Help!

[Guest guest]

In a message dated 9/24/2003 11:08:21 AM Eastern Standard Time,

rybabysmom@... writes:

I need info on FBA super fast. The school is demanding I fill out a

FBA assessment interview worksheet. I'm afraid if I put things like

outbursts, tantrums, meltdowns, etc they will use it to kick us out

of this school. Any ideas??? Thanks, a

Why are you having an FBA done? Is your ds having tantrums in class?

Sometimes when I am not sure about filling out their paperwork, I will be rather

generic about it and then I can fill in details in person as I feel appropriate.

I remember one form that I thought was really stupid (wanted to know how much

tv my kid watched and other things to explain his autism, lol) I wrote

" Autism " in the blank next to " Language spoken in the home. " lol. Not helpful,

I

suppose. Ignore that suggestion entirely! <G>

Roxanna ö¿ö

Autism happens...

[Guest guest]

In a message dated 9/24/2003 11:19:49 AM Eastern Standard Time,

swamp1@... writes:

a,

If a FBA has a chance of helping, then the troublesome behaviors need to be

described accurately. The point is to find the causes of the behaviors.

I agree to a point . But if the child needs an FBA, I am assuming it

is something to do with school. I think they need to assess the behavior at

school. Also, putting things in writing can come back to bite you. I like to

get to know the person doing the evaluation before I talk too much/write too

much. But still, they need to be assessing what is happening at school and not

at home. Unless the problem carries over between the two places.

Roxanna ö¿ö

Autism happens...

[Guest guest]

> I need info on FBA super fast. The school is demanding I fill out a

> FBA assessment interview worksheet. I'm afraid if I put things like

> outbursts, tantrums, meltdowns, etc they will use it to kick us out

> of this school. Any ideas??? Thanks, a

a,

If a FBA has a chance of helping, then the troublesome behaviors need to be

described accurately. The point is to find the causes of the behaviors.

Here are some links about FBAs:

http://cecp.air.org/fba/Default.htm

http://www.pbis.org/english/Functional_Assessment_of_Behavior.htm

in Massachusetts

[Guest guest]

> In a message dated 9/24/2003 11:19:49 AM Eastern Standard Time,

> swamp1@c... writes:

> a,

> If a FBA has a chance of helping, then the troublesome behaviors need to =

be

> described accurately. The point is to find the causes of the behaviors.

> I agree to a point . But if the child needs an FBA, I am assuming =

it

> is something to do with school. I think they need to assess the behavior=

at

> school. Also, putting things in writing can come back to bite you. I li=

ke to

> get to know the person doing the evaluation before I talk too much/write =

too

> much. But still, they need to be assessing what is happening at school a=

nd not

> at home. Unless the problem carries over between the two places.

> Roxanna ö¿ö

> Autism happens...

Roxanna,

You are right about being careful about what gets written down. The FBA fo=

rm we filled out last year seemed to ask questions in such a way that the an=

swers were easily misinterpreted.

in Massachusetts

[Guest guest]

Dear a, I do not know how it works there with FBAs...... but I know what you

are feeling right now..........

Hang in there, get everything FROM THEM in writing and be always ALERT...

and come back here so those of us who do know how to deal with the FBA's can

give you good advice!

F

( ) Help!

I need info on FBA super fast. The school is demanding I fill out a

FBA assessment interview worksheet. I'm afraid if I put things like

outbursts, tantrums, meltdowns, etc they will use it to kick us out

of this school. Any ideas??? Thanks, a

[Guest guest]

kneeleee wrote:

> ... I wrote " Autism " in the

> blank next to " Language spoken

> in the home. "

Hahahaha. We speak Aspergerese.

[Guest guest]

Thanks . I checked out both sites. great info. a

> a,

> If a FBA has a chance of helping, then the troublesome behaviors

need to be described accurately. The point is to find the causes of

the behaviors.

>

> Here are some links about FBAs:

>

> http://cecp.air.org/fba/Default.htm

>

> http://www.pbis.org/english/Functional_Assessment_of_Behavior.htm

>

> in Massachusetts

[Guest guest]

Good point Roxanna. You know me well. That is my concern. I have

almost no reason to trust any staff member there at this point. I've

been burned enough times. So I think I'll write out a detailed

version to share at the time of the meeting as needed. And a more

generic one to give to them prior. It burns me up they gave me just 3

days. Plus they want it more than a week prior to our IEP. Yet I get

my copies barely 2 days prior.

a

> If a FBA has a chance of helping, then the troublesome behaviors

need to be

> described accurately. The point is to find the causes of the

behaviors.

> I agree to a point . But if the child needs an FBA, I am

assuming it

> is something to do with school. I think they need to assess the

behavior at

> school. Also, putting things in writing can come back to bite

you. I like to

> get to know the person doing the evaluation before I talk too

much/write too

> much. But still, they need to be assessing what is happening at

school and not

> at home. Unless the problem carries over between the two places.

