Questions

[Guest guest]

<snippet>

>I'm a little overwhelmed I have to say. I am starting this diet, but my

>family will not be (I'd like them to do it, too, but I will need to prove

to

>my husband that is helpful). My son is a picky eater and although he loves

>meat, he will not want to eat just what is on this diet. I will essentially

>have to cook 2 meals. Sometimes the rest of my family will eat meat and

>vegetables, but only about once a week. So, for those of you who have to

>cook for your family, how do you do this? How do you find the time? How do

>you resist eating their foods?

>Any help would be appreciated!

>Also, why are tomatoes okay on this diet?

>Thanks so much. Collette

Hi Collette,

Welcome to the group. I know it seems overwhelming at first because there is

so much information, but after a while it's real easy and not all that big

of a deal. Once you get all your supplements and know what you should and

should not eat, it's not so overwhelming anymore.

My husband does not do this diet and sometimes I just cook two meals, other

times I try to make things that we both can eat. For example, instead of

making green beans with regular, cured bacon, I might make green beans with

uncured bacon if I have some or with just regular pork. Or I make meals for

him and myself that are quick. Sometimes, especially now that I am back at

work full time he has to cook for himself.

You'll get the hang of it. As for not eating " his " food, I guess I have felt

so bad for so long now it's an incentive to stay away from it. Nobody is

perfect though. If you mess up don't beat yourself up, just get right back

on the horse. Try not to go into the " well, I already messed up so I might

as well make the most of it mode " . Your next meal just go back to eating

what's on Bee's program.

Hugs,

a

[Guest guest]

>

> Hello Everyone!

==>Hi Collette. Welcome to our group.

>

> I've been reading posts for a few months now and I'm just starting

the diet. I have read through the information on the website, but it

is a lot of information. So, if I repeat questions that are already

answered, sorry about that!

>

> I'm a little overwhelmed I have to say. I am starting this diet,

but my family will not be (I'd like them to do it, too, but I will

need to prove to my husband that is helpful). My son is a picky

eater and although he loves meat, he will not want to eat just what

is on this diet. I will essentially have to cook 2 meals. Sometimes

the rest of my family will eat meat and vegetables, but only about

once a week. So, for those of you who have to cook for your family,

how do you do this? How do you find the time? How do you resist

eating their foods?

==>Yes it can be very overwhelming. Remember to start on the diet

and supplements gradually in order to allow time for your body to

adjust - see this article " Curing Candida, How to Get Started " :

http://www.healingnaturallybybee.com/articles/intro1.php

It takes determination and curbing cravings to resist their foods.

See these articles for help with cravings and withdrawal symptoms:

http://www.healingnaturallybybee.com/articles/menu_2_5_3.php

You will become more and more accustomed to preparing foods for this

diet. It seems like a daunting task at first, but it does become

easier, particularly when you know how important it IS for your

health. The foods are actually simple to make. I cook meats and

vegetables in one pan (first I cook the meat and then add veggies).

Bee's raw egg drink is fast to make, and it is great for breakfast.

Actually Cherry tomatoes, contain 5.3 grams of carbs in 1 cup (the

fibre is subtracted from the total carb count). Even though they are

classified as a fruit they contain very little fructose compared to

other fruits.

We are here to help you get through this.

The best, Bee

[Guest guest]

Collette,

I have been on Bee's diet since the beginning of October. I have never

posted here yet because every time I had a question I would find the answer

in past messages or someone would ask the same thing I was wondering, so no

need.

I have eight children, seven still at home and I homeschool so I can relate

to your problems!

Our family has eaten an NT (Weston Price) diet for years and have slowly

gotten everyone off a lot of grains, breads, etc., soaked or otherwise.

At this point no one is on this diet but me. I did get everyone switched

over to the SCD (specific carbohydrate diet) which is one step closer to

this one. No grains and no dairy but butter. This makes it easier for me

since I can prepare a meal (lots of soups!) and just not eat the fruit or

starchy vegetable that they are having.

