Questions

[Guest guest]

I was put on the ambien also, and it worked well.

Lynne Dunham

NVSR Director, Follow-up Coordinator

NVSR.org

-----Original Message-----From: Dave [mailto:dhz920@...]Sent: Thursday, September 16, 2004 9:10 AM Subject: Re: [ ] Questions

Unfortunately, we end up taking more meds to combat the meds than we do to combat the hcv. I found ambien to work very well for my sleeping problems. My insurance company wouldn't cover it, so I tried dalmane, and one other one I can't remember, but I guess the way my insurance company worked, after two other meds were tried without success, then they would approve the ambien. A slight warning, it took a while to get back to sleeping normally without the ambien, when it was all over. No withdrawals or anything like that, just a little sleeplessness. -dz-Rhonda <rhondahudson@...> wrote: Thank you to everybody for answering my questions :)Sounds like I need to ask for anti-depressants AND sleeping pills. Shoot Idon't sleep as it is :(Are we having fun yet?

[Guest guest]

,

If you post your questions to the group, you¹ll get many different answers.

Members can answer them and post to the group or privately to you if they

prefer.

a

>

>

> I am doing a research projec/ presentation on Rheumatoid arthritis.

> I would be helpful if I could ask some questions to people with RA.

> If anyone would like to help me, please e-mail me at

> ds_x0@... and I will e-mail you the questions that I would

> like to ask. Any help would be very much appreciated.

> Thank you,

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Frannykay,

Thanks for all the information and help. The only MRI I had done was

the neck and my knee. Other than that all they did was x-rays. Oh a bone scan

was done of my foot again because after the accident I complained of pain

and than they said it was nothing which a year later I find out that the scan

actually showed a probable fracture. I gave up and kept dealing with the

pain. This past week I have been in so much pain that my Chiropractor can't

even

adjust me, for it just isn't moving as he says. I do see my Orthopedic

tomorrow and hopefully he will give me some better news than it takes two years

for injuries to heal after an accident and it has only been one. As to work I

have to because financially we are strained with me not working and right

now we are trying to get back on our feet. It is frustrating for me that work

can cause so much pain and it is a job that I love so much too.

Joy

[Guest guest]

Janie and Joy,

First I would like to say that I am also a very new member of this

group and also have not gone through a lot of the older posts;

however, Janie, I want to offer kudos for both your response to Joy

and for your courage and tenacity in persuing proper care and

treatment for yourself. Congratulations on your outcome!

To Joy, I would like to say that your condition at this time, i.e.

the numbness/tingling especially, would indicate that it is well

past time for some proactive push for something more definitive

than " it's the neck that's causing it " . Having had a spouse with a

similar problem and a very, very good neurosurgeon who could explain

everything on a layman's level and who wasn't afraid to order tests,

I can say with confidence that you should probably make two or three

appointments for consultations and other opinions. Your symptoms

are worrisome, and the alternative to doing nothing if something can

be done is much worse than the prospect and/or actual performance of

surgery.

And, yes, I realize that surgery is a frightening concept for anyone

no matter what the condition. However, the benefits can be little

short of miraculous as Janie has shown. I know that if my ex had

not had the surgery done when he did he would have been totally

paralyzed today. As it turned out he was back to about 95% of his

pre-injury condition after about 6 months.

Keep good thoughts, and try very, very hard to place your health and

well-being above everything else now. If you can't drive to a

doctor, call a cab. If you are still working and the doctor didn't

take you off work, tell your employer that the doctor appointments

have to come first. And, research, both through other doctors,

here, and online. My very best wishes to you.

By the way, from what I am reading, I am making an assumption that

an MRI was done on the cervical spine, but not on the upper back, is

this correct? If so, and the MRI was not recent, it may be time to

suggest another. The symptoms you cited are a cervical spine thing,

and there could have been major changes, especially since you say

you went back to work too soon.

Best of luck,

frannykay

> > A while a go I mentioned going back to my Orthopedic regarding

my

> back etc.

> > Well, he told me that it takes two years to heal after a car

> accident and it

> > has only been one. he did put me on pain medication again and

> also told me

> > I returned to work too soon. I am working full time again

since

> Feb and it

> > is really causing me so much more pain. I never thought

working

> would do this

> > but I do not want to spend the rest of my life at home either.

> Recap I have

> > two herniated discs c4-c5 and c6-c7. Can these discs go back?