> Roxanna ö¿ö

> Autism happens...

>

>

>

[Guest guest]

Haha. I put When Asleep under when is the behavior least likely to

occur. Oh and why does the student act this way...um...gee...if I

could answr that I'd be a rich woman!!!

a

> Hahahaha. We speak Aspergerese.<<

> LMAO... hehe- we are learning Aspergerese too.

[Guest guest]

> ... I wrote " Autism " in the

> blank next to " Language spoken

> in the home. "

Hahahaha. We speak Aspergerese.<<

LMAO... hehe- we are learning Aspergerese too.

[Guest guest]

> ... I wrote " Autism " in the

> blank next to " Language spoken

> in the home. "

Hahahaha. We speak Aspergerese.<<

LMAO... hehe- we are learning Aspergerese too.>>>>>>>

I loved that!

F

[Guest guest]

Hi a,

Welcome. I know that it is upsetting to have to deal with a problem like

Graves', but at least it is treatable. And it seems that you may have a

good doctor, as you mentioned that he or she will want to have you take

ATDs. That is a GOOD thing, as the medication is the best treatment of

choice, in my opinion, for those who do well on them. Untreated Graves' is

dangerous -- you could go into thyroid storm (which can be fatal), or have

a heart attack or stroke. Those problems will be FAR worse for you than

putting on some weight. We need to get philosophical here, and consider the

bigger picture. Weight is of secondary importance to your life and the

integrity of your body.

If you are taking ATDs and are monitored closely, you should be able to

avoid hypO (or at least be able to get out of it if you do hit low

numbers). Being on ATDs does not cause those who are euthyroid (at the

right level within the normal range for thyroid levels Free T3 and Free

T4). You will need to find the right point for you, and keeping copies of

all lab work will help you to figure out when you felt best (take notes the

day you get your blood work done, then attach it to the lab reports that

you keep in a binder or folder).

In addition to getting thyroid levels, before starting on the ATDs, make

sure you get a baseline for liver functions and CBC/WBC. You also should

have a TSI and TPO-Ab test; the TSI antibodies are responsible for Graves',

and many of those with Graves' also have TPO antibodies. You can read up on

Graves' in various places, like Elaine 's book, Graves' Disease: A

Practical Guide, and also at Mediboard.com and Graves_Support Group.

Best wishes,

At 04:57 PM 9/25/2003, you wrote:

>I am very new to this group so please bear with me and my lack of

>knowledge about hyperT. I go tomorrow to get my test

>results....everything points to hyperT - the fatigue, heat

>intolerance, tremors, palpitations, high blood pressure.....BUT NO

>WEIGHT LOSS!!!! I know the doc is going to want to put me on anti-

>thyroid meds and I can't face gaining weight. I have lost 30 pounds

>in the last 4 month - but I fought for every pound lost...it is not a

>result of hyperT. Anybody else have hyperT but without weight loss???

>thanks for any info you pass along,

>phillipa

www.aconner.com

www.cognitive-behavioral-therapy-ny.com

(212) 957-1732

[Guest guest]

Hi a,

According to the literature, about 10% of Graves' patients gain weight

instead of losing it, mostly younger patients. However, anecdotally it seems

that

about 30% of patients with GD gain weight early on.

While ATDs can cause mild weight gain, they also can cause weight loss since

they slow the appetite down. take care, elaine

[Guest guest]

a & Kate,

I lost while Hyper-T, but being on meds for one month, I've been gaining like

crazy...even with aerobics, weight training. I started doing weight watchers

just to try to keep it in check.

When I explained my concerns about weight to my endo, he told me " whatever

goes in, stays in. . . its not the thyroid making you gain weight, its that

you're eating too much " !!!!! Nothing could be further from the truth. Why

don't these docs know what they are talking about before they open their mouths!

I had not changed any eating habits - in fact, I think I was eating

healthier!!

Anyway, not that I can give any advice, but know you're not in this alone.

I'm working my butt off trying to keep the weight from creeping up.

e

[Guest guest]

In a message dated 10/1/2003 2:04:55 PM Eastern Daylight Time,

feralkkitty@... writes:

lost while Hyper-T, but being on meds for one month, I've been gaining like

crazy...

Dear e,

Have you discussed lowering your dose w/your endo? When I gained a few

pounds (also probably about 1 month after starting meds), my endo didn't believe

me

when I said I was starting to get hypo. I made him test my blood, after

which he agreed that I was slightly hypoT and should lower my dose. After a few

months of this, I was off the meds and totally fine (and still am, 6 1/2 years

later).

Good luck,

AntJoan

[Guest guest]

Hi a

I gained 40 pounds while hyperthyroid! And everytime I get at all hyper my

appetite becomes incredible and I start to gain again. By the way, I haven't

lost any of the weight that I gained.

