Help!

[Guest guest]

My wife and many others have been able to get their Chronic Lyme in

remission by self treating themselves. One of the easiest and cheapest

protocols is the Salt/C regimen.

There is a group dedicated to it.

lymestrategies/

[ ] HELP!

I live in Ky and I had a low positive titer for Lyme in 93, at this time was

thought to have had it for 3 yrs. I only got a 2 week med. I have had

fibromyalgia, thought to have MS, but have no abnormal MRI. Now I have

buzzing & tinglng in my head, brain fog, feel flu like, vision blurred, back

& neck pain & stiffness, had a neuro check, and my arms and legs are weak &

shaky. When I lay down my arms & legs go numb, i wake shaky and its like my

head goes to sleep. I feel like they are going to let me die, have been in

the hospital 2 times now..they cant find a thing other than increased white

blood cell count, increased sed rate. I really believe its neruological

lyme..I told my husband I want to go to any hospital that knows how to treat

this with Meds even though the test are negative..Please help me if you know

of any hospital that has dealt with you if u have a negative test now, but

neuro lyme & got treatment. Mayo RM?? Hopkins? in St. Louis,

Vandy?? I don't care will travel where ever. please email me.

------------------------------------

Lyme Disease News continually updated from thousands of sources around the

net: http://www.topix.net/health/lyme-disease

MedWorm: The latest items on: Lyme Disease

http://tinyurl.com/23dgy8

[Guest guest]

Where do you live ?  There may be a physician near you ....check out ILADS and

see if they know a dr. in your area...or write where you live on this site and

we will tell you where you can get treated....Dolores  and use 's

recommendations...

From: <msadams@...>

Subject: RE: [ ] HELP!

Date: Sunday, June 27, 2010, 12:20 AM

 

My wife and many others have been able to get their Chronic Lyme in

remission by self treating themselves. One of the easiest and cheapest

protocols is the Salt/C regimen.

There is a group dedicated to it.

lymestrategies/

[ ] HELP!

I live in Ky and I had a low positive titer for Lyme in 93, at this time was

thought to have had it for 3 yrs. I only got a 2 week med. I have had

fibromyalgia, thought to have MS, but have no abnormal MRI. Now I have

buzzing & tinglng in my head, brain fog, feel flu like, vision blurred, back

& neck pain & stiffness, had a neuro check, and my arms and legs are weak &

shaky. When I lay down my arms & legs go numb, i wake shaky and its like my

head goes to sleep. I feel like they are going to let me die, have been in

the hospital 2 times now..they cant find a thing other than increased white

blood cell count, increased sed rate. I really believe its neruological

lyme..I told my husband I want to go to any hospital that knows how to treat

this with Meds even though the test are negative..Please help me if you know

of any hospital that has dealt with you if u have a negative test now, but

neuro lyme & got treatment. Mayo RM?? Hopkins? in St. Louis,

Vandy?? I don't care will travel where ever. please email me.

------------------------------------

Lyme Disease News continually updated from thousands of sources around the

net: http://www.topix.net/health/lyme-disease

MedWorm: The latest items on: Lyme Disease

http://tinyurl.com/23dgy8

[Guest guest]

Not sure how long you have been on the list, or if you read any posts...but IV

chelation in general is very dangerous, and as you know expensive.

EDTA especially should not be used on a person with mercury toxicity.

You continue, in my opinion, with proper oral chelation. When I say proper, I

mean Andy Cutler protocol chelation. Low and frequent dosing.

There is lots to read about it in the files section. You can get his books at

the library, or purchase them.

Most people on this list follow this protocol and have good results. My boys are

both making progress towards recovery.

TJ

________________________________

From: " hdelay@... " <hdelay@...>

Sent: Wed, July 14, 2010 6:47:28 AM

Subject: [ ] Help!

 

Dear List Mates:

We are in a pickle. We tried milder forms of chelation when Ethan was younger

(oral, transdermal, and suppository), but they did not work. We began IV

chelation in August of '06, and we chelated with EDTA first and then added DMPS

and a LOT of metals came out and Ethan made gains.

Then after seven months, he had an asthma attack after a treatment. I told his

doctor who said it was just a coincidence (gee where had I heard that before?).

I didn't think it was, and we went back in two weeks and I was scared, but we

chelated again. He had another asthma attack, only this time it spiraled and

sparked a bout of pneumonia. We subsequently became aware that he now had

developed an allergy to sulfa. He later broke out in hives after eating broccoli

and then again after being given Bactrim.

We stopped for a while and then went back a few more times for EDTA only. Then

we had to stop due to finances. We started back up in June, using EDTA only.

We've been going once a week, and a lot of lead , arsenic, uranium, and other

stuff has come out, and Ethan is noticeably ore " with it. " We know he has

mercury still but we can't give DMPS or DMSA due to the reaction he had before.

We went last Friday and my husband was with me, and though it is usually hard to

get a good vein, everything went smoothly. My husband was with me and I have

told him the horror stories of how hard it is to find a vein, and it is very

emotionally draining for Ethan and me, but everything went so smoothly my

husband was joking with me about it. the nurse said to bring my husband every

time.

We waited a little while and then left and then when we were on the freeway, our

son had a bad asthma attack! I called the nurse and then had to hang up because

I thought I needed to call 911. We finally managed to pull off the highway and I

gave him some Benadryl, and the worst passed. We got home and gave more Benadryl

and used his rescue inhaler and about fifteen minutes later he was fine again.