I

> choose not

> > have the surgery because I am scared. Yesterday I lost use of

my

> right

> > hand. Not sure what happened but it was like it went to sleep

or

> something.

> > Eventually it came back but it was scary. My left hand was

> starting to do it

> > too. Does this mean something with the discs or what? I

missed

> my follow-up

> > with ortho because I couldn't drive to him. I am not getting

> sleep again at

> > night because of the pain. Now I have to wait for sleeping

pills

> again and

> > hopefully that will help. So much is happening and I don't

> understand. He

> > wouldn't do the MRI of the upper back, which I still wonder

about

> because of

> > that pain,but he believes it is the neck causing it all. I am

> tired and

> > frustrated and need to know what can help. thanks for any

> suggestions. I am trying

> > to set up a follow up appointment with him and need to know

what

> to say.

> >

> > Hugs, Joy

> >

> >

> >

[Guest guest]

For Andy...

Questions

Hi, Andy!

I've asked you some questions before on the autism mercury board, but I have

some specific things I'd rather just ask you directly if you don't mind. Thanks

in advance.

I've read Amalgam illness and have a few questions.

1. Specifically, I'd like to use DMSA and ALA to chelate my daughter. In the

book, you mention for adults using DMSA for several months before using the ALA.

Is this what you recommend for children as well?

2. Eve's DAN! doctor believes that we can " wait " to chelate because the brain

" continues to heal " throughout our life. I feel very strongly we need to chelate

promptly. We have been treating her gut dysbiosis for three months now, but I do

not have a follow up stool test to verify if it's better yet. She is on a ton of

supplements, including Probiotics, Methyl B12, Buffered Vitamin C, Vitamin B, TD

Glutathione, Cod Liver Oil, CoEnzyme Q10, Zinc, Magnesium, Calcium, Molybdnem,

and Manganese. She takes digestive enzymes and is GF/CF/SF artificial and

additive free, and corn free. She has made great improvements so far. Is there

any reason that I wouldn't be able to start chelation on my own at this point?

Do you think I should retest for gut issues first?

3. Many of the side effects you mention in the book will be difficult for me to

know, primarily because my daughter's speech delay is one of her biggest

issues. I'm concerned something could be bothering her and I wouldn't know it.

Are there any obvious things I should look for?

4. Do you recommend a Vitamin C drip for kids?

5. I have made an appointment with another doctor, but we can't get in until

August. I do not want to wait that long to start. If I start on our own, can I

get tests done (like urine) without a doctor? From where? I'd like to monitor

what is coming out, but don't know how to do that. And suggestions?

6.Our current doctor has her on a homeopathic " yeast eliminator " . I have no idea

if it's working or not. Do you have a better recommendation (I think you

mentioned Nystatin, but don't have the book next to me)? (Eve is 37 lbs.)

7. My daughter's skin in a pool looks like it's been burned. She is very

sensitive to chlorine, like I've never seen before in anyone. This is a taurine

deficiency, right? I do not have an amino acids plasma test yet, but am waiting

for one to be sent to me. Should I wait to add taurine, or go ahead with it

anyway?

8. On page 101 you mention oxidative stress. Will her buffered C (1/2 tsp in AM

and PM) be enough of an antioxidant while chelating?

9. I believe you mentioned sulfur foods cause yeast overgrowth. Provided my

daughter can eat very, very few things at the moment, we have been giving her

eggs, at least every other day. I usually do not include the yolk, but have. She

also likes broccoli, but this is served only every once in a while. Should I get

rid of the eggs?

Thank you, Andy. I feel like I'm on my own with this and am very overwhelmed and

scared about doing anything to hurt my daughter anymore than she already has

been. BUT, I don't feel like our current doctor is up to speed on chelating and

I can't waste any more time. I know you are very busy, but any advice you can

give me is greatly appreciated.

Yours truly,

[Guest guest]

> I've read Amalgam illness and have a few questions.

>

> 1. Specifically, I'd like to use DMSA and ALA to chelate my daughter. In the

book, you mention for adults using DMSA for several months before using the ALA.

Is this what you recommend for children as well?

It is the most conservative thing to do, but is not generally

necessary. Most adults chelate after removing mercury fillings and

thus just after ending their exposure. Most children's exposure was

long ago when they start chelating.

> 2. Eve's DAN! doctor believes that we can " wait " to chelate because the brain

" continues to heal " throughout our life.