What has helped me the most is planning. I try to schedule meals by the

week and I usually stick pretty close to what I planned. I post the menu so

everyone knows " what's to eat " . I always have crispy nuts, sliced

vegetables, hard boiled eggs, etc. Available.

Yes, there has been grumbling but, overall, since everyone's diet is

restricted and we don't have the junk in the house, it is getting easier.

As far as me, the only time I am REALLY tempted is when I get too hungry.

Just try to plan ahead and don't be famished when preparing something you

can't have.

Since I have been on the diet for almost four months, I'm really not that

tempted anymore. Think of your long term goal. Write down all the symptoms

you want to get rid of and the positive goals you hope to achieve then look

at that in tough times.

Just being a lurker on this group has really helped me stick to it and look

forward to a very healthy energy filled life!

Thanks Bee!

Shari

[Guest guest]

>

> Collette,

> I have been on Bee's diet since the beginning of October. I have

never

> posted here yet because every time I had a question I would find

the answer

> in past messages or someone would ask the same thing I was

wondering, so no

> need.

>

> I have eight children, seven still at home and I homeschool so I

can relate

> to your problems!

> Our family has eaten an NT (Weston Price) diet for years and have

slowly

> gotten everyone off a lot of grains, breads, etc., soaked or

otherwise.

<snip>

>> Just being a lurker on this group has really helped me stick to it

and look

> forward to a very healthy energy filled life!

>

> Thanks Bee!

==>Hi Shari! It is great to hear from you. You are so welcome for

the information too.

The best, Bee

[Guest guest]

Kandee,

The runny nose may well be die off and detox. My kids have had that on

and off since starting the diet, but it has cleared in one kid and

almost cleared in the other. I would stay the course with the diet.

As far as acute reactions, I don't know what there is to do other than

treat them as you did and hope that they diminish with the diet. A

week into the diet is just the very beginning...sometimes it is hard to

stay the course, but we are hopeful that that is the right answer.

Kandee Edge wrote:

We started the GAPS diet a week ago. I took the kids to our

local park and my oldest (5yrs) had a reaction to something and her

eyes swelled shut and she itched from head to toe. Needless to say, I

didn't know what to do except give her Benadryl. After a week, she

still has purple coloration under her eyes and it's still puffy. Is

there anything I can do to get this under control. I hate that it

happened just as we started the diet because her purple eyes have been

there for months and it was an indication that her allergies were

taking over. I was thankful for finding the GAPS book and starting

this diet to get her allergies under control, but I'm still at a loss

as to what to do when these acute things happen while on the diet. I

hate giving her Benadryl or Claritin.

My other fear is that she'll have an asthma attack or develop

bronchitis. For the past year we were giving her raw milk and it has

prevented any more attacks. Prior to that she was getting bronchitis

every month. But since starting the GAPS diet we took the milk away

and today, she's getting a runny nose again. In the past, a runny nose

would develop into bronchitis within hours. The milk would prevent

this. However, I don't know if maybe all the pollen in the air is

causing the runny nose, since Spring is in full bloom here.

She doesn't always have reactions to pollen, so it's hard to say. Most

of her reactions are from food allergies.

Does anyone have any advice?

Kandee

Mom to Hannah, Grace and

[Guest guest]

thanks. it's so hard to distiguish die off from her typical allergies. I'll keep watching to see what happens.

