Help!

[Guest guest]

,

I get that also. After a few days of that, then I also get pain going

down the outside of the leg about mid thigh to knee. I reverted back to

a cane on days that it happens. I have been getting deep tissue

massages on my back, neck, and on that leg in the upper part. I also

take 800 mg of Iburprophen along with my other meds when it acts up. A

hot bath helps some. There's not much else that I found to work other

than the massages. Good Luck this afternoon!

Theresa

[Guest guest]

Hi , I wonder if a cane & /or a leg brace would help?? Ken. Wagner <mscello@...> wrote: Has anyone with pretty bad flatback ever had pain at the top of the leg that makes the leg collapse? I'm getting this awful pain when walking and my leg starts to collapse and I almost fall. This is in the front of by body, not my back. I have to conduct at orchestra festival this afternoon and they sent me home from school because

I almost fell several times. The pain is very sharp and I can't figure out if it is hip, back or what? I can't get into the doctor until Monday (VA)

Don't be flakey. Get for Mobile and always stay connected to friends.

[Guest guest]

Hi , I have had the typr of leg pain you describe, though mine is in my hips and knees mostly. In my case it is muscular due to imbalance I have when I walk. It was so bad yesterday while in NY for my bloodwork I hardly could walk the short distances I was faced with. My energy level and stamina have rapidly decreased due to pain and a sedentary lifestyle. I've tried to stay off pain meds as much as possible. I can hardly wait for my surgery next Tuesday. Rob Theresa <tabd1@...> wrote: ,I get that also. After a few days of that, then I also get pain going down the outside of the leg about mid thigh to knee. I reverted back to a cane on days that it happens. I have been getting deep tissue massages on my back, neck, and on that leg in the upper part. I also take 800 mg of Iburprophen along with my other meds when it acts up. A hot bath helps some. There's not much else that I found to work other than the massages. Good Luck this afternoon!Theresa

The fish are biting.

Get more visitors on your site using Search Marketing.

[Guest guest]

I don't go anywhere without my cane, and am using an elastic knee brace and find that helps a little.Ken Leonard <kclnt777@...> wrote: Hi , I wonder if a cane & /or a leg brace would help?? Ken. Wagner <mscello> wrote: Has anyone with pretty bad flatback ever had pain at the

top of the leg that makes the leg collapse? I'm getting this awful pain when walking and my leg starts to collapse and I almost fall. This is in the front of by body, not my back. I have to conduct at orchestra festival this afternoon and they sent me home from school because I almost fell several times. The pain is very sharp and I can't figure out if it is hip, back or what? I can't get into the doctor until Monday (VA) Don't be flakey. Get for Mobile and

always stay connected to friends.

We won't tell. Get more on shows you hate to love(and love to hate): TV's Guilty Pleasures list.

[Guest guest]

,

I had a lot of hip and leg pain prior to my revision, and had that( leg falling out) feeling. I suggest a cane for stability at this point, it's what I went to.

[ ] Help!

Has anyone with pretty bad flatback ever had pain at the top of the leg that makes the leg collapse? I'm getting this awful pain when walking and my leg starts to collapse and I almost fall. This is in the front of by body, not my back. I have to conduct at orchestra festival this afternoon and they sent me home from school because I almost fell several times. The pain is very sharp and I can't figure out if it is hip, back or what?

I can't get into the doctor until Monday

(VA)

[Guest guest]

Hi ,

There is something called femoral nerve dysfunction that has to do with

the femoral nerve (which runs down in front of the hip joint) being

compressed or damaged. The link says one of the symptoms/signs is the

sudden giving way of the leg...with pain:

http://www.nlm.nih.gov/medlineplus/ency/article/000687.htm

(Click the embedded picture on the link to make it bigger)

Interesting too that one of the causes is laying in the position we are

all in during flatback surgery and then or course the flatback posture

we are constantly in prior to surgery. Go figure. Of course this is

just a wild guess...but I have had an " attack " now and then with the

sharp pain and feeling of the leg giving out after I have been in that

position for a long while and go to straighten out my legs and flex my

fix if I am stiff. I have assumed I have just pinched this nerve. I

have never had recurrent or " back to back " attacks as you describe.