Well, aside from paying lots of money to incompetent doctors, why would

any decent person leave their kid sick any longer than necessary? This

is like saying " poor ny got a kitchen knife stuck in his shoulder,

but the doctor and the doctor is going to take it out in 6 months

because he is doing fine in the hospital with the knife in place and

his body will heal just fine whenever we finally decide to take it out.

No hurry. "

When you know what is causing a problem, the first thing you do is

correct that cause.

> I feel very strongly we need to chelate promptly.

Guess you know more medicine than the DAN! doctor.

>We have been treating her gut dysbiosis for three months now, but I do not have

a follow up stool test to verify if it's better yet.

It won't be better until after she is chelated.

I know two groups of kids: ones whose doc's tried to do this and never

ever ever ever ever ever got it under control, and ones who just

chelated and the dysbiosis got better.

What seems to work is to address it empirically - without lots of

expensive and questionably relevant tests - and chelate away. Many

parents on this list can help you with the art of doing that.

>She is on a ton of supplements, including Probiotics, Methyl B12, Buffered

Vitamin C, Vitamin B, TD Glutathione, Cod Liver Oil, CoEnzyme Q10, Zinc,

Magnesium, Calcium, Molybdnem, and Manganese. She takes digestive enzymes and is

GF/CF/SF artificial and additive free, and corn free. She has made great

improvements so far. Is there any reason that I wouldn't be able to start

chelation on my own at this point?

It will reduce your doctor's earning potential.

Otherwise no.

>Do you think I should retest for gut issues first?

No.

> 3. Many of the side effects you mention in the book will be difficult for me

to know, primarily because my daughter's speech delay is one of her biggest

issues. I'm concerned something could be bothering her and I wouldn't know it.

> Are there any obvious things I should look for?

Behavior. You know how she acts when she feels bad, if you see that,

cut the dose back. Otherise do NOT push for high doses precisely

because it is going to be hard to tell how miserable you are making

her.

> 4. Do you recommend a Vitamin C drip for kids?

Not generally due to the difficulty of actually getting them to sit

still for it, and finding a doc to do it, and the expense, but it does

work really well for them. Generally the amount infused is reduced

proportional to body mass.

> 5. I have made an appointment with another doctor, but we can't get in until

August. I do not want to wait that long to start. If I start on our own, can I

get tests done (like urine) without a doctor?

Yes.

>From where?

Direct laboratory services, www.directlabs.com , or many other kinds of

docctors can sign test orders - almost all states allow chiropractors

to order some tests, many allow them to order blood tests.

>I'd like to monitor what is coming out, but don't know how to do that. And

suggestions?

Actually I don't think a lot of testing is informative. I do not

suggest doing it.

Since you probably will go insane if you don't do any tests, you could

consider doing hair tests every 3-6 months, or urine tests (24 hour

collection if at all possible, otherwise timed collection). They may

confuse you more than they help.

> 6.Our current doctor has her on a homeopathic " yeast eliminator " . I have no

idea if it's working or not. Do you have a better recommendation (I think you

mentioned Nystatin, but don't have the book next to me)? (Eve is 37 lbs.)

See the yeast and neutrophils file in the files section. Nystatin is

Rx. emulsified oregano oil seems to work well, and if you troll the

list archives you will find an enormous amount of discussion of

antiyeast agents by parents who are using them.

> 7. My daughter's skin in a pool looks like it's been burned. She is very

sensitive to chlorine, like I've never seen before in anyone. This is a taurine

deficiency, right?

That is one possibility. Bleach fumes should also bother her if so.

>I do not have an amino acids plasma test yet, but am waiting for one to be sent

to me. Should I wait to add taurine, or go ahead with it anyway?

Add the taurine, skip the amino test. It is seldom useful.

> 8. On page 101 you mention oxidative stress. Will her buffered C (1/2 tsp in

AM and PM) be enough of an antioxidant while chelating?

Yes. More often is better, even if you don't use any greater amount.

> 9. I believe you mentioned sulfur foods cause yeast overgrowth. Provided my

daughter can eat very, very few things at the moment, we have been giving her

eggs, at least every other day. I usually do not include the yolk, but have. She

also likes broccoli, but this is served only every once in a while. Should I get

rid of the eggs?

I would suggest that if she is going to get a blood test for other

things, to get a plasma cysteine determination by Great Smokies labs.

This is done by getting a COMPREHENSIVE DETOXIFICATION PROFILE kit and

having the doctor mark it appropriately and the lab tech prep the

plasma vial to send back. Cysteine is NOT on any amino acid panels.