Kate

phillipahurley wrote:

> I am very new to this group so please bear with me and my lack of

> knowledge about hyperT. I go tomorrow to get my test

> results....everything points to hyperT - the fatigue, heat

> intolerance, tremors, palpitations, high blood pressure.....BUT NO

> WEIGHT LOSS!!!! I know the doc is going to want to put me on anti-

> thyroid meds and I can't face gaining weight. I have lost 30 pounds

> in the last 4 month - but I fought for every pound lost...it is not a

> result of hyperT. Anybody else have hyperT but without weight loss???

> thanks for any info you pass along,

> phillipa

>

>

>

>

>

[Guest guest]

I think it's funny that we should all grasp at weight gain/loss. It feels to me

as

if maybe we see that as the only part of this disease that we can 'control'.

After

all it does seem to run it's course no matter what we do. But the reality is

that

we can make sure we do eat properly. I find that I do lose motivation from time

to

time and absolutely binge but overall I'm pleased to have managed to maintain my

weight after my initial gain. I just get hungry and need to eat.

My doctor is trying to track down why I suffer from digestive problems and at

the

moment I'm not supposed to eat wheat or wheat products, milk or milk products,

juice, soda (especially coke). Also I am to continue on a low fat diet. That

doesn't seem to leave me many things to eat. The lack of cheese and butter

seems to

be the hardest to accept. I have this feeling that if I continue like this I

may

lose weight just from not being able to think of anything to eat. Lunch is the

hardest meal of the day.

My doctor too says diet and exercise are the keys but I've done that already!

Try to watch closely what you eat.

Kate

feralkkitty@... wrote:

> a & Kate,

> I lost while Hyper-T, but being on meds for one month, I've been gaining like

> crazy...even with aerobics, weight training. I started doing weight watchers

> just to try to keep it in check.

>

> When I explained my concerns about weight to my endo, he told me " whatever

> goes in, stays in. . . its not the thyroid making you gain weight, its that

> you're eating too much " !!!!! Nothing could be further from the truth. Why

> don't these docs know what they are talking about before they open their

mouths!

> I had not changed any eating habits - in fact, I think I was eating

> healthier!!

>

> Anyway, not that I can give any advice, but know you're not in this alone.

> I'm working my butt off trying to keep the weight from creeping up.

>

> e

>

>

[Guest guest]

<You would want to consider HNI Peptizyde or AFP Peptizyde

http://www.houstonni.com/<

Can you tell me what these actually do? I am feeling sooooo clueless and

overwhelmed... I dont even know where to start...

HELP!!! We are doing acidophilus right now along with a mulit vitiam but I

know that is not " fixing " the " leaky gut " issues.

Biro

jaam1224@...

Memory Keeping at Its Best

Don't your priceless memories and photos deserve

more than a shoe box? I can help quick and easy.

Just ask, " How? " !

[Guest guest]

In a message dated 1/5/04 4:58:46 PM Eastern Standard Time,

jaam1224@... writes:

> Can you tell me what these actually do? I am feeling sooooo clueless and

> overwhelmed... I dont even know where to start...

In my opinion, the best place to start is Enzymes for Autism and other

Neurological Conditions by DeFelice. You can get it on amazon.com or at

her

website www.enzymestuff.com.

the website has the same great information plus but the book is a wonderful

read--laid out well and well written. Worth the money and time.

After you read the book and go to the website, this list is much less

overwhelming and extremely helpful.

Robin

[Guest guest]

> <You would want to consider HNI Peptizyde or AFP Peptizyde

>

> http://www.houstonni.com/<

>

> Can you tell me what these actually do?

They digest proteins, primarily gluten/casein/soy.

Dana

[Guest guest]

--

Hi a: hope you are still checking this site. I starting

reading this board looking for answers and when I read your piece,

it was my life: I was just diagnosed officially with hyperT (some

Graves signs) and was told to take the RI pill soon. I am scared of

this treatment, especially because I have to work so haaaard at

loosing or maintaining my weight. I always thought of people wiht

hyperT to be skinny but not me. I started doubting the doctor's

diagnose because of this. I have been on weight watchers and

loosing/maintaining like everyone else. I actually gained weight

last year (10 lbs!) and the thought of " slowing down " my metabolism

scares me to death. I have been otherwise a super healthy person,

east healthily, exercise, yara yara and feel like my body is

betraying me somehow. I don't get it. Why some people have the

symptons of hypo but are hyper? Anyhow, I wanted to know how you

are doing, did you do the RI?

