Questions

June 26, 2005

Gene,

Not disagreeing with you. Just trying to figure out why he doesn't

want to get it treated, especially with levels that low. A lot of men

are ashamed to admit a weakness, especially saying " I have low

testosterone that I need to get treated by a doctor " . You and I know

this is nothing to be ashamed of, but we have a better understanding

of this disease than most. I was thinking maybe if she understands

why he doesn't want to confront it, she can be more persuasive.

That said, I have to admit I'm pretty ticked off at this guy as well.

Mark

June 26, 2005

Amy,

It possibly is an issue with the pituitary or hypothalamus, but it is

hard to know without him being willing to test for things like lh and

fsh.

I would perhaps suggest forcing some sort of marriage counseling for

both of you. He is having medical problems that he won't confront,

and it is affecting your marriage. Not only sexually but forcing you

to worry about his future health. He may not realize that it is cruel

and selfish for him to act like this, but it is and perhaps a third

party can help him see that.

Mark

June 27, 2005

Thank you but we did counseling back in 2001 for help and he told me then he

would never go back. I know when things are off limits and that is one of

them.

Amy

On 6/26/05, mdw1000 <mdw1000@...> wrote:

>

> Amy,

>

> It possibly is an issue with the pituitary or hypothalamus, but it is

> hard to know without him being willing to test for things like lh and

> fsh.

>

> I would perhaps suggest forcing some sort of marriage counseling for

> both of you. He is having medical problems that he won't confront,

> and it is affecting your marriage. Not only sexually but forcing you

> to worry about his future health. He may not realize that it is cruel

> and selfish for him to act like this, but it is and perhaps a third

> party can help him see that.

>

> Mark

>

> ------------------------------

> *

July 8, 2005

This isn't a chat room, but a email group. We share lots of information

here regarding children/families living with Asperger's. Stick around! Pam

July 8, 2005

Come right in. The water's fine. We're a group of parents, all of whom

have children either with Asperger's or high functioning autism. If you

have a question or an issue, chances are someone on this list has

experienced something similar. Welcome!

Liz

On Jul 7, 2005, at 6:49 PM, Bannon Carney wrote:

> I'm not sure what I am doing here. I am looking for a chat room to

> brainstorm with other parents about their children with asperger's.

> Am I in the right place?

July 19, 2005

Bannon Carney <bannoncarney@...> wrote:I'm not sure what I am doing

here. I am looking for a chat room to brainstorm with other parents about their

children with asperger's. Am I in the right place?

Yes you are! Welcome!

Roxanna ô¿ô

Don't take life too seriously; No one gets out alive.

__________________________________________________

August 7, 2005

>i will be preparing all things in a commercial kitchen/restaurant. i want to

>use a very easy to follow recipe....with very limited ingredients....with a

>high success rate... and an " economical " raw organic

>seed/nut......sunflower? almonds? (haha!) has anyone experimented with

>different nuts/seeds for taste and outcomes?

You can look into some of the Korean recipes for kimchi ... they

do a lot of fermenting with no animal products (they use beef

broth and fish sauce and shrimp for flavor, bit it's optional). They

do use pine nuts and other seeds sometimes as an ingredient.

Milk products have never been part of their reperatoire, traditionally,

though they do ferment soybeans into various products. There is also

a Japanese rice-bran " pickling bucket " you can use to ferment

just about anything, though when I tried it I wasn't on top of it

enough to make it work.

Anyway, the Korean stuff is wonderful, so wonderful that

it seems the French chef community is picking up on it

and coming up with French kimchi! It can be very artistic too.

I've seen ground nuts fermented into a cheese-kind of product

but I haven't tasted it myself. I've also used milk-kefir grains

to ferment fruit juices to make kefir beer, and to ferment

coconut milk. I didn't like the fermented coconut milk much,

myself.