> Thank you, Andy. I feel like I'm on my own with this and am very overwhelmed

and scared

Which is dangerous. That is both when you will panic and try silly

stuff, and also when you will go pay a lot of mnoney to a doctor to

hurt her and blindly go along with it.

Calm down, fear is what makes you jumpy so that you make bad decisions.

>about doing anything to hurt my daughter anymore than she already has been.

BUT, I don't feel like our current doctor is up to speed on chelating

That is abundantly clear.

>and I can't waste any more time. I know you are very busy, but any advice you

can give me is greatly appreciated.

Just do it. See how it goes. You can adjust dosage, agents, protocol,

support, etc. later. Just pick a nice low amount, divvy it up, give it

to her every 4 hours (DMSA only) or 3-4 (DMSA + ALA).

You might also ask around for people who are willing to sign test

orders. Or call the labs and give them your zip code, get a list of

doc's, call around and see if one sounds reasonable.

> Yours truly,

>

>

>

>

[Guest guest]

Hi ,

Welcome to our friendly helpful group! I'm glad you found us.

What kind of medication did your doctor give you; I hope it wasn't

Diflucan, which is hard on the liver - nystatin is the safest drug

because it does not get past the gut, yet it kills candida on contact.

It is important that you start with the diet before starting on

antifungals. The diet will build up your immune system and cut off

candida's food supply so that when you add antifungals you are better

able to handle the die-off symptoms and will kill off candida as well,

esp. when you also add coconut oil to your diet which is also

antifungal and very necessary to your health. Please read my

article " How to Successfully Overcome Candida " carefully to understand

why diet is so important, along with the step by step program.

Aspartame, Phenylalaine, and Splenda are all sugar and are damaging to

the anyone's body - see the articles in our Files on Sugar. You should

have no diet drinks. The only sweetener safe to have is Stevia, but in

very small amounts. It is not wise to feed your sweet tooth, and it is

important to cut out all sweets, grains, and high carb foods as soon as

you can, which will also curb your sweeth tooth and cut off candida's

food supply.

There won't be any books on Candida that recommend the diet in my

article because they all are inadequate in many ways. Books that will

help you understand candida are: " The Yeast Connection " by Dr.

Crook, M.D., or " The Yeast Syndrome " by Parks Trowbridge, M.D. and

Morton , D.P.M. or " Back to Health " by Dennis W. Remington, M.D.

and Barbara W. Higa, R.D. You might be able to buy these books on line.

The best to you. Please keep in touch and ask any questions you want!

Cheers, Bee

[Guest guest]

Bee,

Since Nystatin is not absorbed but stays in the gut, what does someone

with systemic Candida have to take? Just curious.

Thanks,

Barb

> Hi ,

> Welcome to our friendly helpful group! I'm glad you found us.

>

> What kind of medication did your doctor give you; I hope it wasn't

> Diflucan, which is hard on the liver - nystatin is the safest drug

> because it does not get past the gut, yet it kills candida on

contact.

>

>

[Guest guest]

Yes, those test are fairly critical. For example needing to know what

hematocrit levels are prior to starting TRT and along the way once TRT

gets started. Or, especially if your DH is over 40, a PSA test to

check prostate potential concerns.

But Total T, Free T, estradiol (E2), etc. are just so absolutely

important to establishing a good formula for OPTIMAL symptom relief -

not just a slight relief because values are at the low normal of a

reference range.

And then other tests that are necessary to establish whether it's

secondary or primary hypogonadism. Possibly a regimen that gets one's

own regular production of T is more in order....

I would see if the recommended Endo would agree to either (a) do Dr

C's regimen or ( work with Dr C on a consultation basis to develop

Dr C's protocol. If not, possibly look for another GP who would be

willing to work with Dr C.

Larry

> We had an appointment with our GP yesterday to go over the bloodwork.

> He diagnosed my DH with hypogonadism (big surprise there) and wants to

> refer him to and Endo. He does not know any who are specialzing in

TRT at

> this point in time anywhere near us so we are just going to ride it

out and

> see where we end up right now.

> I showed him the paper by Crisler, DO and he kind of blew off

all the

> blood work that he suggests to have done in that paper. He said he

has never

> seen any Endo doing those tests for hypogonadism and he doesn't see

how they

> are even relvent. So this makes me a bit nervous about whomever we

are going

> to end up seeing. Are they necessary for sure to be able to get this

under

> control or is just his T and Free T enough? Any insight from you men

who

> have been dealing with this much longer would be greatly appreciated.