Andreina

- In hyperthyroidism , " phillipahurley "

<phillipahurley@y...> wrote:

> I am very new to this group so please bear with me and my lack of

> knowledge about hyperT. I go tomorrow to get my test

> results....everything points to hyperT - the fatigue, heat

> intolerance, tremors, palpitations, high blood pressure.....BUT NO

> WEIGHT LOSS!!!! I know the doc is going to want to put me on anti-

> thyroid meds and I can't face gaining weight. I have lost 30

pounds

> in the last 4 month - but I fought for every pound lost...it is

not a

> result of hyperT. Anybody else have hyperT but without weight

loss???

> thanks for any info you pass along,

> phillipa

[Guest guest]

Do some research on adrenal fatigue. Your body has caught up with

itself and can't keep up with the added thyroid meds. You will have

to do some extra things to get back like you were. It will happen

slowly if you react like I did. Joan---

In hypothyroidism , " lajett00 " <lajett00@y...> wrote:

>

> I need some answers, please! About 2 1/2 months ago I was put on

> armour for hypothyroid. The first month and a half were great! I

felt

> better than I had in years (literally). I was more alert, had more

> energy, concentration and memory improved, depression went away

and I

> was just in a much better mood overall.

> At about the 2 month mark I started feeling tired again. I went and

> got blood work done again, so my dose has now been doubled to 30

mg of

> armour a day. It's been almost a week now and I'm not feeling any

> better. I can't concentrate. All I wanna do is sleep. I feel like a

> zombie! Is this normal and will I ever get back to feeling how I

was

> before? How does one deal with the fatigue and depression? I just

feel

> like I don't want to see or talk to anyone when I feel this way.

[Guest guest]

YOUR DOSE IS TOO LOW. YOU DON'T NEED ANOTHER TEST. DOUBLE THE DOSE

IMMEDIATELY.

You are giving your body a little thyroid hormone which is waking up the

cells and they are begging for more.

Gracia

>

>

> I need some answers, please! About 2 1/2 months ago I was put on

> armour for hypothyroid. The first month and a half were great! I felt

> better than I had in years (literally). I was more alert, had more

> energy, concentration and memory improved, depression went away and I

> was just in a much better mood overall.

> At about the 2 month mark I started feeling tired again. I went and

> got blood work done again, so my dose has now been doubled to 30 mg of

> armour a day. It's been almost a week now and I'm not feeling any

> better. I can't concentrate. All I wanna do is sleep. I feel like a

> zombie! Is this normal and will I ever get back to feeling how I was

> before? How does one deal with the fatigue and depression? I just feel

> like I don't want to see or talk to anyone when I feel this way.

>

>

>

>

>

>

>

[Guest guest]

your dose seems very low - 30 mg would not have touched the sides for

me.- I'm not sure that this dose would make your adrenals hit the wall -

but I guess its possible.

Kerry

help!

I need some answers, please! About 2 1/2 months ago I was put on

armour for hypothyroid. The first month and a half were great! I felt

better than I had in years (literally). I was more alert, had more

energy, concentration and memory improved, depression went away and I

was just in a much better mood overall.

At about the 2 month mark I started feeling tired again. I went and

got blood work done again, so my dose has now been doubled to 30 mg of

armour a day. It's been almost a week now and I'm not feeling any

better. I can't concentrate. All I wanna do is sleep. I feel like a

zombie! Is this normal and will I ever get back to feeling how I was

before? How does one deal with the fatigue and depression? I just feel

like I don't want to see or talk to anyone when I feel this way.

[Guest guest]

Hi,

I am in the U.K. and taking synthetic levothyroxine. Like you I felt great

for the first two months, then found myself slipping back and becoming

symptomatic again. It is only when you start feeling well, you realize how

many YEARS you felt so low grade lousy! I cannot equate grams of Amour with

mgs of levothyroxine but I am on 200mgs now plus separate T3. My biggest and

most ever present symptom is depression and brain fog. It took DECADES for

me to get as ill as I did, it will take years not weeks to feel normal

again.

Sorry if I sound less than supportive/helpful, but we are on a slow road to

recovery, we hypo's because this disease built slowly in us in the first

place. Hold on that good feeling in those first two months, and believe you

CAN and WILL have it back again. God Bless You in your quest for better

health.

Val

help!

>

>

> I need some answers, please! About 2 1/2 months ago I was put on

> armour for hypothyroid. The first month and a half were great! I felt

> better than I had in years (literally). I was more alert, had more

> energy, concentration and memory improved, depression went away and I

> was just in a much better mood overall.

> At about the 2 month mark I started feeling tired again. I went and

> got blood work done again, so my dose has now been doubled to 30 mg of

> armour a day. It's been almost a week now and I'm not feeling any

> better. I can't concentrate. All I wanna do is sleep. I feel like a

> zombie! Is this normal and will I ever get back to feeling how I was

> before? How does one deal with the fatigue and depression? I just feel

> like I don't want to see or talk to anyone when I feel this way.

>

>

>

>

>

>

>