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I'm in Canton and didn't know there is a Ga. group. Can I have the

info too? Thanks

Ian-10 AS

>

> Hey . I sent you this info but I wanted to ask where in

Atlanta. We are in Forsyth County. There is another that I know of

in Cherokee County.

>

>

>

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, I sent you the information off list. Let me know if you get it.

( ) Re: HELP!

I'm in Canton and didn't know there is a Ga. group. Can I have theinfo too? Thanks Ian-10 AS>> Hey . I sent you this info but I wanted to ask where inAtlanta. We are in Forsyth County. There is another that I know ofin Cherokee County.> > >

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,

Have you heard anything about the Porter School in Roswell? We are going to look at it on Wednesday.

-- Re: ( ) Re: HELP!

, I sent you the information off list. Let me know if you get it.

( ) Re: HELP!

I'm in Canton and didn't know there is a Ga. group. Can I have theinfo too? Thanks Ian-10 AS>> Hey . I sent you this info but I wanted to ask where inAtlanta. We are in Forsyth County. There is another that I know ofin Cherokee County.> > >

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Hi, -- what kind of doctors did you see for a dx? That sounds

like more than ADHD to me. Ped. neuros can be good, developmental

peds/neuros, too, so if healthy families kicks in, maybe you can look

for one? Some doctors are more apt to dx than others, but you need one

versed in autism who is willing to really observe. If I were you

though, I'd contact the Regional Center. It's free. Your

income/insurance doesn't play into the decision about treatment/dx.

(The only time it does is that you may have to pay a percentage of your

respite hours, or camp, but to avoid that, you just cut back on the

hours/camp that percentage -- though it doesn't sound like it'd even be

a worry to you, as you're unemployed.)

I didn't go to UCLA either. $2500 is out of the question.

For your meeting, check out the state ed code. Regional Center would

give you a big packet of stuff, one of them being your child's rights

in school. http://www.pai-ca.org/pubs/504001SpecEdIndex.htm That is it

online. That and wrightslaw are wonderful. List what things you want

your child to have -- you need to know prior what is available, just in

case they offer you less. If you think he needs O.T., ask for it. Same

with speech -- if he perseverates, he may. If you think he needs

behavioral help, ask. You have to go with some expectations and reasons

to enforce them. They need to know exactly why these services are

necessary, and they can do assessments. If you disagree with their

assessments, you may have to push harder but take any/all documentation

with you to back up your claims, including copies of troublesome

incidents in school.

For example, my son displayed a severe lack of self-control in his old

class. (The teacher of course denied telling me this, when we got to

our IEP. Document, document, document. I track each/every day of

school, what happened, etc. It will not happen to me again.) When we

got to the IEP and they didn't offer behavioral help, I pulled out the

documents showing his problems, and I pulled out my log. I also pulled

out an autism dx description to show this is part of autism, and that

it wasn't willful behavior on his part. We then got more behavioral

help. Unfortunately, you often have to play the game.

Good luck to you -- one BIG thing to remember? If you aren't 100%

satisfied with the IEP, don't sign in. Take it home, think about it,

and contact them with your further modifications or a signature only

later on. Once it's signed, it's harder to go back and make changes. It

requires a whole new meeting.

Donna

wrote:

Donna,

the symptoms he has are:

he lacks empathy towards others. he is very preoccupied with few

interests (ex: video games/learning japanese, anime/weapons), he

will

talk for a great deal of time on one subject. (i once asked him what

a book was about that he had read...he went on for an hour telling me

all about the book..by the time he was done, i felt i didnt need to

read it), he doesnt care about how he looks, or how others perceive

him....his hygiene habits suck ( he will go a month without showering

if i dont tell him to shower), he talks in monotone voice, and

sometimes when answering a question in a sing-song voice, he has good

vocabulary and uses large words, when talking to him about greek

gods, or history he knows ALOT about it, he does have an aggressive

behavior (he has been expelled from school for biting a girl cuz she

took his milk, and also for punching a student..has also been

arrested for the latter), he has a weird fascination with weapons (he

has been known to build his own weapons, even if it means taking

apart my kitchen appliances to get blades), he threatens to kill his

sister when he is very upset, he purposely likes to make people mad.