Kandee

Mom to Hannah, Grace and

Re: [ ] questions

Kandee,The runny nose may well be die off and detox. My kids have had that on and off since starting the diet, but it has cleared in one kid and almost cleared in the other. I would stay the course with the diet.As far as acute reactions, I don't know what there is to do other than treat them as you did and hope that they diminish with the diet. A week into the diet is just the very beginning... sometimes it is hard to stay the course, but we are hopeful that that is the right answer.Kandee Edge wrote:

We started the GAPS diet a week ago. I took the kids to our local park and my oldest (5yrs) had a reaction to something and her eyes swelled shut and she itched from head to toe. Needless to say, I didn't know what to do except give her Benadryl. After a week, she still has purple coloration under her eyes and it's still puffy. Is there anything I can do to get this under control. I hate that it happened just as we started the diet because her purple eyes have been there for months and it was an indication that her allergies were taking over. I was thankful for finding the GAPS book and starting this diet to get her allergies under control, but I'm still at a loss as to what to do when these acute things happen while on the diet. I hate giving her Benadryl or Claritin.

My other fear is that she'll have an asthma attack or develop bronchitis. For the past year we were giving her raw milk and it has prevented any more attacks. Prior to that she was getting bronchitis every month. But since starting the GAPS diet we took the milk away and today, she's getting a runny nose again. In the past, a runny nose would develop into bronchitis within hours. The milk would prevent this. However, I don't know if maybe all the pollen in the air is causing the runny nose, since Spring is in full bloom here. She doesn't always have reactions to pollen, so it's hard to say. Most of her reactions are from food allergies.

Does anyone have any advice?

Kandee

Mom to Hannah, Grace and

[Guest guest]

Kandee,

I find that distinction the most frustrating aspect of this diet. Well

said.

Good luck,

Kandee Edge wrote:

thanks.

it's so hard to distiguish die off from her typical allergies. I'll

keep watching to see what happens.

Kandee

Mom to Hannah, Grace and

-----

Original Message ----

From: Milner <nmilnermindspring>

Sent: Tuesday, March 18, 2008 10:31:01 AM

Subject: Re: [ ] questions

Kandee,

The runny nose may well be die off and detox. My kids have had that on

and off since starting the diet, but it has cleared in one kid and

almost cleared in the other. I would stay the course with the diet.

As far as acute reactions, I don't know what there is to do other than

treat them as you did and hope that they diminish with the diet. A

week into the diet is just the very beginning... sometimes it is hard

to stay the course, but we are hopeful that that is the right answer.

Kandee Edge wrote:

We started the GAPS diet a week ago. I took the kids to our

local park and my oldest (5yrs) had a reaction to something and her

eyes swelled shut and she itched from head to toe. Needless to say, I

didn't know what to do except give her Benadryl. After a week, she

still has purple coloration under her eyes and it's still puffy. Is

there anything I can do to get this under control. I hate that it

happened just as we started the diet because her purple eyes have been

there for months and it was an indication that her allergies were

taking over. I was thankful for finding the GAPS book and starting

this diet to get her allergies under control, but I'm still at a loss

as to what to do when these acute things happen while on the diet. I

hate giving her Benadryl or Claritin.

My other fear is that she'll have an asthma attack or develop

bronchitis. For the past year we were giving her raw milk and it has

prevented any more attacks. Prior to that she was getting bronchitis

every month. But since starting the GAPS diet we took the milk away

and today, she's getting a runny nose again. In the past, a runny nose

would develop into bronchitis within hours. The milk would prevent

this. However, I don't know if maybe all the pollen in the air is

causing the runny nose, since Spring is in full bloom here.

She doesn't always have reactions to pollen, so it's hard to say. Most

of her reactions are from food allergies.

Does anyone have any advice?

Kandee

Mom to Hannah, Grace and

[Guest guest]

ALso, this time of year, there is a lot of spraying for gypsy moths, ants, grubs, etc., can set off those with chemical sensitivity (most of us) and can be misdiagnosed as hayfever. Check with schools, local government, etc. for scheduled treatments.

From: nmilner@...Date: Tue, 18 Mar 2008 10:07:55 -0500Subject: Re: [ ] questions

Kandee,I find that distinction the most frustrating aspect of this diet. Well said.Good luck,Kandee Edge wrote:

thanks. it's so hard to distiguish die off from her typical allergies. I'll keep watching to see what happens.