> Then the other question I have is - in the links you have a

T_by_Age chart.

> I took that as well and he was fighting me with how valid the

results could

> be. How many people were used and so on. He said something along the

lines

> of he " doesn't understand why The Journal of Epidemiology would be

doing a

> study on it in the first place and it can't be taken as accurate

because

> there is no indication as to how many test subjects there were. You

have to

> realize there is a huge range in what is " normal " for testosterone -

> according to this sheet and my schooling 245 up to 1105 is in the

normal

> range. You need to not worry and try to figure things out - things

change

> all the time so leave that to the Dr.'s. " So does anyone have

anymore info

> on this study than just the paper that shows the ranges.

> I do plan on going prepared again to the Endo but I guess I have more

> things I need to find out before then...

> Thanks!

> Amy

>

>

>

[Guest guest]

Amy you are having the same problem we all have at one time or the other. Your

Dr. does not know what he is talking about and should say so. But most will not

admit they don't know about Low T and blow this smoke up your butt.

Here is a link to the AACE Guildelines read them and you will see what they say

about the testing print it out and give it to his Dr. Treating Low T is not

Rocket Science and my Dr. learned how to treat me so can yours.

http://www.aace.com/clin/guidelines/hypogonadism.pdf

Also get the Book " The Testosterone Syndrome " but Dr. Shippen this will put you

in the know. Good luck finding a good Endo there are not a lot of them any Dr.

that treats a lot of men for low T would be good enough.

Phil

" Amy L. Powers " <apowers0900@...> wrote:We had an appointment with our GP

yesterday to go over the bloodwork.

He diagnosed my DH with hypogonadism (big surprise there) and wants to

refer him to and Endo. He does not know any who are specialzing in TRT at

this point in time anywhere near us so we are just going to ride it out and

see where we end up right now.

I showed him the paper by Crisler, DO and he kind of blew off all the

blood work that he suggests to have done in that paper. He said he has never

seen any Endo doing those tests for hypogonadism and he doesn't see how they

are even relvent. So this makes me a bit nervous about whomever we are going

to end up seeing. Are they necessary for sure to be able to get this under

control or is just his T and Free T enough? Any insight from you men who

have been dealing with this much longer would be greatly appreciated.

Then the other question I have is - in the links you have a T_by_Age chart.

I took that as well and he was fighting me with how valid the results could

be. How many people were used and so on. He said something along the lines

of he " doesn't understand why The Journal of Epidemiology would be doing a

study on it in the first place and it can't be taken as accurate because

there is no indication as to how many test subjects there were. You have to

realize there is a huge range in what is " normal " for testosterone -

according to this sheet and my schooling 245 up to 1105 is in the normal

range. You need to not worry and try to figure things out - things change

all the time so leave that to the Dr.'s. " So does anyone have anymore info

on this study than just the paper that shows the ranges.

I do plan on going prepared again to the Endo but I guess I have more

things I need to find out before then...

Thanks!

Amy

[Guest guest]

Thanks everyone but we won't be treating it. There are not anymore Endos in

our area who my DH will see (there are three offices and we have gone to all

three of them). To be honest when I tried to talk to him about it today he

told me he doesn't have time to care about what matters to me because it

does not matter to him. He could care less if he treats this.

So I am dropping it.

Thanks again.

On 6/22/05, philip georgian <pmgamer18@...> wrote:

>

> Amy you are having the same problem we all have at one time or the other.

> Your Dr. does not know what he is talking about and should say so. But most

> will not admit they don't know about Low T and blow this smoke up your butt.

> Here is a link to the AACE Guildelines read them and you will see what

> they say about the testing print it out and give it to his Dr. Treating Low

> T is not Rocket Science and my Dr. learned how to treat me so can yours.

> http://www.aace.com/clin/guidelines/hypogonadism.pdf

> Also get the Book " The Testosterone Syndrome " but Dr. Shippen this will

> put you in the know. Good luck finding a good Endo there are not a lot of

> them any Dr. that treats a lot of men for low T would be good enough.