(he knows his siter hates whistling...so when he is bored, he will

whistle until she freaks out and starts shrieking..then he thinks it

is funny). he has horrible time management skills. He claims school

is pointless and homework is just busy work. (claims the homework is

too easy, so he doesnt bother doing it) And lastly, sometimes he has

problems sleeping. Bedtime for both kids is at 9pm...but i allow them

to use their reading lights to read before going to sleep. However,

my son will stay away til 1 or 2 in the morning reading., cuz he cant

sleep.

Last night, he was sitting in the room with me..i was playing on the

computer, and he was listening to his ipod..(japanese music) and

singing along with it..monotone...it took everything i could

muster

to not freak out...it drives me nuts!

As far as the UCLA dx...umm YIKES! thats a bit much, considering i

was let go from my work last month, and am still unemployed. so

paying that much for a dx is out of the question. Also, my health

insurance ran out last month also. trying to get both my kids healthy

families...hoping to hear something by next week. (crosses fingers) I

had Kaiser Permanente for health insurance..and their doctors suck.

(majorly!) My son was dx'd with adhd the second he walked into the

dr's office, only cuz he was looking around the room and not paying

attention to the dr. (my son has been on 120 mg of adderall at one

time and it still was not helping) the dr had told us that in all the

years that he had been practicing medicine, he has never had a

patient on that high of a disage. (wonderful!!!) the last time we

went to the dr (a few months ago), he said he didnt know what else to

do for my son. (atleast he was honest)..he also said that my son

might be bi-polar. (dam doctors...whats with the guessing game?)

I checked out wrightslaw.com...lots of info there...i guess once i

go

to the meeting on the 22nd, then ill find out what the school is

going to do/offer. i just want my son to be able to graduate with his

class. am i asking too much?

> >

> > Hi Donna, thanks for writing back. Yeah this will be the first

> > meeting with the psychotherapist/school. As of right

now, my son

> > hasnt been Dx'd by a dr....only the school's pychotherapist.

Ive

been

> > telling the doctors/psychiatrist/counselors for the past

4-6

months

> > that i think my son has AS..but they said no, that it is

ADHD. So,

> > technically he hasnt been diagnosed by an actual dr. the

> > psychotherapist is the one who told me that he has MANY

symptoms

of

> > AS. there is a place in Los Angeles that is specifically for

autistic

> > children...thinking bout bringing him there to get him

correctly

> > diagnosed. im not really sure what i want the school to do at

this

> > meeting...except, somehow help my son to bring his grades up.

(not

> > sure what this is going to entail)but luckily, its not til

the

22nd,

> > so i have a bit more time to get info..and talk to my son and

see

> > what he thinks might help.

> > thanks again for replying,

> >

> >

>

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No, I have not. I'll ask the list here if anyone has heard of them.

( ) Re: HELP!

I'm in Canton and didn't know there is a Ga. group. Can I have theinfo too? Thanks Ian-10 AS>> Hey . I sent you this info but I wanted to ask where inAtlanta. We are in Forsyth County. There is another that I know ofin Cherokee County.> > >

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Thanks . :o) We did get the final diagnosis yesterday. He goes to see the child psychiatrist today. He is so hurt that children who use to be his friends, are no longer. At the beginning of the year his social skills were....."ok." He is non-functioning now. It is very difficult for him to understand. He sees the world as dark right now. That is so hard for children. Because they have an inability to understand things will get better.

So, we are looking at a medication change. I've been reading the posts about Riperdal (sp). A mood stabilizer is something he needs. Side effects worry me a lot. Any suggestions on what has worked for their child???

-- Re: ( ) Re: HELP!

No, I have not. I'll ask the list here if anyone has heard of them.

( ) Re: HELP!

I'm in Canton and didn't know there is a Ga. group. Can I have theinfo too? Thanks Ian-10 AS>> Hey . I sent you this info but I wanted to ask where inAtlanta. We are in Forsyth County. There is another that I know ofin Cherokee County.> > >

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Thanks ,

We are going to try Montgomery. He has an Asperger's Clinic at Reinforcement Unlimited.

-- Re: ( ) Re: HELP!

I'm sorry you are having trouble. It sounds like you need a GOOD psychologist to help figure out what is going on with him. Only then can a psychiatrist help with the meds. Join the network list and ask about the school, the county, everything. I know people live in your area and are in the know. This will be a great resource for you.