Kandee

Mom to Hannah, Grace and

Re: [ ] questions

Kandee,The runny nose may well be die off and detox. My kids have had that on and off since starting the diet, but it has cleared in one kid and almost cleared in the other. I would stay the course with the diet.As far as acute reactions, I don't know what there is to do other than treat them as you did and hope that they diminish with the diet. A week into the diet is just the very beginning... sometimes it is hard to stay the course, but we are hopeful that that is the right answer.Kandee Edge wrote:

We started the GAPS diet a week ago. I took the kids to our local park and my oldest (5yrs) had a reaction to something and her eyes swelled shut and she itched from head to toe. Needless to say, I didn't know what to do except give her Benadryl. After a week, she still has purple coloration under her eyes and it's still puffy. Is there anything I can do to get this under control. I hate that it happened just as we started the diet because her purple eyes have been there for months and it was an indication that her allergies were taking over. I was thankful for finding the GAPS book and starting this diet to get her allergies under control, but I'm still at a loss as to what to do when these acute things happen while on the diet. I hate giving her Benadryl or Claritin.

My other fear is that she'll have an asthma attack or develop bronchitis. For the past year we were giving her raw milk and it has prevented any more attacks. Prior to that she was getting bronchitis every month. But since starting the GAPS diet we took the milk away and today, she's getting a runny nose again. In the past, a runny nose would develop into bronchitis within hours. The milk would prevent this. However, I don't know if maybe all the pollen in the air is causing the runny nose, since Spring is in full bloom here. She doesn't always have reactions to pollen, so it's hard to say. Most of her reactions are from food allergies.

Does anyone have any advice?

Kandee

Mom to Hannah, Grace and

Windows Live Hotmail is giving away Zunes. Enter for your chance to win. Enter Now!

[Guest guest]

Kandee,

I am not as familiar with GAP as I am BED, but one of the things I

like about BED is the way milk is introduced. I believe it can be

introduced rather early, but in succession. First, you would use the

young cocounot kefir to establish the dairy-loving bacteria. Then

you use raw butter so you are getting the living things from raw

without as much of the milk protiens, which seem to be the most

intolerant. You move through raw cream and then cultured milk.

I mention this for you since it seems the raw milk has been more of a

help than a hindrance. I personally think that real kefir-grain

kefir made with raw milk is a big plus as well.

Just my thoughts.

Connie

>

> We started the GAPS diet a week ago. I took the kids to our local

park and my oldest (5yrs) had a reaction to something and her eyes

swelled shut and she itched from head to toe. Needless to say, I

didn't know what to do except give her Benadryl. After a week, she

still has purple coloration under her eyes and it's still puffy. Is

there anything I can do to get this under control. I hate that it

happened just as we started the diet because her purple eyes have

been there for months and it was an indication that her allergies

were taking over. I was thankful for finding the GAPS book and

starting this diet to get her allergies under control, but I'm still

at a loss as to what to do when these acute things happen while on

the diet. I hate giving her Benadryl or Claritin.

>

> My other fear is that she'll have an asthma attack or develop

bronchitis. For the past year we were giving her raw milk and it has

prevented any more attacks. Prior to that she was getting bronchitis

every month. But since starting the GAPS diet we took the milk away

and today, she's getting a runny nose again. In the past, a runny

nose would develop into bronchitis within hours. The milk would

prevent this. However, I don't know if maybe all the pollen in the

air is causing the runny nose, since Spring is in full bloom here.

She doesn't always have reactions to pollen, so it's hard to say.

Most of her reactions are from food allergies.

>

> Does anyone have any advice?

>

> Kandee

> Mom to Hannah, Grace and

>

[Guest guest]

THanks, I am currently reading the BED book and am almost finished. I too saw the Kefir chapter very interesting and am encouraged about adding the dairy back in. Thanks for your input...it helps to put things in perspective.