I'm not sure how water kefir grains compare to milk kefir,

for fermenting, but be aware you don't NEED kefir grains

of any kind to ferment, and other bacteria might even taste

better, depending! If you need a starter, kimchi juice works

quite nicely, or kraut juice. Sandor Katz's book gets into

fermenting with no starter at all though, and traditionally,

starters were not used in a lot of ferments.

Heidi Jean

August 7, 2005

thanks heidi

no starter at all.....i have heard of that. is that when you would just

leave the product out and exposed to the air....probably takes longer to

ferment.....and i wonder what types of bacteria those are that grow? any

idea? is that a safe and " clean " way to go?

WOW! i had never thought of using kraut juice.....excellent!!

do all active enzymes differ in their strength and overall health benefits?

>From: Heidi Schuppenhauer <heidis@...>

>Reply-nutrition

>nutrition

>Subject: Re: questions

>Date: Sun, 07 Aug 2005 14:14:23 -0700

>

> >i will be preparing all things in a commercial kitchen/restaurant. i want

>to

> >use a very easy to follow recipe....with very limited ingredients....with

>a

> >high success rate... and an " economical " raw organic

> >seed/nut......sunflower? almonds? (haha!) has anyone experimented with

> >different nuts/seeds for taste and outcomes?

>

>You can look into some of the Korean recipes for kimchi ... they

>do a lot of fermenting with no animal products (they use beef

>broth and fish sauce and shrimp for flavor, bit it's optional). They

>do use pine nuts and other seeds sometimes as an ingredient.

>Milk products have never been part of their reperatoire, traditionally,

>though they do ferment soybeans into various products. There is also

>a Japanese rice-bran " pickling bucket " you can use to ferment

>just about anything, though when I tried it I wasn't on top of it

>enough to make it work.

>

>Anyway, the Korean stuff is wonderful, so wonderful that

>it seems the French chef community is picking up on it

>and coming up with French kimchi! It can be very artistic too.

>

>I've seen ground nuts fermented into a cheese-kind of product

>but I haven't tasted it myself. I've also used milk-kefir grains

>to ferment fruit juices to make kefir beer, and to ferment

>coconut milk. I didn't like the fermented coconut milk much,

>myself.

>

>I'm not sure how water kefir grains compare to milk kefir,

>for fermenting, but be aware you don't NEED kefir grains

>of any kind to ferment, and other bacteria might even taste

>better, depending! If you need a starter, kimchi juice works

>quite nicely, or kraut juice. Sandor Katz's book gets into

>fermenting with no starter at all though, and traditionally,

>starters were not used in a lot of ferments.

>

>Heidi Jean

>

August 9, 2005

>

I am sure you will get the same replies from others. Run as fast as

you can away from that " doctor " . You need to find someone who will

address the issues of low T and also take all the proper test that

are needed. Especially E2.

Hi,

>

> I'm new to this so please excuse my illiteracy...

>

> I'm having 2 issues... one problem that has been ongoing is

climaxing and the latest is keeping an erection.

>

> I went to the urologist. He ran one bloodtest, did a uro study,

and scoped my urethra.

> He says my testosterone is 350.

>

> Where to I go from here... He doesnt seem to care about my sex

life. He says I'm totally normal and it's all psychological. I dont

agree... I still think my hormones arent right...

>

> What should I get tested... Is there anyone in Rochester NY

(physician) who could help me?

> I have always had troubles climaxing... always... it's physical...

not mental... and to be blunt... it doesnt matter with what sex

partner or solo...

>

> I really need help... I want to be a man!

>

> __________________________________________________

>

August 9, 2005

What is it with these damned doctors that they are so clinical when it comes to

our sex drives? Sometimes it just pisses me off.

Greg Kevorkian <grekkevork@...> wrote:

>

I am sure you will get the same replies from others. Run as fast as

you can away from that " doctor " . You need to find someone who will

address the issues of low T and also take all the proper test that

are needed. Especially E2.

Hi,

>

> I'm new to this so please excuse my illiteracy...