There are not that many Dr.'s that can diag. asperger. Don't give up. Another thing is that as your child grows up, he will change and diag. can change or things be added on. A lot of things can't be officially diag. when they are young.

Keep in touch.

Re: ( ) Re: HELP!

, Be sure to take a tape recorder with you. They will tell you that you can't record but the law says you can. Just tell them it is for your memory. If you can.....take your husband or a friend with you. The more on your side the better. They WILL have you out numbered. It is never too late to have an IEP meeting or to change classes, etc. You do not have to wait until next year for anything. It is sad to say but they will tell you NO we can not or NO we have never throughout the meeting. These are just bully tactics. Said with a smile and sweet voice on their part. Stick to what you know. Go to the s Law site and there are also lots of suggestions for reasonable accommodations for our kids in the aspie web sites. Do not let them tell you know if you child needs it.

Definitely go to the site you were given that lists all the advocates by state.

Good luck.

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, I have not heard anything about the Porter school.

Glad to hear that you finally have an official diag. Remember that they should be re-evaluated every 3years or so.

Sorry to hear that your son is down. Preston is on Risperdal. Our problem with it is the weight gain. Two of his meds cause him to be HUNGRY. Then his OCD kicks in and he obsesses about food. He has gained a huge amount of weight. He was always the skinny, skinny kid and now......nothing skinny about him.

Keep us informed on how ya'll are doing.

mom to Preston

( ) Re: HELP!

I'm in Canton and didn't know there is a Ga. group. Can I have theinfo too? Thanks Ian-10 AS>> Hey . I sent you this info but I wanted to ask where inAtlanta. We are in Forsyth County. There is another that I know ofin Cherokee County.> > >

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Where is Reinforcement Unlimited? Never heard of this. Can you tell me about it?

Re: ( ) Re: HELP!

, Be sure to take a tape recorder with you. They will tell you that you can't record but the law says you can. Just tell them it is for your memory. If you can.....take your husband or a friend with you. The more on your side the better. They WILL have you out numbered. It is never too late to have an IEP meeting or to change classes, etc. You do not have to wait until next year for anything. It is sad to say but they will tell you NO we can not or NO we have never throughout the meeting. These are just bully tactics. Said with a smile and sweet voice on their part. Stick to what you know. Go to the s Law site and there are also lots of suggestions for reasonable accommodations for our kids in the aspie web sites. Do not let them tell you know if you child needs it.

Definitely go to the site you were given that lists all the advocates by state.

Good luck.

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Hi , Reinforcement Unlimited is headed by Dr. Montgomery.

http://www.behavior-consultant.com/

They have a Aspergers Clinic and a Autism Clinic. They are located in Woodstock. He comes highly recommended by our Developmental Pediatrician. They have a lot to offer. This is where we will begin. They provide lots of different services.

Sincerely,

-- Re: ( ) Re: HELP!

Where is Reinforcement Unlimited? Never heard of this. Can you tell me about it?

Re: ( ) Re: HELP!

, Be sure to take a tape recorder with you. They will tell you that you can't record but the law says you can. Just tell them it is for your memory. If you can.....take your husband or a friend with you. The more on your side the better. They WILL have you out numbered. It is never too late to have an IEP meeting or to change classes, etc. You do not have to wait until next year for anything. It is sad to say but they will tell you NO we can not or NO we have never throughout the meeting. These are just bully tactics. Said with a smile and sweet voice on their part. Stick to what you know. Go to the s Law site and there are also lots of suggestions for reasonable accommodations for our kids in the aspie web sites. Do not let them tell you know if you child needs it.

Definitely go to the site you were given that lists all the advocates by state.

Good luck.

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is my little stick. He is skinny like I was. If anything he needs to gain weight. They may try Risperdal for my son. I think I'm going to start a journal as soon as begins treatment. Hopefully, I can track what works and what doesn't. So, we'll see. I do love hearing all the stories everyone shares here. This is a very nice group.

-- Re: ( ) Re: HELP!

, I have not heard anything about the Porter school.

Glad to hear that you finally have an official diag. Remember that they should be re-evaluated every 3years or so.