I hope you figure it out. Sounds like if this is it, the sooner the

better.

Let us know what you find out. As I said, I am not a medical

professional and I really don't know anything!

Take Care, Cam

[Guest guest]

ok, so now I can post!

But still cannot access any attachments???

[Guest guest]

You may certainly apply for SSI, be sure to bring the psycholgists written report with you and be prepared to discuss how the Dx impairs your DS's ability to perform daily tasks. Approval, of course is up to the SSA.

Good Luck

Very truly yours; Todd B. KotlerDISCLAIMERThis e-mail contains information intended only for the use of the individual or entity named above. If the reader of this e-mail is not the intended recipient or the employee or agent responsible for delivering it to the intended recipient, any dissemination, publication or copying of this e-mail is strictly prohibited. The sender does not accept any responsibility for any loss, disruption or damage to your data or computer system that may occur while using data contained in, or transmitted with, this e-mail. If you have received this e-mail in error, please immediately notify us by return e-mail. Thank you.

-----Original Message-----From: [mailto: ]On Behalf Of Sent: Monday, May 07, 2007 8:50 PM Subject: ( ) HELP!

HI everyone! My name is . My 15 year old son, CJ, was diagnosed today with aspergers by the school psychotherapist. Im a bit mad at his ADHD dr and his psychologist becuz i have been telling them for months now that i think he has a form of autism...aspergers perhaps..and they kept saying no..that his actions/behavior is all "classic symptoms of adhd".I contacted the school and asked them to evaluate him becuz he claims he has probs in school with putting his thoughts down on paper. (his grades are quite low) But he is a VERY intelligent kid..always has been. So, i guess the next step is the school psychotherapist is going to talk with all of his teachers, and then she and i, and the school counselor are supposed to get together on the 22nd to fig out what we can do for him. (ex: changing classes)I guess im not sure what to do or what to ask. Am i able to sign him up for SSI? Can he get state help for medical insurance? We live in California..what other resources should i know about? Any help would be greatly appreciated!!Thanks!

[Guest guest]

You should request a full educational evaluation be done whether he is "very" intelligent or not.

RoxannaAutism Happens

( ) HELP!

HI everyone! My name is . My 15 year old son, CJ, was diagnosed today with aspergers by the school psychotherapist. Im a bit mad at his ADHD dr and his psychologist becuz i have been telling them for months now that i think he has a form of autism...aspergers perhaps..and they kept saying no..that his actions/behavior is all "classic symptoms of adhd".I contacted the school and asked them to evaluate him becuz he claims he has probs in school with putting his thoughts down on paper. (his grades are quite low) But he is a VERY intelligent kid..always has been. So, i guess the next step is the school psychotherapist is going to talk with all of his teachers, and then she and i, and the school counselor are supposed to get together on the 22nd to fig out what we can do for him. (ex: changing classes)I guess im not sure what to do or what to ask. Am i able to sign him up for SSI? Can he get state help for medical insurance? We live in California..what other resources should i know about? Any help would be greatly appreciated!!Thanks!

[Guest guest]

, my son was not diagnosed with Asperger's until he was fifteen

also. Where in California are you? I lived near sville, CA, and

they had a Community Advisory Committee that met once a month and

included parents. It is a good way to find out what is out there for

special needs kids. I would contact the school board and find out who

is in charge of their special needs programs etc... and pick their

brain. Also, I know there are companies like PRIDE that make it their

mission to find jobs for the handicapped. I used to work for them in

CA. I know it is frustrating to not have your son properly diagnosed,

but he is now, and you can move forward from here starting with an

IEP, then perhaps getting him some occupational therapy and other

types of treatments. Talk to the psychotherapist about what is

available. My son is in college right now, but this has been a tough

year for him. We moved the day after his high school graduation. Keep

us posted. He's always been extremely bright, too, but had problems at

time in school.......until one day he popped his head up out of his

groundhog hole, and it dawned on him that he would not graduate unless

he did better. Another story, though. Best of everything, Lori/TX

-- In , " " <Dancing-Bear@...> wrote:

>

> HI everyone! My name is . My 15 year old son, CJ, was diagnosed

> today with aspergers by the school psychotherapist. So, i guess the

next step is the school psychotherapist is going

> to talk with all of his teachers, and then she and i, and the school

> counselor are supposed to get together on the 22nd to fig out what we

> can do for him. (ex: changing classes)

> I guess im not sure what to do or what to ask. Am i able to sign him up

> for SSI? Can he get state help for medical insurance? We live in

> California..what other resources should i know about? Any help would be

> greatly appreciated!!

> Thanks!

>

>

[Guest guest]

HI Lori! I live in Huntington Beach, Ca. We have our first meeting

with the school on the 22nd. Are there certain questions I should

ask? The school basically told me that its too late in the school

year to change classes....he will be in summer school too. Ive never

heard of PRIDE..but will check the web for that...or anything

similar. I truly thank you and everyone else who has replied to my

post. Its good to definately have other people to turn to with

questions, who have gone thru, or possibly going thru the same

situation...thanks a bunch!!!

> >

> > HI everyone! My name is . My 15 year old son, CJ, was

diagnosed

> > today with aspergers by the school psychotherapist. So, i guess

the

> next step is the school psychotherapist is going

> > to talk with all of his teachers, and then she and i, and the

school

> > counselor are supposed to get together on the 22nd to fig out

what we

> > can do for him. (ex: changing classes)

> > I guess im not sure what to do or what to ask. Am i able to sign

him up

> > for SSI? Can he get state help for medical insurance? We live in

> > California..what other resources should i know about? Any help

would be

> > greatly appreciated!!

> > Thanks!

> >

> >

>

[Guest guest]

Hi, -- is this your first IEP? If yes, take a list with you of

the issues you want addressed for your son. What services you think he

needs, why, and take copies of assessments you've had done. Be ready to

negotiate, and keep in mind what is non-negotiable, and something you

might be able to do without. Being flexible to an extent is good, and

see what they are willing to offer maybe before you start in on your

list. In my most recent IEP, I was pleasantly surprised with what they

gave us, so I quietly put my list away as theirs was better.

It's never too late in the year to change classes if you really want

him to. FAPE means free "appropriate" public education. If he's being

harmed (educationally, even) in his current class, you can push for a

move at any point..but they do have time to take action so if they

really wanted to be a pain, they may actually be within the 30 days by

the time you have your IEP. They didn't want to move my son initially

because transition is hard on spectrum kids, and it meant only about 6

weeks in the new class, at the end of this year, but we were not going

to budge -- ds's situation at that time was deplorable, his teacher was

awful and no one was listening. In comes my attorney and my file of

documentation, and we got an immediate IEP. We're not out of the woods

yet, as we're still waiting on one last service to come through, but

the new class is wonderful and ds is happy. He's learning in a positive

environment and enjoying it, while still getting the other services he

needs. Changing late in the year does pose its own challenges, as it

can take up to 30 days to get kids set with the other providers..O.T.,

A.P.E., etc., but if you're willing to to understand that going in,

maybe you can use that as a bargaining tool.

Hope I'm not way off base...I've been away from my lists for the most

part recently and am sort of out of the loop.

Donna

wrote:

HI Lori! I live in Huntington Beach, Ca. We have our first meeting

with the school on the 22nd. Are there certain questions I should

ask? The school basically told me that its too late in the school

year to change classes....he will be in summer school too. Ive never

heard of PRIDE..but will check the web for that...or anything

similar. I truly thank you and everyone else who has replied to my

post. Its good to definately have other people to turn to with

questions, who have gone thru, or possibly going thru the same

situation...thanks a bunch!!!