I spoke to his doctor yesterday, and he wanted to continue to chelate but wanted

to give oral Prednisone before treatment. Ethan had oral Prednisone years ago

and had a psychotic episode on it. So then the doctor says just to do nothing.

This was ridiculous to me as he has high lead levels and other metals, including

mercury.

Now he has given us NCD. What are we to do? Are we going to ever be able to get

all these metals out of our son? He doesn't detox well on his own and so metals

from the environment will just continue to build up in his body over time. Do

you have any experience with NCD or is it just a proverbial sugar pill?

I know I have to find a way to continue getting metals out. How can we safely do

this? His medical issues (all which developed after vaccination) include mostly

lung issues (chronic bronchitis, asthma, and pneumonia). His immune system was

damaged. He cannot even fight off the bacteria that gets introduced into his

body from an insect bite, and will develop spreading cellulitis any time he gets

bitten by anything. He is prone to infections.

Any information that could help is appreciated.

Thanks,

Haven

[Guest guest]

> Then after seven months, he had an asthma attack after a treatment.

At my house, most asthma attacks were caused by yeast in the lungs, so my first

thought would be that. Chelation does tend to increase yeast.

It also might be that he is allergic to an ingredient in the IV.

>>he has high lead levels and other metals, including mercury.

I would try oral ALA. And also increase the yeast protocol.

Dana

[Guest guest]

Thanks Dana.

But why would the asthma attack happen within thirty minutes of IV chelation

(we won't be doing it this way again). We thought it was just the DMPS, but

this time we only used EDTA, and still he had an asthma attack afterward.

We know when this happened back in 2007, that he then developed an allergy

to some things with sulfa --like sufa drugs (he was given Bactrim and broke

out in hives). Then he got hives after eating broccoli. He had eaten it

before and not gotten hives -- only after the reaction after IV with EDTA

and DMPS. He doesn't get hives after eating eggs, and I know some sulfa is

needed by the body. Right?

Then when I talked with his DAN! last Tuesday, he says, " Well, we can just

do nothing. " What!? My son is high in LEAD, arsenic, uranium, and

moderately high in mercury. I don't want to leave it in his body, and I

figure, since I know he has a metalothionine(?) deficiency, he is not going

to detox this stuff on his own. Is he?

If he is now allergic to sulfa, would it be possible to safely use Andy's

Protocol?

There has just got to be a way to do this safely somehow. My fear with

using ALA before getting it out of his body is that it would carry stuff

from the body into the brain. How can I get it out of his body tissues

first if we can't use anything containing sulfa?

Then his DAN gave us NCD. We haven't started that yet. When all this first

happened back in 2001/2002 this is the first board I found, and the advice I

received here always steered me in the right direction. I regret now that I

didn't make the time all along to stay up to date here, but I'm hoping you

all can help.

I appreciate it. I know if the autism/mercury group had not been here, my

son would not have come back as far as he has.

We haven't done a hair test since the beginning of the journey. We have

been using urinary porphyrins. Is this reliable?

Thanks,

Haven

[Guest guest]

Are there sulfites in the IV? Or you could be moving/depleting something that

causes a sulfite type reaction? His previous reaction tosulfa drugs and

broccoli indicates a sulfiteintolerance as does the low on methionine. We need

sulfates to detox andmost can convert sulfites to sulfate in the body at least

at some level, but that depends on the amount of active sulfite oxidase (a

molybdenum containing enzyme) you have. There is a connection with yeast as

well as another type of molybdenum containing enzyme is needed to detox a yeast

metabolite and can decrease the amount of sulfite oxidase the body makes.

We have just started oral ALA with my sulfite sensitive daughter, but are

starting at low level (12.5 mg/dose) and working up to a larger dose. The first

round went great! I also supped B vitamins prior to ALA (if he is sulfite

sensitive he may be thiamine deficient as well as lacking B12/folic acid), do

low sugar, and biotin. We will see this week if I have to use GSE.

>

> Thanks Dana.

>

> But why would the asthma attack happen within thirty minutes of IV chelation

> (we won't be doing it this way again). We thought it was just the DMPS, but

> this time we only used EDTA, and still he had an asthma attack afterward.

>

> We know when this happened back in 2007, that he then developed an allergy

> to some things with sulfa --like sufa drugs (he was given Bactrim and broke

> out in hives). Then he got hives after eating broccoli. He had eaten it

> before and not gotten hives -- only after the reaction after IV with EDTA

> and DMPS. He doesn't get hives after eating eggs, and I know some sulfa is

> needed by the body. Right?

>

> Then when I talked with his DAN! last Tuesday, he says, " Well, we can just

> do nothing. " What!? My son is high in LEAD, arsenic, uranium, and

> moderately high in mercury. I don't want to leave it in his body, and I

> figure, since I know he has a metalothionine(?) deficiency, he is not going

> to detox this stuff on his own. Is he?

>

> If he is now allergic to sulfa, would it be possible to safely use Andy's

> Protocol?

>

> There has just got to be a way to do this safely somehow. My fear with

> using ALA before getting it out of his body is that it would carry stuff

> from the body into the brain. How can I get it out of his body tissues

> first if we can't use anything containing sulfa?

>

> Then his DAN gave us NCD. We haven't started that yet. When all this first

> happened back in 2001/2002 this is the first board I found, and the advice I

> received here always steered me in the right direction. I regret now that I

> didn't make the time all along to stay up to date here, but I'm hoping you

> all can help.