Sorry to hear that your son is down. Preston is on Risperdal. Our problem with it is the weight gain. Two of his meds cause him to be HUNGRY. Then his OCD kicks in and he obsesses about food. He has gained a huge amount of weight. He was always the skinny, skinny kid and now......nothing skinny about him.

Keep us informed on how ya'll are doing.

mom to Preston

( ) Re: HELP!

I'm in Canton and didn't know there is a Ga. group. Can I have theinfo too? Thanks Ian-10 AS>> Hey . I sent you this info but I wanted to ask where inAtlanta. We are in Forsyth County. There is another that I know ofin Cherokee County.> > >

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I have this same joint pain also. How did you come up with " autioimmune

response? " My fingers are feeling better, my worst pain now is in my hip joint

area. I drive about two hours a day to work and back and sometimes the pain is

so bad I have to pull over and get out of my car for a few minutes!! I am taking

glcosamane w/condroiton and tylenol for the pain...don't know what else to do

either. I have wondered if maybe I am developing some type of arthritis (sp?)

or something!!!!!

" Steve D. Henry " <zoom@...> wrote: I just joined your group

for fear I am suffering(put mildly) of systemic Candidiasis. I have acquired a

severe autoimmune response and am in terrible joint pain with swelling. I cannot

even close my hands to make a fist. Is there anything I can do immediately to

get some relief without going to the hospital. I have already seen my doctor and

he is running blood tests. advil is keeping me from losing my mind. Help Steve

Henry Mason City, Illinois

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Are you taking MSM? It helped my father (74 years old) and his joints a

lot.

Keen

Re: Help!

I have this same joint pain also. How did you come up with " autioimmune

response? " My fingers are feeling better, my worst pain now is in my

hip joint area. I drive about two hours a day to work and back and

sometimes the pain is so bad I have to pull over and get out of my car

for a few minutes!! I am taking glcosamane w/condroiton and tylenol for

the pain...don't know what else to do either. I have wondered if maybe

I am developing some type of arthritis (sp?) or something!!!!!

" Steve D. Henry " <zoom@...> wrote: I just joined

your group for fear I am suffering(put mildly) of systemic Candidiasis.

I have acquired a severe autoimmune response and am in terrible joint

pain with swelling. I cannot even close my hands to make a fist. Is

there anything I can do immediately to get some relief without going to

the hospital. I have already seen my doctor and he is running blood

tests. advil is keeping me from losing my mind. Help Steve Henry Mason

City, Illinois

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, Did you know your computer sent 2 emails with the HELP in the subject line like this email but also had an attachment?

Re: ( ) Re: HELP!

, Be sure to take a tape recorder with you. They will tell you that you can't record but the law says you can. Just tell them it is for your memory. If you can.....take your husband or a friend with you. The more on your side the better. They WILL have you out numbered. It is never too late to have an IEP meeting or to change classes, etc. You do not have to wait until next year for anything. It is sad to say but they will tell you NO we can not or NO we have never throughout the meeting. These are just bully tactics. Said with a smile and sweet voice on their part. Stick to what you know. Go to the s Law site and there are also lots of suggestions for reasonable accommodations for our kids in the aspie web sites. Do not let them tell you know if you child needs it.

Definitely go to the site you were given that lists all the advocates by state.

Good luck.

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I would also try the Blockbuster All Clear and fish oil caps for the

inflammation. Both of these have trmendously helped me. I love that Blockbuster

stuff!

W

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Sorry about that !!!! I didn't know. I will look more carefully.

Sincerely,

-- Re: ( ) Re: HELP!

, Did you know your computer sent 2 emails with the HELP in the subject line like this email but also had an attachment?

Re: ( ) Re: HELP!

, Be sure to take a tape recorder with you. They will tell you that you can't record but the law says you can. Just tell them it is for your memory. If you can.....take your husband or a friend with you. The more on your side the better. They WILL have you out numbered. It is never too late to have an IEP meeting or to change classes, etc. You do not have to wait until next year for anything. It is sad to say but they will tell you NO we can not or NO we have never throughout the meeting. These are just bully tactics. Said with a smile and sweet voice on their part. Stick to what you know. Go to the s Law site and there are also lots of suggestions for reasonable accommodations for our kids in the aspie web sites. Do not let them tell you know if you child needs it.