> >

> > HI everyone! My name is . My 15 year old son, CJ, was

diagnosed

> > today with aspergers by the school psychotherapist. So, i

guess

the

> next step is the school psychotherapist is going

> > to talk with all of his teachers, and then she and i, and the

school

> > counselor are supposed to get together on the 22nd to fig out

what we

> > can do for him. (ex: changing classes)

> > I guess im not sure what to do or what to ask. Am i able to

sign

him up

> > for SSI? Can he get state help for medical insurance? We live

in

> > California..what other resources should i know about?

Any help

would be

> > greatly appreciated!!

> > Thanks!

> >

> >

>

[Guest guest]

Hi Donna, thanks for writing back. Yeah this will be the first

meeting with the psychotherapist/school. As of right now, my son

hasnt been Dx'd by a dr....only the school's pychotherapist. Ive been

telling the doctors/psychiatrist/counselors for the past 4-6 months

that i think my son has AS..but they said no, that it is ADHD. So,

technically he hasnt been diagnosed by an actual dr. the

psychotherapist is the one who told me that he has MANY symptoms of

AS. there is a place in Los Angeles that is specifically for autistic

children...thinking bout bringing him there to get him correctly

diagnosed. im not really sure what i want the school to do at this

meeting...except, somehow help my son to bring his grades up. (not

sure what this is going to entail)but luckily, its not til the 22nd,

so i have a bit more time to get info..and talk to my son and see

what he thinks might help.

thanks again for replying,

> > > >

> > > > HI everyone! My name is . My 15 year old son, CJ, was

> > diagnosed

> > > > today with aspergers by the school psychotherapist. So, i

guess

> > the

> > > next step is the school psychotherapist is going

> > > > to talk with all of his teachers, and then she and i, and the

> > school

> > > > counselor are supposed to get together on the 22nd to fig out

> > what we

> > > > can do for him. (ex: changing classes)

> > > > I guess im not sure what to do or what to ask. Am i able to

sign

> > him up

> > > > for SSI? Can he get state help for medical insurance? We live

in

> > > > California..what other resources should i know about? Any help

> > would be

> > > > greatly appreciated!!

> > > > Thanks!

> > > >

> > > >

> > >

> >

> >

>

[Guest guest]

,

My son, Luke (age 10), has medicaid. We applied through a program called TEFRA, which is based on the disability of the child and not on any income of the family. We applied and was approved within 4 weeks about a year and half ago. Even though Luke has Medicaid for the state of South Carolina, I think TEFRA is a federal program (not sure?). We also have primary insurance through my husband's job, then Medicaid is secondary. Medicaid either wants or requires (not sure?) us to keep the primary insurance and offers to pay for the primary insurance. We don't have it paid for us because we can't break out the portion for Luke. It just family coverage and we have another son.

Hope this helps.

Dana-- "Roxanna" <madideas@...> wrote:

You should request a full educational evaluation be done whether he is "very" intelligent or not.

RoxannaAutism Happens

( ) HELP!

HI everyone! My name is . My 15 year old son, CJ, was diagnosed today with aspergers by the school psychotherapist. Im a bit mad at his ADHD dr and his psychologist becuz i have been telling them for months now that i think he has a form of autism...aspergers perhaps..and they kept saying no..that his actions/behavior is all "classic symptoms of adhd".I contacted the school and asked them to evaluate him becuz he claims he has probs in school with putting his thoughts down on paper. (his grades are quite low) But he is a VERY intelligent kid..always has been. So, i guess the next step is the school psychotherapist is going to talk with all of his teachers, and then she and i, and the school counselor are supposed to get together on the 22nd to fig out what we can do for him. (ex: changing classes)I guess im not sure what to do or what to ask. Am i able to sign him up for SSI? Can he get state help for medical insurance? We live in California..what other resources should i know about? Any help would be greatly appreciated!!Thanks!

[Guest guest]

Hi,

That is good the school is willing to do more without a diagnosis. (Not

even the school psychotherapist can technically dx -- they can only say

'autistic-like symptoms' and other similar things.) You may not even

need a full dx then, if you are already getting the services you need.