>

> I appreciate it. I know if the autism/mercury group had not been here, my

> son would not have come back as far as he has.

>

> We haven't done a hair test since the beginning of the journey. We have

> been using urinary porphyrins. Is this reliable?

>

> Thanks,

>

> Haven

>

>

>

[Guest guest]

Thanks so much. So would I use just the ALA, start low and slow? We are

already low sugar but I know he is still getting some types of sugars in

snacks, so I will re-investigate the snacks.

Where can I find the ALA protocol? I would assume ther4e is a doctor

keeping tabs on kidney, liver, and neutrophil status? After our DAN said,

" We could just do nothing, " I'm losing faith there. Who could I go to to

do the followups and advise on this?

What company do you get the GSE from? I simply assumed years ago he was

sulfite sensitive and have been careful NOT to buy foods containing

sulfites, but how can I find out for sure?

[Guest guest]

> Thanks Dana.

> But why would the asthma attack happen within thirty minutes of IV chelation

Based on my experience, it would have been either an allergic reaction or yeast

overgrowth.

> If he is now allergic to sulfa, would it be possible to safely use Andy's

> Protocol?

I have read that yes, kids who are " not supposed to tolerate ALA " will do okay

with it on Andy's protocol. Best to just start with very low dose and watch for

problems. No guarantees tho.

> There has just got to be a way to do this safely somehow. My fear with

> using ALA before getting it out of his body is that it would carry stuff

> from the body into the brain. How can I get it out of his body tissues

> first if we can't use anything containing sulfa?

I used only ALA. If you give it with vitamin C and selenium, the vitamin C and

selenium should take the metals out of the body.

Dana

[Guest guest]

My son has had lung symptoms after using DMSA. I found out that DMSA penetrates

certain bacteria and if it is pulling metals, it may also release bacteria along

with metals (that will become yeast-covered) in the lungs that would cause

asthma-like symptoms. As you might know, EDTA is what the DAN! docs use for

their biofilm protocols. I'm not sure how it all actually works, but I do

believe that our kids may have excess calcium, magnesium, and iron in places in

their bodies (esp. the lungs) which bacteria love to grow on. Chelation fixes

the mineral imbalances and therefore releases any pathogens that were sustained

by them.

>

> Thanks Dana.

>

> But why would the asthma attack happen within thirty minutes of IV chelation

> (we won't be doing it this way again). We thought it was just the DMPS, but

> this time we only used EDTA, and still he had an asthma attack afterward.

>

> We know when this happened back in 2007, that he then developed an allergy

> to some things with sulfa --like sufa drugs (he was given Bactrim and broke

> out in hives). Then he got hives after eating broccoli. He had eaten it

> before and not gotten hives -- only after the reaction after IV with EDTA

> and DMPS. He doesn't get hives after eating eggs, and I know some sulfa is

> needed by the body. Right?

>

> Then when I talked with his DAN! last Tuesday, he says, " Well, we can just

> do nothing. " What!? My son is high in LEAD, arsenic, uranium, and

> moderately high in mercury. I don't want to leave it in his body, and I

> figure, since I know he has a metalothionine(?) deficiency, he is not going

> to detox this stuff on his own. Is he?

>

> If he is now allergic to sulfa, would it be possible to safely use Andy's

> Protocol?

>

> There has just got to be a way to do this safely somehow. My fear with

> using ALA before getting it out of his body is that it would carry stuff

> from the body into the brain. How can I get it out of his body tissues

> first if we can't use anything containing sulfa?

>

> Then his DAN gave us NCD. We haven't started that yet. When all this first

> happened back in 2001/2002 this is the first board I found, and the advice I

> received here always steered me in the right direction. I regret now that I

> didn't make the time all along to stay up to date here, but I'm hoping you

> all can help.

>

> I appreciate it. I know if the autism/mercury group had not been here, my

> son would not have come back as far as he has.

>

> We haven't done a hair test since the beginning of the journey. We have

> been using urinary porphyrins. Is this reliable?

>

> Thanks,

>

> Haven

>

>

>

[Guest guest]

Do NOT use Mayo! The docs there don't believe chronic lyme exists. Personally I

don't think ANY hospital is going to do you any good. What you need to do is

find a Lyme Literate Medical Doctor (LLMD) who specializes in treating Lyme.

These doctors are almost NEVER " Infectious Disease " doctors, which is the kind

of doctor that routinely is believed to specialize in Lyme (and other infectious

agents like HIV, TB, etc)

Honestly, your best bet at receiving PROPER treatment (including quite possibly

IV antibiotics and/or hospitilization if necessary) is going to be to either

contact ILADS (International Lyme and Associated Disease Society) and ask for a

list of drs in your area (and think region of US vs city, too, as these guys are

NOT just everywhere), or to go to LymeNet.org http://www.lymenet.org and go to

the " Flash Discussions " link on the left hand side. That will take you to the

forums/message boards. Once you are at the main board page, there will be a list

of different specific message boards. One of them is called " Seeking a Doctor " .

You need to go to that board and post a message saying where you are and that

you need some referrals for LLMDs that are close to you. You'll get a private

message in return, as the names of these docs have to be protected to keep their

practices from being targeted by medical boards and insurance companies who

don't approve of the long-term use of antibiotics.

Good luck and let us know how things go!

in TX

SmurfyMom at Lymenet

[ ] HELP!