Kandee

Mom to Hannah, Grace and

[ ] Re: questions

Kandee,I am not as familiar with GAP as I am BED, but one of the things I like about BED is the way milk is introduced. I believe it can be introduced rather early, but in succession. First, you would use the young cocounot kefir to establish the dairy-loving bacteria. Then you use raw butter so you are getting the living things from raw without as much of the milk protiens, which seem to be the most intolerant. You move through raw cream and then cultured milk. I mention this for you since it seems the raw milk has been more of a help than a hindrance. I personally think that real kefir-grain kefir made with raw milk is a big plus as well.Just my thoughts.Connie>> We started the GAPS diet a week ago. I took the kids to our local park and my oldest (5yrs) had a reaction to something and her eyes swelled shut and she itched from head to toe. Needless to say, I didn't know what to do except give her Benadryl. After a week, she still has purple coloration under her eyes and it's still puffy. Is there anything I can do to get this under control. I hate that it happened just as we started the diet because her purple eyes have been there for months and it was an indication that her allergies were taking over. I was thankful for finding the GAPS book and starting this diet to get her allergies under control, but I'm still at a loss as to what to do when these acute things happen while on the diet. I hate giving her Benadryl or Claritin.> > My other fear is that she'll have an asthma attack or develop bronchitis. For the past year we

were giving her raw milk and it has prevented any more attacks. Prior to that she was getting bronchitis every month. But since starting the GAPS diet we took the milk away and today, she's getting a runny nose again. In the past, a runny nose would develop into bronchitis within hours. The milk would prevent this. However, I don't know if maybe all the pollen in the air is causing the runny nose, since Spring is in full bloom here. She doesn't always have reactions to pollen, so it's hard to say. Most of her reactions are from food allergies.> > Does anyone have any advice?> > Kandee> Mom to Hannah, Grace and >

[Guest guest]

> I have been doing epsom salt baths-both of my sons gained over 4lbs

> each! Now, I would like to try the enzymes-But how do I choose?

I used HNI with much success

http://www.houstonni.com/

> Neither of our sons have ever been on any type of diet,both are

> hyperactive,sound sensitive, and extremely PICKY eaters!

No-Fenol is good for hyper issues. At my house, most sound

sensitivity was caused by yeast overgrowth

http://www.danasview.net/yeast.htm

>> I have noticed

> an increase in chewing anything my 11 yr old can get his hands on,

At my house, chewing on things meant intolerance or yeast overgrowth.

It can also mean zinc deficiency.

Dana

[Guest guest]

What do you mean by " covered " ? I would give the probiotics on an empty

stomach...either first thing when she wakes up (an hour before she puts food in

her stomach) or on an empty stomach right before bed. The Culturelle really

works for all of us over here.

As far as enzymes, I could give you a message board website address and it

was started by a scientist who claims her son was healed from autism because of

enzymes. She even wrote a book, which I had hundreds of people LOVE. Her

name is DeFelice. The name of the book is " Enzymes for Autism and

other Neurological Disorders. " She has however since written two other books,

which are about enzymes in general. The address is:

Elena

Proud Mom of Zachary

" Looking back it seems to me, All the grief that had to be.

Left me when the pain was o'er, Stronger than I was before. " Anon.

" Although you may not be able to control what fate brings your way, you can

control how you react and respond to it. At least, you should be able to. " -

R. Wooden, UCLA Bruins Basketball Coach (1948-1975)

**************Gas prices getting you down? Search AOL Autos for

fuel-efficient used cars.

(http://autos.aol.com/used?ncid=aolaut00050000000007)

[Guest guest]

Hi dayiz26 and welcome,

Shots are dam good I feel one of the best but they need to be done right.

Endo's are not good Dr.'s for TRT but it looks like yours is OK.

But the shots are not being done right and if your Estradiol " E2 " levels are

high this will take away any good the shots are doing.