UCLA will do the dx process, but it costs approx. $2500. If you're in

California, you should try the Regional Center first, but the dx has to

be autism, not Asperger's or PDD, from what I've been told and heard.

They will dx, but if they don't find it to be autism, you won't

necessarily be taken on as a client. I went in with an official dx, and

they completed their half and he got another autism dx from them, too.

I've had good luck with them, but all counties are a bit different.

Out of curiosity, what signs do you have that your son's got autism and

not ADHD?

Donna

wrote:

Hi Donna, thanks for writing back. Yeah this will be the first

meeting with the psychotherapist/school. As of right now, my son

hasnt been Dx'd by a dr....only the school's pychotherapist. Ive been

telling the doctors/psychiatrist/counselors for the past 4-6

months

that i think my son has AS..but they said no, that it is ADHD. So,

technically he hasnt been diagnosed by an actual dr. the

psychotherapist is the one who told me that he has MANY symptoms of

AS. there is a place in Los Angeles that is specifically for autistic

children...thinking bout bringing him there to get him correctly

diagnosed. im not really sure what i want the school to do at this

meeting...except, somehow help my son to bring his grades up. (not

sure what this is going to entail)but luckily, its not til the 22nd,

so i have a bit more time to get info..and talk to my son and see

what he thinks might help.

thanks again for replying,

[Guest guest]

, Be sure to take a tape recorder with you. They will tell you that you can't record but the law says you can. Just tell them it is for your memory. If you can.....take your husband or a friend with you. The more on your side the better. They WILL have you out numbered. It is never too late to have an IEP meeting or to change classes, etc. You do not have to wait until next year for anything. It is sad to say but they will tell you NO we can not or NO we have never throughout the meeting. These are just bully tactics. Said with a smile and sweet voice on their part. Stick to what you know. Go to the s Law site and there are also lots of suggestions for reasonable accommodations for our kids in the aspie web sites. Do not let them tell you know if you child needs it.

Definitely go to the site you were given that lists all the advocates by state.

Good luck.

[Guest guest]

Donna,

the symptoms he has are:

he lacks empathy towards others. he is very preoccupied with few

interests (ex: video games/learning japanese, anime/weapons), he will

talk for a great deal of time on one subject. (i once asked him what

a book was about that he had read...he went on for an hour telling me

all about the book..by the time he was done, i felt i didnt need to

read it), he doesnt care about how he looks, or how others perceive

him....his hygiene habits suck ( he will go a month without showering

if i dont tell him to shower), he talks in monotone voice, and

sometimes when answering a question in a sing-song voice, he has good

vocabulary and uses large words, when talking to him about greek

gods, or history he knows ALOT about it, he does have an aggressive

behavior (he has been expelled from school for biting a girl cuz she

took his milk, and also for punching a student..has also been

arrested for the latter), he has a weird fascination with weapons (he

has been known to build his own weapons, even if it means taking

apart my kitchen appliances to get blades), he threatens to kill his

sister when he is very upset, he purposely likes to make people mad.

(he knows his siter hates whistling...so when he is bored, he will

whistle until she freaks out and starts shrieking..then he thinks it

is funny). he has horrible time management skills. He claims school

is pointless and homework is just busy work. (claims the homework is

too easy, so he doesnt bother doing it) And lastly, sometimes he has

problems sleeping. Bedtime for both kids is at 9pm...but i allow them

to use their reading lights to read before going to sleep. However,

my son will stay away til 1 or 2 in the morning reading., cuz he cant

sleep.

Last night, he was sitting in the room with me..i was playing on the

computer, and he was listening to his ipod..(japanese music) and

singing along with it..monotone...it took everything i could muster

to not freak out...it drives me nuts!

As far as the UCLA dx...umm YIKES! thats a bit much, considering i

was let go from my work last month, and am still unemployed. so

paying that much for a dx is out of the question. Also, my health

insurance ran out last month also. trying to get both my kids healthy

families...hoping to hear something by next week. (crosses fingers) I

had Kaiser Permanente for health insurance..and their doctors suck.

