme itching with AIH, I don't. Some people experience skin problems with AIH, and simply aren't able to go in the sun at all, I don't have that problem. That is what I am trying to point out to you. You will probably have experiences, not only with the AIH, but the drugs you will be taking, that will totally differ from me or any number of other members here. We may not always be able to answer all your questions, but we will be here for you when you need to ask them. We will be here when the days are dark, and no one around you understands why you are so tired, when you have been in bed all day. We'll be here to listen and comfort when the doctor is curt, or fails to address your concerns. We'll be here to assure you that you are not an alien when someone won't take your blood, or fears to touch you when they hear the word "hepatitis." This is the group of very special people that has done that for me, and we will all endeavor to do the same for you. Please, let us know if you would like some links for material for you to read, or to look up some drugs that might be given to you. We all have files of information that at one time or another might apply to you, or that you may want to read. Don't hesitate to ask for what you need, even if it's just a willing ear. You will find this group full of loving, caring, and praying people. We are all here for you. Take good care of yourself, and keep asking those questions, even if they sound dumb to you. I promise they won't be dumb to us!! I hope this helped you understand about imuran. If I failed to make that clear for you, I'm sure someone else will gladly speak up. Looking forward to hearing from you soon. Allida

[Guest guest]

Ah, the joys of lyme disease! All that sounds perfectly lyme. If

you are recently infected/symptomatic, you may feel better really

soon. You could also feel worse or bad for a time which is what is

known as herxing (short for jarisch herxhiemer reaction) and is a

reaction to the dying bacteria. You can't really expect lyme

treatment to adhere to a predictable course though, so you'll just

have to hang in there and see what happens. The first time I took

antibiotics within about two months of being infected, I felt better

within 48 hours. It seemed like such a hassle taking all those pills

three times a day! Seems like I haven't stopped taking pills since

(5> years?). After letting the infection fester for almost 3 years,

it took about 6 months before I started noticing even small

improvements on resumed treatment, and some things, like joint/muscle

pain, were much worse. You are lucky to be nipping this in the bud

a they say. Many of us have been/are like that for years, and worse.

best of luck. Keep us informed.

E.

>I started Doxycycline on Thursday, still have not got test results

>yet but I am pretty sure from all that I have read that I have Lyme

>Disease. My questions are:

>

>1. How long before I start to feel better? My muscles and joints are

>still hurting alot.

>

>2. Is feelings of disorientation and lack of concentration as well

>as irritability normal??

>

>I am having a really difficult time caring for my toddler and two

>older children. I am so sore I don't want to move and I am so

>irritable that I am snapping at the children left and right. I feel

>like a horrible person.

>

>I am also noticing that I am having a difficult time concentrating

>and doing any kind of work that requires any real thought. I am a

>web designer and am finding it impossible to do my work right now.

>Its all I can do to write this note and I am having to back space

>alot as well as stop and gather my thoughts cause I lose my train of

>though after a few moments. Is this normal?

>

[Guest guest]

at the risk of being a broken record.

start colloidal silver home made. buy the " silver puppy " unit or one that

stirs as it makes the stuff. use distilled water. do it on an empty stomach.

drink one to two ounces a day.

get some " high allicin " enteric coated garlic capsules and start them.

dr zhang (on the net) will prescribe his own if he determines they might

be indicated by a phone consultation. costs $150. he may prescribe other herbs

for lyme symptoms. cognitive is the high allicin capsules.

also the lyme (assuming that is the cause) will cause thickness in the lympth

and blood and some kind of circulation enhancer/ blood thinner/

cappillary dilater

should help. zhang has a formula.

the lyme clogs the capiilaries at some points and that causes symptoms and

hurts the bodies ability to destroy the buggers.

this may require some google search.

avoid sugar as it inhibits the macrophages which may be a primary spirochete

killer in your system.

continue on abx, but start these other therapies as they are additive to ABX.

what have you got to lose except some time and a little money?

i have been on this list for over a year and these things have helped me.

they may help you. i would go so far as to guess they WILL help you.

if they hurt you i will be a monkeys uncle. these are NOT toxic chemicals

in the doses you would use.

get to work

>I started Doxycycline on Thursday, still have not got test results

>yet but I am pretty sure from all that I have read that I have Lyme

>Disease. My questions are:

>

>1. How long before I start to feel better? My muscles and joints are

>still hurting alot.

