Re: It has been so long - does anyone remember us?

[Guest guest]

Hey ,

I was just thinking of all of you yesterday. I say the name Hayden on

tv..hehe.

I missed seeing you at the convention last summer and have been

wondering where you were. I also have come and went with life's busy

schedule.

It's great to hear from you and know how you are doing. Please, check

Coby's photo section to see how well he's caught up with Carlee.

We've had some struggles, but overall he has done fabulous.

Take care and keep in touch,

le, mom to:

Shye 11, Brock 9, Coby (rss) & Carlee 3 yr old twins

[Guest guest]

Hello . Welcome back. That is great news about your Medicare

and the cooking class sounds like such a fun idea! Look forward to

hearing more from you.

- H ()

>

> Hi,

>

> I used to post here frequently about my son Colin who turns 5 in 2

> weeks. But we moved states and life has been crazy getting

> established and settled in our new home.

>

> The good news is that in Idaho they have a Medicaid program for

kids

> with chronic medical conditions that is not based on salary. So

the

> state of Idaho pays for EVERYTHING that insurance doesn't cover.

> After 4-1/2 years of huge medical bills it is wonderful. We had no

> idea when my husband accepted his new job that this program even

> existed. And they also will fund travel for the convention & for

> visits to Dr. H if she accepts Medicaid (I have to look into

> that??).

>

> The bad news is that there are very limited doctor choices in

Idaho.

> We were very spoiled in Portland, Oregon with the fantasic

> children's hospital. As far as I know there is only one other RSS

> child in town.

>

> Colin is still g-tube fed and making SLOW progress. I thought by

age

> 5 we'd be a lot closer to getting rid of the tube. He goes to a

> weekly feeding therapy session that is a cooking class with

another

> set of SGA twins. But he probably gets 60% of his calories through

> the tube.

>

> We have all the usual appts. coming up with the Endo,

> Gastroenterologist, etc. so we will see how he is growing.

>

> I hope to get back into this list again now that things have

settled

> down. I see some familiar faces.

>

>

> Colin (RSS) and Hayden - 12/6/00

> Grant - 12/30/03

>

[Guest guest]

- none of us forget you! I am so excited to hear about how

great Idaho's support is...maybe other families will move there as

well. Now if you could recruit a great peds endo there! My sister

moved from our town in So Cal to Sacramento a year ago, and we just

found out her company is moving her in the next few months to

Portland. Any hot tips of great restraurants? They have visited

and plan on living in the city itself, in an area whose name I can

not remember but it is next to or in a park/wooded area.

Jenn

>

> Hi,

>

> I used to post here frequently about my son Colin who turns 5 in 2

> weeks. But we moved states and life has been crazy getting

> established and settled in our new home.

>

> The good news is that in Idaho they have a Medicaid program for

kids

> with chronic medical conditions that is not based on salary. So

the

> state of Idaho pays for EVERYTHING that insurance doesn't cover.

> After 4-1/2 years of huge medical bills it is wonderful. We had no

> idea when my husband accepted his new job that this program even

> existed. And they also will fund travel for the convention & for

> visits to Dr. H if she accepts Medicaid (I have to look into

> that??).

>

> The bad news is that there are very limited doctor choices in

Idaho.

> We were very spoiled in Portland, Oregon with the fantasic

> children's hospital. As far as I know there is only one other RSS

> child in town.

>

> Colin is still g-tube fed and making SLOW progress. I thought by

age

> 5 we'd be a lot closer to getting rid of the tube. He goes to a

> weekly feeding therapy session that is a cooking class with

another

> set of SGA twins. But he probably gets 60% of his calories through

> the tube.

>

> We have all the usual appts. coming up with the Endo,

> Gastroenterologist, etc. so we will see how he is growing.

>

> I hope to get back into this list again now that things have

settled

> down. I see some familiar faces.

>

>

> Colin (RSS) and Hayden - 12/6/00

> Grant - 12/30/03

>