You need to do shots every week most get by at 100mgs every week other need

more. Some go low like your self because we us it up as fast as we take it. I

am like this and do my shots every 3 days I do 70mgs and I do HCG to keep my

testis working the 2 days each in between my T shots.

If you do shots every week and still fall this low before your next shot try

them 2 x's a week.

Try to get your T levels up into the upper 1/3 of your labs range and keep your

Estradiol " E2 " down between 10 to 30 best at 20 pg/ml for most men. If your E2

is to high it takes away from the good TRT does.

Go to Dr. 's site www.allthingsmale.com and read TRT: A Recipe for Success

and his HCG update.

Print this and show it to your Dr. Dr. puts this on his site free for us

and are Dr.'s.

I pray your Dr. ran all the labs to find out why your so low. A lot of this can

make a man's T levels go down and fixing them the levels go back up without TRT.

When you do a shot in 3 days the levels peak then start going down. If your

levels on the day of your next shot before it are to low you feel bad. This is

what we call a roller coaster ride. So try to get your levels up into the upper

1/3 of your labs range.

Go to the links and files section here at the home page and read and learn about

this.

Co-Moderator

Phil

> From: dabiz26 <no_reply >

> Subject: Questions

>

> Date: Sunday, September 21, 2008, 8:16 PM

> I have some questions about my testosterone levels.

>

> First some background-

>

> I am a 24 year old male. When I first tested my

> testosterone level in

> was a 191. I then was referred to a specialist (Endo) and

> battery of

> tests my total T was at 321, which he still considered low

> for my age.

> He started me on 200mg of injectable testosterone every 14

> days. He

> said the reason for the big difference in the numbers was

> the time of

> day I took the first test (afternoon), which made sense. I

> had

> another blood test one week after the first shot, which

> came back in

> the 570 range, which is where my doctor wanted me. My next

> test was

> the morning of my next shot. My total t came back as 182

> (test in

> morning). He has me taking the shot every ten days and not

> 14.

>

> My questions-

>

> Why are my levels so up and down? I can't seem to get

> a straight

> answer from my doctor.

>

> How long before I start feeling the effects emotionally

> from

> testosterone therapy?

>

> How long will it take before I start seeing physical

> changes?

>

> Is there anything else I need or should be on to control

> other hormone

> levels, such as Estrogen?

>

>

>

> ------------------------------------

>

>

[Guest guest]

>

> Hi Bee,

> My name is . I am 25. I am on candida diet for two months. 10

days

> on your candida programme and I am feeling better. I tried some of

the

> recipes and I find them quite tasty, espesially the cauliflower mash

> and Bee`s egg drink.

+++Hi . Welcome to our wonderful group! I'm glad you like the

cauliflower recipes and Bee's Egg Drink! Yummy!

>

> I have some questions:

> 1. Is Magensium oxide/magnesium gluconate tablets ok to take as a

> suppliment (instead of magnesium citrate)?

+++It is best to take the citrate form of magnesium since all

minerals require acid in order for them to be absorbed, and citrate

is acid. Ensure your product states the " elemental amount " of

magnesium on the label, which is the amount you absorb. If it

doesn't, you may need to take more in order to get the amounts I

recommend. The same is true for calcium citrate.

> 2. What are your thoughts on Aloe Verra juice? It is said to have a

> beneficial effect on the intestines.

+++Aloe Vera juice has some benefits, but also can cause problems, so

I don't recommend it. Your intestines most benefit by the

high " good " fats I recommend, since they heal and strengthen the

intestinal lining, reconstruct all cells the way nature intended,

help absorption and digestion of foods, pull nutrients out of foods

so they are available, and cleanse the entire body. They even get

rid of heavy metals in the body. Aloe vera can't do all of that.

> 3. Is Salmon oil ok to take instead of Cod liver oil?

+++No, Salmon oil only contains Omega 3, and no vitamins A or D.