>

> I'm having 2 issues... one problem that has been ongoing is

climaxing and the latest is keeping an erection.

>

> I went to the urologist. He ran one bloodtest, did a uro study,

and scoped my urethra.

> He says my testosterone is 350.

>

> Where to I go from here... He doesnt seem to care about my sex

life. He says I'm totally normal and it's all psychological. I dont

agree... I still think my hormones arent right...

>

> What should I get tested... Is there anyone in Rochester NY

(physician) who could help me?

> I have always had troubles climaxing... always... it's physical...

not mental... and to be blunt... it doesnt matter with what sex

partner or solo...

>

> I really need help... I want to be a man!

>

> __________________________________________________

>

August 10, 2005

Hi Seth:

In my case, my doctor didn't have a clue about hypogonadism, ED or

anything to do with problems of the male genitalia -- UNTIL -- he

started experiencing the VERY SAME problems. Then, he got on the

warpath. I had given him the guidelines from this website to read,

as well as a copy of Dr. Shippen's book. He couldn't thank me

enough.

People idolize doctors and that's foolish. I've known my doctor

since we were acquaintances at the same university. He has told me

straight out the only reason he became a doctor was for the money

and so that he could look at people without their clothes on. I've

known lots of young guys in med school who are only becoming doctors

to please their parents, to follow in someone's footsteps, to make

lots of money, any and every reason you can think of that has

NOTHING to do with healing or improving anyone's health.

Finding a good doctor is one of the hardest chores a man with

hypogonadism will ever experience. Phil, one of the old-timers on

this website, went through doctors left and right suffering FOR

YEARS AND YEARS.

Your doctor becomes " clinical " because he doesn't know what he's

talking about but has to justify the money he's charging somehow.

Its what they do!

Best Regards,

Gene

> >

>

> I am sure you will get the same replies from others. Run as fast

as

> you can away from that " doctor " . You need to find someone who will

> address the issues of low T and also take all the proper test that

> are needed. Especially E2.

>

> Hi,

> >

> > I'm new to this so please excuse my illiteracy...

> >

> > I'm having 2 issues... one problem that has been ongoing is

> climaxing and the latest is keeping an erection.

> >

> > I went to the urologist. He ran one bloodtest, did a uro study,

> and scoped my urethra.

> > He says my testosterone is 350.

> >

> > Where to I go from here... He doesnt seem to care about my sex

> life. He says I'm totally normal and it's all psychological. I

dont

> agree... I still think my hormones arent right...

> >

> > What should I get tested... Is there anyone in Rochester NY

> (physician) who could help me?

> > I have always had troubles climaxing... always... it's

physical...

> not mental... and to be blunt... it doesnt matter with what sex

> partner or solo...

> >

> > I really need help... I want to be a man!

> >

> > __________________________________________________

> >

August 10, 2005

Very well said!!

__________________________________________________

August 14, 2005

In a message dated 8/13/2005 10:49:48 PM Eastern Daylight Time,

N.HOWE@... writes:

In the past couple of

months I have been having migraine auras without the headache

Dear ,

I also get migraine auras w/out headaches. However, I got them both before,

and after, my Graves Disease. I've often wondered about them, and how common

they are. I've also never found out exactly what causes this.

I hope you feel better soon. I'm sure there are lots of folks on this list

suffering from the other symptoms you described, who can offer help and

suggestions.

Take care,

AntJoan

August 14, 2005

Are you on any medication yet? Once you start on some it will help your

symptoms to improve. I was always cold before I developed hyperthroidism

then I was hot all the time and did not sleep well either. Read and learn

all you can before your appointment so you will be knowledgable of your

condition. You will have brain fog and not be able to absorb everything as

easily but try hard so you know what is happening to your body.