(majorly!) My son was dx'd with adhd the second he walked into the

dr's office, only cuz he was looking around the room and not paying

attention to the dr. (my son has been on 120 mg of adderall at one

time and it still was not helping) the dr had told us that in all the

years that he had been practicing medicine, he has never had a

patient on that high of a disage. (wonderful!!!) the last time we

went to the dr (a few months ago), he said he didnt know what else to

do for my son. (atleast he was honest)..he also said that my son

might be bi-polar. (dam doctors...whats with the guessing game?)

I checked out wrightslaw.com...lots of info there...i guess once i go

to the meeting on the 22nd, then ill find out what the school is

going to do/offer. i just want my son to be able to graduate with his

class. am i asking too much?

> >

> > Hi Donna, thanks for writing back. Yeah this will be the first

> > meeting with the psychotherapist/school. As of right now, my son

> > hasnt been Dx'd by a dr....only the school's pychotherapist. Ive

been

> > telling the doctors/psychiatrist/counselors for the past 4-6

months

> > that i think my son has AS..but they said no, that it is ADHD. So,

> > technically he hasnt been diagnosed by an actual dr. the

> > psychotherapist is the one who told me that he has MANY symptoms

of

> > AS. there is a place in Los Angeles that is specifically for

autistic

> > children...thinking bout bringing him there to get him correctly

> > diagnosed. im not really sure what i want the school to do at this

> > meeting...except, somehow help my son to bring his grades up. (not

> > sure what this is going to entail)but luckily, its not til the

22nd,

> > so i have a bit more time to get info..and talk to my son and see

> > what he thinks might help.

> > thanks again for replying,

> >

> >

>

[Guest guest]

, When you described your son I thought you had been a fly on the wall at MY house. Preston has a younger sister that he treats and says the exact same things to. Poor girls. Every single things was exact except the sleeping. Preston's meds made him so tired you are lucky to get him to stay up till 8PM.

My child is also PB. If you ever want to know our experiences, etc. just email me privately.

in Georgiamom to Preston with Ice, SD

www.dogster.com/?411262

[Guest guest]

HAHA ..I was a fly in ur house...by the way, when you were

vacuuming the other day, you missed a spot:)

I think i also might have failed to mention that my son is teaching

himself to speak japanese. (he reads the english to japanese

dictionary) (he is failing engligh and spanish tho)..HAHA....

What is PB?

>

> , When you described your son I thought you had been a fly on

the wall at MY house. Preston has a younger sister that he treats

and says the exact same things to. Poor girls. Every single things

was exact except the sleeping. Preston's meds made him so tired you

are lucky to get him to stay up till 8PM.

> My child is also PB. If you ever want to know our experiences,

etc. just email me privately.

> in Georgia

> mom to Preston with Ice, SD

> www.dogster.com/?411262

>

[Guest guest]

, I live in Atlanta. My son is the process of being diagnosed with Aspergers. Can you please send information for the Ga. group. I'm not at all informed on what is out there to help our child and family.

Thanks

-- Re: ( ) Re: HELP!

, Be sure to take a tape recorder with you. They will tell you that you can't record but the law says you can. Just tell them it is for your memory. If you can.....take your husband or a friend with you. The more on your side the better. They WILL have you out numbered. It is never too late to have an IEP meeting or to change classes, etc. You do not have to wait until next year for anything. It is sad to say but they will tell you NO we can not or NO we have never throughout the meeting. These are just bully tactics. Said with a smile and sweet voice on their part. Stick to what you know. Go to the s Law site and there are also lots of suggestions for reasonable accommodations for our kids in the aspie web sites. Do not let them tell you know if you child needs it.

Definitely go to the site you were given that lists all the advocates by state.

Good luck.

[Guest guest]

Hey . I sent you this info but I wanted to ask where in Atlanta. We are in Forsyth County. There is another that I know of in Cherokee County.

Re: ( ) Re: HELP!