Definitely go to the site you were given that lists all the advocates by state.

Good luck.

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Hey , Did you ever find the Ga network group? Hope everything is going OK for ya.

mom to Preston

Re: ( ) Re: HELP!

, Be sure to take a tape recorder with you. They will tell you that you can't record but the law says you can. Just tell them it is for your memory. If you can.....take your husband or a friend with you. The more on your side the better. They WILL have you out numbered. It is never too late to have an IEP meeting or to change classes, etc. You do not have to wait until next year for anything. It is sad to say but they will tell you NO we can not or NO we have never throughout the meeting. These are just bully tactics. Said with a smile and sweet voice on their part. Stick to what you know. Go to the s Law site and there are also lots of suggestions for reasonable accommodations for our kids in the aspie web sites. Do not let them tell you know if you child needs it.

Definitely go to the site you were given that lists all the advocates by state.

Good luck.

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Hi ,

Yes, I did. Thank you so much.

I have a question for everyone. My son's Child Psychiatrist wants us to put him in an outpatient program at Ridgeview for 2 weeks. Has anyone else had this advice? He has AS. He's not violent. Happy when he's home and comfy. He just melts at school or other places.Is this too drastic? Or, will it help? They have an Asperger's group there. He would only be there 2 weeks.

-- Re: ( ) Re: HELP!

Hey , Did you ever find the Ga network group? Hope everything is going OK for ya.

mom to Preston

Re: ( ) Re: HELP!

, Be sure to take a tape recorder with you. They will tell you that you can't record but the law says you can. Just tell them it is for your memory. If you can.....take your husband or a friend with you. The more on your side the better. They WILL have you out numbered. It is never too late to have an IEP meeting or to change classes, etc. You do not have to wait until next year for anything. It is sad to say but they will tell you NO we can not or NO we have never throughout the meeting. These are just bully tactics. Said with a smile and sweet voice on their part. Stick to what you know. Go to the s Law site and there are also lots of suggestions for reasonable accommodations for our kids in the aspie web sites. Do not let them tell you know if you child needs it.

Definitely go to the site you were given that lists all the advocates by state.

Good luck.

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, Ask the local group. The 'other' on the list has just finished this day program....I think.

Re: ( ) Re: HELP!

, Be sure to take a tape recorder with you. They will tell you that you can't record but the law says you can. Just tell them it is for your memory. If you can.....take your husband or a friend with you. The more on your side the better. They WILL have you out numbered. It is never too late to have an IEP meeting or to change classes, etc. You do not have to wait until next year for anything. It is sad to say but they will tell you NO we can not or NO we have never throughout the meeting. These are just bully tactics. Said with a smile and sweet voice on their part. Stick to what you know. Go to the s Law site and there are also lots of suggestions for reasonable accommodations for our kids in the aspie web sites. Do not let them tell you know if you child needs it.

Definitely go to the site you were given that lists all the advocates by state.

Good luck.

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Not Dana here, but comments interspersed.

S S

<p>Dana,<br>

<br>

My son has come down with a serious virus after the last two rounds of<br>

IV chelation. The first time I was willing to think it might just be<br>

coincidence, but two times in a row and I'm not buying coincidence. I<br>

don't plan to do this form of chelation again

*Good.

-- needless to say, but<br>

can you give me some idea of what is going on here?

*Too much chelator too infrequently causes redistribution into the brain and

others places because of the half life of the chelator.

I plead ignorance<br>

and am asking if OLE is olive leaf extract?

*Yes.

Ethan gets sick A LOT, and<br>

I ma wondering if this could help him.<br>

<br>

*Sounds like he may be a viral kid. Which vaccine(s) did he have bad reactions

to/regress after?

Any thoughts, suggestions, information will be greatly appreciated.<br>

<br>

<br>

-- <br>

Thanks<br>

Haven mailto:hdelay@<wbr>gmail<br>

_______________________________________________

Join Excite! - http://www.excite.com

The most personalized portal on the Web!

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> Dana,

> My son has come down with a serious virus after the last two rounds of

> IV chelation.

What are his virus symptoms?

>> The first time I was willing to think it might just be

> coincidence, but two times in a row and I'm not buying coincidence.

It is probably not coincidence.

> and am asking if OLE is olive leaf extract? Ethan gets sick A LOT, and

> I ma wondering if this could help him.