Take care,

Tammy

questions

Hello all:

I am new to the group and also new to hyperthyroidism and am wondering

how many have suffered from these symptoms? In the past couple of

months I have been having migraine auras without the headache ( never

had them before ), I have hot burning swollen feet, am having carpal

tunnel symptoms that I didn't have before, I am lucky to sleep for an

hour at a stratch and usually wake up drenched and of course I can't

handle the heat at all. I am seeing a specialist in September and am

hoping that it can be managed. My ultrasound showed the gland to be

enlarged and has nodules so who knows what my treatment will be. Anyway

I guess my main reason for joining rthis group and writing this post is

to see if anyone else has suffered any of my symptoms?

Thanks in advance to all who give me some input/

( Canada )

August 28, 2005

Hi Kerri. I have problems with my arms and hands falling asleep all the time

Havn't had that happen yet with my legs thank God. I am

always very thirsty too. Very sensitive to hot/cold temps. I have to keep

the house at around 65 degrees to be comfortable, but at night when I go to

bed, my feet start to freeze, and I have to wear socks. I don't have the

problem getting my fingers, arms or legs to go where I want them, but I do

have a hard time just getting them to go...anywhere.LOL! Especially in the

morning. I hope your doc can help you out.

hugs

-- [ ] questions

thank you all for your kinds words and support. may god bless you

with pain free days and sleep filled nights.

I will be seeing my rheumy for the second time in about one month and

am going to be making sure he's doing all he can do, as I'm doing all

I can do. I'm going to make a list of symptoms here and if you could

all tell me, if you experience them as associated with RA or not

associated with RA, I guess I'm just gonna double check, I've come

across some really incompetent doctors already as I'm sure some of

you have also. thanks for all the help you've given.

spine pain

rib pain

dry, itchy eyes

muscle cramps (especially legs)

arms and legs fall asleep often

very thirsty (cotton mouth)

extreme sensitivity to hot or cold temps or temperature changes

inablility to move arms and legs or fingers and toes in the motion

you want (like the message is getting mixed up)

I think thats about it,,, thanks folks, hope you days is wonder-

filled.

kerri sue

October 6, 2005

Hello Deborah,

Your son would not need/or get much sleep at night? mine too. but, if I

keeped him very active during the day with very active activities like swimming,

karate, basketball, he slept better through the whole night. Is your son very

active too? would it help him by keeping him very active?.

with your concern about your son's fixation, My son too. (snakes). I let him

explore a little, then I try to encourage him to move on (forward) to something

else. I don't want to hold him back. this help with his perseverating which he

still has problems with. His perseverating causes problems with his social

interacting with others. (they get bored and walk away) he does not get these

cues from other children. he stays on one topic or play too long. most

children don't. they move on to another topic or play. I try to teach him to

move on to something else too. (roll play helped) but you say your son gets

stressed. would it help if you make the next (play) or TV show just as

interesting so he would not be stressed before you make any changes:? I hope

this help a little, maybe others can share there experience with you and you can

pick out the ones that might work for your son to try... best luck

Hi All,

I have a few questions on the things your kids are particularly interested in.

My son's first fixation was the movie " Toy Story. " We had all the toys, he

watched it as often as we would let him, and cried if we turned it off before

every bit of the credits played. That lasted from age 2.5 to 4 years old. Then

we did " the Tank Engine " and all things train. He can tell you anything

about any of them. Then we moved to dinosaurs, bugs, reptiles, and now he's

into science as it relates to any animal or insect and some Rescue Hero toys.

He also recently got into Star Wars, which is the first movie we've let him

watch that isn't rated G.

My questions are if the interests your children exhibit tend to last long or

move quickly into another area. We seem to stay in the same thing for at least

6 months to a year. He has other interests, but really is pretty fixated on the

particular thing of the moment. And then, should we try to push him out of this

comfort zone and onto another interest? In his first grade class they are

trying to get him more generally interested and less zeroed in on one thing, but

I'm not sure if I agree with that or see a reason to do that. Obviously he

needs to learn the curriculum, but is there a benefit in his free time for his

interests to be more general and less limited?