Only fish " liver " oils contain vitamins A and D, as well as Omega 3

(in the form of EPA and DHA).

> 4. I get intestinal rumbles every night. It often wakes me up. No

> pain, but the noise is quite loud. What can I do about it?

+++Try having 1 cup of raw ginger tea before you go to bed and see if

they helps. The recipe is on my website:

http://www.healingnaturallybybee.com/recipes/index.php

Sounds like you are off to a good start . That's great!

The best in health, Bee

[Guest guest]

>

> Has anyone ever heard of LDN helping Inclusion Body Myositis? And

has anyone ever heard of using colostrum as a filler for the LDN caps

(and if so, how it works?) Thanks for info! Dr. JM

>

-----------

Since some with Polymyositis have had favorable results with LDN maybe

it will work for the inflammatory muscle disease IBM. What form does

the person have, sporadic inclusion body myositis (sIBM) or hereditary

inclusion body myopathy (hIBM).

For filler, colostrum contact Skip at Skip's Pharm. or Larry at The

Compounder. I think the website is http://www.thecompounder.com

[Guest guest]

>

> Has anyone ever heard of

85d

LDN helping Inclusion Body Myositis? And has anyone ever heard of

using colostrum as a filler for the LDN caps (and if so, how it

works?) Thanks for info! Dr. JM

>

=============

TESTING, I have answered this question twice and it still has not

posted.

[Guest guest]

A question I have pondered as well.

I would say that I am in " remission " . But more appropriately the

wording would be " a drug induced remission " . I suspect and am not

willing to chance that if I stop taking my MTX, I will no longer be in

remission and will experience full blown symptoms again.

Others, may have a different view, but that is mine.

Stay Well,

--- In , " hhaasch "

How do those of you who have had remission know you are in remission

if you are on drugs that should be helping?

[Guest guest]

Okay, I'm confused. I'm newly diagnosed with PsA myself. My sed

rate has been 46, which is high. I thought that high sed rates

weren't consistent with FM. Does anyone know if that's true?

Karol

[Guest guest]

I don't believe the sed rate has anything to do with fibro.  If you read up on

it, it seems more to be related to the brain/nerve endings and a connection

between the two that makes us respond more to pain than " normal " people without

fibro. 

 Joanna Hoelscher

[Guest guest]

First, I wouldn't give too much credence to a phone conversation with a

nurse. Even face to face with a hepatologist, it's hard to get these things

straight. With a second-tier person, with a phone in the wway, the discussion

could

go off-track.

I'm confused, too. But, there is much that I don't know about AIH. My

doctor told me at one point that my liver had healed and my liver tests had

improved enough that, for all practical purposes, I could say that the AIH was

" gone " . That sounds like something different, however.

Hepatitis just means " inflammation of the liver " , whatever the cause.

It sounds as if you're being told that you have NASH, which stands for

non-alcoholic steatohepatitis. Many of us have that. The causes for it are

unclear. In the past, people were told that it was due to obesity. Now, that

it's

believed that the cause is more complex.

One thing you can do is read all you can on AIH and NASH before Monday. I

can send you links to good articles on AIH, if you like. For NASH, you'd do as

well to just google; I don't have anything especially helpful.

I hope others can comment on this, give you some ideas. When you talk with

the hepatologist Monday, this all may become clear. In the meantime, getting

information that will allow you to have the best appointment possible will

allow you to be well-prepared.

Harper

In a message dated 2/27/09 7:50:40 AM, dssll2@... writes:

>

> I had my second liver biopsy on Feb 17.? I have a copy of the results and

> have an appointment to talk with the liver doc on Monday.? His nurse called me

> yesterday and told me that the results did not show any autoimmune

> hepatitis.? The findings show alcoholic hehpatitis.? No. 1 I don't drink and

No. 2 does

> AIH just disapear?? I am very confused as I was diagnosed in Oct of 2003 and

> have been treated for this since then.? The biopsy shows acute fatty liver.?