I live in Ky and I had a low positive titer for Lyme in 93, at this time was

thought to have had it for 3 yrs. I only got a 2 week med. I have had

fibromyalgia, thought to have MS, but have no abnormal MRI. Now I have buzzing &

tinglng in my head, brain fog, feel flu like, vision blurred, back & neck pain &

stiffness, had a neuro check, and my arms and legs are weak & shaky. When I lay

down my arms & legs go numb, i wake shaky and its like my head goes to sleep. I

feel like they are going to let me die, have been in the hospital 2 times

now..they cant find a thing other than increased white blood cell count,

increased sed rate. I really believe its neruological lyme..I told my husband I

want to go to any hospital that knows how to treat this with Meds even though

the test are negative..Please help me if you know of any hospital that has dealt

with you if u have a negative test now, but neuro lyme & got treatment. Mayo

RM?? Hopkins? in St. Louis, Vandy?? I don't care will travel where

ever. please email me.

[Guest guest]

on mdjunction.com keeps a list of all docs treating around the US..contact

everyone on facebook in KY with lyme,... network and you will find docs who are

not LLMD's also who will treat for lyme...I have had great success here in FL by

going to Immunologists, Endocrinologists, etc. to also check us out in addition

to a number of LLMD's around the country.  the last post is excellent advice. 

DO NOT WAIT !! Regards, Dolores

From: chris <smurfytxmom@...>

Subject: Re: [ ] HELP!

Date: Tuesday, July 20, 2010, 4:12 PM

 

Do NOT use Mayo! The docs there don't believe chronic lyme exists. Personally I

don't think ANY hospital is going to do you any good. What you need to do is

find a Lyme Literate Medical Doctor (LLMD) who specializes in treating Lyme.

These doctors are almost NEVER " Infectious Disease " doctors, which is the kind

of doctor that routinely is believed to specialize in Lyme (and other infectious

agents like HIV, TB, etc)

Honestly, your best bet at receiving PROPER treatment (including quite possibly

IV antibiotics and/or hospitilization if necessary) is going to be to either

contact ILADS (International Lyme and Associated Disease Society) and ask for a

list of drs in your area (and think region of US vs city, too, as these guys are

NOT just everywhere), or to go to LymeNet.org http://www.lymenet.org and go to

the " Flash Discussions " link on the left hand side. That will take you to the

forums/message boards. Once you are at the main board page, there will be a list

of different specific message boards. One of them is called " Seeking a Doctor " .

You need to go to that board and post a message saying where you are and that

you need some referrals for LLMDs that are close to you. You'll get a private

message in return, as the names of these docs have to be protected to keep their

practices from being targeted by medical boards and insurance companies who

don't approve of

the long-term use of antibiotics.

Good luck and let us know how things go!

in TX

SmurfyMom at Lymenet

[ ] HELP!

I live in Ky and I had a low positive titer for Lyme in 93, at this time was

thought to have had it for 3 yrs. I only got a 2 week med. I have had

fibromyalgia, thought to have MS, but have no abnormal MRI. Now I have buzzing &

tinglng in my head, brain fog, feel flu like, vision blurred, back & neck pain &

stiffness, had a neuro check, and my arms and legs are weak & shaky. When I lay

down my arms & legs go numb, i wake shaky and its like my head goes to sleep. I

feel like they are going to let me die, have been in the hospital 2 times

now..they cant find a thing other than increased white blood cell count,

increased sed rate. I really believe its neruological lyme..I told my husband I

want to go to any hospital that knows how to treat this with Meds even though

the test are negative..Please help me if you know of any hospital that has dealt

with you if u have a negative test now, but neuro lyme & got treatment. Mayo

RM?? Hopkins? in St.

Louis, Vandy?? I don't care will travel where ever. please email me.

[Guest guest]

Ok Patti take

...a swift kick in the rear wake up

because your quick fixes in the past certainly have not worked & and the more of them you have started/stopped the less likely they or similar will work in the future.

Sorry this message is brief because it's 23-00 hours here

>> Hi there, I am pretty new to this group. I was on many many ssri's long ago for depression, which..."I do have". Lately things have gotten pretty low for me. I am also a recovering alcoholic. I am so tempted to take something in desperation, so I am calling out for help. Or..a swift kick in the rear wake up call. > I hated taking ssri's long ago. Zoloft did work for 2 years, but the trial and errors I have been through, not to mention the hellish withdrawls and the flatline personality scares me. Is there any other hope? Like St.s or SAM-E? Help, Patti>

[Guest guest]

Ok Patti take

...a swift kick in the rear wake up

because your quick fixes in the past certainly have not worked & and the more of them you have started/stopped the less likely they or similar will work in the future.

Sorry this message is brief because it's 23-00 hours here

>> Hi there, I am pretty new to this group. I was on many many ssri's long ago for depression, which..."I do have". Lately things have gotten pretty low for me. I am also a recovering alcoholic. I am so tempted to take something in desperation, so I am calling out for help. Or..a swift kick in the rear wake up call. > I hated taking ssri's long ago. Zoloft did work for 2 years, but the trial and errors I have been through, not to mention the hellish withdrawls and the flatline personality scares me. Is there any other hope? Like St.s or SAM-E? Help, Patti>

[Guest guest]

Ok Patti take

...a swift kick in the rear wake up

because your quick fixes in the past certainly have not worked & and the more of them you have started/stopped the less likely they or similar will work in the future.