My son was also just diagnosed with OCD. With three younger siblings, he must

constantly deal with his stuff being moved and while this causes him some

stress, I actually think it teaches him coping skills for the real world. Any

thoughts?

Finally, we're just using clonidine at night to help him fall asleep. Is this

common? I've only recently realized all the other things this is used to treat,

and our ped prescribed it as a sleep inducer, not for behaviour or mood

alteration. Should I ask about other drugs? It works and we see no

ill-effects, without it our boy only sleeps a few hours at night, so it seems to

be worth the trade-off.

Thanks for any advive you can offer!

Deborah

October 6, 2005

Hi Deborah,

I'll comment on the OCD. I recently attended a

conference/workshop on Cognitive/Behavioral

interventions for children with Anxiety, Depression

and OCD. The trainers emphasized that in order for a

child/teen/adult have a diagnosis they must have some

degree of impairement in their life (from mild to

severe) and cause some degree of distress for the

individual. Some parents find that teaching specific

relaxation techniques when their child begins to feel

frustrated is helpful. Helping your son to tolerate

small changes (called desentization) allows his to

gradually handle big changes easier. However, our

children must be taught these skills and modeled by an

adult and then role-played to be effective, ususally.

Some research indicates that although medication can

be helpful to reduce anxiety/ocd initially,

individuals who were taught specific coping strategies

showed the greatest likelihood of longterm change.

Some counseling agencies have experienced therapists

who use cognitive/behavioral therapy with children.

There's lots of sites on the web that explain

cognitive/behavioral therapy too.

--- Deborah Krupp <krupp@...> wrote:

> Hi All,

>

> I have a few questions on the things your kids are

> particularly interested in. My son's first fixation

> was the movie " Toy Story. " We had all the toys, he

> watched it as often as we would let him, and cried

> if we turned it off before every bit of the credits

> played. That lasted from age 2.5 to 4 years old.

> Then we did " the Tank Engine " and all things

> train. He can tell you anything about any of them.

> Then we moved to dinosaurs, bugs, reptiles, and now

> he's into science as it relates to any animal or

> insect and some Rescue Hero toys. He also recently

> got into Star Wars, which is the first movie we've

> let him watch that isn't rated G.

>

> My questions are if the interests your children

> exhibit tend to last long or move quickly into

> another area. We seem to stay in the same thing for

> at least 6 months to a year. He has other

> interests, but really is pretty fixated on the

> particular thing of the moment. And then, should we

> try to push him out of this comfort zone and onto

> another interest? In his first grade class they are

> trying to get him more generally interested and less

> zeroed in on one thing, but I'm not sure if I agree

> with that or see a reason to do that. Obviously he

> needs to learn the curriculum, but is there a

> benefit in his free time for his interests to be

> more general and less limited?

>

> My son was also just diagnosed with OCD. With three

> younger siblings, he must constantly deal with his

> stuff being moved and while this causes him some

> stress, I actually think it teaches him coping

> skills for the real world. Any thoughts?

>

> Finally, we're just using clonidine at night to help

> him fall asleep. Is this common? I've only

> recently realized all the other things this is used

> to treat, and our ped prescribed it as a sleep

> inducer, not for behaviour or mood alteration.

> Should I ask about other drugs? It works and we see

> no ill-effects, without it our boy only sleeps a few

> hours at night, so it seems to be worth the

> trade-off.

>

> Thanks for any advive you can offer!

>

> Deborah

>

> [Non-text portions of this message have been

> removed]

>

__________________________________

- PC Magazine Editors' Choice 2005

http://mail.

October 6, 2005

Hi Rose,

Thanks for your comments and ideas. We do try to keep our son active, but even

so, he will typically just sleep for 4 to 6 hours if we don't medicate him.

Then he is more easily upset, frustrated, and seems more " autistic " than if he

gets a full night's sleep.

Thanks for the ideas!

Deborah

Re: ( ) questions