> I am so confused and concerned.? I don't even know what questions to ask

> now.? I know that there is something going on and has been for a long time and

> now I don't have answers.? Has anyone gone through this?? I am just almost

> speechless.

>

>

>

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[Guest guest]

, you asked for links to AIH and NASH information.

AIH:

Here's an AIH piece that my well-known hepatologist has in her waiting room:

http://digestive.niddk.nih.gov/ddiseases/pubs/autoimmunehep/

This is an AIH link with a slightly more scholarly bent; it is quite

accessible to all of us:

http://emedicine.medscape.com/article/172356-overview

NASH:

This NASH article is from the National Institute of Health, like the first

AIH piece, above. I find them both to be clearly written, well illustrated.

http://digestive.niddk.nih.gov/ddiseases/pubs/nash/

Best wishes.

Harper

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[Guest guest]

I'll add this about NASH: I had a sonogram recently, and the technician told

me I had NASH. (First of all, a technician shouldn't be telling a patient

anything at all about results. That's a doctor's role; a technician isn't

qualified to do that..

I wrote my hepatologist, who told me that a sonogram can't diagnose NASH. It

can show something is different on the liver (I may be wording this phrase

wrong), but that only a biopsy can determine that one has a fatty liver.

Harper

AIH dx 2000

CD dx 2002

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[Guest guest]

I would aprciate any links.? Thank You!

Re: [ ] Questions

First, I wouldn't give too much credence to a phone conversation with a

nurse. Even face to face with a hepatologist, it's hard to get these things

straight. With a second-tier person, with a phone in the wway, the discussion

could

go off-track.

I'm confused, too. But, there is much that I don't know about AIH. My

doctor told me at one point that my liver had healed and my liver tests had

improved enough that, for all practical purposes, I could say that the AIH was

" gone " . That sounds like something different, however.

Hepatitis just means " inflammation of the liver " , whatever the cause.

It sounds as if you're being told that you have NASH, which stands for

non-alcoholic steatohepatitis. Many of us have that. The causes for it are

unclear. In the past, people were told that it was due to obesity. Now, that

it's

believed that the cause is more complex.

One thing you can do is read all you can on AIH and NASH before Monday. I

can send you links to good articles on AIH, if you like. For NASH, you'd do as

well to just google; I don't have anything especially helpful.

I hope others can comment on this, give you some ideas. When you talk with

the hepatologist Monday, this all may become clear. In the meantime, getting

information that will allow you to have the best appointment possible will

allow you to be well-prepared.

Harper

In a message dated 2/27/09 7:50:40 AM, dssll2@... writes:

>

> I had my second liver biopsy on Feb 17.? I have a copy of the results and

> have an appointment to talk with the liver doc on Monday.? His nurse called me

> yesterday and told me that the results did not show any autoimmune

> hepatitis.? The findings show alcoholic hehpatitis.? No. 1 I don't drink and

No. 2 does

> AIH just disapear?? I am very confused as I was diagnosed in Oct of 2003 and

> have been treated for this since then.? The biopsy shows acute fatty liver.?

> I am so confused and concerned.? I don't even know what questions to ask

> now.? I know that there is something going on and has been for a long time and

> now I don't have answers.? Has anyone gone through this?? I am just almost

> speechless.

>

>

>

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[Guest guest]

And even at that, the doctor must be the one to weigh various evidence --

symptoms, history, lab tests, biopsies, etc. -- and make decisions on that

over-all basis.

Harper

In a message dated 2/28/09 7:36:04 AM, scottgaulke@... writes:

> Yes, I would not listen to the nurse. The pathologist reads the tissue

> samples and they are the ones that report to your doctor.

>

> Best,

>

>

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[Guest guest]

Yes, I would not listen to the nurse. The pathologist reads the tissue samples

and they are the ones that report to your doctor.

Best,