, Be sure to take a tape recorder with you. They will tell you that you can't record but the law says you can. Just tell them it is for your memory. If you can.....take your husband or a friend with you. The more on your side the better. They WILL have you out numbered. It is never too late to have an IEP meeting or to change classes, etc. You do not have to wait until next year for anything. It is sad to say but they will tell you NO we can not or NO we have never throughout the meeting. These are just bully tactics. Said with a smile and sweet voice on their part. Stick to what you know. Go to the s Law site and there are also lots of suggestions for reasonable accommodations for our kids in the aspie web sites. Do not let them tell you know if you child needs it.

Definitely go to the site you were given that lists all the advocates by state.

Good luck.

[Guest guest]

LOL!!! There was more than just one spot.

BP stands for bipolar. When Preston was in 5th grade (I homeschooled him 4th & 5th grade) our pediatrician got tired of me telling him that Preston was getting more and more depressed. He told me to take him to a psychiatrist. There are not a lot of those around (for kids) and the one I went to gave him effexor. It did not fix him....he flipped out. I had to lock him out of the house to protect us while I called Steve to come home. He was running up and down the street like a mad man telling everyone that he was going to get a gun & kill everyone. If I stepped outside he threw rocks at me. We took him to Laurelwood in Gainesville. They did not do a whole lot so after a few days they released him. The damage was done. He was bipolar, drug induced instead of stress induced. I don't think that would have happened if he had not been predisposed for it. Both my kids were adopted at birth so we do not know if this was in his biological family or not.

Sorry. Waaaay too much information. You need to concentrate on the asperger & get thru this IEP.

After your IEP is over and you still want to know about what to look for, let me know. It is not uncommon for kids to have more than one thing going on in the brain. Isn't that just great? You can't just have ONE MI ya gotta have at least 2.

Take care.

( ) Re: HELP!

HAHA ..I was a fly in ur house...by the way, when you were vacuuming the other day, you missed a spot:)I think i also might have failed to mention that my son is teaching himself to speak japanese. (he reads the english to japanese dictionary) (he is failing engligh and spanish tho)..HAHA....What is PB?>> , When you described your son I thought you had been a fly on the wall at MY house. Preston has a younger sister that he treats and says the exact same things to. Poor girls. Every single things was exact except the sleeping. Preston's meds made him so tired you are lucky to get him to stay up till 8PM.> My child is also PB. If you ever want to know our experiences, etc. just email me privately.> in Georgia> mom to Preston with Ice, SD> www.dogster.com/?411262>

[Guest guest]

Hi Steve, real sorry to hear of this. I hope someone here can answer

your post properly by suggesting something that will give you at least

a temporary quick fix.

I only know that it takes time to heal and most of us are in it for hte

long haul.

CAndida with me stopped many things from functioning and included

slowing down circulation and preventing a lot of nutrient intake. In

doing that, anything can happen. You will need to get on the candida

diet for your first and main stage of healing. This is where it pretty

much starts. I believe every else to the diet is an aid to the

process, but only the body can recover given the right stuff.

You will need to oust sugar completely from your diet in ALL forms.

having bits here and there will not do. It takes complete elimination

in order for things to begin happening. This means no sugar, honey,

fruit, milk (lactose is natural sugar). Also you'll need to cut out

grains and other high carb foods/vegetables.

The main part of a candida diet consists of all meats like chicken,

beff, liver, lamb, bacon, eggs, and vegetables. You can eat all

vegetables, you'll need to limit or preferably eliminate the high carb

ones like potatoes, corn, beans, peas, etc.

You should also consume plenty of healthy fats, especially with what

you are experiencing. They help the healing process. Butter, extra

virgin olive oil, cod liver oil (mercury free) are excellent examples.

The cod liver oil has vitamin A and D and will help with your bones,

plus aid mineral absorption. It's a bit like oiling your joints from

the inside.

You'd be wise to take a magnesium and calcium supplement also. But as

I am no expert, I'd await someone more up on this than me to give

better help. But certainly the diet and basic supplements I mentioned,

plus vitamin C and E and selenium also help.

Sorry i cannot be of more aid to you with what you are experiencing

right now. Hope someone else can.