> Phil

>

>

[Guest guest]

Amy-

I condensed the data for the T_by_age chart, since it made a strong

visual impression to me. Anyway, it's confusing what the doctor is

saying 1) He diagnoses Hypogonadism then 2) he disputes the relevance

of showing normal Testosterone levels in relation to where your DH is

on the chart. Im not sure it is worth your time debating the points

he is making about it, especially since he has already diagnosed

hypogonadism... but it IS published in peer reviewed medical

literature. And he is right, it does not variance data - I omitted

that for convenience. For men age 35 - 45 it is 220 ng / dl per SD -

ie 98 out of 100 healthy men his age have higher testosterone than

your DH at 239. That combined with his symptoms means he is probably

hypogonadal... Which is what your GP has concluded... ??? There is

no definitive test for hypogonadism other than having " low "

testosterone levels plus the well known symptoms.

But it looks like you guys are moving forward, so maybe the endo can

help.

> We had an appointment with our GP yesterday to go over the bloodwork.

> He diagnosed my DH with hypogonadism (big surprise there) and wants to

> refer him to and Endo. He does not know any who are specialzing in

TRT at

> this point in time anywhere near us so we are just going to ride it

out and

> see where we end up right now.

> I showed him the paper by Crisler, DO and he kind of blew off

all the

> blood work that he suggests to have done in that paper. He said he

has never

> seen any Endo doing those tests for hypogonadism and he doesn't see

how they

> are even relvent. So this makes me a bit nervous about whomever we

are going

> to end up seeing. Are they necessary for sure to be able to get this

under

> control or is just his T and Free T enough? Any insight from you men

who

> have been dealing with this much longer would be greatly appreciated.

> Then the other question I have is - in the links you have a

T_by_Age chart.

> I took that as well and he was fighting me with how valid the

results could

> be. How many people were used and so on. He said something along the

lines

> of he " doesn't understand why The Journal of Epidemiology would be

doing a

> study on it in the first place and it can't be taken as accurate

because

> there is no indication as to how many test subjects there were. You

have to

> realize there is a huge range in what is " normal " for testosterone -

> according to this sheet and my schooling 245 up to 1105 is in the

normal

> range. You need to not worry and try to figure things out - things

change

> all the time so leave that to the Dr.'s. " So does anyone have

anymore info

> on this study than just the paper that shows the ranges.

> I do plan on going prepared again to the Endo but I guess I have more

> things I need to find out before then...

> Thanks!

> Amy

>

>

>

[Guest guest]

Hi Amy,

95% of endocrinologists do not know how to treat hypogonadism. At such time as

your

husband might decide to seek treatment, check out " Finding A Male Hormone

Doctor " in

the files section here.

Peace,

Bruce

> >

> > Amy you are having the same problem we all have at one time or the other.

> > Your Dr. does not know what he is talking about and should say so. But most

> > will not admit they don't know about Low T and blow this smoke up your butt.

> > Here is a link to the AACE Guildelines read them and you will see what

> > they say about the testing print it out and give it to his Dr. Treating Low

> > T is not Rocket Science and my Dr. learned how to treat me so can yours.

> > http://www.aace.com/clin/guidelines/hypogonadism.pdf

> > Also get the Book " The Testosterone Syndrome " but Dr. Shippen this will

> > put you in the know. Good luck finding a good Endo there are not a lot of

> > them any Dr. that treats a lot of men for low T would be good enough.

> > Phil

> >

> >

>

>

>

[Guest guest]

Amy,

Longer term side effects of not treating this can be severe. They

include osteo and heart problems. I had it for 10 years before even

having it discovered. By the time it was discovered i was totally

disabled. Still am 3 years later. But I've seen improvement from

proper TRT, and I wonder if I wouldn't have become disabled, at least

not so soon (i'm 33 now) if my low T had been discovered earlier and

treated properly.

He's taking a big risk not getting this treated.

Mark

[Guest guest]

I am well aware of this but he truly does not care to learn about what it

can do. I sent him information on it and he told me he does not care. He

does not feel it is affecting him right now so it does not matter to him.

That is his choice and I can not change it.

Thanks though!

Amy

On 6/23/05, mdw1000 <mdw1000@...> wrote:

>

> Amy,

>

>

> He's taking a big risk not getting this treated.

>

> Mark

>

>

>

>

[Guest guest]

Dearest Amy:

Its a damn shame for a man to sign his own death warrant and, as you

know, that's exactly what your man has done with his foolish

decision. You tried your hardest. God Bless good women like you

who care.

Cantankerous ol' coot that I am, I'd like to kick his ass but, if

he's totally resigned as you say he is, that would be a waste of my

energy.

Hang in there Amy.

My Best Regards to You,

Gene

> >

> > Amy,

> >

> >

> > He's taking a big risk not getting this treated.