>

>2. Is feelings of disorientation and lack of concentration as well

>as irritability normal??

>

>I am having a really difficult time caring for my toddler and two

>older children. I am so sore I don't want to move and I am so

>irritable that I am snapping at the children left and right. I feel

>like a horrible person.

>

>I am also noticing that I am having a difficult time concentrating

>and doing any kind of work that requires any real thought. I am a

>web designer and am finding it impossible to do my work right now.

>Its all I can do to write this note and I am having to back space

>alot as well as stop and gather my thoughts cause I lose my train of

>though after a few moments. Is this normal?

>

>Tina

>

>

>

>

[Guest guest]

Tina

All of this is normal and symtoms will come/go as you get better. I have

been on abx for 3 yrs and things are better, but do not expect anything

overnight. It is a very Slowwwwwwwww process.

[ ] Questions

> I started Doxycycline on Thursday, still have not got test results

> yet but I am pretty sure from all that I have read that I have Lyme

> Disease. My questions are:

>

> 1. How long before I start to feel better? My muscles and joints are

> still hurting alot.

>

> 2. Is feelings of disorientation and lack of concentration as well

> as irritability normal??

>

> I am having a really difficult time caring for my toddler and two

> older children. I am so sore I don't want to move and I am so

> irritable that I am snapping at the children left and right. I feel

> like a horrible person.

>

> I am also noticing that I am having a difficult time concentrating

> and doing any kind of work that requires any real thought. I am a

> web designer and am finding it impossible to do my work right now.

> Its all I can do to write this note and I am having to back space

> alot as well as stop and gather my thoughts cause I lose my train of

> though after a few moments. Is this normal?

>

> Tina

>

>

>

>

[Guest guest]

Tina, your #2 is yes, this is normal to have lyme " fog " , yes we are familiar

with it. Your #1 is for a while yes, you will feel even WORSE. This is because

the spirokete bursts open when it dies, and releases it's toxins, making us even

sicker. Long term, undiagnosed lyme patients cannot stay on the meds, they

usually have to stop for a bit cuz of illness. I had to stop my I.V. for a week.

This problem of lyme is called herxheimers. I forget where the term comes from.

So sorry you are suffering. I've had lyme twice, and it has been a hoorrendous

journey for me. You'll be feeling better soon! Just keep taking your meds, and

make sure you take them long enough. Keep studying, and asking questions.

[ ] Questions

I started Doxycycline on Thursday, still have not got test results

yet but I am pretty sure from all that I have read that I have Lyme

Disease. My questions are:

1. How long before I start to feel better? My muscles and joints are

still hurting alot.

2. Is feelings of disorientation and lack of concentration as well

as irritability normal??

I am having a really difficult time caring for my toddler and two

older children. I am so sore I don't want to move and I am so

irritable that I am snapping at the children left and right. I feel

like a horrible person.

I am also noticing that I am having a difficult time concentrating

and doing any kind of work that requires any real thought. I am a

web designer and am finding it impossible to do my work right now.

Its all I can do to write this note and I am having to back space

alot as well as stop and gather my thoughts cause I lose my train of

though after a few moments. Is this normal?

Tina

[Guest guest]

Tina,

How old are your older children? Can they help out with the toddler?

When school starts perhaps you may be better off putting the toddler

into a day care program so you can work and then when your older

children come home from school they can help out with the toddler and

meals.

I am dealing with a similar situation, except that it is my

grandchildren and my daughter is a single mother who was attending

nursing school and is now working and pregnant again. She is very

co-dependent with me. Thankfully the father of this baby is still

around and intends to stick around. Especially since the older children

are 7 and 3. I know that I do too much, but my husband helps out a lot

too.

Best of luck, perhaps others with small children can offer what they do

to cope.

Hugs, Michele

-----Original Message-----

From: Tina D. Warren Sent: Sunday, July 20, 2003 6:59 PM

(snip)

I am having a really difficult time caring for my toddler and two

older children. I am so sore I don't want to move and I am so

irritable that I am snapping at the children left and right. I feel

like a horrible person.

(snip)