Sorry this message is brief because it's 23-00 hours here

>> Hi there, I am pretty new to this group. I was on many many ssri's long ago for depression, which..."I do have". Lately things have gotten pretty low for me. I am also a recovering alcoholic. I am so tempted to take something in desperation, so I am calling out for help. Or..a swift kick in the rear wake up call. > I hated taking ssri's long ago. Zoloft did work for 2 years, but the trial and errors I have been through, not to mention the hellish withdrawls and the flatline personality scares me. Is there any other hope? Like St.s or SAM-E? Help, Patti>

[Guest guest]

Ok Patti take

...a swift kick in the rear wake up

because your quick fixes in the past certainly have not worked & and the more of them you have started/stopped the less likely they or similar will work in the future.

Sorry this message is brief because it's 23-00 hours here

>> Hi there, I am pretty new to this group. I was on many many ssri's long ago for depression, which..."I do have". Lately things have gotten pretty low for me. I am also a recovering alcoholic. I am so tempted to take something in desperation, so I am calling out for help. Or..a swift kick in the rear wake up call. > I hated taking ssri's long ago. Zoloft did work for 2 years, but the trial and errors I have been through, not to mention the hellish withdrawls and the flatline personality scares me. Is there any other hope? Like St.s or SAM-E? Help, Patti>

[Guest guest]

Thanks! I needed that.

From: jeremy9282 <jeremybryce1953@...>Subject: Re: Help!SSRI medications Date: Friday, December 24, 2010, 11:00 PM

Ok Patti take

...a swift kick in the rear wake up

because your quick fixes in the past certainly have not worked & and the more of them you have started/stopped the less likely they or similar will work in the future.

Sorry this message is brief because it's 23-00 hours here

>> Hi there, I am pretty new to this group. I was on many many ssri's long ago for depression, which..."I do have". Lately things have gotten pretty low for me. I am also a recovering alcoholic. I am so tempted to take something in desperation, so I am calling out for help. Or..a swift kick in the rear wake up call. > I hated taking ssri's long ago. Zoloft did work for 2 years, but the trial and errors I have been through, not to mention the hellish withdrawls and the flatline personality scares me. Is there any other hope? Like St.s or SAM-E? Help, Patti>

[Guest guest]

<< Hi there, I am pretty new to this group. I was on many many ssri's long ago

for depression, which... " I do have " . Lately things have gotten pretty low for

me. I am also a recovering alcoholic. I am so tempted to take something in

desperation, so I am calling out for help. Or..a swift kick in the rear wake up

call.

> I hated taking ssri's long ago. Zoloft did work for 2 years, but the trial and

errors I have been through, not to mention the hellish withdrawls and the

flatline personality scares me. Is there any other hope? Like St.s or SAM-E?

Help, Patti>>

** Patti, Depression is a time-limited state of mind. Notice I didn't

refer to it as a " disease " . It's not. But the pharmaceutical companies want you

to believe it is.

Both of the things you've mentioned have good reputations but I think to

properly solve this problem the root of it must be uncovered.

-- How long ago did you stop drinking?

-- How long ago did you stop taking antidepressants?

-- How exactly did you discontinue them? Do you take any other drugs?

-- What kinds of meals have you been eating lately (please don't say " healthy " ,

give an example)?

-- You said " lately things have gotten pretty low for me " . What has been

happening that has caused you to feel this way?

-- Are you working?

-- Do you like your job?

-- Are you in a relationship? Are you having some struggles right now?

-- Do you live alone or with someone? How is that for you?

-- Do you have any children? If so, how is that going? If not, is that a

choice you've made with which you are happy?

Your responses to these will trigger a few more questions but then I should be

able to make a recommendation appropriate for you at this time in your life.

Btw, I meant to ask something. You said, " I am so tempted to take something in

desperation... " .

What is it you will accomplish doing this? Does it change the outcome of

things in your life? How does it affect your life when you " take something in

desperation " ? If it doesn't fix anything why even allow it any space in your

head after the initial thought? Is there some intervention you've done for

yourself after emailing this group?

While support is a wonderful thing, you should be able to run an intervention

on yourself when you hear yourself thinking in the way you've been thinking.

Having a " book of plays " like a football coach has would be helpful to you.

This is a small guide of things you can do when you're feeling at risk. That

way, you can pull it out and implement a plan right away. You don't have to

wait for people to get back to you in order to be safe. It's also necessary in

that it is self-empowering.

Have you ever done any cognitive behavioral therapy?

Regards,

[Guest guest]

From: ccreel_04064 <catherine.creel@...>Subject: Re: Help!SSRI medications Date: Saturday, December 25, 2010, 6:12 AM