> >

> > Mark

> >

> >

> >

> >

>

>

>

[Guest guest]

Thanks Gene...

I have just come to realize he does not see how this affects him because he

has always been like this. He does not see it as an issue because of the low

T. Since I have known him (8 years now) this has been the way he is. No sex

drive, foggy brain, anger issues, very aggressive, low self-esteem, has

problems getting to sleep, has problems staying asleep, has issues focusing

and the list goes on.

I guess all I can do is accept that he doesn't see this as an issue but let

him know as kindly as I possible can (if that is even possible) that I do

not care to hear about his " problems " with his body if he isn't willing to

do something about them. So now my challenge is - how do I put up boundaries

so he understands I won't listen to the complaints if he isn't willing to

take care of them.

Thank you again!

Amy

On 6/23/05, Gene Bowhay <genebowhay@...> wrote:

>

> Dearest Amy:

>

> Its a damn shame for a man to sign his own death warrant and, as you

> know, that's exactly what your man has done with his foolish

> decision. You tried your hardest. God Bless good women like you

> who care.

>

> Cantankerous ol' coot that I am, I'd like to kick his ass but, if

> he's totally resigned as you say he is, that would be a waste of my

> energy.

>

> Hang in there Amy.

>

> My Best Regards to You,

> Gene

>

>

[Guest guest]

Could it be a shame issue? After all, society tells us that is

important for me to have a lot of testosterone. Perhaps he is ashamed

to admit that his is low?

Mark

[Guest guest]

Mark,

To be honest he does not talk to me. He won't talk to me and I am not

allowed to talk to him about it. I have been reading the book everyone

suggested and it just saddens me. Yet if this is all he has known his whole

life how would he know there was something better out there for him?

Maybe this sounds silly but how long do things have to happen before it

isn't repariable? I mean I don't even know that right now having his

hormones in order would repair the issues he is having - but how long before

it won't help at all.

As far as I can tell - he has had this issue for at least 10 years. I have

known his for 8 and his prior two ex girlfriends left him because he was not

interested in sex with him and that was about 2 to 3 years before me.

So how long before this all catches up to him and damages more that can't

be fixed? What is it going to take (No one can answer this I know - just me

venting)?

On 6/24/05, mdw1000 <mdw1000@...> wrote:

>

> Could it be a shame issue? After all, society tells us that is

> important for me to have a lot of testosterone. Perhaps he is ashamed

> to admit that his is low?

>

> Mark

>

>

>

> ------------------------------

> *

[Guest guest]

Hey Mark:

You think its " society " -- it is REALITY. It is imperative for men

to have plenty of testosterone. Absolutely imperative.

And why waste time with a shame issue? He needs to get his sorry

ass into a doctor's office and seek SOLUTIONS. He's got a wife with

intense and serious sexual needs for God's sake!

Damn it all -- I'm getting fired up so, I'd better hush before I get

lambasted for not being " sensitive. "

Snarling Pit-Bull Gene

> Could it be a shame issue? After all, society tells us that is

> important for me to have a lot of testosterone. Perhaps he is

ashamed

> to admit that his is low?

>

> Mark

[Guest guest]

God Bless You Amy -- you go right ahead and VENT. The man is

straight out abusing you. He won't " allow " you to talk to him about

his hypogonadism or ED? That's clearly abusive behavior. Also, his

not taking care of your sexual needs is also blatant abuse.

Anytime you need to vent, cuss, cry, shout or otherwise -- please do

so. My God woman -- what a horrible hell you're living.

Please keep in touch Amy, I've got a real good ear for listening.

My Best Regards to You,

Gene

> >

> > Could it be a shame issue? After all, society tells us that is

> > important for me to have a lot of testosterone. Perhaps he is

ashamed

> > to admit that his is low?

> >

> > Mark

> >

> >

> >

> > ------------------------------

> > *

[Guest guest]

Thank you everyone.

Amy

On 6/24/05, Gene Bowhay <genebowhay@...> wrote:

>

> God Bless You Amy -- you go right ahead and VENT. The man is

> straight out abusing you. He won't " allow " you to talk to him about

> his hypogonadism or ED? That's clearly abusive behavior. Also, his

> not taking care of your sexual needs is also blatant abuse.

>

> Anytime you need to vent, cuss, cry, shout or otherwise -- please do

> so. My God woman -- what a horrible hell you're living.

>

> Please keep in touch Amy, I've got a real good ear for listening.