> I just joined your group for fear I am suffering(put mildly) of

systemic Candidiasis. I have acquired a severe autoimmune response and

am in terrible joint pain with swelling. I cannot even close my hands

to make a fist. Is there anything I can do immediately to get some

relief without going to the hospital. I have already seen my doctor and

he is running blood tests. advil is keeping me from losing my mind.

Help Steve Henry Mason City, Illinois

>

>

[Guest guest]

Hi ,

Sorry it has taken me time getting back. Weekends are always hectic. Thank you for answering!!!! We live in East Cobb. A friend of mine has a daughter with mild to moderate Autism. She says we should go to Children's of Atlanta. Some tell us to remain in Public Schools. This friend of mine said that Cobb Co. is horrible with provision for special needs children. I have no clue what he will qualify for. I'm going into this blind. I found a school close to us in Roswell that sounds like a possible fit. We visit next Wednesday. It's called The Portor School. We have no clue what to do. I do know my son is very unhappy in groups. He once had great social skills. He had friends. In the last few months he has taken a terrible turn. He just cannot be in social situations. Sometimes he does ok. Other times.....forget it. Non of his old friends want to play with him. They don't engage him at anymore. They ask why he acts the way he does. He wants to control the conversations around Pokemon, his latest obsession. If they try and change the topic, he screams they are interrupting him. He misinterprets others actions. If someone is trying to help him get a toy that is stuck, he screams they took his toy from him. He can't be at church right now. He says he hates his life. We've tried all we can based on the diagnosis of ADHD. But, his symptoms have only gotten worse with time. He'll be 8 June 1. He attends a social skills group once a week. It is NOT enough. He is on Ritalin and Lexapro, they are NOT enough. While they allow him to focus and slow down. They do nothing to help him with sound sensitivity. Nothing for social skills. Nothing for keeping him organized. The up side is he is doing great academically. He made it through the school year with good grades. Everything else is in serious question though. So....we are clueless at this point.

-- Re: ( ) Re: HELP!

Hey . I sent you this info but I wanted to ask where in Atlanta. We are in Forsyth County. There is another that I know of in Cherokee County.

Re: ( ) Re: HELP!

, Be sure to take a tape recorder with you. They will tell you that you can't record but the law says you can. Just tell them it is for your memory. If you can.....take your husband or a friend with you. The more on your side the better. They WILL have you out numbered. It is never too late to have an IEP meeting or to change classes, etc. You do not have to wait until next year for anything. It is sad to say but they will tell you NO we can not or NO we have never throughout the meeting. These are just bully tactics. Said with a smile and sweet voice on their part. Stick to what you know. Go to the s Law site and there are also lots of suggestions for reasonable accommodations for our kids in the aspie web sites. Do not let them tell you know if you child needs it.

Definitely go to the site you were given that lists all the advocates by state.

Good luck.

[Guest guest]

I'm sorry you are having trouble. It sounds like you need a GOOD psychologist to help figure out what is going on with him. Only then can a psychiatrist help with the meds. Join the network list and ask about the school, the county, everything. I know people live in your area and are in the know. This will be a great resource for you.

There are not that many Dr.'s that can diag. asperger. Don't give up. Another thing is that as your child grows up, he will change and diag. can change or things be added on. A lot of things can't be officially diag. when they are young.

Keep in touch.

Re: ( ) Re: HELP!

, Be sure to take a tape recorder with you. They will tell you that you can't record but the law says you can. Just tell them it is for your memory. If you can.....take your husband or a friend with you. The more on your side the better. They WILL have you out numbered. It is never too late to have an IEP meeting or to change classes, etc. You do not have to wait until next year for anything. It is sad to say but they will tell you NO we can not or NO we have never throughout the meeting. These are just bully tactics. Said with a smile and sweet voice on their part. Stick to what you know. Go to the s Law site and there are also lots of suggestions for reasonable accommodations for our kids in the aspie web sites. Do not let them tell you know if you child needs it.

Definitely go to the site you were given that lists all the advocates by state.

Good luck.