<< Hi there, I am pretty new to this group. I was on many many ssri's long ago for depression, which..."I do have". Lately things have gotten pretty low for me. I am also a recovering alcoholic. I am so tempted to take something in desperation, so I am calling out for help. Or..a swift kick in the rear wake up call. > I hated taking ssri's long ago. Zoloft did work for 2 years, but the trial and errors I have been through, not to mention the hellish withdrawls and the flatline personality scares me. Is there any other hope? Like St.s or SAM-E? Help, Patti>>** Patti, Depression is a time-limited state of mind. Notice I didn't refer to it as a "disease". It's

not. But the pharmaceutical companies want you to believe it is. Both of the things you've mentioned have good reputations but I think to properly solve this problem the root of it must be uncovered. -- How long ago did you stop drinking? Off and on only a few weeks, with help.-- How long ago did you stop taking antidepressants? I stopped the lexapro due to cost 4 months back, prior to that, 2002-- How exactly did you discontinue them? Do you take any other drugs?I had to wean off of Effexor and it was awful, same with zoloft-- What kinds of meals have you been eating lately (please don't say "healthy", give an example)? Cereal, sandwiches..pbj/or ham/ and then regular dinners, along with snacking...and lot's of it! (sweets lately)-- You said "lately things have gotten pretty low for me". What has been happening that has caused you to feel this way? -- Are you working? I work from home,

mom of 5 boys...-- Do you like your job? Very much so...I refinish gunstocks.-- Are you in a relationship? Are you having some struggles right now?Married 25 years, lately want to not be around him, he drinks...-- Do you live alone or with someone? How is that for you?I am in a house full of people all of the time, and feel very alone-- Do you have any children? If so, how is that going? If not, is that a choice you've made with which you are happy? I have wonderful boys...25,21, 17, and 14 year old twins. And a granddaughter...light of my life.Your responses to these will trigger a few more questions but then I should be able to make a recommendation appropriate for you at this time in your life. Btw, I meant to ask something. You said, "I am so tempted to take something in desperation...". What is it you will accomplish doing this? Does it change the outcome of things in your life? How does it

affect your life when you "take something in desperation"? If it doesn't fix anything why even allow it any space in your head after the initial thought? Is there some intervention you've done for yourself after emailing this group? I have a prescription of generic celexa which I tried 3 nights ago, a quarter of a 20 mg (side effects were sheer hell all night long) 110 heartbeat..etc. When I told my doc she prescribed generic prozac which I have not taken. I just want to not be so down and angry. While support is a wonderful thing, you should be able to run an intervention on yourself when you hear yourself thinking in the way you've been thinking. Having a "book of plays" like a football coach has would be helpful to you. This is a small guide of things you can do when you're feeling at risk. That way, you can pull it out and implement a plan right away. You don't have to wait for people to get back to you in order to be safe. It's also

necessary in that it is self-empowering. Have you ever done any cognitive behavioral therapy? I never have. I have spent years in counseling. As of lately, I started at a place here in town and found out they were speaking to my friend who also goes in weekly. I kind of lost it and spoke with a manager and filed a report.Regards,

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message for Patti

could you please, when replying to make your lines more distinguished from hers .....it will help her to help you

if when posting (using rich text) you can for example highlight & or use bold italic fonts

(moderator)

> > << Hi there, I am pretty new to this group. I was on many many ssri's long ago for depression, which..."I do have". Lately things have gotten pretty low for me. I am also a recovering alcoholic. I am so tempted to take something in desperation, so I am calling out for help. Or..a swift kick in the rear wake up call. > > I hated taking ssri's long ago. Zoloft did work for 2 years, but the trial and errors I have been through, not to mention the hellish withdrawls and the flatline personality scares me. Is there any other hope? Like St.s or SAM-E? Help, Patti>>> > ** Patti, Depression is a time-limited state of mind. Notice I didn't refer to it as a "disease". It's not. But the pharmaceutical companies want you to believe it is. > > Both of the things you've mentioned have good reputations but I think to properly solve this problem the root of it must be uncovered. > > -- How long ago did you stop drinking? Off and on only a few weeks, with help.> > -- How long ago did you stop taking antidepressants? I stopped the lexapro due to cost 4 months back, prior to that, 2002> > -- How exactly did you discontinue them? Do you take any other drugs?> I had to wean off of Effexor and it was awful, same with zoloft> -- What kinds of meals have you been eating lately (please don't say "healthy", give an example)? Cereal, sandwiches..pbj/or ham/ and then regular dinners, along with snacking...and lot's of it! (sweets lately)> > -- You said "lately things have gotten pretty low for me". What has been happening that has caused you to feel this way? > > -- Are you working? I work from home, mom of 5 boys...> > -- Do you like your job? Very much so...I refinish gunstocks.> > -- Are you in a relationship? Are you having some struggles right now?Married 25 years, lately want to not be around him, he drinks...> > -- Do you live alone or with someone? How is that for you?I am in a house full of people all of the time, and feel very alone> > -- Do you have any children? If so, how is that going? If not, is that a choice you've made with which you are happy? I have wonderful boys...25,21, 17, and 14 year old twins. And a granddaughter...light of my life.> > Your responses to these will trigger a few more questions but then I should be able to make a recommendation appropriate for you at this time in your life. > > Btw, I meant to ask something. You said, "I am so tempted to take something in desperation...". > > What is it you will accomplish doing this? Does it change the outcome of things in your life? How does it affect your life when you "take something in desperation"? If it doesn't fix anything why even allow it any space in your head after the initial thought? Is there some intervention you've done for yourself after emailing this group? I have a prescription of generic celexa which I tried 3 nights ago, a quarter of a 20 mg (side effects were sheer hell all night long) 110 heartbeat..etc. When I told my doc she prescribed generic prozac which I have not taken. I just want to not be so down and angry. > > While support is a wonderful thing, you should be able to run an intervention on yourself when you hear yourself thinking in the way you've been thinking. Having a "book of plays" like a football coach has would be helpful to you. This is a small guide of things you can do when you're feeling at risk. That way, you can pull it out and implement a plan right away. You don't have to wait for people to get back to you in order to be safe. It's also necessary in that it is self-empowering. > > Have you ever done any cognitive behavioral therapy? I never have. I have spent years in counseling. As of lately, I started at a place here in town and found out they were speaking to my friend who also goes in weekly. I kind of lost it and spoke with a manager and filed a report.> > Regards,> >