>

> My Best Regards to You,

> Gene

>

>

>

> > >

> > > Could it be a shame issue? After all, society tells us that is

> > > important for me to have a lot of testosterone. Perhaps he is

> ashamed

> > > to admit that his is low?

> > >

> > > Mark

> > >

> > >

> > >

> > > ------------------------------

> > > *

[Guest guest]

Amy my wife is like you husband always telling me how bad she feels and when it

is time to see the Dr. for a check up she tells the Dr. she is doing fine. When

my wife complains to me I cut her off and tell her to tell it to her Dr. and I

don't want to hear it. It took me yrs. to get her to see a new Dr. thank God

she did now she is getting better and telling he sister she should have seen a

different Dr. a long time ago. Just tell he you don't care to hear it.

Phil

" Amy L. Powers " <apowers0900@...> wrote:

Thanks Gene...

I have just come to realize he does not see how this affects him because he

has always been like this. He does not see it as an issue because of the low

T. Since I have known him (8 years now) this has been the way he is. No sex

drive, foggy brain, anger issues, very aggressive, low self-esteem, has

problems getting to sleep, has problems staying asleep, has issues focusing

and the list goes on.

I guess all I can do is accept that he doesn't see this as an issue but let

him know as kindly as I possible can (if that is even possible) that I do

not care to hear about his " problems " with his body if he isn't willing to

do something about them. So now my challenge is - how do I put up boundaries

so he understands I won't listen to the complaints if he isn't willing to

take care of them.

Thank you again!

Amy

On 6/23/05, Gene Bowhay <genebowhay@...> wrote:

>

> Dearest Amy:

>

> Its a damn shame for a man to sign his own death warrant and, as you

> know, that's exactly what your man has done with his foolish

> decision. You tried your hardest. God Bless good women like you

> who care.

>

> Cantankerous ol' coot that I am, I'd like to kick his ass but, if

> he's totally resigned as you say he is, that would be a waste of my

> energy.

>

> Hang in there Amy.

>

> My Best Regards to You,

> Gene

>

>

[Guest guest]

Amy keep comming back to vent anytime you need to he can go a long time before

he crashes but crash he will one day he will not be able to get out of bed.

This is how it happened to me but I was seeing Dr. after Dr. to find out why I

was so sick back then 21 yrs. ago they never thought to check for Low T.

Phil

" Amy L. Powers " <apowers0900@...> wrote:

Mark,

To be honest he does not talk to me. He won't talk to me and I am not

allowed to talk to him about it. I have been reading the book everyone

suggested and it just saddens me. Yet if this is all he has known his whole

life how would he know there was something better out there for him?

Maybe this sounds silly but how long do things have to happen before it

isn't repariable? I mean I don't even know that right now having his

hormones in order would repair the issues he is having - but how long before

it won't help at all.

As far as I can tell - he has had this issue for at least 10 years. I have

known his for 8 and his prior two ex girlfriends left him because he was not

interested in sex with him and that was about 2 to 3 years before me.

So how long before this all catches up to him and damages more that can't

be fixed? What is it going to take (No one can answer this I know - just me

venting)?

On 6/24/05, mdw1000 <mdw1000@...> wrote:

>

> Could it be a shame issue? After all, society tells us that is

> important for me to have a lot of testosterone. Perhaps he is ashamed

> to admit that his is low?

>

> Mark

>

>

>

> ------------------------------

> *

[Guest guest]

Well he has had minor issues here and there but no one ever has any answers

for him and no one ever finds anything. Just some examples:

Abdomen pain

Abdomen growth (as in weight gain - he can lose weight but his stomach keeps

on growing)

Muscle weakness in Right leg

Lose of ankle control in Right leg/foot

Hip pain in Right leg

Always tired

Unable to get Thyroid under control

The list goes on and on and not a single sole with all the tests that have

been run can give him an answer to any of it. The increase and decrease of

his thyroid is so rarely correlated with an increase or decrease in meds

either and it is always quiet server.

The GP suggested that it might be more of a pit. problem than anything else

but my DH still seemed pretty unimpressed.

Thanks everyone!

Amy

On 6/24/05, philip georgian <pmgamer18@...> wrote:

>

> Amy keep comming back to vent anytime you need to he can go a long time

> before he crashes but crash he will one day he will not be able to get out

> of bed. This is how it happened to me but I was seeing Dr. after Dr. to find

> out why I was so sick back then 21 yrs. ago they never thought to check for

> Low T.

> Phil

>