Yes, olive leaf extract. You can try giving that. Do you give

vitamin C? How much?

Watch for yeast overgrowth, because viral " die off " tends to increase

yeast.

Dana

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  • 3 weeks later...
Guest guest

My oldest son has ADD and some learning disabilities,although he is very smart applying himself was never something he has chosen to do. When he graduated from high school he was going to go to our local state university. Large campus, no accountability. Too many people for him to deal with. Half way through the semester he quit going to classes but lied and said he was going, He got caught in the lie when I asked him when finals were for the semester and they were the week before he tried to convince me they were. Anyway, we were involved with the Bureau of Vocational Rehab because of his LD and ADD( he had an IEP) and we got him into a small school for culinary arts and he graduated with an Associate Degree. It did take him longer then his classmates to finish but he did finish.

I still believe he has more potential then he uses but he is cooking for a local resturant and has a couple friends and a girl friend. He has some issues I'd like to see him change but so far he hasn't made that choice.

I guess my advice is to look at something small so he is not over whelmed. College is a big change from the security of high school and although there are support services available the student has to be willing to persue them.

Suzanne

-- ( ) Help!

My 17 yr old AS son is finishing his junior year in high school and we are starting the college process. He has no interest in getting involved althoug he does want to go to college. He is very bright but does not apply himself and gets very mediocre grades. Any suggestions on how to get through this and any college recommendations?

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>My 17 yr old AS son is finishing his junior year in high school and we >are starting the college process. He has no interest in getting >involved althoug he does want to go to college. He is very bright but >does not apply himself and gets very mediocre grades. Any suggestions >on how to get through this and any college recommendations?Two really great websites for you:This one has a list of colleges that offer special accommodations and programs for 'our' kids.http://www.professorsadvice.com/This one has some excellent resources of all kindshttp://www.grasp.org/links.htmJo Anne (grandmother to , HFA)

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Ask him (and you) some questions. Is he ready to live away from home? Would he function best at a small school or a big school? How far away from  home does he want to go? How much support does he need?  There are quite a few colleges that will accept kids with mediocre grades. Where do you live? My son goes to Dean College, a 2-year residential college in Massachusetts that offers lots of support to students. He lives at home, not on campus.  He's got a good scholarship, and has made the Dean's List this term. I may have some other rec's if I have more info.LizOn Jun 7, 2007, at 11:06 PM, cheryl12359 wrote:My 17 yr old AS son is finishing his junior year in high school and we are starting the college process. He has no interest in getting involved althoug he does want to go to college. He is very bright but does not apply himself and gets very mediocre grades. Any suggestions on how to get through this and any college recommendations?

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Liz,

Thanks do much for your input. We live in New York - suburb of NYC.

I am not sure if big or small is good for him - on the one hand he

may get lost in a big school, on the other hand there is more

opportunity to find like-minded kids. I think it would be btter for

everyone if he does not live at home, yet I think he needs to be

driving distance away. Ishould also add that he excels in math and

science and did wonderfully on his SATs, although his grades do not

reflect that at all. As far as support he has trouble accepting help

of any kind from anyone, which is a big problem. So even if the

school offers support I'm not sure he'll avail himself of it. Any

more suggestions you have would be greatly appreciated.

Cheryl

-- In , Liz Bohn <lbohn@...> wrote:

>

> Ask him (and you) some questions. Is he ready to live away from

home?

> Would he function best at a small school or a big school? How far

> away from home does he want to go? How much support does he

need?

> There are quite a few colleges that will accept kids with

mediocre

> grades. Where do you live? My son goes to Dean College, a 2-year

> residential college in Massachusetts that offers lots of support

to

> students. He lives at home, not on campus. He's got a good

> scholarship, and has made the Dean's List this term. I may have

some

> other rec's if I have more info.

>

> Liz

>

> On Jun 7, 2007, at 11:06 PM, cheryl12359 wrote:

>

> > My 17 yr old AS son is finishing his junior year in high school

and we

> > are starting the college process. He has no interest in getting

> > involved althoug he does want to go to college. He is very

bright but

> > does not apply himself and gets very mediocre grades. Any

suggestions

> > on how to get through this and any college recommendations?

> >

> >

> >

>

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