[Guest guest]

Sorry about that...new to this

From: jeremy9282 <jeremybryce1953@...>Subject: Re: Help!SSRI medications Date: Saturday, December 25, 2010, 2:51 PM

message for Patti

could you please, when replying to make your lines more distinguished from hers .....it will help her to help you

if when posting (using rich text) you can for example highlight & or use bold italic fonts

(moderator)

> > << Hi there, I am pretty new to this group. I was on many many ssri's long ago for depression, which..."I do have". Lately things have gotten pretty low for me. I am also a recovering alcoholic. I am so tempted to take something in desperation, so I am calling out for help. Or..a swift kick in the rear wake up call. > > I hated taking ssri's long ago. Zoloft did work for 2 years, but the

trial and errors I have been through, not to mention the hellish withdrawls and the flatline personality scares me. Is there any other hope? Like St.s or SAM-E? Help, Patti>>> > ** Patti, Depression is a time-limited state of mind. Notice I didn't refer to it as a "disease". It's not. But the pharmaceutical companies want you to believe it is. > > Both of the things you've mentioned have good reputations but I think to properly solve this problem the root of it must be uncovered. > > -- How long ago did you stop drinking? Off and on only a few weeks, with help.> > -- How long ago did you stop taking antidepressants? I stopped the lexapro due to cost 4 months back, prior to that, 2002> > -- How exactly did you discontinue them? Do you take any other drugs?> I had to wean off of Effexor and it was awful, same with zoloft> -- What kinds of meals

have you been eating lately (please don't say "healthy", give an example)? Cereal, sandwiches..pbj/or ham/ and then regular dinners, along with snacking...and lot's of it! (sweets lately)> > -- You said "lately things have gotten pretty low for me". What has been happening that has caused you to feel this way? > > -- Are you working? I work from home, mom of 5 boys...> > -- Do you like your job? Very much so...I refinish gunstocks.> > -- Are you in a relationship? Are you having some struggles right now?Married 25 years, lately want to not be around him, he drinks...> > -- Do you live alone or with someone? How is that for you?I am in a house full of people all of the time, and feel very alone> > -- Do you have any children? If so, how is that going? If not, is that a choice you've made with which you are happy? I have wonderful boys...25,21, 17, and 14 year old twins.

And a granddaughter...light of my life.> > Your responses to these will trigger a few more questions but then I should be able to make a recommendation appropriate for you at this time in your life. > > Btw, I meant to ask something. You said, "I am so tempted to take something in desperation...". > > What is it you will accomplish doing this? Does it change the outcome of things in your life? How does it affect your life when you "take something in desperation"? If it doesn't fix anything why even allow it any space in your head after the initial thought? Is there some intervention you've done for yourself after emailing this group? I have a prescription of generic celexa which I tried 3 nights ago, a quarter of a 20 mg (side effects were sheer hell all night long) 110 heartbeat..etc. When I told my doc she prescribed generic prozac which I have not taken. I just want to not be so down and angry. >

> While support is a wonderful thing, you should be able to run an intervention on yourself when you hear yourself thinking in the way you've been thinking. Having a "book of plays" like a football coach has would be helpful to you. This is a small guide of things you can do when you're feeling at risk. That way, you can pull it out and implement a plan right away. You don't have to wait for people to get back to you in order to be safe. It's also necessary in that it is self-empowering. > > Have you ever done any cognitive behavioral therapy? I never have. I have spent years in counseling. As of lately, I started at a place here in town and found out they were speaking to my friend who also goes in weekly. I kind of lost it and spoke with a manager and filed a report.> > Regards,> >

[Guest guest]

>

>

> From: jeremy9282 <jeremybryce1953@...>

> Subject: Re: Help!

> SSRI medications

> Date: Saturday, December 25, 2010, 2:51 PM

>

> message for Patti

> could you please, when replying to make your lines more

distinguished from hers .....it will help her to help you

> if when posting (using rich text) you can for example highlight & or use bold

italic fonts

> (moderator)

>  

>

>

[Guest guest]

I think you need to go with the band.  Many physicians seem to think that with the torticollis getting better, the head will round itself out, but that doesn't seem to be true.  It probably won't get worse, but if the plagio is severe, you should go with the band.

Unfortunately, it seems that many physicians don't take this seriously enough.  My wife and I really had to push our pediatrician for a referral to a pediatric surgeon.  His attitude was that it was mild and would round itself out.  The surgeon, who had more experience with it, could tell right away that it was moderate (which measurements later confirmed) and recommended the helmet.

Hopefully doctors will start taking this more seriously (and thank you to everyone who has been circulating the petition to the pediatricians organization), but until then, I think we parents have to take it upon ourselves to educate our doctors.

-- Please reply to amarcus@...

[Guest guest]

Can you do both? I heard without the tort help the plagio correction comes slower.From: LadyBugg <lilmissdoolittle@...>Plagiocephaly Sent: Wed, January 19, 2011 9:45:21 AMSubject: HELP!

My son Garrett was diagnosed with plagiocephaly. He was a preemie, 2 months early, and spent 8 weeks in the NICU. He is now 7 months old and doing great otherwise!

Here's my issue... we were sent to Physical Therapy first for his torticollis. He is doing better with his neck range of motion and all. He still has the flat spot on the back of his head, therefore affecting the right side of his head, making that ear and forehead more prominent.

From PT, we were sent to an Orthopedist for evaluation for a band. They stated that based on the measurements, he is in the severe category, so he needs to have a band.

However, I went to Shriner's with him yesterday for a 2nd opinion/treatment options for the torticollis. The doctor there is a spinal surgeon as well. His neck bones and all are great, it's the neck muscles. And, the doctor thinks that with continued PT/OT his ead will continue to do better without a band.

So now I am CONFUSED!!!!!! All the what ifs? are floating through my head... do I band him or not? what if I don't and he has a funny shaped head forever?

I need some advice from mommies who have been through this PLEASE!!!!!! =) Thank You!!!!! =)

[Guest guest]

thank you so much for your opinions/thoughts! this is my first child, so I've

never had to deal with this. and, I don't want to second guess myself or make

the wrong decision.

>

> I think you need to go with the band. Many physicians seem to think that

> with the torticollis getting better, the head will round itself out, but

> that doesn't seem to be true. It probably won't get worse, but if the

> plagio is severe, you should go with the band.

>

> Unfortunately, it seems that many physicians don't take this seriously

> enough. My wife and I really had to push our pediatrician for a referral to

> a pediatric surgeon. His attitude was that it was mild and would round

> itself out. The surgeon, who had more experience with it, could tell right

> away that it was moderate (which measurements later confirmed) and

> recommended the helmet.

>

> Hopefully doctors will start taking this more seriously (and thank you to

> everyone who has been circulating the petition to the pediatricians

> organization), but until then, I think we parents have to take it upon

> ourselves to educate our doctors.

>

> --

> Please reply to amarcus@...

>

[Guest guest]

My husband and I struggled with the same decision and it isn't easy, or at least

you don't think so at the time. Hopefully, I can help you by sharing my story.

Your son is now 7 months and still diagnosed with severe? If that is the case,

you don't have that much more time to fix it with a band to get back to between

0-4 mm. Our son was diagnosed at 2 months with severe at 18mm. Same thing as

yours with torticollis diagnosed by the pt. We were put on an " agressive

repositioning strategy " and worked day and night to make it betterf or two

months. At four months, he had improved to 16, then at 5 months to 14. We were

told that 0-4 is normal and that most doctors would let anything under 8 slide

without a band recommendation, but anything over that really should be treated

because he will grow up having a noticably deformed head in both the front and

back. I cried about it, because 5 months is supposedly the optimal time to band

for best results. I was at his daycare crying because I didn't know if we should

do it or not. I felt like we could keep trying and make it better on our own. I

guess I felt like we SHOULD be able to fix this as his parents and felt really

guilty about him having to wear the band. I was waffling and thinking we could

fix this on our own. The director looked at me and said follow me. She took me

down the hall to several rooms to see older babies and toddlers who needed the

band for severe plagiocephaly and didn't get it (yet, probably). Seeing the

older children with the severely flat heads made up my mind instantly. We got

the starband. Within 4 weeks we saw a HUUUUUUUGE difference. It is amazing. My

son doesn't mind it except when he plays a lot he gets hot, so we take it off.

no big deal. I would tell you as a parent who did it, you will not regret doing

it. But you might regret not doing it. You can take it off for pictures and

important things, kisses and cuddles from time to time. And it iwll be off

before you know it with your baby's head looking awesome. Our baby is about to

graduate and I would tell any parent who is worried about it, especeially one

with a baby with severe plagio, even at 7 months old to do it. I will be forever

happy that we did.

Hope that helps and best of luck.

>

>

> Glad your little one is doing well. As a 1st time mom, I knew that I would

always wonder " what if " , so we decided to band because I would rather be safe

than sorry. I knew banding wouldn't hurt, but by not banding my baby's head may

not correct itself and may even get worse. Only you can make the decision of

what is best for your baby and your family. Good luck!

>

> > Plagiocephaly

> > From: lilmissdoolittle@...

> > Date: Wed, 19 Jan 2011 17:45:21 +0000

> > Subject: HELP!

> >

> > My son Garrett was diagnosed with plagiocephaly. He was a preemie, 2 months

early, and spent 8 weeks in the NICU. He is now 7 months old and doing great

otherwise!

> >

> > Here's my issue... we were sent to Physical Therapy first for his

torticollis. He is doing better with his neck range of motion and all. He still

has the flat spot on the back of his head, therefore affecting the right side of

his head, making that ear and forehead more prominent.

> >

> > From PT, we were sent to an Orthopedist for evaluation for a band. They

stated that based on the measurements, he is in the severe category, so he needs

to have a band.

> >

> > However, I went to Shriner's with him yesterday for a 2nd opinion/treatment

options for the torticollis. The doctor there is a spinal surgeon as well. His

neck bones and all are great, it's the neck muscles. And, the doctor thinks that

with continued PT/OT his ead will continue to do better without a band.

> >

> > So now I am CONFUSED!!!!!! All the what ifs? are floating through my head...

do I band him or not? what if I don't and he has a funny shaped head forever?

> >

> > I need some advice from mommies who have been through this PLEASE!!!!!! =)

Thank You!!!!! =)

> >

> >

> >

> > ------------------------------------

> >

> > For more plagio info